Recent Posts

41

Poll Center / Re: Neutrophils

« Last post by Sisyphus on November 21, 2024, 06:10:12 AM »

Thanks for the link Berlin. I didn't spot that WBC poll.
I think it's similar but not equivalent. Your neutrophils count forms a large part of your WBC count but is not the same as your WBC count.
It's a pity to only get a sample size of 15 votes (when you see how many members there are on this forum) so as someone has said, you can't read too much into that but I believe that result implies a higher % of poisers have low WBC than in the general population.

I think I'll leave the neutrophils poll up to make it specifically about neutrophils, high as well as low as options. Hope that makes sense.

42

POIS Research / Re: Gather and Post Here Your Medical Tests Results - Discussion Thread

« Last post by Sisyphus on November 21, 2024, 06:04:03 AM »

My neutrophils are typically only just below normal (1.89 10⁹/L in the most recent test) and when I've shown results like that to my doctor in the past, he tends to shrug his shoulders. I think they need to be much lower for him to take an interest.
I couldn't see a poll on neutrophil count in this forum so I've started one. I think it's potentially a biomarker for a subgroup of poisers and therefore of interest.

Transferrin saturation was 75% (normal is  20.1 to 50%)
Transferrin was 2.04 (normal is 2.01 to 3.8 g/l)
Ferritin was 150.66 (normal is 20 to 300μg/l)
Iron was 40.1 (normal is 5.9 to 34.5 μmol/l)
In previous tests my iron and ferritin levels have been normal, transferrin saturation is consistently high.

Re the haemochromatosis gene test, I don't know I'm afraid. My GP called me with the results at a bad moment and all I took in was that they were negative. I will try to find out and let you know Berlin.

43

Poll Center / Re: Neutrophils

« Last post by berlin1984 on November 21, 2024, 05:57:41 AM »

Is this equivalent to https://poiscenter.com/forums/index.php?topic=3392 or only similar question?

44

Poll Center / Neutrophils

« Last post by Sisyphus on November 21, 2024, 05:46:24 AM »

Some poisers report having low neutrophils. I wonder what % and I wonder how this compares with the general population. Let's find out. One vote per user which you can change, open ended poll.
For reference ranges, there seems to be very small differences from lab to lab. I suggest to vote based on what the lab told you or if in doubt, here's a typical reference range which the lab used for my blood test:-
normal (2 to 7 10⁹/L)
low (< 2 10⁹/L)
high (> 7 10⁹/L)

45

POIS Research / Re: Gather and Post Here Your Medical Tests Results - Discussion Thread

« Last post by berlin1984 on November 21, 2024, 05:45:18 AM »

high transferrin saturation
...
Regarding high transferrin saturation, I've had a gene test for hemochromatosis which was negative.

Did you also measure ferritin?
What was your transferrin saturation?
Which genes were tested for hemochromatosis, can you say the exact results? You might have symptoms even with heterozygous mutations.

46

POIS Research / Re: Gather and Post Here Your Medical Tests Results - Discussion Thread

« Last post by Warrior on November 20, 2024, 10:21:46 PM »

I just had some more general blood tests which I have done twice a year.
There are consistent patterns with my out of range blood tests, the ones of interest as follows:-

low neutrophils
high bilirubin (Gilbert's Syndrome diagnosis)
high transferrin saturation
low blood glucose
high testosterone
low PTH

Regarding low neutrophils, seems to be common amongst poisers. In my case I link it with all the recurrent infections I get.

Regarding high bilirubin, Gilbert's seems to be common amongst poisers.

Regarding high transferrin saturation, I've had a gene test for hemochromatosis which was negative.

Regarding low blood glucose, maybe this is just due to it being a fasting blood test.

Regarding high testosterone, haha, very deceptive. I'm built like a noodle and have the libido of a Panda. Low/normal testosterone levels seems more common in poisers.

Regarding PTH, I don't know much about it. My phosphate and calcium (adjusted) levels were normal. Does anyone else have low parathyroid hormone (PTH)? @Demografx - I read low PTH can cause tingling fingers and when I read this I thought of a symptom you mentioned in a post somewhere. I realise tingling fingers could probably be 100 other things but I wondered if you'd ever had your PTH tested?

I have low neutrophils. Very common amongst POISers. These have improved substantially for me though as I've worked on my protocol.

Interesting that you have high transferrin. I'm the opposite.

47

General Alternative Causes and Treatments of POIS / Re: Shower Gel Cured my Brain Fog?

« Last post by Sisyphus on November 20, 2024, 03:26:08 PM »

That's good you feel better after your shower with this shower gel Myagi. I'll probably stick with my ketaconozole shampoo for now but maybe I might try the one you recommend sometime. Best wishes with fixing your pois.

48

POIS Research / Re: Gather and Post Here Your Medical Tests Results - Discussion Thread

« Last post by Sisyphus on November 20, 2024, 03:16:12 PM »

I just had some more general blood tests which I have done twice a year.
There are consistent patterns with my out of range blood tests, the ones of interest as follows:-

low neutrophils
high bilirubin (Gilbert's Syndrome diagnosis)
high transferrin saturation
low blood glucose
high testosterone
low PTH

Regarding low neutrophils, seems to be common amongst poisers. In my case I link it with all the recurrent infections I get.

Regarding high bilirubin, Gilbert's seems to be common amongst poisers.

Regarding high transferrin saturation, I've had a gene test for hemochromatosis which was negative.

Regarding low blood glucose, maybe this is just due to it being a fasting blood test.

Regarding high testosterone, haha, very deceptive. I'm built like a noodle and have the libido of a Panda. Low/normal testosterone levels seems more common in poisers.

Regarding PTH, I don't know much about it. My phosphate and calcium (adjusted) levels were normal. Does anyone else have low parathyroid hormone (PTH)? @Demografx - I read low PTH can cause tingling fingers and when I read this I thought of a symptom you mentioned in a post somewhere. I realise tingling fingers could probably be 100 other things but I wondered if you'd ever had your PTH tested?

49

POIS Research / Re: Muon's Case

« Last post by Muon on November 19, 2024, 07:45:22 PM »

I was an eyewitness of a grand theft auto today. (stressful) Emotion triggered something in the middle of my head plus pressure in the lower part of the spine and upper leg weakness (rubbery legs). POIS isn't able to trigger this intensity of leg weakness anymore, it used to. Emotional trigger is at this moment way stronger than POIS when considering this specific symptom.

50

POIS Research / Re: POIS NORD RESEARCH STUDY

« Last post by demografx on November 19, 2024, 06:50:44 PM »

Dr. Nicole Prause, co-investigator of our upcoming
POIS Research Study got a chance to talk a little POIS in this podcast!
https://youtu.be/ImsB_q-5IIM?feature=shared&t=2100


Please watch the above video to get a better idea of what’s coming soon with our upcoming
POIS Research Study!

Demo