POISCENTER
POIS Life Style => Lifestyle Diary and POIS Summaries => Topic started by: cornelius on March 31, 2011, 06:30:14 PM
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gone.
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Perfect. So here it is.
Please everybody try to keep more serious topics relating to POIS in the corresponding boards where they belong. Not that I want to ba a control freak, but so that there is an order that all users can count on, especially outside resources that may just be looking for things.
It's certain that there may be POIS related subjects that aren't covered by the board yet, but at the risk of GOING CRAZY with boards, those orphaned topics can be discussed here. As these grow we can group them and eventually find them a home.
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BTW cornelius, I like the way that your POIS type and current "treatments" show up under your posts. I guess that would be in your profile?
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There may be whole forums that receive 2 posts per year. If that happens we'll move the posts and delete the forum.
I understand that at NSF, everybody has gotten used to opening the WEB page and writing. Simple easy, say what ever I want where ever and whenever.
So it's so much hard here, to look for the right place to speak. Heaven forbid that we should have things organized, for someone like Stephanie from NORD for instance that needs to find something easily and quickly.
Aside from which she can use the search feature, which directs her to all the instances in the forum very quickly. How many others like her would there be who can send resources our way, when their goal is NOT to open the page and write what ever they want in the moment. They just go away.
Before you make all kinds of suggestions, USE the site, get the feel for it. After 20 posts or so, you'll start to see that it's not as bad at all as you thought. And so what if you only use one forum, or two, and the rest are empty. As I said, if that happens we'll remove the forum.
And if it's a matter of not finding a space to write, make the suggestion. But if it's just a matter of having to take the time to change forums to write something different, make the small effort, it's for the benefit of those who are looking for something valuable. Thanks
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Just wanna say I love the look of this new forum site. I like how the topics are separated too since I'm more interested in the smaller treatments that can reduce POIS symptoms at the moment and also Silodosin I suppose. Since I'm not as interested in things like testosterone therapy and the POIS as being an alergic reaction theory I can more easily skip to the stuff I wanna read now.
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Hey guys, the new forum looks great! ;D
And I like the comments, daveman. Thanks for your hard work!
Looking forward to using it.
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So far so good - lots of good work has been put in here I see, Daveman!
Will try to post here when I can, always too damn busy >:(
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Vincent Marcus,
I see as one of your symptoms you mention itching anus!!
TELL ME ABOUT IT! Man, yes, it's the deepest and wierdest itch I've ever felt!! It's so strange. In day to day life, you don't notice it much, but when you go to the bathroom you have to, well, wipe it! That's when it starts. Scratching it (with the paper) is almost orgasmic in itself. You don't want to stop, yet you don't want to continue either. Soooo weird.
For me it lasts longer than the other symptoms, almost 10 to 14 days. But it does go away. I'm over 14 days now and have almost no symptoms.
Here you can talk about these things, BTW what are George Carlin's prohibitied words? They all get through, not filtered here yet. Although I really don't recommend using them a lot, but sometimes... you just have to. :)
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Yup mine is the same symptom as yours Daveman. In fact for a while I thought I had some kind of intestinal parasite that was causing the itchiness, but since when I'm out of POIS (which rarely happens for me) the itching always stops so I figured it's probably not worms. I think it may be related to the overall dry skin I get while in POIS since the dryness could cause the itchiness. I haven't checked to see if it lasts longer than my other symptoms, but it seems to me the itchiness goes away if I don't have an O in about 3 or 4 days.
Also I think it might have something to do with weak digestion while in POIS that could cause irritation to the anus from diarrhea or such.
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I've noticed there has been some debate on the POIS wikipedia article and there is an issue about our previous thread at the naked science forum not being up to wikipedia standards. I was wondering if we could possibly make this new forum up to wikipedia standards somehow so we could use it as a source on the POIS wikipedia article.
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I wonder if any of us in our POIS group are good writers? I'm thinking if we could get a whole book written specifically about POIS it would gain us a lot more publicity as well as be a good source for us to use on sites like wikipedia or to give to doctors who've never heard of POIS.
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Hi everybody. My name is Jon.
Let me start off by saying that I have a lot of respect for each and every one of you as I understand what you are going through. I still cannot believe that I came accross the nakedscientists forum last night. I am a 24 year old male who has been suffering since the age of 16 with this issue. I have seen multiple psychologists, neurologists, endocrinologists, urologists, etc over the years and none of them had any understanding of what I'm talking about and the other half of them thought i was crazy. I knew what I have been feeling all along so I have not given in to that belief. I am so thankful to you guys for making this website as it confirms what I have been feeling and it gives me hope. I have read more than a few of your conditions so let me tell you a little about mine.
I have a lot of the same symptoms as most of you, but my issue is chronic and I never fully heal. One day when I was 16 I masturbated and I felt drained at the moment of climax and I knew something was wrong. All of a sudden I felt very drained and things were mentally disoriented. I felt uninterested and unmotivated and almost disconnected with things, nothing was intriguing me. I never recovered from then. This was how i normally felt, and then the post orgasm 3 or 4 day period just made the issue worse over time. After this 3 to 4 day 'recovery' period I would then recover to that regular drained feeling. The problem is that over time, this baseline regular drained feeling has been made worse by orgasms. Each orgasm has made my baseline regular feeling worse and worse. I am at the point where i can not function corectly at all. I have had all sorts of physical and mental symptoms and after almost 8 years of this I have had to leave school and stop working. Mind you, I am not the type of person to stay in bed and drink soup when I'm sick. Its a never ending thing for me as I never fully recover and the last time I felt even close to normal was back before that episode when I was 16. My symptoms have gotten worse and worse over time. Today my symptoms are that of: almost no libido, erection difficulties, don't even feel that regular 'let down' normal men get after sex because I'm already feeling crummy, testicular pain, leakage, severe depression/confusion/slur words/thinking problems, extreme fatigue, hot flashes, immune system problems, and the list goes on.
I have gone months without any sexual activity and still never recover. Night time emissions happen from time to time due to my near absence of sexual activity and they also effect me but the symptoms are not as sever as masturbation.
I have read a lot of your symptoms and I respect you guys because i know its hard, but I havnt come across anybody whos symptoms are chronic with a 3 to 4 day POIS period on top of that. I have lost a lot of hope over time, but finding these forums has restored some of that hope.
I have been debating taking an antidepressant to help with the mental issues as I am even having trouble with the simplist of mental tasks, but I'm not sure that they will even work.
Any response is much appreciated.
Thank you guys again for making this forum possible. I am happy to help the good cause along.
We won't give up,
Jon.
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I have read a lot of your symptoms and I respect you guys because i know its hard, but I havnt come across anybody whos symptoms are chronic with a 3 to 4 day POIS period on top of that. I have lost a lot of hope over time, but finding these forums has restored some of that hope.
I have been debating taking an antidepressant to help with the mental issues as I am even having trouble with the simplist of mental tasks, but I'm not sure that they will even work.
Hey, I have some things in common with you as I'm a similar age (22) and my POIS started when I was 17. I've also noticed that my baseline health has been affected by POIS over the years in that if I refrain from orgasm for about a week I feel a lot better than usual with almost complete absence of symptoms, but still never as good as I felt before I got POIS initially. However I haven't experienced any reduction in sex drive, in fact my sex drive is painfully high basically keeping me in a constant state of POIS.
From what I've read on the site SSRIs haven't helped many of us with our POIS symptoms. I tried prozac for about a month, but it started to make my hair fall out so I stopped.
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jon what do you mean by leakage, and how constant is you leakage, if you are talking about semen then that might be why you never recover fully. If according to dr waldingers paper because of inmmune reaction to semen we have pois, if you continue having leakage this might be why you are not recovering all the way.
I my self started having pois around 17 and never really heal may be one to two weeks in a year. i am trying to figure out whether i rarely heal because of sex dreams or prostate fluid realeased while using the bathroom.
you might want to also check bjims diet in auto immune section, maybe changing your diet will help.
I willl also check vitamind d level, i have read it has something to do with auto immune problems. if it is low try to bring it up.
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Hey guys. Sorry for the delay. I have looked into Dr. Waldinger's papers and they are definately interesting. I will look more into it.
cornelius: That sounds interesting. What is Fenugreek ?
Ccconfucius: By leakage I mean both semen and urine. Both very mild. Semen only when I get very aroused and it is very minimal. Thanks for the tips, I will check those things out. I also heard a lot of things about Progesterone that could have to do with POIS.
Any thoughts?
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Hey guys. Sorry for the delay. I have looked into Dr. Waldinger's papers and they are definately interesting. I will look more into it.
cornelius: That sounds interesting. What is Fenugreek ?
Ccconfucius: By leakage I mean both semen and urine. Both very mild. Semen only when I get very aroused and it is very minimal. Thanks for the tips, I will check those things out. I also heard a lot of things about Progesterone that could have to do with POIS.
Any thoughts?
Maybe you have an UTI.
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I had that check a long time ago and I dont'. I have other symptoms in that area also like discomfort in the genital area right up through a few days after sex. Seen urologists multiple times. It is my belief that it is part of my POIS.
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cornelius: That sounds interesting. What is Fenugreek ?
Jon, follow the link in the post referenced below for tons of information on Fenugreek from the NSF forum.
http://72.52.181.21/POIS/index.php?topic=27.msg59#msg59
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Thank you, Daveman. Much appreciated.
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Hi everybody.
I am not sure if this is the right place to introduce myself.
I've read about POIS from the Wikipedia and the NSF thread, about some months ago. I am a 20 year old male and I suffer from serious symptoms after an O, since I had 17 years. But unlike most of what I've read on this forum my symptoms never ended from then (some serious symptoms appear especially after an O and last for a couple of days).
I have both cognitive and physical symptoms, some of them are almost impossible to describe. I went at a lot of doctors but none of them managed to figure out what it is. My general blood test where normal. Now I take an SSRI (serotonin), but it don't help a lot.
I want to thank to all of you for the effort you make to spread out information about POIS.
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Hi emi_b, you picked the perfect place to post.
Welcome. In the General Category at the top, you'll find lots of references to helpful information. Take a look around, and maybe you'll find something that rings your bell. Anything specific you need, ask on the forum or send a Personal Message to nyself or "demografx".
Yes, it's a little like you say, POIS may only last 4 or 5 days, some more, a few, less, but rarely are we "out of POIS'. It's hard to resist the orgasm, and especially when one begins to feel better, the first temptation is to go at it again. It's like we almost forget the pain it gives us. Sigh.
But there's a lot of interesting things going on in the POIS world right now, we might even have some sort of relief coming around the corner.
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Thanks for reply, Daveman.
First I want to say that I wrote to dr. Waldinger at the end of January. He replied to me in 3-4 days, and he said that he will send a questionnaire at a later date, but the articles were not attached, although he said them should be attached (I tried to contact him later trough e-mail but he didn't responded - probably he is very busy). I would like to ask if he send the questionnaire to any of you.
The other three articles, I've received from deomgrafx.
I have a suggestion for this forum: it might be helpful to have forum section for other languages, for people who speak better in their languages. This might help even more people.
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If Dr. Waldinger just forgot to attach them, parhaps we can find a copy.
Send me a PM with the names of what Demo sent you and I'll look into it.
Thx, What is you native language?
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My native language is Romanian, and I am from Romania.
I don't know anybody in Romania which might have this syndrome, or a doctor which might have an idea about this illness.
In future I would like to show the articles to the doctors I'll go, to see what they say. I hope they are open-minded :).
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Thanks for your PM emi_b. You do very well in English.
Hope what I sent helps. And I hope to hear much more from you here. Also if you find trouble with your local doctors, let us know, who knows what we might be able to do...
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I'm glad to hear this, because POIS affected my language skills, not to mention my English.
Hopefully, I will post in the next days a more detailed description of my symptoms because I have a lot of them ;D.
Regarding school I must say that I made a pause, to see if my health improves, and then to try to go to a faculty, because it was difficult to finish the high school.
Yes, your e-mail helped me a lot. Thanks.
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I can see where this would be a complex case, because the doctors are definately going to resort to psychological causes. When they don't understand, the say psychological, and it is.... in THEIR head!. Anyways, it's probably that there is some psychological component, but we KNOW that it is not the prime cause.
From our poll [in the polls section], it seems that cognitive symptoms are predominant among our members. And although my personal cognitive symptoms have been few, there have been a couple of instances where they have been very strong, so I know what kind of effect it can have. It's NOT just something you can wish away.
There's a difference between psychological effects and neuro-mechanical effects caused by hormonal imbalance or other outside physical factors, like inflamation etc.
There are many of us who seem to have POIS continuously, although in fact, for the mostof those, if they abstain long enough, it does subside and even go away. I[m not sure how many others may have continuous symptoms with or without orgasm.
I'm sure that if one goes with POIS, not knowing what it is, and perhaps not being sure that it is weven related to orgasm, he may also suffer psychological symptoms as a result of the pysiological problem of POIS! So the combination could produce a continual effect. But that's just my hypothesis.
The problem is, "how do we deal with it?".
I think knowing that it is POIS and that there are others with the same thing should help a little. There are many good diet tips that help reduce symptoms, and we are working feverishly at finding more definitve solutions.
Check out what's happening in the area of male birth control methods, both here and at NSF, and last but not least, lets see how you can be helped to receive the appropriate medical help. Not an easy chore, to be honest, but something is better than nothing!! ;D
Repeat this last post of yours on the NSF forum too. You should receive a lot of help there as well.
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Dear Emi, To be honest, I feel a strong solidarity to your situation and generally with your post and many of your symptoms that you mentioned.
You placed the "persistent headache" at first, don't know if it was incidentally, but for me these persistent headaches/migranes are the worst [it is even get worse when I wake up with a strong neck and shoulders mussles pain... not because of any other reason but POIS] add to that the cognitive issues so you might imagine where it takes me in the day to day life [I work as an engineer, I'm 32, I learned how to deal with those situations, but it is very sad that wierd illness].
Honestly, I really do not have a magic formula for how to help, but I can recommend you, as you are very young man, do sports, workout, though the weaknessess and the bad feeling thatyou have, take care of your nutrition [there are good posts on that, and of course, try to eliminate the junk food from your menu], you might want to start taking Fenugreek tablets, it helped many poised people. [I have been using it for 2 weeks now, it has some kind of positive affects, I will update when I'll have more evidences], same for garlic;
That's my 5 cents,
Yaniv
BTW: I've got a whole list of natural medicines; I will start to buythem and investigate them 1 by 1; I will update if there will be any kind of success.
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To Daveman,
I'll post an updated and more complete post, on this forum and NSF. I had a depression before, but this is different, I'll explain in more details in the updated post, I hope it is not so long and boring :). Thanks for the advices.
To Yaniv,
Thanks for your help and solidarity.
Garlic, I tried, one time, but Fenugreek, I'll have to search it. I never heard of it before.
I think the worst aspect of this illness for me, is that I can't do usual things, and things that I liked to do such as learning for school and now for faculty.
Thanks for advices,
emi_b
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emi b, you are deffinately in the right place
all your symptoms but persistent sexual arousal has being mentioned by pois sufferers.
i will start by trying what has helped others like fenugreek, we have a list somewhere and also at the same time start looking for a doctor that will do semen prick test on you, i bet you will react like crazy. If you are in the us dr bewtra is about the only person that has done the test.
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To Cconfucius,
Thanks, for advice.
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Today, i went to the hospital for an appointment with a "professor in Immunologie" and i said i was a particular case... His reply 'every case is particular' , but he never heard about POIS! He said "i have a cure for you, just abstrain ;)" "what about NE?" "ok ok" ^^
He didn't want to read Prof Waldinger's papers and said i shouldn't believe internet... so i said "ok, sorry for loosing your time :(" and then he started to listen to me and now he is willing to help me. I have an appointment with him in 2 weeks !
And then, we could talk about an intradermal test + rush procedure? intra lymphatic injections? we will see, i will update :)
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Kingkong
Newbie
Hi,I'M 51 and i'm suffering of this desease since 12 years. I saw many doctors. Today i talked to one of them who met Dr Marcel Waldinger at Malaga on this november. Dr Waldinger said to my doctor thas he found the problem that cause POIS. However, Dr Waldinger don't want to talk right now. He's negociating whit a scientific publication to publish is work. He told to my doctor that it would be publiched by 2 or 3 months from now. They met at a congress in Malaga this november.
Please, do you know more about this conference? :) my doctors asked me some details , thank you !
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I have an idea to make the buzz about POIS :P we should say it is contagious !!! So that, people would ask for more researches to cure the fastest possible ;D ^^
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I have updated the post where I describe my condition with treatments section, and more minor mods.
This is the post (http://72.52.181.21/POIS/index.php?topic=22.msg327#msg327).
It would be nice if everyone would have a post with his history, collected from allover the forum.
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Emi_B,
Good work on your summary. It's difficult, as you say, to explain even in your native language exactly what the symptoms are, and you've done very well, even in English!
I think it's a good idea to do a summary like this. I find myself having to repeat often many of my various, causal or symptomatic effects. I'll see if I can ge the time to put it all togeher.
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I have the solution to POIS..... if only I could duplicate what happened last night!
It's been 3 wks of abstenence, and I'm getting a little horny (we can say that here). But I need a break! And besides, the last one was scary, I don;t wnat another one of those for a while!!
The wife and I played a little bit, but she knows I need a break, so we left it... there.
But later in the night I began to dream. In the dream I was really horny, and was touching IT. But I knew I couldn't get serious, albeit, I saw that I was going overboard, and so put my all into a really good orgasm. I didn't wake up right away, but when I did, the first thing I did was "check", and dry as a bone!
It was a virtual orgasm, but seemed very real and satisfying. I really couldn't beleive that I hadn't really "O'd". I had to check about 4 times. Sheets, pants, etc. Nothing.
At worst I had a fair pressure in the prostate area, which is giving me problems right now anyways.
But Today I'm fine. It wasn't a dry orgasm, I'm fairly sure that I didn't REALLY didn't "O". But if I could do it again, I would.
A dry NNE (Nocturnal Non-Orgasm)!!
