Author Topic: Women with Post Orgasmic Illness Syndrome  (Read 2906 times)

demografx

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Re: Women with Post Orgasmic Illness Syndrome
« Reply #45 on: January 23, 2020, 12:08:50 AM »
...my stress level was super high.
Stress again...

You talk about excessive masturbation or overmasturbating. This doesn't tell me anything if you don't mention the frequency.

What's your educational background if I may ask?

I'm not sure that these are appropriate questions to be asking a new poster, especially given that she hasn't engaged directly with you.

Many people who come to this forum have only just found out about POIS, and they are seeking reassurance and guidance.

Hurray, thanks for your point of view.

I also want to thank you for your many years of contributions here!


« Last Edit: January 23, 2020, 12:13:17 AM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Muon

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Re: Women with Post Orgasmic Illness Syndrome
« Reply #46 on: January 23, 2020, 09:05:54 AM »
I'm not sure that these are appropriate questions to be asking a new poster, especially given that she hasn't engaged directly with you.

Many people who come to this forum have only just found out about POIS, and they are seeking reassurance and guidance.

Fair point. Perhaps I shouldn't have asked them especially to new members.

Muon

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Re: Women with Post Orgasmic Illness Syndrome
« Reply #47 on: January 23, 2020, 01:01:23 PM »
9) I haven't done a soy allergy test, so I can't be sure if it's a true allergy or not, but I believe it isn't. I have been eating soy consistently since I was a kid, because a lot of foods that I love have soy as an ingredient or even the main ingredient (tamari sauce, miso, sushi), and never had any intense reactions except for stomach problems, and it took me years to realize that soy was the cause. It got worse when (around 10 years old) I incorporated new foods with soy into my diet and my digestive system couldn't take it anymore: I spent 4 months with colitis and lost half of my weight until thankfully my mother deduced that soy was the culprit. So I believe that, if it was a true allergy, I'd have had a more intense reaction. And yes, I've never tolerated soy well, and I've had that problem for as long as I can remember.

FOOD PROTEIN-INDUCED ENTEROCOLITIS SYNDROME (FPIES) ???

https://en.wikipedia.org/wiki/Food_protein-induced_enterocolitis_syndrome
« Last Edit: January 23, 2020, 01:04:19 PM by Muon »

Timtim

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Re: Women with Post Orgasmic Illness Syndrome
« Reply #48 on: January 29, 2020, 01:23:04 PM »
...my stress level was super high.
Stress again...

You talk about excessive masturbation or overmasturbating. This doesn't tell me anything if you don't mention the frequency.

What's your educational background if I may ask?
The frequency was like more than one time in a day. I remember masturbating at the age of 10 but I didn?t do it at the age of 12,13,14 but then I remember doing it at the age of 17,18,19 and I had orgasm I think 2 or 3 times a day. But it was not everyday. Maybe 4 days a week.
And my educational background, I have a B.S. in chemical engineering and I am not from an English Language country, and unfortunately  my English is not very good.
So I hope I understood you well and answered your questions clearly.
« Last Edit: January 29, 2020, 05:28:18 PM by Timtim »
My English is not very good, sorry about it.

Muon

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Re: Women with Post Orgasmic Illness Syndrome
« Reply #49 on: January 31, 2020, 03:33:39 PM »
I have a B.S. in chemical engineering...

