Diagnoses:
- Chronic Fatigue Syndrome (Questionnaire+symptoms)
- Bell's Palsy (left side, EMG)
- Post Orgasmic Illness Syndrome (Subcutane skin prick+symptoms)
- Postural Orthostatic Tachycardia Syndrome (>30BPM between supine and standing)
- A possible Intestinal Bacterial Overgrowth and Lactose intolerance (positive lactose hydrogen breath test)
- Structural Kyphosis (Cobb Angle = 70 degrees by scans)
- Blepharitis (2019)
The only diagnose that isn't based on physical data is CFS.
Peculiarities/miscellaneous:
- Enlarged/swollen left testicle, at age ~19/20 I believe , prior to POIS diagnosis (scan revealed benign thickening)
- Vitamin D deficiency (range:10-20)
- Iron deficiency (once, when I was 7 years old, don't have the value)
- Decreased urinary Sodium levels (Once, happened with onset of heavy POTS symptoms)
- Elevated ALAT (multiple times)
- Hypercobalaminemia
- Lifelong Premature Ejaculation (<10s)
- 3 Positive subcutane skin pricks with semen of 3 different men (same reaction as my own samples)
- Calcium hydrogen phosphate stones in stool (analyzed it at local hospital)
- White bumps/acne on shoulders and back
- White/yellowish uneveness/spots inside cheek which closely resembles oral fordyce granules
- Pearly penile papulas
- (past)Fungal infection inside of mouth (2 times), Local fungal skin infections at chest, penis, navel and continuous (present day) toenail infections
- Gastroscopy: Food from 9 hours ago was still in the stomach and Hyperaemia at the Z-axis. Conclusion was decreased corpus motility
- Mouches Volentes/floaters (Left eye, black points)
- Physiotherapist told me I was the only one who he could easily fold up in a certain way. Like pressing knees towards the face in a flat position. Hypermobile in certain positions.
- March 2008: MRI of the skull and MR-angiography of the carotid arteries: Slight mucosal swelling in the area of ??the nasal sinuses
- The fiber free diet I had to eat for a few days prior to the hydrogen lactose breath test gave me better stool
- Steroid injection into the groin area resolved local symptoms completely for at least 4 hours. Reminder: look up in archives what they used for injection, steroid might have inhibited IL-33 mediated MC activation, compare steroid with paper.
- I could not hold my left eye steady during measurements at the optometrist. I wasn't able to focus my eye to one point, it kept circling away and around that point. Something I noticed when reading but this time a professional noticed it as well.
- During recovery of Bell's palsy: I could not close my left eye without smiling (contracting a muscle(s) around corner of mouth). Neurologist told me that something might have went wrong during recovery, in that, nerves could touch eachother. He injected Botulinum toxin to destroy end plates again to let it recover properly. It helped somewhat.
- Reminder: Finding picture of anomaly in stool.
POIS Symptoms- Extreem fatigue
- A tingling/burning sensation, it leans more towards tingling than burning. It's difficult to describe this symptom. I have the idea that most tissue being affected by this symptom is located in a layer close to the skin
- Dark circles around eyes
- Muscle ache
- Stiff muscles
- Muscle cramp
- Joint pain
- Exercise/motion intolerance
- Heavy body
- Feeling cold/warm, feeling cold happens far more often than warm
- Decreased endurance, especially with the duration of standing and sitting straight
- Sensitive teeth
- Stinging pain at liver area
- Yellowing of facial skin (only when POIS puts emphasis on liver area)
- Pale skin and facial skin becomes like a babyskin
- Decreased vocabulary
- Articulation problems
- Poor concentration
- Grammar problems (constructing sentences suddenly becomes a puzzle)
- Short term memory loss (temporary)
- Motivation in general is being lowered and often completely wiped out
- I become someone without personality
- Indecision
- Accelerated Bowel movement, loose stools and sometimes diarrhea
- It amplifies my food intolerance/sensitivity
- Decreased digestion
- A sense of being full (digestion)
- Fasciculations
- Itching
- Soar Throat
- Mood swings
- Bad body odor
- Decreased accuracy of handwriting ,also problems with controlling videogames like aiming in FPS
- Faster spreading of local fungal skin infection at feet in POIS
- It can influence the heart, I suspect it's a change of heart rithm.