Perfect. And besides, in the dream, I was with my wife.... what more can you ask for?
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Hello emi_b - an excellent writeup of the difficulties you have faced due to POIS.
Have you tried getting in touch with Nicolae Calomfirescu in Romania? He specialises in male sexual disorders and is Chief of Urology - MIA Hospital "Prof. Dr. Dimitrie Gerota", which seems to be based in Bucharest. His website is http://www.uroandromed.tk/.
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Thank you Hurray for this finding.
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My pleasure emi_b - I hope Dr Calomfirescu can help with your POIS :)
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Hey guys, check this out.
http://www.actionlove.com/cases/case16665.htm
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so is it true ???? guys this action love is a scan or true ????
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Hey guys, check this out.
http://www.actionlove.com/cases/case16665.htm
"You also must avoid fully emptying your semen and sperms. Retaining about 50% of semen will let your body use the androgen hormones and neurotransmitters to restore your nervous function;"
That's an interesting assertion. Has anyone noticed this? I think I noticed years ago that if I held back during O that I recuperated faster, but it's been a while since I tried that.
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so is it true ???? guys this action love is a scan or true ????
It doesn't look like a scam. A lot of buzz words and mostly neurological/hormonal explanation of POIS, but it sounds pretty reasonable.
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so is it true ???? guys this action love is a scan or true ????
It doesn't look like a scam. A lot of buzz words and mostly neurological/hormonal explanation of POIS, but it sounds pretty reasonable.
There's a lot of stuff on NSF about Dr. Lin..... I'll see if I can get Demo to say a few words. He's quite familiar with the goings on.
Demo found this, this is his quote!
"This guy sums Lin up well:
Dr. Lin is an online quack whose doctorate is in engineering, and I don't believe has been trained in TCM. He's taking a few techniques from TCM and Mantak Chia, thrown them up on a confusing series of websites, managed to get high up on search engine ratings, and he makes a killing ripping people off with overpriced herbal concoctions to treat various ailments, particularly sex-related ones.. His "medical advice" is sometimes harmful. "
http://www.thetaobums.com/index.php?/topic/5094-weak-erection/page__st__20
Several of us have tried some of his remedies, but ended up just spending a lot of money.
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It's a scam. I haven't heard of those products helping anyone. Besides you can tell by just looking at the site if you look at it carefully.
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Thats a great quote from demo. It definately makes sense. I'm looking to try something to help with the symptoms soon, I'll let you guys know if it works.
Guys, I know your all dealing with your respective issues but if you guys wouldnt mind weighing in on something I would really value your opinion...
I have just about all the POIS symptoms listed with the mental being the bigger issue for me. However, my symptoms are constent and I have never felt relief since they started even though I have held off for months.. I also have POIS ontop of these symptoms, so after a few days I will only recover to that terrible consistency. About a year ago I started getting constant 'fight or flight' symptoms on top of all the other mental stuff. Its like i cant face and talk to people, I am even always stressed and uncomfortable even when I'm in the same room as somebody. It is so extreme that I even have difficulty communicating with my family from time to time. I thought i was in hell before I developed it, but now its by far my worst symptom. Is anybody else experiencing these symptoms? Does anybody have any idea what could be causing this?
Thanks guys.
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Guys, I know your all dealing with your respective issues but if you guys wouldnt mind weighing in on something I would really value your opinion...
I have just about all the POIS symptoms listed with the mental being the bigger issue for me. However, my symptoms are constent and I have never felt relief since they started even though I have held off for months.. I also have POIS ontop of these symptoms, so after a few days I will only recover to that terrible consistency. About a year ago I started getting constant 'fight or flight' symptoms on top of all the other mental stuff. Its like i cant face and talk to people, I am even always stressed and uncomfortable even when I'm in the same room as somebody. It is so extreme that I even have difficulty communicating with my family from time to time. I thought i was in hell before I developed it, but now its by far my worst symptom. Is anybody else experiencing these symptoms? Does anybody have any idea what could be causing this?
I think most of us recover almost fully from our symptoms if we abstain from sexual activity for long enough. I definitely have the constant fight/flight thing going on and I've always had social anxiety so I know what you mean there. I think the fenugreek + garlic was helping me with that.
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Damn, I wish I could get help. I have no relief no matter how long I hold off. Does the fenugreek and garlic work on days that you dont have sexual activity?
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Jon, you are affected more in the cognitive right?
BTW, we should try to put our histories here (http://72.52.181.21/POIS/index.php?topic=81.0) so that when we have a problem, the rest can go and look to have a better idea what might help. I haven't put mine yet either..... today I'll do it.
I'm more affected physically. I would say that I have two parts: one part where the symptoms are worse from day "0" to "5" or so, and another part that goes on almost forever. I guess that after a month or so, I am close to normal, but still with certain aches and pains. What I don;t know, is how much of that which remains is of other origin (like age for instance) or from the constant pounding of POIS. And I hardly ever go more than 6 weeks, so that's a lot, but maybe not enough to let myself completely heal.
If it's cognitive, I think i could be similar. One could have a parallel condition, that would be there anyways, or as a result of constant pounding of POIS.
It's always been my impression that POIS exagerates any pre-existing condition.
So maybe you might look into the possibility of some pre-existing condition, although it may have otherwise been dormant. Of course this doesn't mean that you will be cured of POIS, but at least maybe it can give you some relief between times of greater abstention.
I have found also, in my case, there are things I can do to reduce the duration. Problem is, that I'm not always successful, but I can often arrange for 2 lighter sessons for evey stronger one. Thos also can give more time between for recuperation.
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Daveman, I have both physical and cognitive symptoms, but the cognitive are far more severe.
I'm 24 now. I was always pretty healthy and never masturbated a lot. The first symptoms I ever experienced appeared suddenly one day when I was 16 at the beginning of orgasm. I felt different immediately even before finishing the O. It happened ina n instant, it felt like an engine in my head or body turned off. Thigns suddenly seemed colorless and very dull, I just felt blah and sluggish both physically and mentally. i have not had one second of relief since that day.
I started noticing these POIS symptoms soon after. The issues have been steadily gotten worse over the past 8 years, and they are constant. I never have a good libido. I cant do anything anymore, cant think, cant work, always mentally absent, slurred words, constant fight or flight, faitgued, hot flashes, hair weakening, swallowing issues... I can go on and on. I have the POIS but only recover to the way I have been feeling which is horrible. Its gotten so bad that at times I dont even notice when my POIS period has ended anymore because Im overwhelmed by these chronic symptoms. However, during the POIS period ALL the symptoms seem to be worse. I dont know if they are intertwined or what but I literally cant function during the day, I cant even speak to people. Naturally, I have developed depression and anxiety because of it.
I dont even really ejaculate anymore and I hold off weeks sometimes months at a time. Its hard to get it up as it is.
I am seeing a very good doctor next week but I dont even know where to start. I've seen all kinds of doctors and have never had success.
If the chronic condition is a pre existing one I cant imagine what field that would fall into. I am just in dire straits right now. You seem like a smart guy, do you have any suggestions or ideas for me ? Thanks.
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The only thing that came to me as I was reading your post, is to be careful with you new doctor about over emphasizing the continual POIS condition. That is, if he somehow has doubts and on top of that he can imagine that it doesn't have to do with orgasm, he miight think that it's a psychological thing.
It probably wouldn't hurt to mention that there's always some degree of POIS there, but make a certain distinction that it's worse right after and for a certain period after the orgasm.
We know how they tend to think that it's all in our heads.
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Yes, they definately do tend to think that.
Thank you for the tips, Daveman. I hope all is well.
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hey jon, i had the same symptoms and that is exactly how i felt when i first did it, everything became dull and i changed ever since, and yes i got even worse n worse, and if i stop taking vitamin d i will get that grows sick horrible feeling back . if you have that ugly feeling, you have to find a supplement that can get this chalky stuff out. i know people have different symptoms but my guess is , they have different symptoms because different parts of theyre brain are being affected. anyway, i wont preach.
i made a post under alternative cures or something? read that. it might help. basically, i used a couple things, centrum protegra/ enrgize/energy shot/ and alot of sunlight everyday , you know, vitamin d.
to clear those bad symptoms of pois , i stay away from to much dairy eggs. after i eat i take high dose of vitamin d. and ya i guess i take centrum protegra still but i went without it for a long time, with just vitamin d and this still worked. i think that it was a fluke that the chalky stuff started coming out. but forthe dull distached from life feeling, i still to this day have that, ive tried dopamine drugs, and serotonin drugs, none helpd. if they do, i think its just a cover up, like ritalin gave me more motivation and pleasure. but thats it, the thing with antidepressants and medication that affect nuerons, are tolerance,you take them it can make it worse,youll need a higher and higher dose just to get a feeling from it, ritalin made things worse for me and further destroyed my emotions modivation interest and more.
but i know every1 with cognitive symptoms can agree, i am so tired of trying to figure this out, it is sickning just thinking about it,i dont think it shouid be our job to do that, doctors need to step up, the rich should help the poor the healthy should help the unhealthy. this is bs =)
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Hey there. Its so interested that you are experiencing similar symptoms. How and when did the symptoms come on for you, Are you saying that they came on suddenly at orgasm and have never left like mine have?
Please, Its fine dont worry about it. If you know what your talking about then feel free to preach thru here or message me.
I did not see the post you made but these things you used sound interesting, im not sure what they are.
What do you mean by chalky stuff? I definately have the detached feeling from life feeling, but my cognitive symptoms have gotten so bad that it is not hard to think and I feel like I have dementia type stuff.
I agree, These high payed doctors need to step up !
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i feel the same way .my symptoms actually got so bad at a time i was kinda mentally retarded lol. i fixed that when this chalky stuff started coming out, but still to this day, i feel a very severe case of attention deficit disorder, where im just so distached from the world people conversation n everything, it is still hard to process things, my anxiety is really bad when im around people. anyway im intersted in what that one doctor said, cause it is true dopamine is the problem here, and did anyone ever drink aloooot of milk before or at puberty . curious, i know some protiens in milk can not let blood vessels restrict, is this why dairy makes me sick cause it is getting clogged, inflamed? cause vitamin d does take this chalky stuff out for me, and then i feel relief from brain fog , and a sick ugly feeling.
anyway, dopamine drugs did help alot, they made me feel normal, as if pois dident exist, life became alive, but no effect if you are on just day one or two of pois, the longer you go without orgasm the more effect the drug has on you, so something is not letting it do its job, maybe it is reduced blood flow to ares of the dopamine pathways, there are different pathways that have different functions in the brain, thus why people have different symptoms? i always thought it was because of dopamine and i am positive that it is because of it, and if i could just find out why dopamine isent working properly. there are different kinds of dompamine drugs, releasing agents , agonists, reuptake inhibitors, ive only tried releasing agents and reuptake. but it would help if we had a doctor who would explain what exactly happens during arousil n orgasm in the body, nitrc oxide also can be in play here ive never tried it before, but anyway, it dialates the blood vessels, this could dialate it so that blood can go to all areas of the brain, letting the body do necesary functions.
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Jon, understandingpois(UP for short),
I too am familiar with "the chalky stuff". And have also felt the almost immediate relief after getting rid of this stuff. Most of the time.
I was having a lot more chalky stuff before. There seem to be several potential causes.
While evacuating this stuff can be accompanied by a solid relief on the brian fog and POIS symptoms it doesn't necesarily mean however that it is a substance that comes from the brain... it just feels like it.
One cause of the chalky stuff could be urinary tract infections (UTIs), however this would be less of a direct relationship with orgasm than an indirect one. Also UTIs normally come with other symptoms, burning, temperature, etc.
Another is similar to UTI, but more directly related; with retro-ejaculation, sperm going back into the bladder exagerated by the autoimmune response can cause a build up that is expelled later.
Another is damage to the kidneys caused by non-steroid anti-inflamatorys (NSAIDs). When I was having chalky stuff almost regularly (odd numbered days after orgasm) it seems as though it was a result of the ibuprofem/tylenol combo that I took. I'd start taking it on day 1, after a day of taking it (maybe 3 times a day) I'd get the white stuff). I stopped taking iboprofen and the white stuff stopped. I've had it once since and strangly I had taken a couple of doses of the combo previously.
Another I've heard is precisely from people taking the energy drinks and heavy vitamin mixes. It's possible that it initiates some kind of reaction that casues the kidney to respond by removing the "puss" from the system.
But I would want to be very careful. Could it be doing damage to the kidneys or liver? We really should check that out. It's fantastic that we can find relief, but we don't want to do it at the expense of our overall health.
I don't say not to do it. But we really need to be sure we are helping ourselves and not damaging ourselves. Also, we are not all alike. We need to try to assure that the treatment we are attempting is appropriate for US.
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Thats very interesting, guys. Let me say that I am very familar with not being able to function or think and also having unexplained anxiety when talking to people.
I, too, believe our issue has a lot to do with dopamine.
What do you guys mean by 'chalky stuff' ?
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i recommend trying diferent natural anti-inflamatory suplements, n watching for this chalky stuff to come out of urine. take the supplements for a good time.
VITAMIN D
FISH OIL
tylenol or whatever, altho i stay away from.
devils claw
ginger
just whatever , try medicine one by one so that you know what is actually helping.
multivitamin like protegra that have trace minerals, say that make skin elasticy and blood vessels elasticy.
but this chalky stuff , if its gone itll just give you relief of feeling crappy, brain fog, and more.
this will not actually help pois or recover from pois faster. this chalky stuff just contributes to make pois feel worse.
i can take vitamin d after eating n not have to worry about brain fog and that bad feeling of crappyness,
but pois itself i cannot just take a pill and fix.
it takes time, and if you can find the rite anti-inflamatory medicine for you that can help with your mental conditions, thats great youll be in my shoes. but thats not a cure. youll then realize without all that suffering , that this is nuerological,. and you can tell man, this is not normal. to me its a very serious depression, i look around, there is not one thing i want to do, there is nothing that makes me happy, there is nothing that can make me feel good, all i see is dullness life is so dull, colours music n interaction. life is not enjoyable n there is no meaning, no reason to get up off my ass and move on go further in life.
That is the real problem, but i would recomendlooking into nuerotransmitters and looking to see what transmitter would best explain your symptoms of pois. because this is very close to a nuerotransmitter imbalance, deficency. but the difference, it happens upon arousil, ejaculation. maybe pois recovery, is chemical imbalances balancing finally over time, but slowly.
this makes more sence than any other organ hormones in the body, altho, they can also have a effect upon the brain. like tetosterone.
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UnderstandingPois, I'm feeling like we might have a lot of the same symptoms. We should chat more.
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jon, yes that would be cool, and trust me more than anything i want to help people, but,,,, i will be off for a good while.
but remember, the key to not having brain fog and that torture of pois, it to try getthis chalky stuff out of you body.
the key to the dull life part, is dopamine.
i actually cured myself with these two things, but then it backfired and kicked me harder thanever before, if you ever take anything from a phyciatrist, trust me studie up on the drug before you use it, the thing with phyciatrists , they will find out what is wrong with you by experimenting with drugs on u. i happend to refuse alot of medication , and the ones that did help me were the ones that i already wanted to try.
do not tell the doctor about post orgasmic illness syndrome, fix symptom by symptom, first, studie up on what is really wrong with you, say your main symptom, depression? find a name for your problem, say, mine is anhedonia, tell the doctor this is how i feel.
at first i told doctors what was really wrong with me, pois, and they thought i was crazy n put me on bad drugs, so if you are going to see a doctor never tell him about pois,whats the point anyway, this is new to them.
jon since your symptoms are rite on the spot to mine. of what i read. you should try attacking them the same way i did.
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Just be careful, just like the drugs the psychiatrists give you, you should understand what everything you take is doing to you.
I'm going to open a "white stuff" thread.
We need to know what's going on there.
As I mentioned in another part of the foeum. I too felt immediate relief after getting rid of that white crap, but thinking back, the relief only lasted about 12 hrs., sometimes less.
So should I risk my kidney for short 12 hr relief? Maybe with a little investigation we might find that it doesn't affect the kidney and that it's a breakthrough.
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I find it funny how scientists and doctors know so little about the mechanisms behind orgasm and yet they are so quick to wave our suffering off as "psychological". I was just reading on the subject of "the science of orgasm" and read that just 20 years ago scientists didn't know that people paralyzed below the waist could have orgasms and that scientists STILL don't know why these people can have orgasms.
here is a quote: "As they seek to document and demystify one of life's great thrills, scientists have run across some real head-scratchers.
How, for example, can they explain the fact that some men and women who are paralyzed and numb below the waist are able to have orgasms?
How to explain the "orgasmic auras" that can descend at the onset of epileptic seizures -- sensations so pleasurable they prompt some patients to refuse antiseizure medication?
And how on Earth to explain the case of the amputee who felt his orgasms centered in that missing foot?
No one -- no sexologist, no neuroscientist -- really knows. For a subject with so many armchair experts, the human orgasm is remarkably mysterious.
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No one -- no sexologist, no neuroscientist -- really knows. For a subject with so many armchair experts, the human orgasm is remarkably mysterious.
And that's very troubling because if the immune theory goes down (which is very probable) there is no other sound science at the moment of explaining the symptoms and causes of POIS. It could take decades before someone will be able to explain it. I guess we need a cure before explaining the mechanisms behind this illness.
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Hello,
I'm new here, but I've been reading TNS forum for a while. I would like to note that the main reason, I've found a link between POIS and my condition is because of long-term use of antidepressants and withdrawal from them.
I believe I've been suffering from POIS since the age of 12 or 13, but it was hard to find such a causal connection, mainly because of a quite mild manifestation (shyness, mental dullness and fatigue - really vague, you know) and the high frequency of autoeroticism since the age of about 8.
After I had coldturkeyed the last one (IMAO), I started to experience all of these symptoms in much more debilitating form (headaches, confusion, disorientation, inability to form a sentence and think about anything, intense anxiety and for the first time a panic attack, severe memory impairment etc.). I thought, this had to be the consequence of rapid withdrawal, but none of these symptoms appeared to be withdrawal-related. Seven months later, I'm feeling the same way, except for the last Thursday/Friday - 5-6 days without masturbation, boosted, talkative, optimistic, better overall.
