Hello all the members,
First of all I'm very happy to find a forum like this, because I'm sure that it's through sharing and advancing research that we'll make progress on the road to recovery.
I've had POIS for at least 5 years now, I'm 25 and this disorder is very difficult to live with on a daily basis, but I fight every day to find solutions.
I've personally made progress with natural solutions, although that's far from enough, but my research leads me to believe that POIS is a kind of transient immune disorder, I've researched mast cell activation syndrome and very similar symptoms are observed in POIS, linked to the release of substances like histamine and other potentially neurotoxic substances... during ejaculation.
I don't know exactly how this is possible, but it turns out that turmeric is the substance that has helped me most with POIS, I help myself as much as I can with it, but it's a sign that something isn't working properly in our bodies at the time of ejaculation. Turmeric has very strong anti-inflammatory and antioxidant properties, it helps me with all the symptoms and also the depressive aspect of POIS which is difficult to cope with. I also take magnesium, which soothes me and reduces allergic rhinitis following ejaculation. Magnesium has a stabilising effect on allergies and histamine too. This shows that there could be a drug resulting from research with these same properties, which could temporarily prevent mast cell degranulation to avoid a potential immune cascade, a hypothesis that I support, but the problem is very complex.
I have many hypotheses about POIS (immune anomaly, hormones, vegetative storm...), unfortunately I come up against the lack of knowledge about this disease and yet I clearly don't think I'm the only one, I can see that many people suffer from it on the forum: POIS Center.
I was able to consult a neurologist in France who listened to me and he thinks that this problem is due to a vegetative storm, a neuro-vegetative disturbance that leads to a multitude of symptoms such as stress, anxiety, depression, allergies, etc. I agree with his theory but I'm open to anything. I agree with his theory, but I'm open to all hypotheses, and I'd like to see him again soon to discuss it with him.
I wanted to know what stage research into POIS has reached in the world? I've seen that a new study has been launched by the NORD organisation in the USA at the University of Nebraska Lincoln. Has this study already started? Is it possible to get in touch with Dr Nicole Prause and Dr Tierney Lorenz to discuss our condition?
Thank you for everything, your presence on this forum is already a beacon of hope, don't give up and happy holidays!