- Lung problems (bronchoconstriction or dilation?)
- Dry or greasy skin
- Decreased sense of smell
- Increased pressure in and/or behind the eyes, most frequent in left eye
- Dry mouth and activity on surface layer inside mouth (inflammation of mucosal membranes?)
- Stomach pain and/or makes stomach sensitive to foods, especially acidic food
(the above list is not complete, can also add frequency and relative intensity)
POIS DynamicsBefore desensitization:
Phase1 (Build up phase): POIS sets in immediately and builds up gradually. Sometimes the starting intensity is so low and speed of intensity build up (slope) slow that you only will notice it after some time (in some instances this could mean 30 min for example or in rare cases a few hours).
Phase2 (constant intensity phase): After approximately 24 hours symptom intensity reaches its maximum. It stays a bit lower by a small margin than the max and constant from the ~24 hour mark up to day 4.
Phase3 (Recovery phase): After day 4 symptom intensity will decrease. It feels like flipping a switch at the end of day 4. This recovery phase can take up 1-3 days. After that I still have POIS symptoms, this is like a constant offset.
There is a peak/maximum of fatigue intensity during the recovery phase.
!Perhaps I need to draw a graph to make it more clear
Scenario with sticky ejaculate:If the ejaculate is sticky some of it will stay behind post ejaculation, which leads to:
Burning sensation in urethra.
While it burns: The continues urge to urinate while having an empty bladder.
My anus starts to burn.
Urinating quickly after ejaculation helps prevent the above symptoms.
Lower part of spine/leg jolt:
Lung/POIS dynamics:
Event of cold attack by POIS during hot day:
Cold/Warm dynamics:
Social isolation dynamics:
Add reminder: Dynamics of Pre-ejaculate release without ejaculation and combination of pre-ejaculate phase with orgasm.
Chronological order of events2 days/1985: Cardiac arrest while my mother was breastfeeding me.
Age 7/1992: Iron deficiency. I looked very pale, had dark rings around my eyes and was thin.
Age 12/1997(age 10 or 12): My body failed regulating my breathing pattern, I had to do this manually which led to hyperventilaton. This happened on a very hot day.
Age 14/1999: Started to masturbate in my late 14's
Age 15/2000: Started to get really tired and I could not be in school on time early in the morning. There were also strange events like an erection that was not getting soft again and had no control over it. One time I was getting a burning sensation in my glans penis while I had a semi erection and was peeing.
Age 16/2001: I was questioning myself if there was something wrong immediately after a particular orgasm at one situation. I didn't take it that serious and shrugged it off. I was stupid not observing my general well-being the days after that orgasm.
Age 17/2002: I was playing a soccer match under hot weather conditions and felt like I didn't receive enough oxygen resulting in very deep and slow inhalations (blood pooling, typical POTS symptom). The same thing happened a few times during summer time on hot days in school where maintaining posture was more difficult than usual and displayed the same behaviour as the situation when I had that soccer match namely very deep and slow inhalations (not to be confused with hyperventilation). People sitting next to me were quite irritated by this breathing pattern.
Age 18/2004 Facial paralysis left side when I woke up in the morning after I visited someone who was celebrating her birthday. I drank 3 bottles of beer that night (I rarely drank alcohol at all, was never a drinker) which was a lot for me and also ate a lot of peanuts and remembered I was tired. This was a point where more symptoms starting to appear, it felt like an acceleration. Around this time I also did not get enough energy by meals even when I ate more because I was more physically active with sports. I could not get enough energy by eating.
Age 19 and up: Don't know the exact age and order, have to look it up. Oral fungal infection, tennis/golf elbow, heavy nerve pain at the inside of arms for one year, after that I got capal tunnel-like symptoms for a year, food intolerances went gradually worse in particular fruits.