Unfortunately, I wasn't to able to withstand my sexual lust and therefore, I practiced self-stimulation 4x in a few hours yesterday. In the evening, I was hit by severe brain fog and headaches, like my brain would be out of blood supply. Today, it seems to be even worse, I am socially/mentally crippled, only able to lie in the bed.
It is probable, that imbalanced serotonergic/dopaminergic/norepinephrinergic/other systems (naturally or due to medications) could be involved in POIS.
J.
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JRD, I'm not sure if there is a connection between anti-depressants and POIS. I took a couple anti depressants for about a week each about a year before my POIS symptoms began but I doubt a week is long enough to cause lasting damage.
Also you said you masturbated 4 times in a row in a few hours? I masturbate about 3-4 times everyday and there isn't anyone here who does it that much.
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No one -- no sexologist, no neuroscientist -- really knows. For a subject with so many armchair experts, the human orgasm is remarkably mysterious.
And that's very troubling because if the immune theory goes down (which is very probable) there is no other sound science at the moment of explaining the symptoms and causes of POIS. It could take decades before someone will be able to explain it. I guess we need a cure before explaining the mechanisms behind this illness.
Which is why I'm putting my money on natural herbs for now since I can try many of them for little cost and few side effects.
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Vincent Marcus, I am not saying that POIS is induced by the use of antidepressants, but antidepressants themselves can potentiate its symptoms (in a person, who already has underlying POIS, because of the further chemical imbalance, which is unescapable after years of using, moreover in a dose-dependent fashion).
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Vincent Marcus, I am not saying that POIS is induced by the use of antidepressants, but antidepressants themselves can potentiate its symptoms (in a person, who already has underlying POIS, because of the further chemical imbalance, which is unescapable after years of using, moreover in a dose-dependent fashion).
sorry i didn't read your post thoroughly enough. Yeah I agree especially since I think POIS is mainly a hormonal problem.
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Hey guys, I ran across something interested while browsing natural supplements. Google 'Chinese Stress Relief'. This is a natural supplement that treats psychological difficulties by targeting areas outside of the brain that may have an effect on it, such as autoimmune and nervous systems. Check it out, it looks very interesting.
I am also wondering if anybody else is experiencing hair thinning/dying due to being in the sun.
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UnderstandingPois, I'm feeling like we might have a lot of the same symptoms. We should chat more.
Keep in mind our POIS chatroom (realtime chat). Invite or visit another member(s) there, ANY TIME. We can all get to know each other better:
http://forums.delphiforums.com/POIS/chat
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I am also wondering if anybody else is experiencing hair thinning/dying due to being in the sun.
Hmmm.... gets worse every year! No, wait, maybe it's my age!! LOL. Sorry, just a little humour!
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No one -- no sexologist, no neuroscientist -- really knows. For a subject with so many armchair experts, the human orgasm is remarkably mysterious.
And that's very troubling because if the immune theory goes down (which is very probable) there is no other sound science at the moment of explaining the symptoms and causes of POIS. It could take decades before someone will be able to explain it. I guess we need a cure before explaining the mechanisms behind this illness.
I agree that we may be flapping in the wind if we have to fall back on orgasmic biochemistry, but I believe it's more likely that auto-immune will be the cause for at least a subset of POIS sufferers. I can be out of POIS and induce POIS by putting semen under my tongue or getting a subcutaneous injection. Anti-histamines work for me, but they don't work for a lot of POIS sufferers. Being able to categorize cases would be extremely helpful, and maybe would show multiple nodes of causation.
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Hey guys, I am seeking some advice. Next week I am seeing a Neuro-Endocrinologist. I suffer from both POIS and never ending mostly cognitive/some physical symptoms.
I'm wondering how to go about getting my adrenals, thyroid and EVERYTHING that may be relevant tested without spooking out this doctor and having him/her send me to psychiatry. I am looking to try and order two sets of the testing, one set being after sexual activity.
Any advice from anybody would be greatly appreciated. I will share my test results with everyone.
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Someone, somewhere, I don't even remember which forum, NSF I think, mentioned a recent study that ties auto-immune reactions and inflamation to "brain-fog". Maybe bringing as much of the information from his references would help.
It's true that doctors are scared off by information that people bring the from internet, but it might be a way to say, "Look, what harm is there in taking these tests, in such and such a way, even if you think it's bunk. Just do it for me please!"
You're not asking for a perscription for drugs or medicine. A test like that can't so you harm.
Use the search function on this forum and look up "brain fog" and for NSF use the google search method that Demo puts in the intros to newbies.
At this level, we're only asking that they take certain inate tests. Ask them to humour you.
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i was always go with lots of relevant document, all the reasearch, ny times paper, some poiser testimony from the website. when they see all that paper they know you mean buisness.
do some reasearch on those hormones first, you slap some knowledge on them when they try to redirect you, they will understand you no ordinary patient.
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I see. Good advice guys and thank you. I will let you all know of my reults.
Daveman, I want to personally thank you for all your responses as you have helped me understand my illness a great deal. i hope you don't mind if I pick your brain a little more.
If a lot of the mental symptoms can be attributed to inflammation and auto-immune then how can this get picked up with testing? Also, I am going to try and test both with and without fenugreek in my system.. Can someone build up a tolerance to fenugreek and/or experience withdrawal?
Thanks everyone.
Stay strong.
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Well, I think the IgE and T-cell measurements should be useful for that. Check for IgE the same day as orgasm. And T-cels during the second or third day after. And then both the out of POIS.
Also I remember that IL-6, a cytokine, was involved in the menengis inflamation.
Cytokines, if I'm not mistaken are a type of protien (messengers?) that either block inflamation or cause it depending on the cytokine.
The particular problem that I heard of involved the lack of IL-6 (cytokine - interluken 6), where IL-6 normally blocks inflamation when some human activity, like exercize or other, takes place and inflamation shouldn't happen. When I looked it up, there seemed to be relationships with cell level parasites and this same mechanism....
Anyways, it seemed that if the IL-6 was NOT present when it should be, menengis inflamation resulted.
I would imagine that the menengis could be check with an MRI.
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Daveman, What kind of doctor would specialize in imflammation that may affect the brain and/or some of these other symptoms? Where would this inflammation be.. Maybe in the spinal cord area or the groin area? I'm thinking that if I dont get results from the blood tests than this may be a possible reason for my sever cognitive issues and some of my testicular discomfort.
By the way, I approached the doctor I saw the right way. I said everything I needed to but he was dead set against running the tests for me so I will be finding another doctor and I will keep you all updated.
Thanks.
Stay strong.
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I really don't understand what he has against doing tests. Removing samples, that's all there is to it. Can't do you harm.
I AM going to create a database for assholes!
Not calling them such, not saying derogatory things, just present the facts. In our own special way. :)
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You can add my GP he is those just the words you described in every sense, the man has no real interest in my health and you should have to fight tooth and nail in appointments to get things done, the build up to appointments to see my doctor are such as strain it becomes a massive anxiety.
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Don't loose the names and addresses, as soon as I get the database up and running, I'll be asking.
Everyone!
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Jon/Daveman,
I'll tell you what that doc has against doing those tests --
(1) He has to have his own medical rationale to order the tests, because he needs to document that reason in his records. He won't want to write, "Testing for .......... because patient wants it done," when there isn't a clear reason for him that they be done. In the US, if the doc doesn't have a clear rationale for ordering tests, the patient's insurance company will most likely not pay for them. Then the patient gets angry with the doc. It's a vicious cycle.
(2) If an abnormality shows up, he'll need to act on it. But he might not know how to act on it because he's POIS-ignorant (as are most docs at the moment -- but that will be changing soon!)
In his own way, Jon's doc was being ethical. But -- it sounds like he was also being insensitive.
There are several bio-markers in the blood for inflammation -- the cheapest and most commonly ordered one (and least specific) is called a Sed Rate (erythrocyte sedimentation rate). If it is elevated, it won't tell the doc why, but it will show that somewhere in the body, there may be inflammation -- or an infection. The doc could then investigate the source of the inflammation further (more specific blood tests) based on symptoms, or refer a patient to a rheumatologist or immunologist.
In general, rheumatologists and/or immunologists are experienced in testing for inflammatory/autoimmune conditions. From my experience, just to let you know, both specialists generally LOVE A MYSTERY medical case
Speaking very honestly here -- in general, it's not a great idea to go in to a doc's office and tell him/her what tests you want done (even if they are the CORRECT tests). I think it puts them on the edge -- can't give you a reason why -- maybe it's just egotism. Don't know.
The main thing to remember is that if a doctor treats you without the utmost respect -- or makes you feel like you're a nut case -- never go back! He/she has just lost a good customer.
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So in this case perhaps, a prior test, Sed rate, could help the doctor justify further tests.
If that's true, why doesn't he suggest that first? It's about a safest a course of action that could be taken.
I'm sorry, I understand that you are trying to explain why this happens in the profession, but it just doesn't cut it for me.
His own medical rational is biased and insensitive.
He just couldn't bother, and that's it. And he's covered because he used his medical discretion.
He was only LEGALLY being ethical.
It does point to better potential approaches.
1)Don't talk about POIS, or orgasm or anything strange, ESPECIALLY depression. Gee doc, I think I have a bladder infection; present our case so that the doc's medical rational is not overloaded. Lead them to easier safer more benign tests.
2) More properly direct ourselves to the rheumatologists and/or immunologists or doctors who are otherwise interested in a MYSTERY.
Here the previous government was caught doing a ton of corrupt and irrepsonsible things, abuse of funds and resources, like that. In the end, it was complacency. Their excuse was that, "well everybody was doing it, it was the norm". A bad norm!
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today is my 3 rd day and i dont know wats happening...i was standing on the road for a cab and none of them stopped...maybe i didnt try at all...otherwise i always find 1 very easily...i think this is brain fog...when there is fog on the road u cant see anything while driving..similarly there is fog in the brain so the brain doesnt know what to do when.....
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Hi bitu8489,
Yes, it's terrible. And you don't even realize that you don't know what to do, until some time later.
That reminds me of a story. Before I had POIS (mine came later) I was working on a project in a mine. This mine was at 15000 ft altitude in the Andes.
There were four of us in a pickup, looking at the layout of a certain plant from a ridge overlooking the mine. They were describing things, here and there. I started to feel light headed, so put an oxygen mask to my mouth for a little while.
Only then did I realize that the driver was talking with a slur, like he was drunk. Looking around the others were sort of acting drunk like, eyes half closed, everyone understanding everything (they thought) like they were normal. I laughed and removed te mask, in a few minutes everything seemed normal, even forgeting to notice if everyone was still slurring their words.
That's sort of what it's like. You're in this fog, and sometimes don;t even know that your activity is not normal.
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hey it happened again..today was my 4th day and i was not recovering through this brain fog and just like last time i went for an O while in POIS and see i am completely out of it on the spot....just in one O...i think POIS is definately curable....sometimes one O takes you in POIS and almost takes a week to recover and sometimes one O makes the recovery...
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I think it's curable too.
Just like the right circumstances with an orgasm can make your POIS better, it will just be a thing of finding just those right circumstances and make them repeatable.
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My most recent POIS session, I'm just coming out of it these last couple of days, was different, and I have a cold.
Usually druing POIS, I always have deposits in my urine. I pee at night in a "pottie" beside the bed so as not to go all the way to the toilet.
The bowl usually ends up with a sort of hard yellowish deposit which is very hard to clean, it is hard like an enamel.
I was just starting a cold and had an orgasm about 24 hrs into the cold. I started to notice that, not only did I have crystal clear (yellow of course) urine, that it even started to disolve some of the deposits. There's no detergent that can do that, other than pure bleach.
During the whole POIS session with the cold no deposits whatsoever.
I usually clean the deposits once per session, to monitor.
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staying away from O for a long time has given me testis pain when i ejaculated....
i have noticed that before also...
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I get that whether it's been a long time or not.
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I get that whether it's been a long time or not.
but you get the pain when you are off an O since long?
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Its been almost 10 days that I am suffering through this pain in my left testis and I get so irritated that after 3-4 days I again go for an O hoping that it will releive my pain but no use...instead the pois cycle starts again...I have noticed that its always my left testis which pains and with it even my left leg pains..
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I get that whether it's been a long time or not.
but you get the pain when you are off an O since long?
No I only get it the first 12 hrs or so, but then the whole tract from the testicles to the bladder inflame and get tender. This lasts a bout a week.
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Its been almost 10 days that I am suffering through this pain in my left testis and I get so irritated that after 3-4 days I again go for an O hoping that it will releive my pain but no use...instead the pois cycle starts again...I have noticed that its always my left testis which pains and with it even my left leg pains..
it seems like testicular varicocele , get it checked up with your doctor , usually it doesnt require surgery , he will prescribe you a venotonic drugs like daflon 500 ( diosmin + Hesperidin)
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My grandmom is 92 years old and she's got alchzimers,she tends to foirget things and sometimes goes blank that time I know she would be feeling cause even pois makes me blank...I wonder is there a connection between my pois and her alchzimers something heriditory...
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Its 8 30 in the evening and I am so fedup of this current episode of pois that I have come to a garden and walking here maybe for an hour so that my heart beats faster and some more blood gets pumped to my brains and the testis...cause the brains are not working and my left testis is paining....
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No use walking friends...its the same
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I have noticed that consuming alcohol when I am not in pois has a different effect on me.it feels like I go back in pois without having an O from the next day.
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This pain in my testis is killing me.to releive myself I should ejeculate with a gap of atleast a week or more so that my testis are full,then only the pain goes...what a misery after the O I will again go into the POIS cycle.
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This pain in my testis is killing me.to releive myself I should ejeculate with a gap of atleast a week or more so that my testis are full,then only the pain goes...what a misery after the O I will again go into the POIS cycle.
U have talked to a doctor about that
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Today I visited a urologist for the pain in my testis,he told I might have epidymitis and har prescribed my hetrazan and zanocin 200..after that I asked the doctor about pois and I tod him what all problems I face and he told it might be somethinng related to hormones.I told him that there is a forum on the net about people like me who are suffering from this disease all around the world,but he told me that I was the first patient he had ever met who has such a problem.this doctor is working in mumbai,india in a very big hospital but he is not aware of anything like pois...
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At least he didn't dismiss it as a psycho problem!!
Lets see if the medicine helps the pain. I'm certain that the epididymis is being effected by POIS. So hopefully he can at least relieve symptoms.
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Its been almost 10 days that I am suffering through this pain in my left testis and I get so irritated that after 3-4 days I again go for an O hoping that it will releive my pain but no use...instead the pois cycle starts again...I have noticed that its always my left testis which pains and with it even my left leg pains..
it seems like testicular varicocele , get it checked up with your doctor , usually it doesnt require surgery , he will prescribe you a venotonic drugs like daflon 500 ( diosmin + Hesperidin)
hi bulls eye today i had visited a urologist and he told me that the pain i have in testis is due to epiymitis...and he has prescribed me some drugs for it...
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Its been almost 10 days that I am suffering through this pain in my left testis and I get so irritated that after 3-4 days I again go for an O hoping that it will releive my pain but no use...instead the pois cycle starts again...I have noticed that its always my left testis which pains and with it even my left leg pains..
it seems like testicular varicocele , get it checked up with your doctor , usually it doesnt require surgery , he will prescribe you a venotonic drugs like daflon 500 ( diosmin + Hesperidin)
hi bulls eye today i had visited a urologist and he told me that the pain i have in testis is due to epiymitis...and he has prescribed me some drugs for it...
Hi bitu8489,
I read your posts and just wanted to let you know that I experience very similar symptoms.
First of all the pain in your testis, for me it is the right testis and the pain radiates out into the whole upper leg and kidney region. I actually had surgery on my right testis because the doc suspected a cyst to be the cause. It wasn't the cause... Only after I found this and the old POIS forum and am now pretty sure about the reason for the localized pain. It all started after a spinning class (indoor cycling) where I might have squeezed my right testis a bit. Afterwards sever pain and 'inflammation' started, got eventually better but never really went away again. Some barrier must have been ruptured and now my whole body is reacting to my own semen very violently.
I did have mild symptoms (without testicle pain) since puberty, including a weakened immune system after orgasm, resulting in frequent soar throats.
I do react to alcohol very badly since POIS really started, it is severe headaches for a whole day and no pain killer helps. POIS + Alcohol = POIS^2 for me...
In addition I suffer of very localized back pain in a very specific area at the tip of my right shoulder blade. I was always a bit hesitant connecting back pain to the other symptoms but the more I read here, the more I believe it is not just a weired coincidence...
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Yes, I believe that systemic inflamation tends to pick up on any joint or bone that could have some weakness, and exagerates it.
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Getting sexually aroused gave me POIS symtoms,but they lessened after I passed urine..
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I think we pois sufferers when we ejaculate with the sperms even the testosterone in the brains are ejeculated...that's why the brains stop working and then it takes the 7days for the testosterone levels to become normal so we feel better after a week..
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Today is the 4th day and my mind is blank...yesterday it was better but today in the morning an arousal had got me into a worse condition I think...
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I think we pois sufferers when we ejaculate with the sperms even the testosterone in the brains are ejeculated...that's why the brains stop working and then it takes the 7days for the testosterone levels to become normal so we feel better after a week..
I agree with that 1 week mark. POIS for me now has very little cognitive deficit, but on the 7th day of total abstinence, I really start seeing a kick, health starts improving from that point and stability returns, that's what I class as being 'myself'
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It happened again..I had an O right now on the 4th night and my brain fog is gone.I think this phenomenon of mine getting better on a repeated O matches with dt waldingers theory to repeatedly give the body a dose of the substance its allergic to...I have noticed when there is a bigger gap between O's it takes longer time to recover...this is how allergies are cured...repestedly come in contact with the substance you are allergic to...
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I've had something similar, but with important exceptions.
If I have an orgasm on day 3 say, it's like it resets. I get better, then it starts over, the only problem is, it starts to come on faster and much harder later.
