Author Topic: Free Flow Discussion about POIS  (Read 578518 times)

demografx

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Re: This may seem like a familar place.
« Reply #90 on: July 12, 2012, 11:08:50 PM »

Mighty fine and powerful words, Daveman.

Thank you ever so much.



10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familar place.
« Reply #91 on: July 13, 2012, 01:56:23 AM »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

tantalus

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Re: This may seem like a familar place.
« Reply #92 on: July 13, 2012, 01:19:53 PM »
as an exception this  reply here on family feel topic because most new users come here too.

Recommendation? about NIACIN START
Dear Daveman or other Niacin avatars. Maybe its a good idea to write a manual for beginners somewhere  on pois center with everything to know about starting to use Niacin  for the first time,for new users like me. Or start a new topic "starters guide to niacin" We  will find the more guideline info about Niacin or Niacin-amide much more easy then, and are also able to skip al discussions beyond that theme for  later to read. It also prevents missing necessary info, because info about the first trial of niacin and experiences users had as they started, is spread over to much different topics.  

for me...I had to read so much, I forgot the most practical things to know for starting and how often and how long continuing the medication during the pois period after ejaculation.  ASAP.
[/color]

« Last Edit: July 13, 2012, 05:31:45 PM by tantalus »
4 years desensitized, health progr. average 70%  top 90%, ,overreaction stops 3X (herpes+meningeal irritation, sideeffects towards end ( hyperacusis), stopped at 4to1, retrograde after stop,re-entry soon. negative progesterone effect pois. . (new supervised med. trial planned soon) Niacin not tried

Ccconfucius

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Re: This may seem like a familar place.
« Reply #93 on: July 13, 2012, 02:23:48 PM »
if vitamin b12 talk picks up here this are my results.

My vitamin b12 and folic acid came out good.

726                out of     211 - 946 pg/ml
15.4                 out of >3.0ng/ml
for folate acid considered deficient if <2.2 ng/ml

tantalus

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Re: This may seem like a familar place.
« Reply #94 on: July 14, 2012, 07:33:16 AM »
NIACIN ......I did discoffer* the search engine to read all niacin related topics..there are 86 replies !! [ to give the total 'picture' for beginners  for starting whitouth to much contradicting advises how to use during the pois days......  and how often....... and when exactly, etc  /color]

I do not like to ask here unnessecary questions already askt /answered, so i read them all before I come back here to ask my
questions. Daveman did give verry good  practical info for start , but i like to integrate the average meaning off other senior replies too. Daveman please wait replying here  til I come back here. 

* spelling-control put a red line here but does not give any clue why. ;>)
« Last Edit: July 14, 2012, 07:50:47 AM by tantalus »
4 years desensitized, health progr. average 70%  top 90%, ,overreaction stops 3X (herpes+meningeal irritation, sideeffects towards end ( hyperacusis), stopped at 4to1, retrograde after stop,re-entry soon. negative progesterone effect pois. . (new supervised med. trial planned soon) Niacin not tried

demografx

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Re: This may seem like a familar place.
« Reply #95 on: July 15, 2012, 05:22:36 PM »
Welcome to the Familiar Place thread of PoisCenter.com ! We believe that 2012 is POIS' Breakthrough Year. We hope to launch serious POIS Medical Research. A great time to be here.    


**(If you have any technical questions, please feel free to PM (private message) Daveman or me -- or another forum member - - go towards the end of this welcome message (after the 5 available research articles are described) for instuctions on how to send PM. We'll be happy to explain.)***


If you haven't already done so, but would like to like to join the new forum,  send "daveman" a PM here.


Here are some POIS resources which may be helpful to you:

Click here to see Mat780's excellent YouTube POIS Channel.   Mat's YouTube videos include (1) our great new April 12 POIS TV Documentary. A must-see. And (2) The Learning Channel documentary, featuring our forum member "Animus".

Click here to see The POIS reddit post.  Outsiders (non-POISers) spontaneously gifted NORD's POIS Research Grant $1,000+ from this reddit post. Thanks to "mellivora" and "CCconfucius"!