Age 24/2009 POIS symptoms were so extreme that it became clear to me that ejaculation was the culprit. Searched the internet for sickness after orgasm, made an appointment with Prof. Dr. Waldinger, did get diagnosed with POIS and started hyposensitization treatment in early 2010.
Age 28/2013 Crisis year. Complete escalation during summer when I sat in a train and the sun shone on me, POTS symptoms exploded. Cardiovascular problems, autonomic instability, extreme temperature sensitive, tons of weird events. Around December food sensitivities suddenly became extreme out of nowhere, mucosal membranes were highly reactive to food.
Needs editing, to be continued Reminder: I can remember clearly I had food sensitivities around 8/9 years of age. Have to look it up if I had them before the age of 7. Liesproblemen vergeten. I have always been intolerant to hot baths as a kid. Slijmproductie in keel door Yoki. Doorslikken voedsel ging niet makkelijk als kind zijnde, moest appelmoes erbij eten. Lot of IBS-like symptoms early 20's (GP gave me Psyllium which made symptoms worse, took it a few times).
General SymptomsList of triggersRelease of pre-ejaculate
Food
High temperatures
Temperature change (Like going from >20 C inside and putting a garbage bag outside during winter <0 C without winter jacket (this can lead to sudden tension build up slightly above adam's apple at left and right side), however when dressed properly it has a positive effect)
Drinking tapwater
Airborne particles: Dust, Diesel exhaust, sigaret smoke, parfums, Food scent
Fatigue
Fasting
Exercise
Sleep deprivation
Stress
Large meals
Prolonged standing or sitting (sitting on a chair without back support wrecks me)
Prolonged discussions leads to fatigue which leads to more cognitive symptoms
Medicine/supplements: Citalopram 10 mg/day (headache), Daktarin oral gel (additional problem when addressing fungal oral infection)
Thunderstorm: breathing difficulties which can lead to hyperventilation at the moment before the storm hits.
Duration and frequency of triggers can make symptoms worse
Each trigger has its own dynamics and set of symptoms with overlap, I could add this later.
Synergy of triggersFood (split up in food and diet?)
I react to everything at a certain degree. Below are some examples. On top of my head:
- Apples. Wave of fatigue sets in approx ~1 mins after ingestion. Fatigue lasts about 10 or so mins. Different brands giving different intensity but same type of symptom.
- Banana. Lightly Nauseous once it enters the stomach, oral and throat mucosa can react to it as well. Unripe green banana's are far better tolerable.
- Fruit juices. Nauseous, fatigue, throat/stomach irritation, feeling it won't digest, horrible stuff.
- Tomato's. Nasal drip, runny nose, within 30 sec.
- Whole grains. Loose stools, heavy on my digestion system, other GI complaints which I have to look up, don't eat them anymore. Wheat can give me red pencil sized dots on my hand
- Nuts. Loose stools or Diarrhea, nasal drip or runny nose. Walnuts can give me a painful tongue. Pistache nuts give me relatively the least symptoms.
- Chocolate. Just not feeling well especially in my head, sometimes my brain react to it, brain fog. Sets in 60 min after ingestion but depends on the amount, you can clearly feel the difference from 50 g pure chocolate. Some chocolate brands give me sticky stool instead.
- Spinach. Activity in oral mucosa upon contact. Sets in immediately.
- Watermelon. Variable and depends on the amount. Fatigue. Sets in within a few mins I think. I can react to the scent of it as well. Watermelon is the best tolerable one out of all melons I have tried.
- Spices. Nasal drip or runny nose.
- Passion Fruit. Upper wall of mouth cavity hurts and nasal drip or runny nose.
- Oak leaf lettuce. Dry mouth and slightly painful mouth cavity, looser stools than usual.
- Citrus fruits. Just out of the question, sore mouth, sore throat, irritated lips with oranges. Green lemon Stool problems.
- Mix of frozen grilled vegetables: Bell Peppers, Eggplant(Aubergine), zucchini. Painful tongue. Did test this mix multiple times, symptom consistent.
- Chicken thights. (They used some spices, need to test them natural) Diarrhea.
