Gather and Post Here Your Medical Tests Results

[berlin1984]

Tested negative for HHV-1, HHV-2, EBV (HHV-4), CMV (HHV-5).
Tested positive for VZV (HHV-3).
Still waiting on HHV-6.

(...)

PS: I am going to summarise & share all of my blood work at some point, in a clear organised manner, so I can add it to the medical data listed here at POIS Center.

(emphasis mine)

I also tested positive for HHV-6. Result just came back today.

[Muon]

Clinical characteristics, allergic response to autologous semen, and desensitization in patients with postorgasmic illness syndrome

Hormone abnormalities in 7 out of 13 patients:

High Progesterone (4/13)
Elevated Prolactin (2/13)
Low Testosterone (2/13)
Reduced Estradiol (1/13)

[Hopeoneday]

I did lab test of vitamine D3 and B12 today.
I must note here that i take 3000-4000UI of vitamine D3 a day
for last 1,5 year, did skin tanning all summer for vitamine D.

This results is pure evidence that "we all" hawe systemic
problems with vitamine D absorbtion, eg VDR receptors as genetics results
showed, or infection/toxins take place to our VDR receptors, gut problems
fat malabsorbtion, liver problems, kidneys problems...

B12   544,3   174-878
D3 22,13ng/ml 30-100ng/ml

[Warrior]

I did lab test of vitamine D3 and B12 today.
I must note here that i take 3000-4000UI of vitamine D3 a day
for last 1,5 year, did skin tanning all summer for vitamine D.

This results is pure evidence that "we all" hawe systemic
problems with vitamine D absorbtion, eg VDR receptors as genetics results
showed, or infection/toxins take place to our VDR receptors, gut problems
fat malabsorbtion, liver problems, kidneys problems...

B12   544,3   174-878
D3 22,13ng/ml 30-100ng/ml

Absorption issues OR our immune system is using it up more than normal because of POIS inflammation. Thus we have greater D3 needs than normal.

I personally feel best on 20,000iu per day and this is after testing 2000iu, 7000iu, and 14,000iu dosages respectively.

Dr Berg on YouTube has some interesting perspectives on D3 supplementation, the main ones being:
- Not all D3 you supplement is absorbed, from memory he stated it’s only 60-80%.
- Current RDAs for D3 is based on old data and information.
- 20,000iu feels like a lot, but when you convert it to mcg of D3, it’s 500mcg or 0.5mg

He thinks a maintenance dose should be between 10,000iu-20,000iu.

He also states that vitamin D3 toxicity is very similar to K2 deficiency. And that D3 toxicity is very rare. It’s very important to supplement K2 alongside D3 for these reasons.

I think everyone here should listen to their body with D3, and don’t be surprised if it likes higher dosages between 10,000-20,000. Obviously get your bloods done, and none of this is medical info. Follow at your own risk, I’m not a doctor.

[Muon]

I believe the cause is poor folate metabolism and poor choline metabolism due to genetic causes.
The medical tests that have flagged this are - fasting morning of and doing the following:
* RBC Folate (this is the long term 120day level of your blood cell methylfolate (methyl B9). I was on the low end of the normal range after a few weeks of supplementation.
* Serum Folic Acid (this is a test for your folic acid levels in your serum and is short term). I was above the normal ranges.

This signals that the folate metabolism is not effective at converting folic acid all the way to methylfolate.

[Muon]

https://www.reddit.com/r/POIS/comments/1bthzfv/osteoarthritis_due_to_pois/

Three weeks ago i had second mri and xray of my hip, knee and shoulde joints. According to my doc, I lost significant amount of cartilage in these joints. Every time i orgasm or get aroused, i get burning feeling in my joints along with all other symptoms.

Pois is damaging my joints and i have no choice but to see my body rotting away with time. All the time my joints make clicking sounds and pain is unbearable in hip joint# especially.

[Muon]

I've been diagnosed with ME/CFS. I'm stunned as I've always considered myself a pretty fit person! Just feel like huffing and puffing while in POIS!

I was diagnosed after a CT scan for the brain together with Neurospect.

I don't think it would influence my test results but just in case; I had 3 ejaculations in the 2 days before the scan test. Apparently there is no blood circulation in the front of my frontal lobe!

[Muon]

Blood test results
2 tests+: high testosterone, high SHBG, high prolactin, high progesterone, high creatinine, high bilirubin, high transferrin saturation, high MCH, low neutrophils, low WBC
1 test: high Apolipoprotein CIII, low C3, low PTH, low RBC, low hematocrit
I am willing to provide any of my health data for surveys and research.

Physiology and appearance
I am 179cm, 63kg. I have a skinny build. I have pale, yellowish skin, prominent veins, mild dermatitis on chest and back, orangey red face.

Diagnoses
(all current): Gilbert's syndrome, IBS, seborherric dermatitis, cystic acne, deviated septum, shoulder impingement, compression in lumbar spine, peripheral nerve problems

back problems
I had a back MRI which shows "wear and tear changes and a possible L5/S1 disc bulge that causes irritation on the left L5 root". I've amended my forum post from "compression" to "wear and tear" although I seem to remember the hospital consultant using the former term when he explained the result.

[Muon]

https://www.reddit.com/r/POIS/comments/1co28b0/wish_me_luck/

My second symptom was I got a fatty liver 4-5 times the normal range when this started so I don't consider liver as one of the key root causes of pois.