I'm not surprised:

https://poiscenter.com/forums/index.php?topic=55.0

https://poiscenter.com/forums/index.php?topic=248.0

https://poiscenter.com/forums/index.php?topic=3031.0

https://poiscenter.com/forums/index.php?topic=220.0

https://poiscenter.com/forums/index.php?topic=3140.0

I've asked Ironfeather some questions. If you see a few interesting questions feel free to answer them yourself, but don't feel forced to do so. Perhaps there is some overlap between you and her.

https://poiscenter.com/forums/index.php?topic=2755.msg31943#msg31943

certainlypois2

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Re: Women with Post Orgasmic Illness Syndrome
« Reply #50 on: January 31, 2020, 10:45:22 PM »
ironfeather and timtim, how long does it take you guys to recover

Timtim

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Re: Women with Post Orgasmic Illness Syndrome
« Reply #51 on: February 01, 2020, 04:57:18 AM »
ironfeather and timtim, how long does it take you guys to recover
It takes 6 days for me to recover. I usually feel good on the sixth day and my face starts to look good again. But on the 7th day I feel totally better. However, recently I have been taking sertraline and I think it has made my symptoms worse and continuous. It's almost 3 weeks I am taking this pill and my symptoms are more in numbers and more severe and they tend to continue more than a week. 25 mg dose.
« Last Edit: February 01, 2020, 05:02:14 AM by Timtim »
My English is not very good, sorry about it.

Timtim

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Re: Women with Post Orgasmic Illness Syndrome
« Reply #52 on: February 01, 2020, 05:34:53 AM »
I have a B.S. in chemical engineering...

I'm not surprised:

https://poiscenter.com/forums/index.php?topic=55.0

https://poiscenter.com/forums/index.php?topic=248.0

https://poiscenter.com/forums/index.php?topic=3031.0

https://poiscenter.com/forums/index.php?topic=220.0

https://poiscenter.com/forums/index.php?topic=3140.0

I've asked Ironfeather some questions. If you see a few interesting questions feel free to answer them yourself, but don't feel forced to do so. Perhaps there is some overlap between you and her.

https://poiscenter.com/forums/index.php?topic=2755.msg31943#msg31943
I have read Ironfeather?s answers and I realized that there is considerable overlap between me and her!
Hi IronFeather,

1) You are talking about your teenage years, what's your age?

2) Symptoms started 1 year after your first period, was this the first time you masturbated?

3) Do you produce more natural lubricant when you orgasm?

4) How much time, roughly speaking, is there between the moment you start masturbating and reaching orgasm? There are people here with (lifelong) premature ejaculation.

5) Did you experience other symptoms before 'POIS' symptoms made their appearance?


7) Did they measure your vitamin D, lactoferrin, interferons, NK, T and B cells?

Here are my answers to these questions:

1) I am 27
2) I am not sure about the  first time I masturbated but as far as I recall I was around 10 and I remember I started to feel pois  at the age of 10 or 12 or something.
3) I don?t think I do. Actually I feel I produce less when I orgasm.
4) It takes a short time. Less than a minute maybe.
5) I don?t think so.
7) My vitamin D level was crucially low. It was 7 ng/mL while the normal was range was 20-70.
I took vit D and now it is 33.6 ng/mL
They did not measure others.
I also have thalassemia minor.
My English is not very good, sorry about it.

Muon

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Re: Women with Post Orgasmic Illness Syndrome
« Reply #53 on: February 06, 2020, 06:51:10 PM »
15) My two grandmothers died from breast cancer, and one of my grandfathers died of prostate cancer, but apart from that, the only health problems I can think of in my family are the endless digestive problems of my mother. She's been diagnosed with irritable bowel syndrome and lactose intolerance, but her troubles only appeared after the emotional turmoil of her relationship with my physically abusive father, so that might explain her issues.

Amazing, take a look at table 4: Characterization of Mast Cell Activation Syndrome

There are also casualties due to cancer in my family. IBS is associated with mast cell activation disease.

"Chronic inflammation is known to be a risk factor for malignancy. The data in this study suggest the families of MCAS patients bear various cancers at much higher rates than the general population, raising the question of whether MCAS underlies significant portions of the populations with at least some types of cancer. The outcome of cancer treatment has long been recognized to improve when comorbid mastocytosis is recognized and concurrently treated. [38] The data in this study suggest it may behoove oncologists to more commonly consider a comorbidity of MCAS when chronic multisystem inflammation and other symptoms more consistent with MC activation than cancer (e.g., syncope in non-metastatic breast cancer) are present in any given cancer patient."