- Leeks. Can't remember exactly but I believe it gave me gum problems, haven't eaten this for a long time
- Whey protein powders. Red Pencil like dots on hand, probably more symptoms but can't remember at this moment.
- Shrimp. Diarrhea. Dutch shrimps are the best tolerable.
- Potato skin. Fast and short lived flare of dryness at a spot within throat upon contact. Felt like center of spot being triggered and dryness spread out.
Food that are relatively better tolerable:
Fresh big black ripe cherries (red ones or the smaller ones are giving symptoms)
Dragon Fruit (White Pitaya), maybe the best tolerable fruit for me.
Iceberg lettuce
Kale
Chicken filet and legs.
Vigs
Potato's well-baked depends on brand.
Egg yolk (don't feel well on egg white)
Symptoms
Examples
Heat- Heavy body
- Weakness
- Fatigue
- Pressure in lower spine
- Feeling of low grade systemic inflammation as a function of temperature
- Cardiac problems, blood pooling
- Decreased digestion and GI motility.
- Focal headache in centre of brain
- Fasciculations
- Stiff muscles
Tons of other symptoms to add here.
POTS SymtomsSymptom dynamics/situationsFactors contributing to symptom reductionPOIS- 5 year long desensitization treatment 2010-2015 (permanent improvement, the amount varies with type of symptom. Fatigue is by far the most improved symptom, perhaps 80% reduction. For other symptoms it's harder to estimate how much they have been reduced, for most of them I think maybe around 50% but this is a very rough estimate). My POIS was quite extreme
- A long and good night of sleep
- Cold, especially Sub-zero environmental temperatures (perhaps have to put details about this one somewhere else)
- Gradually feeling better after midnight and best at 3:00 am
- Taurine (minor effect, 45 min before Orgasm ~1g)
- Antihistamines (minor effect, only clemastine if I'm not mistaken)
- Protein rich diet (minor). Quicker recovery. Best source for me is meat especially chicken.
- CBD oil (minor effect, need at least 2 drops of 10% to feel something)
Desensitization peculiarities: A few occasions where I felt normal (never felt so good), the onset (rapid within minutes to max) is somewhere between 30-60 min after subcutaneous injection. Happened more than once. Mucous layer in mouth felt fully developed as in thick, no dry throat, muscle strength increased, no food reactions, better resistance to weather conditions/temperature. The effect diminished from the point of onset over the course of tens of minutes (after that maybe some minor effect still present over the course of a couple of hours, hard to say, I could have some notes about it somewhere). If this effect was permanently then my health issues would basically have been fixed in my opinion. And I wonder whether that was a window of opportunity to apply rush therapy as in getting another injection.
POTS- Intens (heavy weights) body building exercises (most of them in flat or inclined position). Short powerful movements, almost explosive with Reps between 3-5. The trick is you need to induce a pump. Need to add more details
- Breathing slow and deeply (this is done instinctively when symptomatic)
- Strong beta blocker (need to look it up what type and dose)
- Low Carbohydrate diet
- Cold (heat exacerbates it)
- Laying flat (even the slightest head tilt can worsen symptoms)
- Salt (water without salt can exacerbate symptoms)
Food reactions- Heating food by high temperatures. Cooking food in boiling water doesn't do much. Cooking in pans, ovens or fryers leads to significantly less food reactions. The thickness of food is relevant as well. For example I'm more tolerant to thin sliced potatoes than thicker ones, some semi raw regions inside the centre of ticker potatoes can still trigger reactions
General Symptoms- Eating less in general
- Eating less sugar
- Skipping grains, nuts & seeds, diary for improvement of stool density
- Cold temperatures
- Low dose oral intake of food grade Liquid Hydrogen Peroxide solution (best thing I ever took needs details)
- Avoiding triggers
- Gradually feeling better after midnight and best at 3:00 am
Fungal skin infection feetVicks vaporub ointment a few times a week, add a thin layer that dries quickly.
