wiped.

[UnderstandingPois]

    jon, yes that would be cool, and trust me more than anything i want to help people, but,,,, i will be off for a good while.

but remember, the key to not having brain fog and that torture of pois, it to try getthis chalky stuff out of you body.

the key to the dull life part, is dopamine.

i actually cured myself with these two things, but then it backfired and kicked me harder thanever before, if you ever take anything from a phyciatrist, trust me studie up on the drug before you use it, the thing with phyciatrists , they will find out what is wrong with you by experimenting with drugs on u.  i happend to refuse alot of medication , and the ones that did help me were the ones that i already wanted to try.

do not tell the doctor about post orgasmic illness syndrome, fix symptom by symptom, first, studie up on what is really wrong with you, say your main symptom, depression? find a name for your problem, say, mine is anhedonia, tell the doctor this is how i feel.

at first i told doctors what was really wrong with me, pois, and they thought i was crazy n put me on bad drugs, so if you are going to see a doctor never tell him about pois,whats the point anyway, this is new to them.

jon since your symptoms are rite on the spot to mine. of what i read. you should try attacking them the same way i did.

[Daveman]

Just be careful, just like the drugs the psychiatrists give you, you should understand what everything you take is doing to you.

I'm going to open a "white stuff" thread.

We need to know what's going on there.

As I mentioned in another part of the foeum. I too felt immediate relief after getting rid of that white crap, but thinking back, the relief only lasted about 12 hrs., sometimes less.

So should I risk my kidney for short 12 hr relief? Maybe with a little investigation we might find that it doesn't affect the kidney and that it's a breakthrough.

[Vincent M]

I find it funny how scientists and doctors know so little about the mechanisms behind orgasm and yet they are so quick to wave our suffering off as "psychological". I was just reading on the subject of "the science of orgasm" and read that just 20 years ago scientists didn't know that people paralyzed below the waist could have orgasms and that scientists STILL don't know why these people can have orgasms.

here is a quote: "As they seek to document and demystify one of life's great thrills, scientists have run across some real head-scratchers.
How, for example, can they explain the fact that some men and women who are paralyzed and numb below the waist are able to have orgasms?
How to explain the "orgasmic auras" that can descend at the onset of epileptic seizures -- sensations so pleasurable they prompt some patients to refuse antiseizure medication?
And how on Earth to explain the case of the amputee who felt his orgasms centered in that missing foot?
No one -- no sexologist, no neuroscientist -- really knows. For a subject with so many armchair experts, the human orgasm is remarkably mysterious.

[nyan]

No one -- no sexologist, no neuroscientist -- really knows. For a subject with so many armchair experts, the human orgasm is remarkably mysterious.

And that's very troubling because if the immune theory goes down (which is very probable) there is no other sound science at the moment of explaining the symptoms and causes of POIS. It could take decades before someone will be able to explain it. I guess we need a cure before explaining the mechanisms behind this illness.

[JRD]

Hello,

I'm new here, but I've been reading TNS forum for a while. I would like to note that the main reason, I've found a link between POIS and my condition is because of long-term use of antidepressants and withdrawal from them.

I believe I've been suffering from POIS since the age of 12 or 13, but it was hard to find such a causal connection, mainly because of a quite mild manifestation (shyness, mental dullness and fatigue - really vague, you know) and the high frequency of autoeroticism since the age of about 8.

After I had coldturkeyed the last one (IMAO), I started to experience all of these symptoms in much more debilitating form (headaches, confusion, disorientation, inability to form a sentence and think about anything, intense anxiety and for the first time a panic attack, severe memory impairment etc.). I thought, this had to be the consequence of rapid withdrawal, but none of these symptoms appeared to be withdrawal-related. Seven months later, I'm feeling the same way, except for the last Thursday/Friday - 5-6 days without masturbation, boosted, talkative, optimistic, better overall.

Unfortunately, I wasn't to able to withstand my sexual lust and therefore, I practiced self-stimulation 4x in a few hours yesterday. In the evening, I was hit by severe brain fog and headaches, like my brain would be out of blood supply. Today, it seems to be even worse, I am socially/mentally crippled, only able to lie in the bed.

It is probable, that imbalanced serotonergic/dopaminergic/norepinephrinergic/other systems (naturally or due to medications) could be involved in POIS.

J.

[Vincent M]

JRD, I'm not sure if there is a connection between anti-depressants and POIS. I took a couple anti depressants for about a week each about a year before my POIS symptoms began but I doubt a week is long enough to cause lasting damage.