Our POIS chatroom (realtime chat). Invite or visit another member(s) there, ANY TIME. We can all get to know each other better:
Just click here first, and then look for "CHAT" button towards top of page, 4th button to your right!

Our alternate POIS Forum - architectural genius: "daveman" - for detailed subject-by-subject discussion.
http://www.POISCenter.com/forums/index.php
Our 5-year-old POIS thread here at Naked Science Forum will also always remain open for newcomers, for general unstructured discussion, and historical research of the 10,000+ postings here since 2007.

Our POIS Information Website, built by "mat780", is here:
http://sites.google.com/site/POISwebsite/

The POIS Information Website is home to the POIS Forum Compendium, written by "Pyropeach", and contains theories already discussed here and treatments that have both worked and failed.

Please see "B_Jim"'s POIS Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:
http://www.youtube.com/watch?v=UWBxAUC9k1g


Post Orgasmic Illness Syndrome "POIS": Case report

Authors:
Abdalla M Attia*, Magda H Al-Ziny, Hossam A Yasien
*Corresponding author: Andrology Unit, Minoufiya University, Shibin El Kom, Eygpt

For more info, check out emi_b's  SMF POIS thread:
http://poiscenter.com/forums/index.php?topic=191.0;topicseen


POIS Research Studies available Upon Request:

1. and 2. POIS Research Studies, 2011

These 2 papers reveal Dr. Waldinger's POIS autoimmune hypothesis and suggest one possible avenue of treatment.

3. First POIS Research Study, 2002

We have a copy of the first formal medical investigation on POIS by Prof. dr. Marcel D. Waldinger,MD, Ph.D., and Dr. Dave Schweitzer, MD.

  
4. Recent POIS Research Study, 2010

CASE REPORT
Postorgasm Illness Syndrome - A Spectrum of Illnesses
Jane Ashby, MRCP, and David Goldmeier, MRCP
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg316781#msg316781


5. British Medical Journal Case Report, 2010

Case study by Dr. Selwyn Dexter of a patient with a headache-featured POIS symptom treated with progesterone/norethisterone.
http://casereports.bmj.com/content/2010/bcr.10.2009.2359.short?rss=1


How to get any or all of the above 5 studies: send me or "daveman" a Private Message (PM) with your regular email address (use "AT" instead of "@" ) and we'll send you back the PDF(s).

To send a Private Message, click on "My Messages" at the top of this page. Then click "Send Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.


New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse

- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

In addition to serving our own informational interests, the resources listed above can be useful for you to show our credibility to the medical world - which often shows little understanding and is sometimes skeptical of our condition: POIS has scientific underpinnings and POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapeutic community. All of this information can greatly help you to fight the immediate reaction of some doctors: so just tell them, "IT'S NOT 'ALL IN YOUR HEAD'! "





It can be very  helpful to you when dealing with medical professionals to point this out. Click to see

POIS' official listing, as recognized by the
National Institutes for Health (NIH), Office of Rare Diseases Research
:


And in Europe: Orphanet now lists POIS on their website. - Click here.

The Post Orgasmic Illness Syndrome (P.O.I.S.) Forum is listed in the organization database of the National Organization for Rare Disorders (NORD) -- http://poiscenter.com/forums/index.php.  The link for this, through their home page, is --
http://rarediseases.org/rare-disease-information/organizations/byID/3136/viewDetail.


POIS also appears in credible medical sources such as the Journal of Sexual Medicine (Dr. Waldinger's study), British Medical Journal (Dr. Selwyn Dexter's study), and wikipedia:
http://en.wikipedia.org/wiki/Postorgasmic_illness_syndrome

For over 5 years, our POIS forum has attracted over 200 POIS sufferers worldwide who have posted here, research on an additional 200 sufferers elsewhere on the internet, plus our pages have been read nearly 2,000,000 times. Not bad for a rare malady.

Show some of this to your doctor - with pride. Chances are, you know far more about POIS than s/he does. Don't be intimidated by fancy diplomas. It's almost impossible for any one doctor to know much about POIS before you walk into his/her office. Unfortunately, it's up to you to educate them. And if you happen to find yourself with a disagreeable "student"-doctor (you're the teacher), find another doctor. Quickly!