Fungal infection oral cavityDakterin gel, flushing mouth (adverse reaction when swallowing)
More to add and need to go more into dynamics
Family membersFamily members on my mother's side show similar symptoms as I do. All the females who got health problems felt better during their pregnancies and felt worse during their menstrual cycle. My grandma actually looked forward to her pregnancy. My mother has 3 children, my aunt got one and my grandma has 4. They all felt physically better for every single pregnancy.
My younger brother:
- Diagnosed with Post-orgasmic illness syndrome (started in his 20's)
- Pectus excavatum
- Emphasis on neuropsychiatric symptoms
- Burning feeling in brain
- Very sensitive to food (had years of food sensitivities prior to the development of POIS)
- Insomnia
- High libido
- Sleepwalking
- Developed heat intolerance
- Cyst in his knee which impaired walking and was removed surgically
- He told me that benzodiazepines were the best type of meds he tried but stopped due to increasing tolerance and tendency to addiction. Nootropics had some effect on cognitive symptoms
- Feeling at his best at 3:00 am.
- High insulin, normal insulin sensitivity, reactive hypoglycemia (I have seen the measurements of low glucose vs time, data is lost)
- They did do a non-specific allergen degranulation test. My brother told me they observed degranulation before allergens were even applied. The source of degranulation is unknown
- Did measurements of HR changes between flat and standing position on brother during summer, this gave changes within the range of 20-30 bps but all <30. Measurements of mother and father did not exceed 5 bps.
Tons of symptoms and he had other diagnosis, I have to ask him about it. Will add later.
2020 summer: He had an acute attack of blood pooling (he underestimated how heavy this symptom is).
2020 Dec: Episode of schizophrenia/depersonalization, psychosis, whole body weakness, breathing difficulties. All together and went on for days. He told me he had the impression that there was a lack of oxygen in the brain and thought he passed out a few times.
2021 Jan: Hospitalized indefinitely mainly due to psychosis (Accompanied by OCD-like behaviour when I first met him in this state, repeating words/sentences to reach a certain number).
2021 feb:
Catatonia: response to IV Lorazepam.
Immune system?Mother:- Osteoporosis (5 years on Bisphosphonate had no effect on her osteoporosis, 2020: Using prolia injections)
- Carpal tunnel syndrome and delivering squeezing power with hand is difficult
- Pollen induced hayfever (elevated IgE)
- Low vitamin D
- Intravaginal sensitivities: Burning sensation upon contact with semen and latex sensitivity.
- A cold sore every now and then
- Easy bruising
- Unexplained areas of the skin that can turn red
- High cholesterol levels
- Blood pressure problems
- Calves feel heavy
- Varicose veins in legs (painful lower legs)
- Red eyes (Blood eyes, no visible eye white)
- Alternating constipation
- She had an accute attack of intestinal inflammation (Blood in stool, pain, elevated CRP)
- Getting attacks of cold
- Sense of feeling cold much of the time
- Stiff muscles
- She can touch her toes from a standing position while legs are straight
- Fluctuating pattern of symptoms
- Sometimes she feels and hears a big 'tick' inside her head, it's only one when it happens. Her most scary symptom.
- Brain MRI shows a small black dot (need to ask her about the position)
- My mother laying often on bed during the day when I were a young kid. She was stressed. She was probably in her early 40's.
- Often forgetting things
- Speaking mistakes (meaning one thing but saying something different)
- Difficulty coming up with the right word, searching for that one word that completes her sentence.
- Sometimes her tongue hurts by eating food, walnuts for example.
- Problems with citrus fruits.
- She can't sit still for a long time and has to be in motion.
- Difficult to sit in 90 degree angles.
- A flare of a nasty feeling around the heart area. (I got this as well, I think it's an inflammatory flare at the surface of the heart or heart muscle.)
- Bladder infection (peeing blood, used antibiotic)
- Eye Lid tremor
- Early satiety
- Idiopathic miscarriage
- Physical exertion can induce symptoms the next day
- She feels significantly better overal after menopause
July 2020: She had to push against a mobile caravan for a short time window with alot of force and felt immediately better afterwards.
Jan 2021: Involuntary Defecation, stressful period, Butterfly rash on her face (what you see in
lupus) appears more frequently.
