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Author Topic: Free Flow Discussion about POIS  (Read 1013147 times)

demografx

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Re: This may seem like a familiar place.
« Reply #1140 on: May 05, 2014, 10:32:25 AM »
Thanks, Prancer and Colm!

(Your names together sound like a law firm! ;D )
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #1141 on: May 05, 2014, 10:34:52 AM »
[mod edit ;D]

Quote from: Colm on May 05, 2014, 04:16:14 AM

Potentially This is Ground Breaking News for POIS!






« Last Edit: May 05, 2014, 05:54:33 PM by demografx »
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #1142 on: May 12, 2014, 02:45:14 PM »
I might visit with Dr K this summer.

Mostly to listen.

« Last Edit: May 12, 2014, 03:29:32 PM by demografx »
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #1143 on: May 17, 2014, 03:47:02 PM »
« Last Edit: May 17, 2014, 03:48:49 PM by demografx »
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Disaster

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Re: This may seem like a familiar place.
« Reply #1144 on: June 02, 2014, 02:06:54 AM »
How do I sign up for the study I live in NJ?
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POIS sufferer for over 3 decades. Has progressively gotten worse over the years and I became completely disabled around 2011. My case of POIS is very severe.

demografx

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Re: This may seem like a familiar place.
« Reply #1145 on: June 11, 2014, 08:46:37 PM »
For study participation:
Write to Dr. Barry R. Komisaruk
brk@psychology.rutgers.edu
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Nightingale

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Re: This may seem like a familiar place.
« Reply #1146 on: June 11, 2014, 09:26:04 PM »
I've written him before, is it time to write him again an say I'm up for participation?
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Turmeric and Rosemary 30-45 minutes before orgasm for anti-inflammatory and immune support has helped me a lot. Faster and easier than niacin approach.

demografx

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Re: This may seem like a familiar place.
« Reply #1147 on: June 12, 2014, 11:14:25 PM »
Up to you.

Anticipated start date - per Dr K - is July.
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #1148 on: June 13, 2014, 09:47:39 AM »
Thanks for participating in our first study, Nightingale!  :)
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Vincent M

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Re: This may seem like a familiar place.
« Reply #1149 on: June 13, 2014, 10:52:17 AM »
I got a new full time job so I won't have time to participate in the study unfortunately. It's just manual labor so if I took time off this early they'd just replace me. Then again if somehow I could go there on the weekend I might be able to pull off both.
« Last Edit: June 13, 2014, 10:54:31 AM by Vincent M »
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Taking ginger tea, no wheat, fenugreek+green tea/garlic, saw palmetto, niacin, boswellia, huperzine, B complex and nutmeg. See my treatment summary post for more info: http://poiscenter.com/forums/index.php?topic=81.msg3513#msg3513

demografx

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Re: This may seem like a familiar place.
« Reply #1150 on: June 13, 2014, 01:06:06 PM »

You can write to Dr K and ask him about the weekend possibility. (For his address, see 5 posts above, Reply #1148).
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #1151 on: June 13, 2014, 01:08:36 PM »
Good luck, Vincent!  :)
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Vincent M

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Re: This may seem like a familiar place.
« Reply #1152 on: June 15, 2014, 12:51:40 AM »
Sent Dr. K an email. Thanks Demo.
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Taking ginger tea, no wheat, fenugreek+green tea/garlic, saw palmetto, niacin, boswellia, huperzine, B complex and nutmeg. See my treatment summary post for more info: http://poiscenter.com/forums/index.php?topic=81.msg3513#msg3513

auzzie_mikey

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Re: This may seem like a familiar place.
« Reply #1153 on: June 16, 2014, 04:13:21 AM »
Hey guys,

I just sent an email to Barry a few days ago, just generally asking about POIS.

He said "All the data like yours are new... they are all grist for the mill, Barry"

I think he wants us members to provide our experiences to him via email.

Does anyone have any update about his program starting in July?

Will it start in July or be delayed?
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demografx

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Re: This may seem like a familiar place.
« Reply #1154 on: June 16, 2014, 06:04:07 PM »

I have a tentative appointment with Dr K at his office in late June.

Daveman & I will keep you apprised.
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Prancer

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Re: This may seem like a familiar place.
« Reply #1155 on: June 16, 2014, 07:07:34 PM »
Quote from: demografx on June 16, 2014, 04:37:37 PM
I have a tentative appointment with Dr K late June [mod  edit], Daveman & I will keep you apprised.

Awesome, thanks! And good luck to Vincent, I'm glad you are okay!

« Last Edit: June 16, 2014, 07:59:40 PM by demografx »
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auzzie_mikey

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Re: This may seem like a familiar place.
« Reply #1156 on: June 17, 2014, 12:59:18 AM »
Quote from: demografx on June 16, 2014, 06:04:07 PM

I have a tentative appointment with Dr K at his office in late June.

Daveman & I will keep you apprised.


Please demografx, lets find a cure for this POIS.

To be honest, since there is only a few people who are affected by this and since barry k is the only scientist working on it, it becomes difficult to find a cure.

but fingers crossed and please lets do sth about this horrible disorder. it affects me greatly :(
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demografx

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Re: This may seem like a familiar place.
« Reply #1157 on: June 17, 2014, 03:22:30 PM »
Quote from: auzzie_mikey on June 17, 2014, 12:59:18 AM

Please demografx, lets find a cure for this POIS.


That's been my (and other longterm forum members') goal since 2007.

Self-funding our way to Science is not an overnight process.

We are fortunate to experience much more and rapid progress than most rare, unexplained disorders.
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Nightingale

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Re: This may seem like a familiar place.
« Reply #1158 on: June 20, 2014, 10:06:25 PM »
It's almost time! I can't hardly wait! Big day for us all, thanks Demo for taking the time to meet with Dr. K :)
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Turmeric and Rosemary 30-45 minutes before orgasm for anti-inflammatory and immune support has helped me a lot. Faster and easier than niacin approach.

Prancer

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Re: This may seem like a familiar place.
« Reply #1159 on: June 21, 2014, 03:38:58 AM »
Yes, thank you Demo! Can't wait!!
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