SEARCH THE FORUM WITH GOOGLE

We have an overwhelming amount of NSF data: more than 5 years' worth of posts (over  10,000 posts!) from 200+ Forum members, and an additional 200 POIS sufferers found elsewhere on the Internet by Member B_Jim.

In the Google search box, type
whatever-it-is-you're-interested-in-finding-out[space]POIS[space]site:http://thenakedscientists.com/

for example, I tried
nocturnal emission POIS site:http://thenakedscientists.com/

and 740 results came up for "nocturnal emission" within the Forum.

be careful with spaces (you can use them before the word "site") and no-spaces (everything after the word "site")

Google even provides you results with the Message# for each result. But Message #'s do change, so be patient and look for the approximate Message#.




« Last Edit: July 15, 2012, 05:44:46 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familar place.
« Reply #96 on: July 15, 2012, 05:24:58 PM »

if vitamin b12 talk picks up here this are my results.

My vitamin b12 and folic acid came out good.

726                out of     211 - 946 pg/ml
15.4                 out of >3.0ng/ml
for folate acid considered deficient if <2.2 ng/ml


Thanks for posting your results, Cert!
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familar place.
« Reply #97 on: July 19, 2012, 12:52:14 PM »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familar place.
« Reply #98 on: July 20, 2012, 10:30:46 PM »



$9,270.00 $9,350.00 $10,272.00 $10,302.00 raised    
THANK YOU FOR THE $30 TODAY!!!!
towards our $33,500 goal.


Click here to CURE POIS:





Click here to read more about The POIS Medical Fund






« Last Edit: July 20, 2012, 10:36:58 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Stef

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Re: This may seem like a familar place.
« Reply #99 on: July 21, 2012, 05:00:35 PM »
Hi All --

Someone made the first new donation yesterday to your research fund, for the month of July.   (This is in addition to the two monthly, automatic donations that come in from two forum members.).

Thank you for acknowledging him, Demo -- I hope he's seen it!!!!!

Your indiegogo crowd-sourcing campaign will bring in funding -- definitely!!! --> BUT YOUR HELP --> EACH OF YOU --> WILL BE NEEDED TO MAKE IT A REAL SUCCESS!!!

Every $ is precious!

Stef


demografx

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Re: This may seem like a familar place.
« Reply #100 on: July 22, 2012, 01:54:32 AM »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

tantalus

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Re: This may seem like a familar place.
« Reply #101 on: July 22, 2012, 04:10:35 AM »
yes he has seen it. :) its quarterly year donation,so each 3 months. maybe the donation site can be adapted to this.
Please other users may I ignite , encourage you all to donate too? ::)It takes a view minutes, but is so worthwile for us all :-* :-*
« Last Edit: July 22, 2012, 04:12:11 AM by tantalus »
4 years desensitized, health progr. average 70%  top 90%, ,overreaction stops 3X (herpes+meningeal irritation, sideeffects towards end ( hyperacusis), stopped at 4to1, retrograde after stop,re-entry soon. negative progesterone effect pois. . (new supervised med. trial planned soon) Niacin not tried

tantalus

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Re: This may seem like a familar place.
« Reply #102 on: July 22, 2012, 04:13:13 AM »
soon i will post here my first  NIACIN experiences.
4 years desensitized, health progr. average 70%  top 90%, ,overreaction stops 3X (herpes+meningeal irritation, sideeffects towards end ( hyperacusis), stopped at 4to1, retrograde after stop,re-entry soon. negative progesterone effect pois. . (new supervised med. trial planned soon) Niacin not tried

demografx

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Re: This may seem like a familar place.
« Reply #103 on: July 22, 2012, 08:08:38 AM »
yes he has seen it. :) its quarterly year donation,so each 3 months. maybe the donation site can be adapted to this.
Please other users may I ignite , encourage you all to donate too? ::)It takes a view minutes, but is so worthwile for us all :-* :-*

THANK YOU, TANTALUS!
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familar place.
« Reply #104 on: July 22, 2012, 06:53:10 PM »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business