Aunt (my mother's sister):
She had some sort of reddish/blueish rash over her body when she was a few years old. She was placed in quarantine and doctors couldn't figure out what is was, they were thinking of Rubella. Her skin became like sandpaper, when that happened dermatologists literally peeled the upper layer off. When they got rid of this sandpaper like layer she recovered. Dental decay despite good hygiene and dental care. She had food sensitivities.
I have asked her about her symptoms a while ago because Waldinger was curious about it. I will translate it literally what she has sent me.
- Persistent fatigue which is not restored with adequate rest and sleep.
- Always feeling sick, broke, general malaise.
- Temperature fluctuations (increase, hour later sub-temperature again, etc.)
- Vegetative reactions (sweaty hands, dizziness, disorientation, unstable feeling on the legs (rubber legs)).
- Orthostatic hypotension (seeing stars after squatting, getting up from a sitting position, etc.)
- Immune problems (pick up every virus that prevails and then spend 2 or 3 weeks with it under the pans that others have or do not suffer from or get rid of within a day or three) (non-specific and specific defense)
- Cognitive problems: difficulty concentrating, unable to focus, being woolly in the head, being unable to hold or complete thoughts, problems formulating sentences or coming to words. (one day better than the other, unpredictable).
- Short attention span (unsure with translation: korte spanningsboog), cannot maintain concentration or perform work for long periods. Must have limits in it.
- Light shyness (dutch = lichtschuwheid)
- Difficulty reading, double vision, night blindness (for my feeling from one day to another, according to optician at the time nothing wrong with my eyes).
- Sounds sound loud and penetrating (whiplash-like complaints).
- Headaches, sore throat.
- Regularly swollen glands in the neck and groin.
- Urticaria (urtica's, allergic skin reactions but no idea what I'm triggering from, often after picking up a virus or the like and often at the time of menstruation but sometimes also without any apparent cause).
- In the past: pituitary dysfunction resulting in no menstruation (approx. 3 to 4 years), sleep disorders, no melatonin production, disturbed biological clock (examined and determined by specialist), maternity mask (also called melasma) without being pregnant. Determined by dermatologist. Advice dermatologist at the time: have your thyroid function checked regularly. That done: TSH thyroid at 0.42 (on the lower limit). Just fell within the reference value so GP saw no reason for treatment. I gained 15 kilos in two weeks without changing my diet (blew up like a puffer fish), dry skin, night sweats, etc. I had all the symptoms of the transition while I was 32 or 33 years old. After taking blood samples I turned out not to be in transition, but my pituitary gland turned out to be working a little below standard but according to the doctor not to the extent that treatment was needed.
- Leucocyte values ??always increased! Whenever I have blood sampled, always increased! Hemoglobin just on the border.
- Adrenal dysfunction (cortisol, adrenaline) (mesologist diagnosis).
- Calcium household problems (mesologist diagnosis)
- Calf cramps (every day, night and morning to such an extent that it wakes me up).
- Must always dose my activities, including fun activities. After a birthday o.i.d. overtired.
- Avoid crowds regularly for that reason or have to plan that and reserve rest after that time to be able to refuel. And often that's not enough.
- Battery is empty quickly and takes a long time to get some spare. Limited taxability in many respects.
- Fungal infections are a common thread through my complaints. From about my 17th almost continuously suffer from vaginal fungal infections until around my 35th. Also regularly bladder infections where I got antibiotics from the doctor. But that naturally encouraged fungal formation. From around the age of 32 I was diagnosed with intestinal dysbiosis with opportunistic candida (by a nature doctor). Candida diet, anti-candidate drugs etc. These improved my health, mesological treatment has also contributed to this. To date, sensitive to yeast/fungi. Noticeable by stubborn athlete's foot and lime nails (sign that it is still not right). For years no longer suffer from vaginal fungus. Immune problems and others remain.
Grandma (My mother's side):
- Brain aneurysm (Age>70 years)
- Vascular dementia (Age>70 years)
- Periods where weakness in legs led to bedriddeness and couldn't walk stairs (this improved by oral injection of unknown substance).