So something enters the system that takes charge, and sort of resets, but now there is more bad stuff, and when it come on it's HELL.
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Hey guys, I am finally going to get a bunch of testing done on Monday. I wanted to sets of testing so I could compare both pre and post O but the doc would only order 1. You all seem very knowledgable.. My synmptoms are constant. Should I take the tests without having an O, right after O, Or the day after O. The symptoms are worst for me the next morning.
Thanks,
Jon.
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I do awkward things when I am in pois like I start finding black heads on my face and body and start pinching and removing them with my nails...that gives me marks on my face and body but still I do it as if I am not able to stop myself from doing it..the marks ruin my face but I don't stop doing it...it takes time for the marks to go when I am in pois and the marks don't come at all when I am not in pois maybe something to do with immunity...
BEEP dude.. I used to do exactly f..beep that. omg. I used to do it on my nose and was fascinated with removing those blackheads. My nose got all blotchy and beep, it was rediculous. Omg, i never thought I find someone who understand stood that strange train of thought and obssesive like behavior. I've managed to control myself now and spam other stuff, but still. geezus.
Edit: Sorry for the beeps man, but we have women and professionals reading the page as we prepare for our research grant etc. Sometimes we feel the need to highlight certain things, but this isn't one of the best ways nor needy circumstances.....
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I have been staying away from O's for a while....but even arousals(not NE's) are giving me POIS...
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Sometimes the brain fog goes away by a repeated O (even on a 2nd or a 3rd day) but to recover completely it takes a week...
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For me, if I do a repeated orgasm, it does a sort of temporary reset, but it comes back 4 times stronger.
I can't do two "O"s in two days for example. It's next to suicide!
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my POIS cycle has again started ;D....and this time somehow i am feeling so funny...yesterday while driving 3 times i jumped signals...i wasn't really aware untill the last moment...i am feeling helpless and thats making me laugh on myself....everytime i hit this cycle i come here and start posting cause where else can i go...nobody knows what i am suffering thru...today i was talking with my best friend and i just told him that something is wrong with my brain and i got this disorder when i stepped into puberty...this made him laugh,so even i started laughing...i told him that i get these mood swings and brain fog and i totally go blank...he thought i was joking so even i didnt talk much about it and pretended that i was just joking.....
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I totally understand u cause I I'm in same thing
add me on some or yahoo I'm so we can be in touch
take care bitu
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Today since morning I am having these light symtoms of POIS...last night I was a little aroused...will somebody please tell me how long will the effects stay?...I haven't had an O nor NE...
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it will stay for 2 days ......
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Have you tried or are you thinking of trying the Niacin? It's gotta help!
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no i havent tried niocin
yet
okay i am taking feenugreek i take there seeds and crush them in powder and taking it water , cause i cant find it in my area .... we have gnc they dont have it .....
okay now this saw palmetto ..... i wish i can get the seeds of it too and do the same ....
F after sex my brain gets like this that , i mean even after O , my brain/head feels like it get numb , like the nerves get drain out of blood and oxygen ..... any body feel the same .....
now i am gonna sleep i know i will be bad in the morning , i also will take clonezepam 1 mg , if i want to sleep
its 7 am already , i am crazy , pls GOD help us .....Ameen ....!!!!!
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Its festival time in India lord ganesha has arrived in my locality today is the farewell and hundreds of people from neighbourhood are dancing and enjoying and bidding farewell to lord ganesha but I am home just watching from my window....I hate myself...
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Its festival time in India lord ganesha has arrived in my locality today is the farewell and hundreds of people from neighbourhood are dancing and enjoying and bidding farewell to lord ganesha but I am home just watching from my window....I hate myself...
May lord ganesha solve our POIS.
He will bring you happiness. You wait and see!
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I have never wished for anything from god since I had grown up but today I wish from the bottom of my heart that a cure comes to all of us suffering thru pois...good night...
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On the 1st day I normally become so sensitive that I can feel the wind flowing thru my hair...I can hear the birds singing...everything what I speak is thought of and measured...today is my first pois cycle after almost a month...I had been for a long awaited trip to the himalayas...ladakh and iit was totally pois free...as I had left my wife home...it was the best vacation of my life...because for the first time I was holidaying with the knowledge that I have something known as pois and I should not have a Orgasm if I have to enjoy the time...its been only a year that I came to know of pois...thanks to internet...but now today I am suffering maybe its written in my destiny...one more things friends while in himalayas when I was pois free almost everyday I was in freezing temperatures but no cold no flu...my immune system was working at its best...I had been to the highest motorable road in this world 18500 feet above sea level...but I was fine...no sickness...but now back in city with pois I have started coughing...normal for me all my life...I have lived all my life with cold and cough and I could never make out what was the problem...anyways I would bore you all if I keep on telling you about my sick life...so let's all of us be happy and face pois...and never give up...life will go on...maybe some day a cure will be found and we all will be normal...that day every one of us living in any corner of this world should unite and have a grand party so grand that pois should feel "ya..they deserved a break thru"...I am waiting for that party....its been a long time I have stopped drinking but that day I am gonna drink till I drop...bye bye all my pois-pals.....
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Thanks Bitu for the comment.
Before I discovered the name of our condition and joined this group, I felt guilty about wrecking my body. I always thought if only I had had more self control when I first became sexually active I would be a lot healthier and capable of being successful. Understanding this condition and hearing your experiences have helped me to be at peace with myself and realize that I had/have a super rare condition, it alters my mind, and I need to move on and stop worrying about the past. Thanks everyone, let's kill this thing.
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Thanks Bitu and Willem for the breath of fresh air!
If we only have one or two saved from this thing, the forum has been worth the effort. And by God, I have the feeling that we might even go farther than that. Especially if, no ONCE we manage to get the NORD fund completed.
As you say Bitu, just knowing that one can have a break by abstaining a little can be a big step, can give you a long needed break, enough to go another long stretch.
Unfortunately when it comes back.....
But then one needs to remember that a break is possible.
Niacin, gives the potential to make the downs a lot lower and the highs a lot longer. So that's been another benefit of information that we;ve been able to muster.
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I know this may have been covered but I couldn't find the page.. Does anyone know how to prevent nocturnal emissions?
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Hi Everyone,
Dave and Demo think it's alright to share preliminary results of my sublingual therapy so here goes:
I've been doing the home therapy since May 2011. I started at 1:50,000 and now am at 1:167. Around 1:10,000, I started noticing dramatic improvements and have been about the same since then. Overall POIS is down over 50%. My mind/energy/motivation/sleep are 80% improved. My muscles and nerves are about 40% improved. Recuperation time has gone from 7 days to about 2 days. I've increased my O frequency from ~1X per week to ~2X per week (trying to get pregnant) and am still feeling pretty good. Vandemolen has mentioned that major improvements may also come at the 1:70 range so I'm looking forward to that.
CAVEATS: Since I'm still in the escalation phase I get random side effects from the treatment that I never had from POIS such as: joint pain, intestinal irritation, and pulled muscles. It also induces a mild, baseline POIS, so maybe I'm being too aggressive, but the treatment itself is not that much fun. I've been out of town a few weeks and had to take a break from treatments and felt a lot better then, almost normal. In another 6 weeks or so I should be in the maintenance phase and stop reacting to the treatments. I'll have a real good idea then of the final outcome.
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Those are great numbers and better than I would have expected of the sub-lingual (which I believe you are doing). Although it isn't 100% yet the reduction in duration has to be a big salvation!
For any of us, more UP time, is always greatly appreciated. A breather space, sanity check!!
Very exciting.
Please, Willem took this on at his own risk, and although it appears it can be done safely, when done without controls and or supervision
it CAN BE FATAL. As they say, "Please don't try this at home"
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Daveman, why do you say sub-lingual treatment can be fatal? I've never heard of semen being dangerous to ingest- especially your own.
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ok so i have everything figured out. the chalky stuff, when its out relieves some brain fog, but it relieves fatigue. responsible for fatigue. the downrite crappy feeling. is low dopamine, dopamingeric medication helps for quicker pois recovery. fats like cla 95 omega 3-6-9 bacon fatty foods take chalky stuff out for me, instant fatigue relief, my recovery period from 14 days is now down to 5. nothing causing due to blood tests, it is within the brain. i imagine different symptoms of pois sufferers are due to different brain chemicals and or different parts of brain infected. people might want to try dopamingerics like mirapex-adderal methylphenidate - wellbutrin- and diff, to see why what is disrupting these chemicals, different dopamingeric have different role of effects. this is true to me if you read my symptoms and relate to them you might want to go my route. there is so many different functions i get back from bienh on a far day without pois, and by trying dopamingerics the effects of the drug, are th
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the effects im missing while on pois days
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Daveman, why do you say sub-lingual treatment can be fatal? I've never heard of semen being dangerous to ingest- especially your own.
Any program that activates the auto-immune system, when done to excess (and each has their own limit) is subject to "shock". One would think that a simple thing like a vitamin or nutmeg couldn't do you harm, but when taken the wrong way or in too great a quantity can cause severe suffereing and even death.
I always think of AIDS for instance. When you look at your delicious and tender, loving mate, you don't imagine that what you are about to do can kill you.
Aside from that, doing tests willy nilly provides very little useful imformation. Again, "A failure with the data is not a failure, a success without the data is not a success".
I don't know how many times I've seen people on this and on the other forum do their tests ignoring all of the advice that everybody has made. There is a well established method for taking niacin, but there are still people taking 500mg.
So the warnings have to be made. And it's NOT just to be legal. It's to try to save lives, or at least save a lot of suffering.
A girlfriend might be able to swallow 30 cc of semen, but that doesn't mean that it's inofensive to put 500 micro-grams under the tongue for a POIS sufferer.
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Hello everybody, I have been away for a while from pois...thanks to abstinence from O's and arousals...but today I experienced something different...last night I went to sleep at around 4 and the morning my wife woke me up early...I didn't get enough sleep...lack of sleep has triggered pois like symtoms today since morning...its the same feeling I get when I am in pois cycle...brain fog etc...untill now I always thought pois was something allergic to the semen but this time there is no semen reaction still pois has started...don't know what is the cause...maybe something related to the chemicals in the brain...but i will like to tell you all for the last 2 weeks my life was great...positivness everywhere...i hope these symtoms go away tomorrow...and i get my good life back...bye everybody and take care...
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I've noticed the same. In general if I don't get enough sleep, I really feel it. If I only get 5 hrs of sleep for instance it's like I was partying all night.
Recently in Chile here we had our independance day. We had a family bar-b-que in the country, lots to eat, and drink, and more exercise than usual. But no drinking to excess ofr example, and during the day. At night I had an "O", and the next day was the worst POIS I have had. Fortunately it passed quickly, but it was like the "partying" was greatly amplified.
I had also been about a month "without".
I think it's an interesting point, somehow it's got to fit into the puzzle.
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Hello everybody, I have been away for a while from pois...thanks to abstinence from O's and arousals...but today I experienced something different...last night I went to sleep at around 4 and the morning my wife woke me up early...I didn't get enough sleep...lack of sleep has triggered pois like symtoms today since morning...its the same feeling I get when I am in pois cycle...brain fog etc...untill now I always thought pois was something allergic to the semen but this time there is no semen reaction still pois has started...don't know what is the cause...maybe something related to the chemicals in the brain...but i will like to tell you all for the last 2 weeks my life was great...positivness everywhere...i hope these symtoms go away tomorrow...and i get my good life back...bye everybody and take care...
The same can I say. When i dont get enough sleep, less than 5 hours i become POISed, my lymph nodes get swollen. Perhaps its related to EBV-reactivation.
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EBV reactivation?
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Epstein Barr is a virus that remains in a latent or inactive state in healthy people after initial infection. Reactivated Epstein Barr virus can occur after the primary infection due to immune suppression like stress, poor nutrition, immune lowering drugs and chronic underlying disease. Let's have a look at these triggers for reactivated Epstein Barr virus in more detail.
Stress
A study on astronauts showed that the stress associated with space flight resulted in lowered immunity and the reactivation of EBV. Chronic stress both before and during the flight came from sleep deprivation, rigorous physical and mental training, change of routine and diet, time away from family and the pressures of public affairs.
These results on astronauts are similar to those from psychological stress studies in which exam stress resulted in lowered immune cell function and increased antibodies to EBV. In fact many of the patients I am in contact with are school and university students who have come down with the illness or a relapse during or after their exams.
Nutritional deficiencies
A deficiency of nutrients including zinc, iron, selenium, vitamin A, C, E and D, can lead to lowered immunity and reactivated Epstein Barr virus. One of the roles of these nutrients is to help your body produce immune cells like T-cells, B-cells and antibodies.
Poor diet
Poor food choices like excess sugar, alcohol and processed foods can weaken your immune defenses and cause a reactivation of EBV. For example consuming a lot of sugar like that found in a can of soft drink, can slow down the activity of your white blood cells for a few hours. These immune cells are the ones responsible for killing and scavenging EBV from your body. The higher the amount of sugar ingested, the longer the white blood cells are slowed down for. If you are in the habit of drinking soft drink or eating sugary foods throughout the day, then your immune system will never work at its optimal capacity.
Chronic underlying disease
A chronic bacterial, viral or fungal infection can predispose you to low immunity and reactivated Epstein Barr virus. Examples of chronic infections include HIV/AIDS, mycoplasma, Chlamydia pneumonia, Lyme's disease and systemic Candida.
Patients who are taking post-transplant drugs after an organ transplant and patients who endure stress with chronic illness like diabetes, heart disease and ongoing pain may also have suppressed immunity and are more susceptible to reactivated Epstein Barr virus.
Poor Lifestyle choices
How well your immune system functions is closely linked to the everyday lifestyle choices you make. Smoking, taking recreational drugs, lack of sunshine, poor sleep patterns and inadequate exercise can contribute to weakened immunity and reactivated Epstein Barr virus.
Article Source: http://EzineArticles.com/3330826
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About Epstein-Barr Virus I think I may have that, because wikipedia says it's related to an auto-immune disorder that causes muscle and connective tissue inflammation and also that it's related to mono. I just remember that my body inflammation appeared sometime after having my first gf. Before that relationship my only POIS symptoms were mild brainfog, some tiredness, mild muscle loss, and eye burning. So I may have gotten mono from my gf then later developed an auto-immune disorder from the mono.
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No, you had POIS before EBV, but POIS is causing a EBV reactivation which makes Pois worse. If you treat POIS you will keep the virus latent.
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Ebv is also in more than 80% population in US.
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One more thing has come to my knowledge that sleep is most important for brain,if it doesn't get proper sleep it will not work properly...
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As day turns to night, keep your worries out of sight. No matter how tough that world may seem. You still deserve the sweetest dream.....Sleep well
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Today I had an very needed O after a gap of a month...feeling so relaxed...I wish I could have this feeling quite often...but thanks to POIS I am afraid of O...I am feeling very light and carefree...no tensions about tomorrow...just good sleep to follow...good night friends and fuck you POIS...sorry for my language but I am fed up...reallY
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wish we could have this feeling like normal people , ahhh , you guys so lucky to have sex and orgasm and then be normal humans , but we cant ....so be with each other , and hope one day we could cure this disease .......God bless us all , Ameen !!
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It takes around 168 hours to get back to to normal and only a few minutes go in POIS...still we have Orgasms...and still we live the misreable life...we human beings don't have control on our sexual desire...
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yes i get jeoulos with people when i hear that they have sex every day or night and are normal .............
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yes i get jeoulos with people when i hear that they have sex every day or night and are normal .............
Sameer, i think you, like the posters here, are stronger that most of that people. They can´t even imagine to live their lifes with that kind of disease/condition. It would shock them to know the daily suffering of this miserable condition and the effects it has on your life. You should find a reasonable treatment for you--- i have found the niacin that is going extraordinarily well, eliminating 100% my POIS symptoms. I do not know if it is difficult to purchase it in India, if it is; you should purchase it online (Solgar brand is the one that i am using)--- and then, you should realize that the miserys that you have live are going to make you a very strong human being, because you would enjoy the things in life, and you will give them the value they really have.
I think that if i have been able to overcome this symptoms (and treating it only as a condition that it will show if i do not take the appropiate measures), i can overcome everything i want. The same applies for you. Do not stop right now because we could see at this moment the end of the tunnel.
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yes i get jeoulos with people when i hear that they have sex every day or night and are normal .............
Sameer, i think you, like the posters here, are stronger that most of that people. They can´t even imagine to live their lifes with that kind of disease/condition. It would shock them to know the daily suffering of this miserable condition and the effects it has on your life. You should find a reasonable treatment for you--- i have found the niacin that is going extraordinarily well, eliminating 100% my POIS symptoms. I do not know if it is difficult to purchase it in India, if it is; you should purchase it online (Solgar brand is the one that i am using)--- and then, you should realize that the miserys that you have live are going to make you a very strong human being, because you would enjoy the things in life, and you will give them the value they really have.
I think that if i have been able to overcome this symptoms (and treating it only as a condition that it will show if i do not take the appropiate measures), i can overcome everything i want. The same applies for you. Do not stop right now because we could see at this moment the end of the tunnel.
hi observer...yes you are right...the problems we are facing has definately made us a stonger human being and i have experienced it also...before when i didnt know what i am suffering thru i was always in a mess..but now i wait for myself to come out of pois and when i do i am a stronger and much wiser human being...now i have really started giving values to things...more than i used to...i have changed a lot after i came to know about my problem first on the NSF and then on PCF..thanks to everyone who is a part of making this forum...and like always but with more positiviness i can definately see light in the end of this tunnel...and as promised the day we find a cure we all should meet up and party...bye everybody..and take care of urself and ur near and dear ones who also suffer because of us...
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I am feeling so lonely today...my blackberry and this forum is the only thing I want to be with...
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Normally I never think about my past...but today some pictures of past just came infront of my eyes...my exgirlfriend,the fun I had when I was in college...I think when one is passing thru pois the mind becomes so relaxed that you start thinking about things which normally don't come to your mind maybe because of the hectic daily activities...
