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Author Topic: Free Flow Discussion about POIS  (Read 1013026 times)

demografx

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Re: This may seem like a familiar place.
« Reply #1660 on: January 05, 2016, 05:31:04 PM »

Welcome
Marcusq and joelawerence!!




Please see the resources at our Page:
http://poiscenter.com/forums/index.php?topic=1.msg1#msg1

Best wishes!!

« Last Edit: January 05, 2016, 05:36:16 PM by demografx »
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Quantum

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Re: This may seem like a familiar place.
« Reply #1661 on: January 07, 2016, 08:18:57 AM »
Quote from: Marcusq on January 05, 2016, 12:27:58 PM
Hi everybody, my first post here as well, 28 years from Spain, hard Pois sufferer since 6 years ago, for me pois is a chain that takes you the half or your life, one week you are a normal person and the next one you lack energy to wake up in the morning, I have visited some doctors here but no reponse. I hope this forum and studies in course give us a solution, i have tried niacine, histamine, taurine methods but nothing new. As most of you pois starts one hour later and get the peak two days later.
Sincerely thank you everybody for the information you share here, this is the only way to get a solution.

Welcome Marcusq,

What are your other main symptoms, apart from severe fatigue ?

Do you suffer from hypotension (low blood pressure) when in POIS ?

Even if symptoms starts up to an hour after release, did you try take your supplements at least 30 to 20 minutes before E ?

There is no one single supplement that relieve all of POIS sufferers, so you may finally find one that will help you, at least in reducing the severity and/or duration of your POIS.  I suggest you try capsules of green tea extract, they are good at giving back energy  ( at least for me, and some other members as well).  There are some other simple and safe supplements you can try, that are good sources of antioxidants, like curcumin ( from peppered turmeric), rosemary extract, flaxseed oil, or grape seed extract.  You can make some testing, and finally find a mix that brings you some relief.   

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Going less Crazy

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Re: This may seem like a familiar place.
« Reply #1662 on: January 07, 2016, 11:03:56 PM »
Andy what do you mainly contribute your success to?  Diet? Exercise? Those pills?
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My POIS managed with Diet (@ diet that 100% manages my pois)Believe my POIS stems from inflammation in the gut. O = neuro POIS from inflammation from the gut

supps: microdose zyrtec if needed for food sens. ibuprofen for infl. as needed. Melatonin as needed. Big Pinch Black cumin  seeds once daily

demografx

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Re: This may seem like a familiar place.
« Reply #1663 on: January 08, 2016, 12:02:51 AM »
Quote from: mardi on January 05, 2016, 08:56:35 AM
Hello guys, my name is Mardi, I’m 24, I come from Italy.
I have the syntoms of POIS for almost ten years, like a lot of you I went to a lot of doctors, specialists (nefrologs, andrologs...) but nothing was understood. I tried to search also in the web, but... until yesterday I googled only in italian language!
Yesterday, casually, I wrote some of the syntoms in english, and... Here I am.
I discovered just yesterday that what I am feeling after orgasms is a illness, with a name and there are active studies and a forum about it...
So, I just am writing to say thank you to all of you: I realized that I am not crazy, and that this nightmare is not just my imagination, but a real pathology.
I hope that I’ll can give my contribution to the community.

Mardi


Hi Mardi.

Welcome

To POISCenter.com !



Please visit our Welcome

Page:

http://tinyurl.com/lwwns6z
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Prancer

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Re: This may seem like a familiar place.
« Reply #1664 on: January 08, 2016, 09:03:54 PM »
Welcome Marcusq & joelawerence! It's great to see other sufferers like us finding the forum for the first time. More heads together are better, and with no doubt this year looks super promising for defeating POIS!
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Prancer

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Re: This may seem like a familiar place.
« Reply #1665 on: January 11, 2016, 04:43:51 PM »
That's funny demografx! I'm referring to the "Prancer" pic you posted a couple weeks ago.

That car is soo F--ked up lol...kinda like me when I'm in a bad POIS episode. (https://www.youtube.com/watch?v=uFHehn0UOLU) I think warner bros totally ripped my name off (jk lol). Just the other night I saw a commercial for a new midsize SUV called the "GLC". Omg, conspiracy! Next there'll be a vehicle called demografx. lol
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demografx

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Re: This may seem like a familiar place.
« Reply #1666 on: January 11, 2016, 11:40:01 PM »
Quote from: Prancer on January 11, 2016, 04:43:51 PM

Next there'll be a vehicle called demografx. lol




The 2016 demografxmobile...see your local dealer @ demografxauto
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #1667 on: January 14, 2016, 03:07:37 PM »
Article: "Post-Orgasmic Illness Syndrome: Orgasm Health" in Men's Journal. Possibly posted before, it's from 2014.

Mentions NORD & Dr Komisaruk

"Post-Orgasmic Illness Syndrome
For some, there is a big downside to orgasm. Post-orgasmic illness syndrome (POIS) is a rare disorder where people feel ill after orgasm. Symptoms can include intestinal discomfort, headache, and general malaise. "Just having orgasms makes them feel sick for days after and nobody really knows what the mechanism is," says Komisaruk, who has just secured a grant from the National Organization of Rare Diseases to study this affliction. No one knows how common POIS is, but Komisaruk is currently working with a couple dozen men with the symptoms to shed further light on this disorder."
http://www.mensjournal.com/health-fitness/health/post-orgasmic-illness-syndrome-orgasm-health-20140414#ixzz3xFg35Vnx


« Last Edit: January 14, 2016, 11:16:32 PM by demografx »
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #1668 on: January 17, 2016, 05:56:28 PM »
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

COLM_2

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Re: This may seem like a familiar place.
« Reply #1669 on: January 18, 2016, 07:17:24 AM »
Demo,

Firstly I think "hats off" to the two gentlemen for baring their souls on their experiences.