- She went swimming during summer, accute locked up feeling in lower back once her hip got submerged when she entered the water, she couldn't get out of the water and had to be dragged out. She had weakness in her legs since this event.
- Multiple Transient ischemic attacks (TIA); One-sided facial droop etc
- Colorectal polyp
- She felt better when she did not eat
- Was intolerant to chocolate
- Even in her late 70s she could pick up her foot and plant it against her face
- Fainting (had this since childhood). She felt it coming. She didn't feel well and was getting hot prior to fainting. She had to lay down for better circulation when these signs showed up and had to cool down her forehead and wrists.
- Heavy pain around her feet and ankles. Did not happen a lot but it ramped up fast and she screamed. People had to put her feet into a tile of water. My mother can't remember what the temperature of the water needed to be, cold or warm.
- They did do a muscle biopsy on her but found nothing. It's unknown what they were looking for.
- Couldn't sit still for long periods of time. Need to be in motion.
- Bladder infection
- She felt better on Enterosalicyl.
- Constipation
- Bloating in the abdomen
- Episodes of low blood pressure
- They injected her something in her throat via the oral way and she did get better in general (substance unkown).
- Went a little crazy at the end of her life and died just like her grandmother.
- She used blood thinners because she had thick blood.
There was something with the hands, Raynaud?
Healthy Family membersThese folks are, from what I know, basically healthy but there are some oddities.
My older brother- Stuttering as a kid
- Insomnia
- Sleep apnea (mouth piece works)
2020 Dec (ask for exact month): Diagnosed ADHD and developed insomnia after periods of increased stress in his life (25 mg
Quetiapine before bed time works for his insomnia).
My mother's younger brother- At 3 weeks of age, 3 months hospitalized in critical condition due to upset intestines. Possible trigger: He drank porridge just before symptoms appeared, which were, continuously throwing up and upset intestines. My mother saw that the porridge was too thin, there was too much water in it in her opinion. She thought the brand of the porridge was called Nutrix. Symptoms disappeared spontaneous.
- He did get rashes over his body as a kid when entering chlorinated swimming pools. He outgrow this symptom when he got older.
- Chronic Depression
- Can have angry outbursts over nothing
I heard he had more problems during the past years like gut pain (details unknown) after he stopped smoking weed (was a daily weed smoker from what I know).
My mother's older brother- Cardiac issues (details unknown to me)
- He told me once that he finishes his showers with cold water and made him feel better.
- Isolated lifestyle
My older brother's daughter- She reacted to dust and milk when she was a few years old. I asked if this was a true allergy but nobody knows.
- Spontaneous bursts of saliva production
- Sometimes she looks pale with dark coloration under her eyes.
- Sugar cravings
- Acne
- She forgets to hydrate because she isn't thirsty. (I have this symptom, need to remind myself to drink)
- She has light asthmatic-like symptoms at this moment in time (15 years of age, Dec 2019). Her lungs make sound when exhaling quick which makes her breath heavy afterwards.
- Jan 2020, Runny nose when transitioning from warm to cold environment.
Deceased relativesMy mother's fatherCause of death was unknown. Autopsy revealed holes in intestines. Officially diagnosed with leaky gut after he died.
The son of my grandma's sister (mother's side)Organ failure due to persistent benign tumor growth
My dad's fatherDementia
My dad's motherCancer
Other family members, health status unknownThe daughter of the brother of my grandmother (mother's side)- She walks around with a body temperature of 35.0 Degrees Celsius since birth and is always cold, sometimes it drops to 34.5.
- Arthritis
- Her daughter faints when her daughter's core temperature rises
Commentary and thoughts on symptomsSymptom triggers are similar as seen in MCAS patients but are also a form of stress. Stress signaling/response could (be abnormal) affect the ANS which on its own could be in a state of sympathetic dominance outside of stress.
Looking at the factors which reduce symptoms I noticed that they increase parasympathetic activity by stimulating the vagus nerve.
https://selfhacked.com/blog/32-ways-to-stimulate-your-vagus-nerve-and-all-you-need-to-know-about-it/[/list]