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Sometimes I feel everybody has pois but to an extent...cause I have seen people's mood change and that time I felt is he passing thru pois...maybe everybody has pois but the recovery time differs between them and us...maybe because of the testosterone level...because in my case I have experienced that when I get the NE's the recovery time is less and when full O its more...maybe because in NE's the testosterone level doesn't drop but which helps in recovery but when I have full O it takes around a week to recover and around 2 week to be wiser and smarter like my trueself....I think there is definately something to do with testo levels in PoIs...
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I think so two I have done testerone in out of pois and in pois it was lower but not below recommended level but awfully close and out of pois it was much higher.
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Not everyone has POIS. If they did then there would be a lot more members on our forum and doctors wouldn't be clueless or even annoyed when we try to explain it to them. Many people say they feel more energized after they orgasm and most say they just feel a bit relaxed for a few minutes. A few minutes. People with POIS feel debilitating symptoms lasting for days. I just want to make sure that we don't downplay our situation here. We are not normal healthy individuals and every day we even survive with this horrible disease is a great victory to ourselves and to our cause.
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Sometimes I just ask myself...why me?
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Why am I so unique...the whole world should have been affected...then the pain would have become less...everything I do,I think,I speak is not me...when I am normal I am not like this...thank you GOD...
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Can somebody tell me how to use niacin?...will it help after the pois cycle has started?what are the other names for niacin ...I live in india...what mg tab one should consume and how many times a day?please help..I am in pois cycle ...its my 3rd day...
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Sometimes I just ask myself...why me?
The same question i (and i supposed that everyone here) have asked to myself. But that is not going to be more important than finding a relief and a cure, i am going to inform you how to get your niacin and use it.
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Can somebody tell me how to use niacin?...will it help after the pois cycle has started?what are the other names for niacin ...I live in india...what mg tab one should consume and how many times a day?please help..I am in pois cycle ...its my 3rd day...
1. Use of Niacin. First you should find your dose to effectively block POIS. I found that 100 mg niacin resulted in a 80-90% reduction of the intensity of POIS and shortening its duration to 24-36 hours. 200 mg niacin did the miracle for me: Absolutely no POIS. Second, you should take the tablets of niacin and wait. You will get the flush the first times you take it, and if your body has not been used to niacin, you will experiment it every time( I mean; if you take 200 mg every day, you should flush less and less every day until the flush dissappears, you would need then to raise your dose to get the flush, but if you wait and you are like 2-3 days without taking the niacin, you would get the flush again with this 200 mg. ) The flush is an indicator that the niacin is working. It should occur between 10 -25 minutes after taking niacin. Then you should wait another 20-30 minutes to have an orgasm. I found that maybe after 45 minutes the time is right, but if you want to be sure you could wait 1 hour. 2-3-4 hours is the window of opportunity to have an orgasm and no get POIS.
2. Will it help after the POIS cycle has started?. I think that it will improve the symptoms, but i made an interesting discovery for me. The first time i took the niacin and had an orgasm i was under the effect of POIS caused by an Nocturnal emission several hours ago. Having that orgasm under the effects of niacin just kicked my previous POIS symptoms.
3.http://www.solgar.com/SolgarProducts/Niacin-Vitamin-B3-100-mg-Tablets.htm. This is the brand i have been taken. I have found this niacin brands in India. http://www.alibaba.com/countrysearch/IN/niacin.html. I think you can purchase the same brand i am using via postal service from this website. http://www.solgaronline.co.uk/
If you have any more questions, i will be pleased to answer them. Good luck!
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its vitamin b3 is it available there
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Thank you observer...
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Thankyou soo much what observer means hear that niacin is really helping to overcome Pois
I will take it differently
So bitu are you taking it
And gnc b3 is that good ????
Should I start with 100 Mg
And what it means by flush ?????
Pls reply immediately
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Thankyou soo much what observer means hear that niacin is really helping to overcome Pois
I will take it differently
So bitu are you taking it
And gnc b3 is that good ????
Should I start with 100 Mg
And what it means by flush ?????
Pls reply immediately
You should find your dose. Flush:
For a person to flush is to become markedly red in the face and often other areas of the skin, from various physiological conditions. Flushing is generally distinguished, despite a close physiological relation between them, from blushing, which is milder, generally restricted to the face, cheeks or ears, and generally assumed to reflect embarrassment.
http://en.wikipedia.org/wiki/Flushing_(physiology)
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thanks tell me is gnc one is ok , and should i try with 100 mg
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Can somebody tell me how to use niacin?...will it help after the pois cycle has started?what are the other names for niacin ...I live in india...what mg tab one should consume and how many times a day?please help..I am in pois cycle ...its my 3rd day...
starting with 150mg to 300mg of niacin (nicotinic acid) should be safe. Take it about an hour before your "O" for the best effect. If the bottle is labled "niacin" it should work alright unless it says "extended release" in that case it may not work as well.
The other kind is nicotinamide ("niacinamide"). Also some members here use Xanthiol Nicotinate which is a combination of xanthinol and niacin.
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Today is the 5th day and I am still waiting for the spike...
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I have to take so many decisions at work...but I stop taking any when I am in pois because they are usually wrong...I wait for myself to get out of it and then I decide and even talk to important people cause that time I am in my senses...
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i came to know one thing that having NE's wont be so bad for you as much as is ORGASM because in NE the recovery time is less around 2 days and you recover fully but in ORGASM the recovery time is long and even after 7 days untill your balls are not fully filled with testosterone your thinking abilities are not fully restored...to get fully restored after an orgasm i need around 2 weeks...but from NE's its just 2 days to maximum 3days....so just stay away from ORGASM thats the only cure for me...or else i am just a piece of shit...suffering...
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I think there is a fluctuation in the levels of testosterone in the 7 day pois cycle...today is my 5th day and i noticed that from day 1 till today every day i have noticed a change in my mood...someday i feel a little better and somebody a little worst....like a cardiograph....up and down and up....i think this will go on untill the 7 day when there will be huge up...that is the spike...and then onwards there wont be any down untill the next O or the next NE....now i am understanding many new things about pois and myself and so i just thought i should let u guys know...bye
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Thanks for sharing Bitu. Sound like you and I are exactly the same. A NE still induces POIS for me, but not as bad. I don't know why, but wonder if it's because your heart and blood vessels aren't as engaged when it's a NE.
Anyway, good luck with everything. I've really learned a lot from other people's experiences.
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Today is the 7th day I am feeling a lot better but not fully recovered maybe because I had a NE yesterday...
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Found this on net..something interesting http://artofmanliness.com/2009/06/03/30-days-to-a-better-man-day-4-increase-your-testosterone/
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It happened again...today was my 8th day since pois cycle started and I didn't fully recover...untill morning I had an orgasm and suddenly I recovered from the symtoms...it had happened before also...an orgasm kind of resets the symtoms of earlier orgasm...this should be noted in treating pois...I hope somebodys reading this...it had happened before many times...
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ssri medication works wonders for pois. ive been on a few of them but what works best is celexa and prozac. they will make your symptoms reduce 80%-90%. might be the answer
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ssri medication works wonders for pois. ive been on a few of them but what works best is celexa and prozac. they will make your symptoms reduce 80%-90%. might be the answer
I tried prozac for a month. It just made me very tired constantly and then started to make my hair fall out. I don't think prozac is safe. It didn't affect my sex drive. I was only on a starting dose though.
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ssri medication works wonders for pois. ive been on a few of them but what works best is celexa and prozac. they will make your symptoms reduce 80%-90%. might be the answer
Why are you posting we could try Celexa when in the previous posts you wrote not to take antidepressants?
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For me pois strucks even if I sleep less...everything was going well untill last night when I went to sleep late and I got up early...slept for around 6 hours and in the morning I was in pois...orgasms cause pois,NE's cause pois and even lack of sleep cause pois...there is something common in between all of them I think...
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Hi Bitu,
This is a really interesting observation. I've never had POIS symptoms from anything other than ejaculation or at least slight seminal fluid leakage due to sexual stimulation. When you say you get POIS symptoms from lack of sleep, have you noticed this many times? Its possible in sleep to become sexually excited to the point that there is a very small amount of seminal leakage (some might call it pre-cum) but no actual NE. Are you sure this has not happened on this occasion? Slight seminal leakage gives much milder more short-lived symptoms to me compared to full ejaculation.
I am certainly not doubting your observation. I just want to make sure that you have discounted the possibility that you became mildly stimulated in your sleep during the night. Are your symptoms from lack of sleep as severe and long-lasting as your symptoms from ejaculation?
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Hi mellivora,
This has happened to me many times before also...if I get less sleep compared to my normal routine then I go in pois...and about the pre cum,no there was no arousal or precum last night because if its there I could easily make out in morning as the mouth of myt penis is sticky even if there is a little leak...I keep a strong note of it...now tonight if I get a good sleep I will be fine tomorrow...I know that because of my experience...there is definately some connection between pois and lack of sleep...it gives me the same effect but it resets once I get good sleep again...
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In the last year, I have become a lot more sensitive to little sleep, and as you say, in POIS or not it seems to give symptoms similar to POIS. But it last only as long as the shortage. If I get a good nights sleep the next day I'm fine again.
It's as though one is weaker and tiredness puts you over the line quickly.
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Its a new morning now and I had a sleep of 9 hours and I am fresh as dew again....
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well thats how i felt starting prozac also. i have wonderfull sleeps from it, helps anxiety and insomia alot. but take into consideration, different generics brand names in my experience all dont work the same, ratio -fluexetine is what really helps.
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Friends I have discovered something very new since a week...everytime I maturbate in the morning around 9 am when I usually wake up I kind of get a spike in my energy levels...so much spike that I feel very energetic...this energy levels stay for around 2-3 days and again if I feel a little down I masturbate in the morning and I get my energy levels back...I think I have found something very useful for me as well as everyone in this forum..pls note-the Orgasm got to be had in the morning..
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Thanks bitu. I hope this continues to work for you.
It would be interesting to know from those few people who have managed to alleviate symptoms by having a second orgasm whether this second orgasm is generally in the morning when it works. There does seem to be a daily periodicity to my POIS - my symptoms nearly always feel better in the evening than in the morning. This suggests that there could be some sort of daily cycle in hormones or immune response, at least in my case.
However, I have certainly had orgasms in the morning before and still got symptoms the same as usual.
Do you still have some POIS symptoms with your energy spike?
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There don't seem to be any symtom with the energy spike...the spike is so powerful that the symtom seem to hide or die...on the 1 st day the energy levels increase so much that I feel you should be doing something I just can't sit idle...on the 2nd day I feel a little settled...but whatever is going on I am feeling better...itoday I have planned I will start having sex with my wife regularly now but only in the morning...its been months I have been avoiding her....even she feels bad but she doesn't know why I am doing it...hope for the best...bye
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Good luck!
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bitu, perhaps the fact that testosterone levels tend to be higher in the morning has something to do with this. Also I have noticed that sometimes if I take fenugreek I will be able to have an "o" early in the day and after taking about an hour long nap I'll have higher energy levels upon waking that I would have if I hadn't had an "o" at all. However I'm not sure if this happens every time or not. I believe you said that you eat a lot of fenugreek/methi in your meals, is this correct? Perhaps fenugreek/methi could play a role in this phenomenon.
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When I am in pois I am exactly like my grandma who is suffering from alczimers...what she talks all the time about things again and again even I talk the same way when I am in pois...I keep on repeating things...maybe I am suffering from early stages of alczimers...
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My pois cycle has started and today is the 1st day...and I am just thinking about 1 thing right now that how long will it last this time?the same suffering everytime...I am fed up of it...
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Workloads which I normally take when I am alright are very difficult to face right now...people feel that I am doing it purposely but they don't know what I am going through...now I feel how hard life would be for people who are handicaps...I hope a cure for pois comes before its too late...
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Is your POIS now from a NE or a O? Does it matter? Have you tried niacin, fenugreek?
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Its from an O...pois from NE are not so bad...niacin no I haven't tried yet and fenugreek I have it in my daily meals...
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I had an O after almost 15 days...I shouldn't have had it...it gives me a brain wash...all my neurotransmitters are washed away...
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Please take a second to complete this poll:
http://poiscenter.com/forums/index.php?topic=249.0
thanks
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Sometimes I feel we are jus few steps away from THE CURE to pois...but the right steps...
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Has anyone tried a dopamine agonist or antagonist?
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I have noticed something very strange...an absistence from O for 10-12 days or more makes me so aggressive,bold,rude and tough which normally I am not...normally I am very soft spoken and diplomatic in talks...but this feeling after the absistence reminds me of my teens when I was not afraid of anything...but I get into arguments also nowadays...
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yeah i do similar thing i go from soft spoken, to much much louder and definately more aggressive.
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In those two cases it sort of sounds like testosterone is involved, or something like that!
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That means I should Orgasm every 10-12 days to stay in the normal testosterone level...nor high nor low...but after every O it takes a cuple of days to recover that too if had in morning or else the recovery time also increases....what a fucking life...
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That means I should Orgasm every 10-12 days to stay in the normal testosterone level...nor high nor low...but after every O it takes a cuple of days to recover that too if had in morning or else the recovery time also increases....what a fucking life...
Maybe the niacin can help with the short term problems. Sure does for me.
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That means I should Orgasm every 10-12 days to stay in the normal testosterone level...nor high nor low...but after every O it takes a cuple of days to recover that too if had in morning or else the recovery time also increases....what a fucking life...
In my experience, the effects of testosterone are quite amplified on the net, after being on it for over a year, I've found that I am more energictic say 3-4 weeks post ejaculation, prior to test than I am, say 2 weeks after ejaculating, whilst being on it.
There is some hope, I've found, for me, regularly ejaculting is building up my tolerances, each every time my resulting POIS is less. worth a punt, it's not worth ejaculating regularly if there's going massive disruption in your life from the resulting symptoms, keep strong friend.
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Pois is all about fluctuating testosterone levels...that's it...
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we are not normal we cant orgasm like normal humans , if u want to live happy , i know its really hard to do it ...........but when i feel too much depressed i do it , and comes in the cycle , i am facing it terribly .....
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Pois is all about fluctuating testosterone levels...that's it...
This is certainly not true since anti-histamines have helped some sufferers and niacin has helped many. Fenugreek, which has helped many may have no affect on testosterone. Testosterone probably does play a role in POIS since testosterone therapy has helped some of us, but it is not the only factor.
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Today in the morning I saw blood in my sperms when I masturbated.I am a little tensed can somebody please tell me what could be the reason.I have no pain anywhere and no other symtoms other then the blood.
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The most obvious thing I can think of is the prostate.
In any case, it would be the safest to go see a doctor. We can;t avoid them because they don;t understand POIS, and it's always best to be safe than sorry. If we;ve got someting other than POIS as well, they should at least be able to recognize and attend it.
I haven't heard of blood in the semen from POIS.
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I think pois is all about serotonin deficiency...that's it...
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Sometime if I have multiple orgasms after every orgasm I get a different feeling in my mind.maybe orgasms disturb the chemicals in our brain.sometimes I feel a morning orgasm gives me less effects as compared to one in the night.sometimes it even resets the symtpoms.but still pois rules I can never get over it as hard a s I try.sometimes I think pois is some kind of chemical imbalance and many people in this world would be having this syndrome but they might not be thinking about it so much that's why would be living a normal life but we are always thinking about it and also reading about fellow people experiences that's why we are sinking more and more into this losse sand.I think its all in the mind.we should learn to come over it.
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I am feeling very lonely in this big world.
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I am feeling very lonely in this big world.
Sorry to hear you feel that way. It's really too bad we can't have an in-person support group to look each other in the eyes and realize that we're not alone. Things can and will get better Omen. I'm very optimistic that we'll beat this thing.
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same here i have a family to support but this thing is killing me and my family ......
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Hey guys, Does anyone's cognitive symptoms include an unexplained paranoia? Like theres more going on than there should be and especially around people? Like theres almost a threat around people and your internal alarm always going off. Not anxiety and not quite like schizophrenia either. Really unexplained. This is constant for me and its hell..
I am currently taking Niacin works a little for me. I tried Benadryl and it seemed to calm my physical symptoms down more than usual and the cognitive a little but not as much as the Niacin.
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Hey guys, Does anyone's cognitive symptoms include an unexplained paranoia? Like theres more going on than there should be and especially around people? Like theres almost a threat around people and your internal alarm always going off. Not anxiety and not quite like schizophrenia either. Really unexplained. This is constant for me and its hell..
I am currently taking Niacin works a little for me. I tried Benadryl and it seemed to calm my physical symptoms down more than usual and the cognitive a little but not as much as the Niacin.
If I am off medication I can feel this way sometimes. The meds I take that help are for anxiety and psychosis. Paranoia is treatable, I'd suggest seeing a psychiatrist. Some people have a stigma around seeing a psychiatrist (does this mean i'm crazy? is this wrong/unethical?), but i ensure you it is quite ok! Your health is what is most important!
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Nightingale, Thank you for your response. I've seen all kinds of doctors including psychiatrists like many others in this forum. This paranoia or discomfort I am constantlyl experiencing fluctuates with POIS and is directly affected by it just like all my other symptoms. but my issue is constant so its always there. If there is anybody else who is experiencing this please contact me so we can work together.
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Hey guys, Does anyone's cognitive symptoms include an unexplained paranoia? Like theres more going on than there should be and especially around people? Like theres almost a threat around people and your internal alarm always going off. Not anxiety and not quite like schizophrenia either. Really unexplained. This is constant for me and its hell..
I am currently taking Niacin works a little for me. I tried Benadryl and it seemed to calm my physical symptoms down more than usual and the cognitive a little but not as much as the Niacin.
That started with me only recently and with the stronger of my sessions. For me Xanax worked well for relieving the paranoia.
Since Niacin though, NOTHING. Absolutley no cognitive symptoms. Have you posted your niacin regime? Which brand and type and dosage do you use?
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I see. Yes Ive tried xanax and others. I feel as though sometimes I dont have the proper chrmicals to deal with everyday activities nevermind people. An its uncontrollable, ive never been an anxious person. Ive gotta find a way to replenish whatever is being torn down.