But I believe it has to be POIS... Following O or even arousal, in less than 24 hours I get a fever, lose my appetite, my throat hurts so much I can barely swallow, I feel irritated and sometimes downright angry for no apparent reason, my skin gets very warm but I'm shivering and with a fast pulse... This is ruining my life, and the symptoms have been consistently getting worse and worse every time, to the point that I fear dying during one of these "POIS attacks". And lately my neck gets so stiff and hurts so much that I can't even takes notes properly in class. It's a nightmare.

Some of your symptoms are shown in table 2 of the previous mentioned link, including fever.
« Last Edit: February 06, 2020, 07:17:43 PM by Muon »

Muon

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Re: Women with Post Orgasmic Illness Syndrome
« Reply #54 on: February 09, 2020, 07:11:55 AM »
@ TimTim: Do you have a high libido? And what is your ethnicity? And third, do you have any problems with your stool, like abnormal frequency of toilet visits or abnormal composition?

@ IronFeather: What is your ethnicity?

Investigator

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Re: Women with Post Orgasmic Illness Syndrome
« Reply #55 on: February 10, 2020, 03:47:19 AM »
Welcome to the forum, TimTim and IronFeather, it's invaluable to hear female perspectives.

I never knew there was a female analogue of premature ejaculation or that women also have NE's. Time to learn.

I have a self-conflicting view on overmasturbation and POIS. On the one hand, it is clear to me that overmasturbation does not on its own cause POIS, since if that were the case, POIS would be a widespread disease and not a rare one. Really a lot of men overmasturbate, I've never considered myself one of them. In fact,  perhaps I have undermasturbated at times. On the other hand, the one time in my life when I overdid it, that's exactly when my POIS started. I remember that day: once a girl texted me with a clear signal we'll hook up in the evening, I masturbated at least once (maybe twice, this I don't recall) in the early afternoon in order not to do my usual terribly quick performance. Then with her in the evening, I did come quickly the first time, as usual. And I couldn't do it a second time at all, I didn't get aroused despite efforts. The next morning was the first time I felt POIS. 

Muon

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Re: Women with Post Orgasmic Illness Syndrome
« Reply #56 on: February 10, 2020, 12:34:47 PM »
However, recently I have been taking sertraline and I think it has made my symptoms worse and continuous. It's almost 3 weeks I am taking this pill and my symptoms are more in numbers and more severe and they tend to continue more than a week. 25 mg dose.

My 2 cents:

You were getting sensitized to sexual activity. The frequency of masturbation sped up the sensitization process, not causing it. Now you might be in a similar process with sertraline, sensitizing to it. With other words this might bring you in a worse state than before the use of sertraline. You probably need to switch medicine or stop using it (for some medicine you can't just quit all at once but needs to be tapered off over the course of time).

Same thing with IronFeather. She sensitized to some standard changes of parameters in the body as a result of sexual activity. It gets worse over time. Same thing with her soy sensitivity. She was in a sensitization process up to the point of colitis (which is another condition that could be related to mast cell activation disease).

Muon

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Re: Women with Post Orgasmic Illness Syndrome
« Reply #57 on: February 12, 2020, 09:19:37 AM »
16) No, not at all. I live a very stressful life as a student, always trying to get perfect grades and studying two degrees at the same time (I'm an extreme perfectionist), and it hasn't given me any problems so far, I'm used to stress and have always worked well under pressure.

You should not underestimate chronic stress, it can alter your immune function:

''Chronic stress can aggravate allergic conditions. This has been attributed to a T helper 2 (TH2)-predominant response driven by suppression of interleukin 12 by both the autonomic nervous system and the hypothalamic-pituitary-adrenal axis. Stress management in highly susceptible individuals may improve symptoms.''Ref