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Author Topic: Free Flow Discussion about POIS  (Read 1013066 times)

demografx

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Re: This may seem like a familiar place.
« Reply #2100 on: October 02, 2018, 05:56:34 PM »
Quote from: demografx on October 02, 2018, 01:11:01 PM
One of the worst POIS episodes *ever* experienced yesterday was because I took a
hot shower some time after POIS onset! I’ve written here before about it. Maybe now I’ll learn my lesson.

Don’t know why, but......it was pure torture! :(

I’m glad that Vandemolen doesn’t have the same problem

But others have mentioned similar experiences to mine.

Does anyone else who has problems with
hot showers or baths care to share your experiences?

Also, does anyone have any theories or educated guesses as to why this happens?

Many Thanks!

Demo


« Last Edit: October 03, 2018, 12:43:51 PM by demografx »
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #2101 on: October 02, 2018, 06:16:02 PM »
        



For those of you who have been following some details of my 10 years’ successful TRT treatment for my testosterone deficiency, which has resulted in my greatly improved POIS symptoms...here are my latest lab results:

https://poiscenter.com/forums/index.php?topic=17.msg25400#msg25400




« Last Edit: October 03, 2018, 07:59:12 AM by demografx »
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #2102 on: October 03, 2018, 11:10:18 PM »

A convenient way to see the most recent posts.

I bookmarked this link & use it frequently.

https://poiscenter.com/forums/index.php?action=recent
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #2103 on: November 12, 2018, 03:09:51 PM »
Relatively :)

"When an Orgasm Can Destroy Your Life" -- thanks to "Quantum" and other POISCenter FORUM Members!!
https://melmagazine.com/these-guys-will-do-anything-to-avoid-coming-279fc4eb1a8b?source=linkShare-898c3474bb43-1478806423
« Last Edit: November 12, 2018, 03:12:46 PM by demografx »
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #2104 on: November 15, 2018, 01:50:41 PM »
IMPORTANT ANNOUNCEMENT


I just checked in with NORD (National Organization of Rare Disorders)  - we're still on track! 

NORD's MAC (Scientific & Medical Advisory Committee)
https://tinyurl.com/y86fwt4t
is now reviewing the full POIS proposals from Research Teams and they hope to announce our $31,000 POIS Research Grant awardee by the end of the year!

For more background info, see Quantum’s post:
https://poiscenter.com/forums/index.php?topic=2462.0

Thank you again, magnificent POIS donor$!
« Last Edit: November 20, 2018, 11:18:35 PM by demografx »
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #2105 on: November 19, 2018, 10:15:31 PM »
Have a pleasant Thanksgiving Week!


« Last Edit: November 20, 2018, 11:17:12 PM by demografx »
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Quantum

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Re: This may seem like a familiar place.
« Reply #2106 on: November 27, 2018, 10:14:28 AM »
I wanted to bring to your attention that the forum has now 750 members :)
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You are 100% responsible for what you do with anything I post on this forum and of any consequence it could have for you.  Forum rule: ""Do not use POISCenter as a substitute for, or to give, medical advice" Read the remaining part at http://poiscenter.com/forums/index.php?topic=1.msg10259#msg10259

demografx

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Re: This may seem like a familiar place.
« Reply #2107 on: November 27, 2018, 01:39:22 PM »
Wow, thanks. Last I knew it was 600!
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Muon

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Re: This may seem like a familiar place.
« Reply #2108 on: November 27, 2018, 02:29:58 PM »
Quote from: demografx on November 27, 2018, 01:39:22 PM
Wow, thanks. Last I knew it was 600!
I'm disappointed by your comment Demo. I thought this thread was all about colored capital letters.  :(
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Limejuice

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Re: This may seem like a familiar place.
« Reply #2109 on: November 27, 2018, 04:14:17 PM »
Great news thanks!

Quote from: demografx on November 15, 2018, 01:50:41 PM
IMPORTANT ANNOUNCEMENT


I just checked in with NORD (National Organization of Rare Disorders)  - we're still on track! 

NORD's MAC (Scientific & Medical Advisory Committee)
https://tinyurl.com/y86fwt4t
is now reviewing the full POIS proposals from Research Teams and they hope to announce our $31,000 POIS Research Grant awardee by the end of the year!

For more background info, see Quantum’s post:
https://poiscenter.com/forums/index.php?topic=2462.0

Thank you again, magnificent POIS donor$!
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demografx

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Re: This may seem like a familiar place.
« Reply #2110 on: November 28, 2018, 11:30:30 AM »
Thank you, Limejuice!

