RUTGERS POIS STUDY UPDATE
Daveman and I have been in touch with Jacqueline Kraska, Research Programs Manager at NORD, a few times since the end of October about obtaining the Interim Report.
She has been in touch with Dr Komisaruk a number of times about it.
With her permission to post this on our forum, this is Jacqui's most recent reply to me and Daveman [my edits in brackets]:
On Dec 2, 2015, at 10:22 AM, Jacqueline Kraska <jkraska@rarediseases.org> wrote:
Dear [demo and Daveman],
I just got in touch with the PI [Principal Investigator, Dr Komisaruk/Rutgers] who has promised to send me the report by the end of next week. He said the delay was due to juggling multiple deadlines at the end the semester. I will make sure I send you the information as soon as I have it.
Kind regards,
Jacqui