Yes ive tried niacin but havnt yet posted about it because it has been inconsistent for me. I have also recently tried Benadryl but it did not seem to have worked effectively as niacin.
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GNC 250mg. I take nearly 500. 2 of 3 times the flush wasnt strong the third I nearly passed out.
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What do you mean by pass out
Do you feel sleepy after taking it
What side affects you can get with vitamins ???
Should I buy 250 Gnc with flush witout flush ??
If I take 250 I mean start taking 250 Gnc one does 1 tab of 250 can it make any diff ???
So is the diff in affects or side affects with or without flush ???
Sorry to mAny questions !!!!
Thankyou
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Yes ive tried niacin but havnt yet posted about it because it has been inconsistent for me. I have also recently tried Benadryl but it did not seem to have worked effectively as niacin.
I wonder how combining niacin and benadryl might work? Last night I had 5 beers, 3 benadryl pills(25mg each), and 100mg of niacin, but I passed out before I tested the orgasm unfortuneately. I did orgasm twice in the morning and feel fine now about 2 hrs after waking up so I think the total combo of those things worked well for me and I believe the combination would work better if I had orgasmed at the correct time and if i had taken 100mg more of niacin.
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:) :) :) :)
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Yes ive tried niacin but havnt yet posted about it because it has been inconsistent for me. I have also recently tried Benadryl but it did not seem to have worked effectively as niacin.
I wonder how combining niacin and benadryl might work? Last night I had 5 beers, 3 benadryl pills(25mg each), and 100mg of niacin, but I passed out before I tested the orgasm unfortuneately. I did orgasm twice in the morning and feel fine now about 2 hrs after waking up so I think the total combo of those things worked well for me and I believe the combination would work better if I had orgasmed at the correct time and if i had taken 100mg more of niacin.
u feel fine because u orgasmed in the morning...thats the key...
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Omen, Its very interested that you find a morning orgasm beneficial. I am thinking of trying it although it is risky business considering I feel my worst in the morning. It it does not go well it could set me back for weeks, I'm sur everyone can relate to a bad experience with that type of thing. Its great that it worked for you, Omen and I comment you for the information. Has anyone else tried a morning orgasm?
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I think pois is nothing but serotonin deficicency...
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I had my worst POIS attacks from morning orgasms. I think that everybody is different.
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I think pois is nothing but serotonin deficicency...
guys pls check this out...i think somehow pois is all about serotonin deficiency...http://www.livestrong.com/serotonin-deficiency/
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I feel that serotonin could play a role, But the same could be said about dopamine and many other neurotransmitters..
One thing I havn't seen or or brought up in this forum is semen color. I have noticed that my semen has had a yellowish type shade since my problem has started and my ejactulation is also weak. Semen can also be 'watery' at times. The yellowish and weak ejaculation even if its the first time in weeks, and the watery semen especially if its more than once in a week.
Anybody else ?
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Also, I am seeing a doctor. My constant symptoms are so very hard to research. The Niacin only helps a little bit, but at least it helps.
I am able to take any medication I suggest to this doctor. I have tried celexa and it made me numb. My doctor wants me to take abilify because my mental symptoms were initially dullness and trouble thinking but in the past year (8th year of POIS) I have developed an unexplained paranoia. To me if feels like I am unable to deal with any kind of sound, daily task, conversation without extreme discomfort, Like theres a threat and im in defense mode. Sure, it sounds like a pre-schiz type of deal but it fluctuates with my POIS and was positively affected by Niacin.
I just dont want to take an antipsychotic because thats some dangerous last resort stuff. Any suggestions ? Maybe norepinephrine inhibior. I really don't know !
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Sadly, Willem has finally been banned as a forum member. We have always made strenuous attempts to not deny any POISer in the world with participation in this Forum. Every ban decision has been made very painfully, but in the end, always contributed to the greater good of our community.
Willem has been recruiting members - for his for-profit venture - against agreements we had made and standard forum norms.
He has demonstrated a blatant lack of respect for the well being of the community and is ONLY interested in his “for profit venture”.
We are in the final stage of very important and real progress, and are working our butts off without profit with the real intention of the community in mind.
More dilution to another profit oriented community will only delay or stop any chance of finding a cure.
Many Thanks, everyone, for your continuing loyalty. The sad, divisive differences coming from profit, and selfish motives will become very apparent to everyone and we are very confident that reason - and common sense and most importantly:
G O O D F A I T H - will prevail in the end.
As always,
Wishing you the best, and only for YOUR interests, not anyone else's.
demografx
and
Davemen
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Ali, I was reading your last post here:
http://poiscenter.com/forums/index.php?topic=168.msg3798#msg3798
And your profile information struct me! I know exactly what you mean, although I had suffered predominantly physical symptoms. But in the last little while BN (Before Niacin), I was beginning to get cognitive symptoms more predominantly and the POIS session began to change, going from long and physical to short and cognitive.
But for me the short and cognitive where worse. I suppose in retrospect they weren't really shorter, it just seemed like it because the heavy cognitive effects changed the proportions and made the physical symptoms seem like a piece of cake.
That day 2 can be murder! Then by day 3 or 4 it's gone and things return to normal.
But I feared even more to enter into "sex", the results were too great.
Thank Goodness, for niacin. It has brought me back to "almost normal". I'm at least three months now POIS free.
Niacin isn't perfect nor a cure, but I know it is the link to a cure.
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I've been reading about this treatment for some time. Would you kindly describe or post a link how I can optimally begin to use niacin? I just purchased a GNC Niacin 500 (tablets, with flush).
By the way, I've started going to the gym five days a week for the last three weeks. My two main problems are self-control (avoiding sex, masturbation and NE) and handling the POIS downtime. I think the training is helping, i.e. staying longer than my usual 24-48 hours without O, and reducing the duration and intensity of POIS downtime. It's my bad that I'm not journalling all this, so I'm relying on my POIS-affected memory to notice the changes.
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Hi Ali,
I was surprised to read that the tablets you describe are the flush variety.Other 500mg tablets I have seen have been the non-flush type. However, I googled yours and it seems you are correct. Most people who have taken the flushing type of Niacin have found that 200mg is sufficient to give them a flush so you might even consider taking half a tablet for your first try.
It is thought (based on people's experiences here) that it may be best to take the tablet on a relatively empty stomach to help ensure a flush (we don't yet know if the flush is definitely important - mixed reports have come in on this).
It does seem important to take the niacin BEFORE orgasm. Probably around 45mins to 1 hour before orgasm is a good guideline. Some people have said they try to orgasm as the flush subsides or just after (the time taken to get a flush after taking the tablet can vary from 5 minutes to 1 hour, perhaps dependent on how much food is in the stomach, time of day, type of tablet. Sometimes a flush doesn't happen depending on dose taken etc).
I should say that Niacin has not worked well or at all for me so far but it has worked for plenty of other people as you can see from the summary I have been compiling here:
http://poiscenter.com/forums/index.php?topic=235.0
Good luck!
on exercise: yes I think sometimes this can be a useful way of 'distracting' one's self from the urge to to O
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What niacin most seems to help are the cognitive effects AND that Yuck feeling that follows you around for 2 or 3 days.
I have never taken more than 150mg. I get a GOOD flush with 100mg and at least 3 hrs of previous fasting.
The flush feels like a sunburn, the face goes quite red and in many they can feel the heart beating in the head and face.
But as much as it sounds quite uncomfortable, it's not really all that bad, and passes quickly.
Perhaps the best would be to crush your 500mg tablet and divide the powder in three for the first shot.
I approach sex now with a totally different outlook. If you've had POIS since puberty this could be quite the experience!
Good luck!
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I had my worst POIS attacks from morning orgasms. I think that everybody is different.
Yes, I agree. I think in my case, I just prefer to sleep off the first 8 hours. So I try always to have them at night.
Most recently I decided to experiment and did something I would otherwise never do. First think in the morning, a niacin on empty stomach and orgasm 30 minutes after.
Hardly felt anything. Maybe light light POIS for the first 4 hrs, which faded throughout the day and nothing more.
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yeah that sounds like the best time to use niacin, i bet that flush was real intense.
i can have an orgasm in the morning without niacin and still be fine as long as i don't do more than one.
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Hi Ali,
I was surprised to read that the tablets you describe are the flush variety.Other 500mg tablets I have seen have been the non-flush type. However, I googled yours and it seems you are correct. Most people who have taken the flushing type of Niacin have found that 200mg is sufficient to give them a flush so you might even consider taking half a tablet for your first try.
It is thought (based on people's experiences here) that it may be best to take the tablet on a relatively empty stomach to help ensure a flush (we don't yet know if the flush is definitely important - mixed reports have come in on this).
It does seem important to take the niacin BEFORE orgasm. Probably around 45mins to 1 hour before orgasm is a good guideline. Some people have said they try to orgasm as the flush subsides or just after (the time taken to get a flush after taking the tablet can vary from 5 minutes to 1 hour, perhaps dependent on how much food is in the stomach, time of day, type of tablet. Sometimes a flush doesn't happen depending on dose taken etc).
I should say that Niacin has not worked well or at all for me so far but it has worked for plenty of other people as you can see from the summary I have been compiling here:
http://poiscenter.com/forums/index.php?topic=235.0
Good luck!
on exercise: yes I think sometimes this can be a useful way of 'distracting' one's self from the urge to to O
I did something stupid. Niacin is involved. Before verifying the dosage or waiting for the answer above, I went ahead and took one full Niacin 500mg tablet, relying on some vague recollection of reading somewhere on NSF about niacin associated with the number 1000. So I assumed that was the normal mg dosage, and 500mg would be a safe start. Well, the flush hit hard. Really hard. For a couple of hours. The next day, a skin allergic reaction in the form of rashes and hives started. It's been about a week since that one time of taking niacin. I still have rashes.
To counteract, I started ceasing any source of niacin from supplements, so I've stopped taking my daily multivitamins for a couple of days now. Zyrtec (Cetirizine) also helped with the itching, but I switched to Claritine (Loratadine) because the drowsiness caused by Zyrtec, combined with the POIS downtime, made me miss work the next day (in turn causing an extremely loathsome feeling of uselessness, guilt and overall negativity--my POIS tri-signature). However, Claritine was less effective but the itching is now sometimes bearable, at least. It'll hopefully go away soon. It also just happens that I'm going to start sort of a detox/cleansing diet tomorrow as part of my personal trainer programme. I hope that helps too.
Anyway, I now wonder if I actually have an allergic reaction to niacin regardless of dosage. As for whether niacin helped with POIS (I took it over one hour before O; when the flush was starting to subside a little), I recall no noticeable improvements. Perhaps niacin is not for me or maybe the dosage was too high--the system shock negated/reversed the intended benefits?
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What niacin most seems to help are the cognitive effects AND that Yuck feeling that follows you around for 2 or 3 days.
I have never taken more than 150mg. I get a GOOD flush with 100mg and at least 3 hrs of previous fasting.
The flush feels like a sunburn, the face goes quite red and in many they can feel the heart beating in the head and face.
But as much as it sounds quite uncomfortable, it's not really all that bad, and passes quickly.
Perhaps the best would be to crush your 500mg tablet and divide the powder in three for the first shot.
I approach sex now with a totally different outlook. If you've had POIS since puberty this could be quite the experience!
Good luck!
Great. The O couldn't wait for your answer and I took five times a good dosage. I'm an I.D.I.O.T.
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Anyway, I now wonder if I actually have an allergic reaction to niacin regardless of dosage. As for whether niacin helped with POIS (I took it over one hour before O; when the flush was starting to subside a little), I recall no noticeable improvements. Perhaps niacin is not for me or maybe the dosage was too high--the system shock negated/reversed the intended benefits?
Ali, let the flush to subside completely to be sure. If you are going to try again, crush the niacin into powder and take a lower dose (150-200 mg, 500 mg is too much as you said).
If i do not wait until the flush has dissappeared and i have an O. i am exposing myself to the risk of having some POIS. Has happened before.
The other thing is that i can reset my symptoms if i have a "flushed orgasm" while i have POIS symptoms. Taking niacin without having an Orgasm while in POIS will only help me for some hours and POIS will kick again after the effect subsides.
This is my advice. Good luck and tell us your experience.
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Great. The O couldn't wait for your answer and I took five times a good dosage. I'm an I.D.I.O.T.
Niacin flushes out toxins in tissue cells. Perhaps the large dose released so many that they are still floating around forming a rash.
Some people can take 1000 mg or more per day, but they have to build up a tollerance to it. Not what we want to do however. These that take those kind of doses, don't even get a flush from the 1000 or so they take. I guess that's why they make bigger pills.
I'm sure the rashwill clear. I always err on the low side, I'm a chicken sh.t sometimes. Always worried that my rush will be too strong!! You won't have to worry about that at least, you know what your limit is! I'm sure you'll be more careful the next time :)
But please, don't give up. Try at least one more time, by the books. Give yourself time to get back to normal first.
As I said, at least 150 or so won't come close to doing what it did this time so you can relax on that worry anyway.
Sorry about your scare though. Sometimes we are alone in these experiments!!
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Well, I don't mind trying out niacin again. Properly this time. I'll wait for the rashes to completely go away first.
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Well, I don't mind trying out niacin again. Properly this time. I'll wait for the rashes to completely go away first.
seeing as you did have such a severe reaction i would suggest you only take 50mg to 100mg next time if you're able to divide the powder into that small of an increment.
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Good suggestion VM. Always better to be safe. And just in case, the system might be more susceptible to niacin because it got hit so hard. give it the time to straighten itself out.
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Hi its been long I haven't posted....I have been experiencing a strange activity in my body ...whenever I used to have sex/orgasm in the night before sleeping from the next day till the 7th day I suffer from heavy brain fog and suddenly on the 7th day I feel better but since 2 months I tried something new whenever I have sex in the night the next morning again I have an orgasm which helps me a lot I go into brain fog for that day and the next day but on day 3 I suddenly feel better as if I am out of the brain fog...but this lasts for some days till then I avoid orgasms but on the 7th or 8th day I feel a liitle over better means I don't know how should I explain u guys its like the chemicals in the brain exceed the level they should be and I feel little uncomfortable but that feeling is not like pois no brain fog its like I become more cautious more energetic like someone who knows everything...something like ADHD?...I don't know but I am gonna find out...I have an appointment with a neurologist on tuesday...he is one of the best in India...I will tell him everything what I am suffering thru..I hope he helps me out...bye friends...I will keep u updated...
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Hi its been long I haven't posted....I have been experiencing a strange activity in my body ...whenever I used to have sex/orgasm in the night before sleeping from the next day till the 7th day I suffer from heavy brain fog and suddenly on the 7th day I feel better but since 2 months I tried something new whenever I have sex in the night the next morning again I have an orgasm which helps me a lot I go into brain fog for that day and the next day but on day 3 I suddenly feel better as if I am out of the brain fog...but this lasts for some days till then I avoid orgasms but on the 7th or 8th day I feel a liitle over better means I don't know how should I explain u guys its like the chemicals in the brain exceed the level they should be and I feel little uncomfortable but that feeling is not like pois no brain fog its like I become more cautious more energetic like someone who knows everything...something like ADHD?...I don't know but I am gonna find out...I have an appointment with a neurologist on tuesday...he is one of the best in India...I will tell him everything what I am suffering thru..I hope he helps me out...bye friends...I will keep u updated...
Omen i fully know what you are talking about that is what my recovery used be like. ( you just feel so good, you feel like you have pumped pull of caffeine adrelanine.) I used to time my esssays for those days, i wrote them so easily.
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Now I am in pois today is the 1 st day...I am so upset...and annoyed...
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Since NSF is down, and when it's down from time to time, this is sort of like the NSF area, a general discussion thread.
Specific themes of course are better placed in their area for proper organization.
Now that the "Main WEB Page" is up, we're going to start to get more attention. I saw in Google Alerts, that the new survey page popped up after only a day. Prior we were getting an advisory once a month at best.
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The first survey is available. It won't let you in if you're not on the list (both for SPAM reasons and survey control reasons). This frst survey will help to develop POIS goups and will associate you with one of them. So it's important that the biggest number of us fill it out.
Later I'll make a second identical one to be filled out by volunteers, who will go through the 150 or so members that had previously filled in data, and which we have in a Word doc, and fill in their data.
The reason for the second one is that it won't automatically associate the person's name who entered the data to that data, but will use the manually entered username of the survery. This second one in conjunction with the first one will give us a powerful database to be used in isolating remedial effects per POIS type.
Very exciting, but we will need you whole hearted cooperation. It's an important prelude to our research program.
A third survey to come soon is a niacin related survey. This will also be able to be cross-referenced by POIS group.
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Sorry, I'm going to try to generate a list of "respondents" today or tomorrow so that you can enter the survey with your usernames.
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I feel orgasm is not the only thing that triggers this syndrome even doing cardio exercise for just some normal time like walking on the treadmill with incline or running on the treadmill for some time also triggers pois for me...your heartrate should increase...I feel there is nno allergy from semen or anything...pois is all about the neurotransmitters in the brain...when we orgasm they are disturbed...when we run on the treadmill the heart pumps blood and oxygen with pressure even this disturbs the neurotransmitters...that's all...try it friends if running on the treadmill also gives pois then there is nothing like post orgasmic illness syndrome...its just something to do with the chemicals in our mind..bye
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Thanks for the post Omen. I'm sorry you get POIS symptoms from exercise too, that must be frustrating. Its not the case for me even with heavy aerobic exercise as you describe. How long do your symptoms last after a session on a treadmill?
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I will check..yesterday in the morning I did treadmill with incline and immediately after stoping I was in brain fog...I am waiting for the recovery and will let u know about it...
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@Omen
I have found similar brain-fog when i have really overexerted myself by walking for miles, gardening or surfing beyond exhaustion. Exhaustion will obviously make anybody, well ... exhausted, but its the brain-fog element that seems to be unusual and that most people dont seem to get.
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I can't take any decisions today...when I am so good and fast at it...thanks to my mind...