And thank you for keeping the message alive! :)  :)


« Last Edit: November 28, 2018, 11:32:12 AM by demografx »
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #2111 on: November 30, 2018, 02:55:17 PM »
Quote from: Muon on November 27, 2018, 02:29:58 PM
Quote from: demografx on November 27, 2018, 01:39:22 PM
Wow, thanks. Last I knew it was 600!
I'm disappointed by your comment Demo. I thought this thread was all about colored capital letters.  :(

;D ;D ;D
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #2112 on: December 03, 2018, 02:44:07 PM »
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Vandemolen

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Re: This may seem like a familiar place.
« Reply #2113 on: December 03, 2018, 06:30:59 PM »
Quote from: demografx on December 03, 2018, 02:44:07 PM
Candida article FYI

https://sciencebasedmedicine.org/candida-and-fake-illnesses/
Yes  fungus in the mouth and vagina are recognized by regular doctors. Candida in the blood is not recognized by the regular doctors. Fact is that I and a few other POIS-patienst have a white tongue. In my case because of POIS and the use of antibiotics. Minoconazole helps me against the fungus on my tongue and mouth.
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POIS since 2000. Very bad since 2008. I knew that I have POIS since June 2010. Desensitization since March 2011. I stopped with desens in July 2016. I have 50% less POIS. And only 1 day of POIS. Purified CBD works for me, but I am allergic for CBD.

Observer

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Re: This may seem like a familiar place.
« Reply #2114 on: December 04, 2018, 01:09:30 PM »
Quote from: Vandemolen on December 03, 2018, 06:30:59 PM
Quote from: demografx on December 03, 2018, 02:44:07 PM
Candida article FYI

https://sciencebasedmedicine.org/candida-and-fake-illnesses/
Yes  fungus in the mouth and vagina are recognized by regular doctors. Candida in the blood is not recognized by the regular doctors. Fact is that I and a few other POIS-patienst have a white tongue. In my case because of POIS and the use of antibiotics. Minoconazole helps me against the fungus on my tongue and mouth.

Just some food for thought:

https://sciencebasedmedicine.org/candida-and-fake-illnesses/

https://rationalwiki.org/wiki/Candida

https://www.nhs.uk/conditions/thrush-in-men-and-women/

----

I am not saying that we should rule out this cause for POIS, but I think we should be wary of people offering miraculous treatments for this condition. Candida could only be a feasible option is our immune system is compromised in some way.

We should trust in mainstream medicine (Well, of course we can leave some room for criticism regarding the ethical part  or even the greedy one but that's another matter of discussion), and above all, in science.

I encourage all of you to continue sharing those treatments that have worked until a proper research starts.
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demografx

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Re: This may seem like a familiar place.
« Reply #2115 on: December 04, 2018, 04:30:10 PM »
Quote from: Observer on December 04, 2018, 01:09:30 PM
Quote from: Vandemolen on December 03, 2018, 06:30:59 PM
Quote from: demografx on December 03, 2018, 02:44:07 PM
Candida article FYI

https://sciencebasedmedicine.org/candida-and-fake-illnesses/
Yes  fungus in the mouth and vagina are recognized by regular doctors. Candida in the blood is not recognized by the regular doctors. Fact is that I and a few other POIS-patienst have a white tongue. In my case because of POIS and the use of antibiotics. Minoconazole helps me against the fungus on my tongue and mouth.

Just some food for thought:

https://sciencebasedmedicine.org/candida-and-fake-illnesses/

https://rationalwiki.org/wiki/Candida

https://www.nhs.uk/conditions/thrush-in-men-and-women/

----

I am not saying that we should rule out this cause for POIS, but I think we should be wary of people offering miraculous treatments for this condition. Candida could only be a feasible option if our immune system is compromised in some way.

We should trust in mainstream medicine (Well, of course we can leave some room for criticism regarding the ethical part  or even the greedy one but that's another matter of discussion), and above all, in science.

I encourage all of you to continue sharing those treatments that have worked until a proper research starts.

Excellent post, Observer!



« Last Edit: December 04, 2018, 08:48:30 PM by demografx »
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #2116 on: December 13, 2018, 09:22:36 AM »
I CANNOT WAIT TILL THE NEW YEAR 2019: b_jim WILL BE WITH OUR POIS FORUMS FOR...




THANK YOU, b_jim for your excellent service - - analyzing hundreds of POIS Cases on the Internet!!
« Last Edit: December 13, 2018, 09:24:33 AM by demografx »
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #2117 on: December 13, 2018, 10:29:29 AM »
Quote from: Observer on December 13, 2018, 08:04:46 AM

I have already filled the POIS survey, have you done it?


Yes!
Demo


Let’s all drive up the number of Yes’s!!!

« Last Edit: December 14, 2018, 02:58:49 PM by demografx »
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #2118 on: December 13, 2018, 11:16:10 AM »
Quote from: b_jim on December 13, 2018, 10:39:46 AM
Thanks !
I'm taking taurine since 2014  :)

Our job was to search and count the Pois sufferers we found on the internet :
https://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

440 cases, but i think we are at least at 1500 cases now !

Amazing, b_jim!

« Last Edit: December 22, 2018, 06:10:52 PM by demografx »
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #2119 on: December 14, 2018, 09:33:13 AM »
The hazards of self-diagnosis on the Internet

https://tinyurl.com/y9h3lmjw
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business
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