[Muon]

https://www.reddit.com/r/POIS/comments/1cpeaxy/my_journey_to_overcoming_pois_a_personal_research/

Upon further evaluation and testing, I was diagnosed with varicocele

[Hopeoneday]

Sisyphus, another poiser with neutropenia.

[Muon]

https://www.reddit.com/r/POIS/comments/1d7x3zb/comment/l73c4df/

It's still not clear if POIS is an identifiable disease. From my personal experience and from what I've read, POIS is likely a symptom present in a wide number of conditions. For example, turns out I had cranial instability. Treatment for that fixed my POIS. Try to rule out as many other conditions as you can.

It could affect the vagus nerve.

[largooo]

EDS from NS forum

Low testosterone , hi estradiol, low t/shbg ratio, tpo hi ...


Hello everyone!


I tested Cortisol in the following manner:

15 minutes before ?O? at 10:00 pm ?       result = normal @ 0.4 (range 0.4 ? 1.0)
15 minutes after at 10:45pm ?          result = low @ 0.2 (range 1.2 ? 3.0)
The next morning - 9 hours after at 7:00 am ?    result = low @ 3.3 (range 3.7 ? 9.5)
The next evening - 23 hours after at 9:00 pm ?    result = low @ 0.1 (range 0.6 ? 1.9)

i know this post is a bit old but it seems there is an error.

second test line  is in the night or evening and range should be (0.4 - 1.0) or (0.6 - 1.9) and not noon ( 1.2 - 3.0)

[largooo]

what is NS forum ? i dont know it.

[Quantum]

what is NS forum ? i dont know it.

NS forum refers to the first ever internet thread on POIS, started in 2007 by John21, which was on the Naked Scientist forum (NS forum).  It is the ancestor of POISCenter.  But, it is only one very long single thread, with over 20000 posts in it , so not a forum with multiple boards and topics.  You can access it at https://www.thenakedscientists.com/forum/index.php?topic=6576.0

The best way to navigate in it is to use a search engine like Google, using syntax like :
(Topic you want to know about) POIS site:http://thenakedscientists.com

example:

Brain fog POIS site:http://thenakedscientists.com

You will then have links to posts in the thread that mention "Brain fog"

It is better than browsing the 1011 pages of the thread !

Many members from there are still active here today, like Demografx, B_jim, and others

 

[largooo]

thank you

[Muon]

Searched for keywords but could not find the QST results of Kit inside this thread. Clicking on the quote header does not direct me to it. It might be removed.

My QST was abnormal. Here are my diagnoses after the QST:

• Paresthesia of the skin
• Segmental and somatic dysfunction of lumbar region
• Segmental and somatic dysfunction of sacral region.

Basically, I have loss of sensation on my penis glans and on the left side of my penis shaft. My brain was unable to receive hot and cold temperatures from the tip of my penis, on both sides of my penis glans, and on the left side of my penis shaft. The sensation issue on my penis glans and the left side of my penis shaft does not seem to go away, even with abstinence.

[Muon]

Moonshadows16, Female:
https://www.reddit.com/r/POIS/comments/1g4mqzc/here_is_my_gi_map_and_the_recommended_supplements/
Added image as attachment as well.
GI map + low sIgA

[Muon]

https://www.reddit.com/r/POIS/comments/1gc63u4/brain_scans/

"Quite a few years ago I had scan but not MRI but CT, so not quite as comprehensive. This doctor I was seeing was an infectious diseases specialist. I was going down this path as the previous doctor I had seen tried me out with some antibiotics and I had fantasitc health for about 2-3 mths then it wore off. The second doctor specialised in CFS patients and one of his areas of spciality was studying trends in his patients and he had noticed that so many of his pateints had irregular brain scans. Anyway to show up in bad state I made sure I was in POIS and had the scan, and i was told it was one of the more difunctional ones he had seen. there is no physical deformaties detected except pituitary but the focus was more on poor blood flow. I didnt take any notes unfortunatetly and neither did he so I cant give detail on the specific regions of the brain that were the most effected. As for treatement I was given an expensive off script alzheimer drug whih I tried for a while with little benefit for pois alas, so I stopped it after a few months."

[Progecitor]

I got a new blood test. This was only a regular one and I needed to produce good results, thus it was only 4 days after an O. My POIS symptoms were relatively low, but still there somewhat. It was also the second week of a low grade covid infection. I took my usual 50+ supplements the day before as I usually do, but skipped on them in the morning and naturally on eating as well. I took the first morning piss to the lab, which was not burning, but only due to the herbal tea I drank in the evening. Most of the results were rather alright, but there are some notes to make. Most interestingly my Gilbert’s disease disappeared, even though it was always there on previous tests. Actually the upper limit of the reference range was changed around 2016-18 from 17 to 21, thus total bilirubin may be still considered a bit high (17.9). The GP was slightly shocked to hear that I take more than 50 supplements daily, but strangely the liver enzymes were still quite alright. The total cholesterol was also a bit high even though I take at least a few supplements that should help with that. I also improved my diet somewhat, but there are times when I still eat too much sweet stuff. The relative eosinophils were a bit high, but I have never really had problems with that, so it may be due to the covid infection. Interestingly the absolute basophil amount was also low on the previous two tests, thus at least since 2016. If I remember well I had developed the enlarged neck lymph nodes around that time and it could be an indication for that. Regarding the urine test it was once again alright, however the specific gravity was unusually low (normal) in comparison to earlier tests, which makes me think there is some correlation to the burning urine and lipid peroxides, meaning a high specific gravity may be indicative of a larger amount of LPOs.

Side note: The images were translated by using Google Lens.