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The brain fog which I got from walking on the treadmill with full incline did not recover even on day 2...this led me to press the O button and now I am fully into pois...now it will take 2 days to recover...till then life in fog...f@#@
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this is jim a new member,i was refered to a chinese herb doctor today. if it works i will let you know.
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jim, have you tried the herbs that have already helped POIS members such as fenugreek, saw palmetto, and relora?
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So i was alone with a girl hoping to just flirt and have a great conversation guess what nothing totall fail
I am going to give that up for a while it is just to hard coming up with shit talk about
Hope On!!!!!
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Hey guys, I have a random question regarding testing.. Any responses are much appreciated.
In my POIS, my head feels almost inflamed and heavy. I have always felt that this could be effecting my brain and, in turn, causing my cognitive POIS symptoms. I have had more than 1 head MRI but nothing abnormal has showed.
Would an MRI have show head inflammation effecting the brain?
Thanks,
Jon.
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Jon, nordnurse might know.
Post this in Familiar Place, it's more active.
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Hey guys, I have a random question regarding testing.. Any responses are much appreciated.
In my POIS, my head feels almost inflamed and heavy. I have always felt that this could be effecting my brain and, in turn, causing my cognitive POIS symptoms. I have had more than 1 head MRI but nothing abnormal has showed.
Would an MRI have show head inflammation effecting the brain?
Thanks,
Jon.
Jon, I have considered this as well. Your description is pretty spot-on with how I feel in POIS. I always describe it to my girlfriend saying, "It feels like my brain is swelling in my skull." (maybe a tad dramatic-sounding, but still accurate!). I've noticed that the swelling is particularly strong at the point where my skull connects to my spinal column and around my eyes. When I press and massage those areas I can literally feel the pressure being shifted around in my neck/face/head. It's like the bones are painful to the touch. Also, Aleve provides some temporary relief to my POIS which also fuels my interest in the connection to inflammation.
I too have gotten an MRI. Sadly, it was just prior to my discovery of the forum, so I didn't yet know about POIS. I didn't really know what to ask or look for, and I didn't think to time it with an O. The MRI was ordered for "post coital headaches," which I now recognize as POIS. Like you, my results came back fine.
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i found software called coldturkey. It locks down all websites you choose for as long as you ask it to. The beautiful thing about it is during those locked periods it is almost impossible to delete from computer. I am going to use it in combination with stayfocusd.
I am going to use it to cut down my orgasm frequency and stop distractions like reddit. Just spreading the word for those who have similar problems.
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i found software called coldturkey. It locks down all websites you choose for as long as you ask it to. The beautiful thing about it is during those locked periods it is almost impossible to delete from computer. I am going to use it in combination with stayfocusd.
I am going to use it to cut down my orgasm frequency and stop distractions like reddit. Just spreading the word for those who have similar problems.
No amount of porn blocking will compensate if you have a weak mindset. You will always find a way around the porn block. It's tough sometimes, I've been struggling for quite some time. Getting rid of the computer from the bedroom and placing it in a more public area might be a good idea.
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i have a laptop so it is very easy for me to just move to my room . My added deterring agent is to stay out of my house as much as possible and go to public places to study. Go to sleep as early as possible.
It is very hard when after two weeks you cant focus anymore because your mind is so distracted with relieving the body.
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PLEASE help jumpstart...
Our Road To POIS Recovery!!!
(http://www.kvie.org/support/images/button_donate_monthly.gif) (http://www.rarediseases.org/about/support/research-donations/fg_base_view_p3)
Just CLICK THE SIGN ABOVE...then just scroll down the page till u see...
"Make this a recurring donation
You can schedule a recurring monthly donation and your gift will repeat once a month for up to one year. Please note that this is in addition to today's gift; if you choose to repeat your gift for 12 months you will be billed a total of 13 times (today and once a month for the next 12 months)."
Number of Months _____
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I'm going to create a new post on meditation for sex addiction. You guys should check it out! Meditation really helped me.
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Wow how much worse my POIS has gotten in the past couple of months. I have muscle tremors, I cant think well at all, Trouble breathing correctly, Fatigue, Trouble sleeping/getting up, Neuro problems so bad that I have trouble controlling facial expressions, Etc.. 25 years old just getting into my family's business and I am not me. I have tried so many things .... I really need help ....
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Wow how much worse my POIS has gotten in the past couple of months. I have muscle tremors, I cant think well at all, Trouble breathing correctly, Fatigue, Trouble sleeping/getting up, Neuro problems so bad that I have trouble controlling facial expressions, Etc.. 25 years old just getting into my family's business and I am not me. I have tried so many things .... I really need help ....
Sounds like you are in day 2 or 3! Hang I'm there, our research is getting close. I know that does't help you today, but we have to kick this thing!
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If $50 to $100 or more seems like too much money to give for now, how about committing $5, $10, $20 or more per MONTH?
Select as many months as you want! 2 months, 3 months, 4 months, 6 months, 12 months, whatever! :)
(http://www.mitcheljonmusic.com/uploads/make_recurring_donation.jpg) (http://www.rarediseases.org/about/support/research-donations/fg_base_view_p3)
Simply click above and scroll down till you see, "Make this a recurring donation"...
THANK YOU, EVERYONE - YOUR AUTOMATIC MONTHLY DONATIONS WILL HASTEN OUR "FINAL HOME $TRETCH!"
(http://blogs.discovermagazine.com/loom/files/2009/01/muybridge_race_horse_animated.gif)
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Wow how much worse my POIS has gotten in the past couple of months. I have muscle tremors, I cant think well at all, Trouble breathing correctly, Fatigue, Trouble sleeping/getting up, Neuro problems so bad that I have trouble controlling facial expressions, Etc.. 25 years old just getting into my family's business and I am not me. I have tried so many things .... I really need help ....
Edit: Sounds like you are in day 2 or 3! Hang in there, our research is getting close. I know that doesn't help you today, but we have to WILL kick this thing!
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Thanks for the response, Daveman. Not in day 2 or 3, This is constant for me.
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Hai guys,
Prof Waldinger wrote, 17-april 2011
Briefly, POIS actually appears to be a systemic immune reaction that occurs only at the moment that semen is ejaculated towards or through the urethra.
A lot of members of this forum don?t believe this.
Yet there is also evidence that it?s true. Some people are cured with treatment based on this.
But is it true?
I am not a physician, so my story is based on my own experience, thinking, looking up things and experiences of others (members of this forum, most).
My own POIS symptoms are the wellknown: Cognitive problems,fatique, watering eyes, palpitations, brainfog and all that.
What happens having an O? With me a lot of things that have nothing to do with ?semen?
At first at the very moment there seems to stream a very heavy liquid into my head.
That?s not what happens but it feels like that.
That is the beginning. Also during my POIS the problems occur particularly in my head.
As there happens evidently so many things in our body at that moment why should only the semen be the bad guy?
I think it very remarkable that any sexual excitement causes POIS symptoms.
That?s the reason I wondered why niacin or niacinamide worked sometimes and sometimes not at all. It was because before it began to work I was sometimes a little excited and had an erection now and again, the same could happen of course a day or more later and each time POIS was there again!!
With all this : semen was still far away!
It would be interesting to know what other things could cause auto-immune reactions?
Related to the next very interesting:
Some months ago a neurologist established : polyneuropathy; paralising due to nervedamaging
in legs and arms. Cause: some kind of auto-immune decease.
Remarkable:
Both deceases ? POIS and Polyneuropathy - began at a very low level about 30 years ago.
Both increased according to a exponential function.
There are a lot of events in both deceases that very strange seem to coincide.
I can going very detailed but then this will become a very long story.
Very interesting is perhaps if there are more POIS sufferers that seem to have deceases that in some way are related to POIS?
Still this year I hope to get an appointment with an urologist-sexuologist of the University of Groningen. The man seems to be an authority in sex, he is a professor and wrote a lot of books
about the topic so I suppose he must know Waldinger.
I will report of this on the forum of course.
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casein allergy also leads to pois in my case,so does insufficient sleep.i think the internal wiring in our (poisers) brains is not good enough as compared to normal people.
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Hello everyone. It has been some time. I hope everyone is hanging in there. I have a question for everyone.
I usually orgasm once every few months before bed only because too much energy builds up inside me and I feel restless. I have been taking niacin before orgasm and spirulina, vitamin c, zinc, and amino acids right after orgasm. This worked for a while and improved my symptoms but recently it has given me strange feelings. After I take these things recently I am up halfway through the night with head discomfort, and i cannot breath easy or relax. A lot of moving and head tingling/pressure that is horrible. It slowly subsides after a few hours and disappears after a couple of days.
I'm wondering in any of your opinions does it make sense to think that all those proteins and amino acids right after orgasm are affecting my brain? Maybe its too much for myself to handle and my body is trying to keep up with it. I feel burned out after. Anyone else have experiences like this?
Thank you,
Jon.
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I wonder if your regimine of supplements is too much. I don't see anything listed there besides niacin that you really need to be using, so I would go about this at a total elimination/reintroduction plan. Stop taking those supplements, and only niacin for a few times. See if you improve. If you don't, take a break from niacin for a time or two. Then slow add small amounts of these supplements back. The one thing that I see as a potential danger are the amino acids, as the body is not used to getting them in their purest, reduced forms. I cannot tolerate taking certain aminos, and have had terrible side effects before. I would advise not taking those aminos at all and instead focus on a good protein meal you could eat instead, and improving diet in general.
From my personal use and long time observation of the forums, those supplements are marginally beneficial at best, and taking them away is not a big loss if they might be causing you problems. Hope you feel better! :)
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Nightingale, thank you for your response.
I started by taking just niacin. It helped but i got even more relief when i added these other supplements to my post orgasm regimen. It was the only time I had ever gotten such relief grom my POIS. At first i had far more energy and could work long days with little frustration. It stopped working after a while. I could support the energy and use it before but now its like my body cant support the energy from the supplements and my brain feels a bit overworked now. What most bothers me is that i may have weakened my body and I dont lnow if the damage is permanent. Do you think this is the case?
And is there any way i could go about recovering other than stopping? The problem with stopping is my constant POIS is even worse
Thanks again,
Jon.
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Nightingale, thank you for your response.
I started by taking just niacin. It helped but i got even more relief when i added these other supplements to my post orgasm regimen. It was the only time I had ever gotten such relief grom my POIS. At first i had far more energy and could work long days with little frustration. It stopped working after a while. I could support the energy and use it before but now its like my body cant support the energy from the supplements and my brain feels a bit overworked now. What most bothers me is that i may have weakened my body and I dont lnow if the damage is permanent. Do you think this is the case?
And is there any way i could go about recovering other than stopping? The problem with stopping is my constant POIS is even worse
Thanks again,
Jon.
I can't imagine having sex without niacin or viagra now. I just won't. I couldn't even do it for the sake of fMRI tests or science.
So maybe just stop the amino acids for now. I think niacin is the main ingredient. Perhaps JUST niacin is less effective than your combination.... but your combination is failing.
So see if you can find a way to make it through with just niacin.
I have changed to viagra, with a very small niacin chaser. For me it actually works better than niacin.
Actually I take a regular dose of viagra and half a regular dose of niacin (only 50mg). You have to be careful, the viagra acentuates the niacin. Where I would take 100 to 150 on an empty stomach, I now take just 50mg even after a little food.
Viagra and niacin are not meant to be taken together. Great care must be taken, initial tests should be with maybe only 25 mg niacin, and then 25 more if the first 25 doesn't produce effects.
This might permit you to change your regimin a little and take less vitamins.
The benefits to viagra are that fasting is not as much of an issue and it's effect in reducing POIS symptoms is better. The drawback is that, at least for me, the first two times were less effective, and the balance of viagra to naicin is very critical. It's very easy to take too much niacin.
You might be best to find a doctor that would help to adjust the balance, If you can find one that wonder why the "H" you want to mix viagra and niacin.
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Nightingale, thank you for your response.
I started by taking just niacin. It helped but i got even more relief when i added these other supplements to my post orgasm regimen. It was the only time I had ever gotten such relief grom my POIS. At first i had far more energy and could work long days with little frustration. It stopped working after a while. I could support the energy and use it before but now its like my body cant support the energy from the supplements and my brain feels a bit overworked now. What most bothers me is that i may have weakened my body and I dont lnow if the damage is permanent. Do you think this is the case?
And is there any way i could go about recovering other than stopping? The problem with stopping is my constant POIS is even worse
Thanks again,
Jon.
No, I do not think you damaged anything permanently. Your body adjusts to taking these supplements, and it can adjust to being off or having less.
I would suggest trying NSAIDs like ibuprofen. It's the only thing I use that helps. They are "dangerous", but so are supplements, life, and living a nightmare of POIS. If you have other health issues (especially cardiac), tell your doctor. Otherwise, try taking 2 pills 1-2 hours before orgasm. Be cautious
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NSAID are good I have been taking naproxen sodium should I try something else pls guide thanks
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hello ,
I am a pois sufferer for 5 yrs now am 22 yrs , I faced a severe brain trauma when i was in childhood "10 yrs old" it was so severe and am thinking that childhood brain trauma can lead to such conditions , one of the friends have posted something about casein allergy and bad brain wiring and i believe that the abnormality is resides in the brain it is not in your testicles or urethra , it seems like reaction , but in most cases this reaction does involve only the brain , i have severe food sensitivity , i was eating well without any problems until i reached university in first yr here i started feeling severely sensitivr to Coffee , gluten , milk when i take caffiene alone or in soda or panadol i feel like there are a bunch of dogs attacking my brain , it bad and severe feeling to get this type of severe sensitivity , i dont wanna say it allergy cuse there is no sweeling in skin , i havent seen any one so far who have severe sensitivty like me to caffiene , gluten and casein and just depends on vegetables and fruits for life , i have troubles sleeping and waking up , nonrefreshing sleep,paraoic disorder , blue halos under eyes , swollen face , darkening of skin colors , adrenal fatigue , IBS ,
*i think i have Obcessive compulsive disorder and i got panic attacks so many times , in 2 days post O i am untoleratable person so angry and frustrated with bad looking face , and they get better by time but food sensitivity persist , we "poiser" have very sensitive brains usually emotionally labile , histamine intolerant "which involves only the CNS"
it seems like there are different cause that lead to the same tunnel of POIS , either : gluten allergy or caffiene allergy or Porn addiction , or childhood head trauma it lead to a abnormal brain wiring as our man has mentioned above
i really want to know if brain trauma or watching porn are a common charecterisitc in all of us !!
by the way fenugreek , ginger and artimisia they reduce inflammation tha is why poisers feel relef but noy recover
but what in the brain can cause such vague inflAMMATION ,i am sure it is brain inf !! thanks
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Welome Labyrinth,
This sounds familiar. I have very server food sensitivities (wheat(not gluten), Lactose, casein, caffeine). These only developed 20+ years after having POIS. In my personal experience these food problems are in addition to POIS and not related (but for others may different). Perhaps it could illustrate some underlying sensitivity which could have similar root.
FloppyB
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I agree with you it is not related to Pois , it is new onset thing what is your diet right now cuz i couldng go vegeterian i feel irritable when eat potatoes , rice. or beans , " cross-react with gluten :(
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Hey Labyrinth!
What was the brain trauma that you experienced when you were 10? (only if you want to share) I'm just curious about it. I banged my head a few times when I was younger, but nothing that I would call "severe". So again, welcome! I'm so sorry you had to experience that trauma. Hopefully we'll all see a cure soon! - Prancer
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I was sitting on a wall 1.5 meters tall whe i lost balance and flipped upside down and felt on my head , they took me to the hospital a did ct scan it was only skull was affected
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Hello, Labyrinth,
It sounds like you've been going through some really tough times -- I'm so truly sorry to hear this! It also sounds like you've come to the right place for support and information.
The upcoming POIS research study by Dr. Barry Komisaruk of Rutgers University will focus on the vagus nerve -- the 10th Cranial Nerve. Dr. K. will be evaluating the possibility that some sort of irregular vagus nerve activity might be directly involved in causing POIS. If that proves to be the case, treatment could be very, very near!
I'm pointing this out on the off-chance that you're not aware of this approaching research. Since the vagus nerve originates in the brain (and travels all the way to the genital area), there may well be a relationship between your brain injury and the development of POIS. Your history of "severe brain trauma" as a child might be an important component of your developing of POIS.
Falling off of a 1.5 meter-tall wall -- and falling upside down, on your head -- IS a definite traumatic brain injury -- even if, as you say, "only" your skull was affected. Lots of recent research on brain trauma is proving that seemingly mild head trauma (yours doesn't sound at all mild!) can cause serious problems down the road.
But it doesn't mean that you can't be helped! So please try to be hopeful and keep in touch with your fellow forum members.
Best wishes,
Stef
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Friends tell me approximately how many wait for the study
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Friends tell me approximately how many wait for the study
http://poiscenter.com/forums/index.php?topic=426.msg13033#msg13033
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Hello, Labyrinth,
It sounds like you've been going through some really tough times -- I'm so truly sorry to hear this! It also sounds like you've come to the right place for support and information.
The upcoming POIS research study by Dr. Barry Komisaruk of Rutgers University will focus on the vagus nerve -- the 10th Cranial Nerve. Dr. K. will be evaluating the possibility that some sort of irregular vagus nerve activity might be directly involved in causing POIS. If that proves to be the case, treatment could be very, very near!
I'm pointing this out on the off-chance that you're not aware of this approaching research. Since the vagus nerve originates in the brain (and travels all the way to the genital area), there may well be a relationship between your brain injury and the development of POIS. Your history of "severe brain trauma" as a child might be an important component of your developing of POIS.
Falling off of a 1.5 meter-tall wall -- and falling upside down, on your head -- IS a definite traumatic brain injury -- even if, as you say, "only" your skull was affected. Lots of recent research on brain trauma is proving that seemingly mild head trauma (yours doesn't sound at all mild!) can cause serious problems down the road.
But it doesn't mean that you can't be helped! So please try to be hopeful and keep in touch with your fellow forum members.