The first gadget I think demonstrates how far guys are prepared to go to find a reduction in symptoms and life impacts. Unfortunately, am not qualified to know if there is any validity behind the "gadgets",, but without doubt credible devices that can stimulate good energy and push on belief in recovery (once it isn't false hope), is positive.

Colm
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Formerly user COLM (previous username accidentally deleted). Few decades with POIS.

demografx

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Re: This may seem like a familiar place.
« Reply #1670 on: January 18, 2016, 07:44:38 AM »
Thank you, Colm
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #1671 on: January 20, 2016, 03:42:28 PM »


Begin forwarded message:

From: Barry Komisaruk <brk@psychology.rutgers.edu>
Date: January 20, 2016 at 12:31:24 PM PST
To: demografx
Subject: Re: Vagus nerve

Stephen W. Porges: The Polyvagal Theory.

Barry R. Komisaruk, Ph.D.
Distinguished Professor, Dept. Psychology
Adjunct Professor, Dept. Radiology
Board of Governors Distinguished Service Professor
Rutgers, The State University of New Jersey
Smith Hall, Room 327A
101 Warren Street
Newark, New Jersey 07102

phone:  973-462-0178 (mobile)
       973-353-3941(work)
fax:    973-353-1171

On 1/20/2016 3:27 PM, demografx wrote:
Hi Barry,

Can you kindly recommend a reading source for people (like me!) who are seeing the term, " vagus nerve", for the very first time?

Best
[demo]
« Last Edit: January 20, 2016, 03:44:07 PM by demografx »
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #1672 on: January 20, 2016, 07:51:08 PM »


Book recommended by Dr Komisaruk/Rutgers


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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #1673 on: January 20, 2016, 08:05:28 PM »
YouTube interview with Stephen Porges on Polyvagal Theory:
http://www.youtube.com/watch?v=8tz146HQotY&sns=em


« Last Edit: January 20, 2016, 08:20:22 PM by demografx »
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Quantum

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Re: This may seem like a familiar place.
« Reply #1674 on: January 20, 2016, 11:57:23 PM »
Quote from: demografx on January 20, 2016, 08:05:28 PM
YouTube interview with Stephen Porges on Polyvagal Theory:
http://www.youtube.com/watch?v=8tz146HQotY&sns=em


Hi Demo and everyone,

Also, a good summary of the Polyvagal Theory can be found at https://en.wikipedia.org/wiki/Polyvagal_Theory

 

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demografx

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Re: This may seem like a familiar place.
« Reply #1675 on: January 21, 2016, 12:06:55 AM »
Thanks, Quantum!
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

mellivora

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Re: This may seem like a familiar place.
« Reply #1676 on: January 21, 2016, 03:38:39 PM »
Extremely interesting video Quantum, thanks for sharing. I like this area of investigation. It potentially links otherwise confusingly diverse symptoms and observations. e.g. how POIS can result in changes in voice (mine used to become quite husky), looser stools, withdrawal from social situations and yet, social situations with people I'm comfortable with can seem to improve at least cognitive symptoms of POIS, at least temporarily. It also can help explain why meditation and/or breathing exercise is reported to help some people here. I'll be looking into this theory some more and I congratulate the people of NORD for singling out Dr Komisaruk. Whether, its the right track or not, its an inspired choice based on what I've read so far.
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demografx

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Re: This may seem like a familiar place.
« Reply #1677 on: January 22, 2016, 05:51:18 PM »

Mel, great to "see" you again! :)
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Quantum

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Re: This may seem like a familiar place.
« Reply #1678 on: January 23, 2016, 03:42:20 PM »
Hi Demo,

Thanks for pointing out the importance of the Polyvagal Theory for the understanding of the ongoing POIS research.   I think it deserves a thread on its own, so I have started a thread on the Polyvagal Theory here:  http://poiscenter.com/forums/index.php?topic=2200 . 

Knowing more about the Polyvagal Theory and how it sees the inlfuences of the two different branches of the vagus nerve ( has described by this theory), will be important to have a better understanding of the papers that will come out of the current Rutgers study on POIS.

I will copy there the references that have already been given in this thread about the Polyvagal Theory.

Here is an interesting primer:





Quote from: demografx on January 20, 2016, 03:42:28 PM


Begin forwarded message:

From: Barry Komisaruk <brk@psychology.rutgers.edu>
Date: January 20, 2016 at 12:31:24 PM PST
To: demografx
Subject: Re: Vagus nerve

Stephen W. Porges: The Polyvagal Theory.

Barry R. Komisaruk, Ph.D.
Distinguished Professor, Dept. Psychology
Adjunct Professor, Dept. Radiology
Board of Governors Distinguished Service Professor
Rutgers, The State University of New Jersey
Smith Hall, Room 327A
101 Warren Street
Newark, New Jersey 07102

phone:  973-462-0178 (mobile)
       973-353-3941(work)
fax:    973-353-1171

On 1/20/2016 3:27 PM, demografx wrote:
Hi Barry,

Can you kindly recommend a reading source for people (like me!) who are seeing the term, " vagus nerve", for the very first time?

Best
[demo]
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demografx

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Re: This may seem like a familiar place.
« Reply #1679 on: February 06, 2016, 09:22:13 PM »
Lesson: don't give up!

<demo @ NSF ca. 2012>

"An fMRI of POIS!

I just now contacted Dr Komisaruk and we will hopefully get the full paper.

A couple years back, I tried to enlist the support of Dr Komisaruk and his 2 co-authors of their book, "The Science of Orgasm", sadly, no replies. "

But this went into NORD's database and he was invited to submit his proposal to POISers!

« Last Edit: February 06, 2016, 10:25:10 PM by demografx »
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business
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