Best wishes,
Stef
Thank you very much for such help by giving me hope stef , is there any questionaire or document to fill ot out in order to help on such research !
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There will be a questionnaire available soon (within months I expect)
FloppyB
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There will be a questionnaire available soon (within months I expect)
FloppyB
FloppyB -- you've made a great point about the questionnaire!!
There's nothing in it specifically about a history of head injury, and perhaps there should be. We'll pass the suggestion on to Dr. K.
Stef
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I was sitting on a wall 1.5 meters tall whe i lost balance and flipped upside down and felt on my head , they took me to the hospital a did ct scan it was only skull was affected
Thanks Labyrinth. I'm sorry you had to go through that terrible experience. I was just wondering because I heard someone else mentioning a head injury a while back , and I know I had a few minimal head bangs when I was younger, so I just wanted to compare. Anyone else had any injuries like these? It's too early to tell if there's a connection. I'm sure there are many poisers that haven't had head injuries, and also lots of people with head injuries that don't have pois.
Just one of the many things that needs to be considered! Thanks again.
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Nightingale, thank you for your response.
I started by taking just niacin. It helped but i got even more relief when i added these other supplements to my post orgasm regimen. It was the only time I had ever gotten such relief grom my POIS. At first i had far more energy and could work long days with little frustration. It stopped working after a while. I could support the energy and use it before but now its like my body cant support the energy from the supplements and my brain feels a bit overworked now. What most bothers me is that i may have weakened my body and I dont lnow if the damage is permanent. Do you think this is the case?
And is there any way i could go about recovering other than stopping? The problem with stopping is my constant POIS is even worse
Thanks again,
Jon.
No, I do not think you damaged anything permanently. Your body adjusts to taking these supplements, and it can adjust to being off or having less.
I would suggest trying NSAIDs like ibuprofen. It's the only thing I use that helps. They are "dangerous", but so are supplements, life, and living a nightmare of POIS. If you have other health issues (especially cardiac), tell your doctor. Otherwise, try taking 2 pills 1-2 hours before orgasm. Be cautious
I think either ibuprofen or tylenol helps my pois but i think it is ibuprofen because i used that mostly. I felt sick this past week, i dont if its weather or because of substantial amount of O i had the previous week. I have not recovered like i did this week in a year. All the pois fatigue is gone and my memory is working much better, i am not mixing up names.
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Hello, everyone. In regards to head trauma, I had a benign astrocytoma (brain tumor) removed when I was 5 years old. I began getting the fatigue symptoms of POIS around 13 or 14 (when I began ejaculating), but wrote it off to puberty. I noticed the brain fog at around 18, but again wrote it off as depression. Unfortunately, I never really noticed the correlation between orgasm and all of the other symptoms (fever, aches, brain fog, anxiety, lethargy, etc.) until just last winter. I'm now 39 years old, and - although I've had a decent life - I know it would have been much better without this. I've spent my entire life in a funk, with only brief respites through orgasm which, unfortunately, only perpetuated the problem. Anyways, thank you all for your contributions - sorry it took so long for me to chime in. I hope my mention of the tumor is able to help in some way - I don't talk about it very often.
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Quality of life is important for me. I attend university and have to keep up with my studies. I am young guy and have needs like anybody else. Orgasms cloud my brain and make me extremely fatigue. I try to avoid sexual activity all together because it disturbs my productivity all together. The more orgasms I have, the worst the outcome.
Are there any dietary supplements that can help this dreadful problem?
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Hi erfaandizzle69,
I'm also in university and I often have to struggle to keep up. I try to stay abstinent as much as I can as I need to be constantly aware of what I'm doing (I study computer science and math). When I get symptoms I take:
- multivitamins
- zinc (helps with brain fog)
- olive leaf extract (helps with blood circulation)
- curcumin
- AAS (advil or aspirin) (helps with blood circulation and pain -> also helps for psychological pain and stress)
- niacin (helps relieve from depressive thoughts and pain)
- 5-HTP also helps (helps relieve from depressive thoughts)
I also take a low dose of melatonin (~1/4 of a 3mg pill) when I go to sleep. It helps me avoid getting wet dreams and helps to calm me down.
Lastly, I also watch out to what I eat. I try to eat healthy foods (watch out for sugar) as well as some food that can help the gut (right now Miso seems to help). Also, fish seems to help too.
My experience with university up to now has been a really tough one but I try to stay away from depressing thoughts as they make things much worse later. It makes you get bad marks and then you get even more depressed. If I can't seem to study well some day I tell myself that I'm being too ambitious for the state I'm in at the moment and I try to progress less rapidly but having all my thoughts come out naturally. I imagine I am climbing up a tree (representing my thought process) and that when I'm on POIS there's way too much wind and that if I climb higher to the smaller branches I'll only put myself into trouble and may end up breaking the branch and falling. So I climb back down and stay low until the wind calms down. Later I can go back up. Our brain fog during POIS is not representative of our true abilities and we have to remember that when it appears. That helps stay calm and reduce the harm caused by these symptoms..
Macster
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Thanks for sharing that Macster
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I imagine I am climbing up a tree (representing my thought process) and that when I'm on POIS there's way too much wind and that if I climb higher to the smaller branches I'll only put myself into trouble and may end up breaking the branch and falling. So I climb back down and stay low until the wind calms down. Later I can go back up. Our brain fog during POIS is not representative of our true abilities and we have to remember that when it appears. That helps stay calm and reduce the harm caused by these symptoms."
Macster
Great analogy on how we need to take care in POIS Macster !
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That's a beautiful analogy Macster, thank you and feel good!
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Macster,
That was interesting advice. Abstinence is the best medicine for me. I get nocturnal emissions as well, but the effects are not as terrible due to the sleep factor. However; any voluntary ejaculation on my part disrupts my productivity. Repeating it in a short time span only makes it worse. My symptoms after orgasm are exhaustion, weakness, lack of interest to perform anything, brain fog, and body warmth. These symptoms take at least a few days to recover from. I have tried coffee after orgasm, but it only makes me jittery.
I am new to this forum and I was wondering if your symptoms match the ones I listed above. What is the cause of this, because when I told my doctor, he thought it was all psychological?
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Macster,
That was interesting advice. Abstinence is the best medicine for me. I get nocturnal emissions as well, but the effects are not as terrible due to the sleep factor. However; any voluntary ejaculation on my part disrupts my productivity. Repeating it in a short time span only makes it worse. My symptoms after orgasm are exhaustion, weakness, lack of interest to perform anything, brain fog, and body warmth. These symptoms take at least a few days to recover from. I have tried coffee after orgasm, but it only makes me jittery.
I am new to this forum and I was wondering if your symptoms match the ones I listed above. What is the cause of this, because when I told my doctor, he thought it was all psychological?
Hi Erfa, and welcome to the forum
Each POIS sufferer has its specific set of symptoms, but they always revolve around the same themes. Some symptoms are shared by a huge majority of POIS sufferer, like exhaustion, and some kind of cognitive problems, and also some kind of emotional problems. For a recent list of symptoms reported by the forum members, grouped in clusters, see at http://poiscenter.com/forums/index.php?topic=2027.0 . You will notice that your symptoms are all shared by other members here.
Macster already gave you great suggestions about what to try in order to relieve your symptoms. By reading on the forum, you will find many others suggestions. You will have to do some trial and error, with supplements. For example, niacin helps many POIS sufferers, especially with cognitive and flu-like symptoms, but some members have no relief with it. Same thing for fenugreek, antihistamine, or any supplement mentioned on the forum. Personally, I have good result with magnesium, with rosmarinic acid, with green tea extract, with almost any good combination of antioxidants ( like vit C, vit E, polyphenols from berries, from pine bark extract or else, lignam from flax seed oil, ginkgo biloba, milk thistle, and so on), omega-3 from fish oils, ...
Whatever you choose to try, go slowly, use safe dose, and try only one supplement at a time. If you try 3 new things in the same week, you won't know which one makes you feel better, and which one makes you feel worst. So, go slowly and surely.
I would like to add another idea that can be helpful in your experimentations. Many supplements are more efficient if taken approximatively one hour before release than if taken after, or too soon before. If they had time to dissolve in the stomach, and the active principle have been distributed all over the body, these active molecules will be already in place when whatever happens that is causing POIS is happening. At least, taking your supplements as soon as possible after release can lead to better results.
Many POISers, like you, has less symptoms after a NE (noctural emission) than after a waking state O. In a thread about that, many have shared this. But, it is not always the case - some members have the same level of intensity following a NE of a waking state release. Personally, I have about only 30% to 50% of usual symptoms following a NE, but being married and being 50 y/o, I rarely have NE, currently.
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Hi erfaandizzle69,
My symptoms basically mirror the ones you've listed. I also have shaky muscles get too cold or too warm very easily and some acne. But I think the most hindering thing is the brain fog (well in my case, because of school I guess). Also, just like you I can't drink coffee. I'm fine and actually very productive for the first hour but then it almost makes me go crazy and then I get very depressed (I guess from the caffeine down).
I have no idea about the cause of this but I used to think up many different ones before (hormonal, allergic reaction, etc.). I've abandoned trying to find explanations for now because they always seemed to be disproved... and I was getting my hopes up about a solution and then crash back down when it ended up not being a cure.. I think the best we can do is work on our psychological symptoms and go see doctors (I'm hearing more and more cases of doctors acknowledging this) and keep talking to other people here. Actually, I was lucky enough to meet someone on this forum and getting to see a doctor at McGill university about this. There's also the Rutgers university research that is starting now from what I read here. So there are many signs of progress, but we have to be patient and meanwhile just do what works for us and try to gain some insight from other people's experience.
By the way, thanks Colm and Prancer! I have found this way of seeing things (the tree analogy) to be the most helpful until now. But it took me something like 7 years to think of it and to try to apply it. At that time I was convinced I had depression but the doctors noticed that some of my symptoms didn't really follow those of depression (they seemed to think that some of it was made up since it didn't correspond to what they usually observe). Nonetheless, I think it's as debilitating as depression is. One thing that helps me a lot psychologically is a book called the Tao Te Ching. It's great to read some parts when things don't go well (helps put things back into perspective). It was written a really long time ago (a few hundred years BC), but the analogies and values still apply very much today.
http://www.integralbook.com/wp-content/uploads/2012/03/Tao-Te-Ching.pdf
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And, Erfa, if Demografx, moderator on the forum, wasn't currently recovering from a surgery, he would have certainly posted to you one of his lively graphics along with a warm welcome and many interesting links. I have copied the following from one of these welcome posts he have made recently, so you will get those useful links:
Welcome to POISCenter!
(http://schools.springisd.org/images/102-Welcome%20Animation.gif)
Here are some POIS resources which may be helpful to you:
We are proud to announce our first POIS research grant, awarded in December, 2013, to be managed for us by the National Organization for Rare Disorders (NORD). Grant awarded to:
Barry Komisaruk, PhD (Principal Investigator), Distinguished Professor of Psychology
Rutgers University
Newark, New Jersey, USA
Study title: Is POIS a Case of Vagal Dystonia? -- An fMRI Brain Activity Analysis
More about our Grant:
You can start here, continue reading following pages and other forum threads:
http://poiscenter.com/forums/index.php?topic=426.msg11042#msg11042
Click here to see Mat780's excellent YouTube POIS Channel. (http://www.youtube.com/user/POISchannel/videos) Mat's YouTube videos include (1) our great new April 12 POIS TV Documentary. A must-see. And (2) The Learning Channel documentary, featuring our forum member "Animus".
Click here to see The POIS reddit post. (http://www.reddit.com/r/IAmA/comments/rge55/i_am_a_guy_with_a_rare_sexual_illness_its_so/) Outsiders (non-POISers) spontaneously gifted NORD's POIS Research Grant $1,000+ from this reddit post. Thanks to "mellivora" and "CertainlyPOIS"!
Our POIS chatroom (realtime chat). Invite or visit another member(s) there, ANY TIME. We can all get to know each other better:
Just click here first, and then look for "CHAT" button towards top of page, 6th button to your right! (http://www.POISCenter.com/forums/index.php)
Our POIS Forum - architectural genius: "Daveman" - for detailed subject-by-subject discussion.
http://www.POISCenter.com/forums/index.php
Our POIS Information Website, built by "mat780", is here:
http://sites.google.com/site/POISwebsite/
The POIS Information Website is home to the POIS Forum Compendium, written by "Pyropeach", and contains theories already discussed here and treatments that have both worked and failed.
Please see "B_Jim"'s POIS Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009
"Girlwind" has created an excellent POIS Video:
http://www.youtube.com/watch?v=UWBxAUC9k1g
Post Orgasmic Illness Syndrome "POIS": Case report
Authors:
Abdalla M Attia*, Magda H Al-Ziny, Hossam A Yasien
*Corresponding author: Andrology Unit, Minoufiya University, Shibin El Kom, Eygpt
For more info, check out emi_b's SMF POIS thread:
http://poiscenter.com/forums/index.php?topic=191.0;topicseen
POIS Research Studies available Upon Request:
1. and 2. POIS Research Studies, 2011
These 2 papers reveal Dr. Waldinger's POIS autoimmune hypothesis and suggest one possible avenue of treatment.
3. First POIS Research Study, 2002
We have a copy of the first formal medical investigation on POIS by Prof. dr. Marcel D. Waldinger,MD, Ph.D., and Dr. Dave Schweitzer, MD.
4. Recent POIS Research Study, 2010
CASE REPORT
Postorgasm Illness Syndrome - A Spectrum of Illnesses
Jane Ashby, MRCP, and David Goldmeier, MRCP
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg316781#msg316781
5. British Medical Journal Case Report, 2010
Case study by Dr. Selwyn Dexter of a patient with a headache-featured POIS symptom treated with progesterone/norethisterone.
http://casereports.bmj.com/content/2010/bcr.10.2009.2359.short?rss=1
How to get any or all of the above 5 studies: send the Administrators "demografx" or "daveman" a Private Message (PM) with your regular email address (e.g., jim@abc.com) and we'll send you back the PDF(s).
To send a Private Message, click on messages link at the very top of this page. Then click "Send Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.
New York Times article,
January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse
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In addition to serving our own informational interests, the resources listed above can be useful for you to show our credibility to the medical world - which often shows little understanding and is sometimes skeptical of our condition: POIS has scientific underpinnings and POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapeutic community. All of this information can greatly help you to fight the immediate reaction of some doctors: so just tell them, "IT'S NOT 'ALL IN YOUR HEAD'! "
(http://i858.photobucket.com/albums/ab143/demografx/f0cc96c8.jpg)(http://i858.photobucket.com/albums/ab143/demografx/ba4b3bc8.jpg)
It can be very helpful to you when dealing with medical professionals to point this out. Click to see
POIS' official listing, as recognized by the
National Institutes for Health (NIH), Office of Rare Diseases Research: (http://rarediseases.info.nih.gov/GARD/Condition/10809/Postorgasmic_illness_syndrome.aspx)
And in Europe: Orphanet now lists POIS on their website. - Click here. (http://www.orpha.net/consor/cgi-bin/Disease_Search.php?lng=EN&data_id=20421&Disease_Disease_Search_diseaseGroup=pois&Disease_Disease_Search_diseaseType=Pat&Disease%28s%29/group%20of%20diseases=Postorgasmic-illness-syndrome--POIS-&title=Postorgasmic-illness-syndrome--POIS-&search=Disease_Search_Simple)
The Post Orgasmic Illness Syndrome (P.O.I.S.) Forum is listed in the organization database of the National Organization for Rare Disorders (NORD) -- http://poiscenter.com/forums/index.php. The link for this, through their home page, is --
http://rarediseases.org/rare-disease-information/organizations/byID/3136/viewDetail.
POIS also appears in credible medical sources such as the Journal of Sexual Medicine (Dr. Waldinger's study), British Medical Journal (Dr. Selwyn Dexter's study), and wikipedia:
http://en.wikipedia.org/wiki/Postorgasmic_illness_syndrome
For over 5 years, our POIS forum has attracted over 200 POIS sufferers worldwide who have posted here, research on an additional 200 sufferers elsewhere on the internet, plus our pages have been read nearly 2,000,000 times. Not bad for a rare malady.
Show some of this to your doctor - with pride. Chances are, you know far more about POIS than s/he does. Don't be intimidated by fancy diplomas. It's almost impossible for any one doctor to know much about POIS before you walk into his/her office. Unfortunately, it's up to you to educate them. And if you happen to find yourself with a disagreeable "student"-doctor (you're the teacher), find another doctor. Quickly!
SEARCH THE NSF FORUM ARCHIVES WITH GOOGLE
We have an overwhelming amount of NSF data: more than 5 years' worth of posts (over 10,000 posts!) from 200+ Forum members, and an additional 200 POIS sufferers found elsewhere on the Internet by Member B_Jim.
In the Google search box, type
whatever-it-is-you're-interested-in-finding-out[space]POIS[space]site:http://thenakedscientists.com/
for example, I tried
nocturnal emission POIS site:http://thenakedscientists.com/
and 740 results came up for "nocturnal emission" within the Forum.
be careful with spaces (you can use them before the word "site") and no-spaces (everything after the word "site")
Google even provides you results with the Message# for each result. But Message #'s do change, so be patient and look for the approximate Message#.
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I appreciate all the advice. Finals week are coming up soon at school and I need my mind to stay sharp over that course. I am going to be drinking coffee and abstain in order to prevent pois symptoms. I found that it helps to clear your bladder prior to going to sleep because you'll reduce the risk of nocturnal emissions. I have to be in my "A' game over the next couple of weeks. Having an "O" can cause improper bowel movements for me if done on occasions. I need my body to be strong in order to mentally function. Taking finals while pois symptoms flare up is the worst!
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Haven't read anything from GoingLessCrazy in a while. Hope he still feels okay. He'll probably update sometime soon now that it's warmer and closer to summer.
Also, I have indeed filled out that new survey. I don't think anything's wrong with it. If it were very long with too many Q's, people might have less motivation to complete it. There's plenty of space to write any additional info. Btw, it really only took me like 10 or so mins, k? k.