Also you said you masturbated 4 times in a row in a few hours? I masturbate about 3-4 times everyday and there isn't anyone here who does it that much.

[Vincent M]

No one -- no sexologist, no neuroscientist -- really knows. For a subject with so many armchair experts, the human orgasm is remarkably mysterious.

And that's very troubling because if the immune theory goes down (which is very probable) there is no other sound science at the moment of explaining the symptoms and causes of POIS. It could take decades before someone will be able to explain it. I guess we need a cure before explaining the mechanisms behind this illness.

Which is why I'm putting my money on natural herbs for now since I can try many of them for little cost and few side effects.

[JRD]

Vincent Marcus, I am not saying that POIS is induced by the use of antidepressants, but antidepressants themselves can potentiate its symptoms (in a person, who already has underlying POIS, because of the further chemical imbalance, which is unescapable after years of using, moreover in a dose-dependent fashion).

[Vincent M]

Vincent Marcus, I am not saying that POIS is induced by the use of antidepressants, but antidepressants themselves can potentiate its symptoms (in a person, who already has underlying POIS, because of the further chemical imbalance, which is unescapable after years of using, moreover in a dose-dependent fashion).

sorry i didn't read your post thoroughly enough. Yeah I agree especially since I think POIS is mainly a hormonal problem.

[Jon]

Hey guys, I ran across something interested while browsing natural supplements. Google 'Chinese Stress Relief'. This is a natural supplement that treats psychological difficulties by targeting areas outside of the brain that may have an effect on it, such as autoimmune and nervous systems. Check it out, it looks very interesting.

I am also wondering if anybody else is experiencing hair thinning/dying due to being in the sun.

[demografx]

UnderstandingPois, I'm feeling like we might have a lot of the same symptoms. We should chat more.

Keep in mind our POIS chatroom (realtime chat). Invite or visit another member(s) there, ANY TIME. We can all get to know each other better:
http://forums.delphiforums.com/POIS/chat

[Daveman]

I am also wondering if anybody else is experiencing hair thinning/dying due to being in the sun.

Hmmm.... gets worse every year! No, wait, maybe it's my age!! LOL. Sorry, just a little humour!

[Willem]

No one -- no sexologist, no neuroscientist -- really knows. For a subject with so many armchair experts, the human orgasm is remarkably mysterious.

And that's very troubling because if the immune theory goes down (which is very probable) there is no other sound science at the moment of explaining the symptoms and causes of POIS. It could take decades before someone will be able to explain it. I guess we need a cure before explaining the mechanisms behind this illness.

I agree that we may be flapping in the wind if we have to fall back on orgasmic biochemistry, but I believe it's more likely that auto-immune will be the cause for at least a subset of POIS sufferers.  I can be out of POIS and induce POIS by putting semen under my tongue or getting a subcutaneous injection.  Anti-histamines work for me, but they don't work for a lot of POIS sufferers.  Being able to categorize cases would be extremely helpful, and maybe would show multiple nodes of causation. 

[Jon]

Hey guys, I am seeking some advice. Next week I am seeing a Neuro-Endocrinologist. I suffer from both POIS and never ending mostly cognitive/some physical symptoms.

I'm wondering how to go about getting my adrenals, thyroid and EVERYTHING that may be relevant tested without spooking out this doctor and having him/her send me to psychiatry. I am looking to try and order two sets of the testing, one set being after sexual activity.

Any advice from anybody would be greatly appreciated. I will share my test results with everyone.

[Daveman]

Someone, somewhere, I don't even remember which forum, NSF I think, mentioned a recent study that ties auto-immune reactions and inflamation to "brain-fog". Maybe bringing as much of the information from his references would help.

It's true that doctors are scared off by information that people bring the from internet, but it might be a way to say, "Look, what harm is there in taking these tests, in such and such a way, even if you think it's bunk. Just do it for me please!"

You're not asking for a perscription for drugs or medicine. A test like that can't so you harm.

Use the search function on this forum and look up "brain fog" and for NSF use the google search method that Demo puts in the intros to newbies.

At this level, we're only asking that they take certain inate tests. Ask them to humour you.

[Ccconfucius]

i was always go with lots of relevant document, all the reasearch, ny times paper, some poiser testimony from the website. when they see all that paper they know you mean buisness.
do some reasearch on those hormones first, you slap some knowledge on them when they try to redirect you, they will understand you no ordinary patient.

[Jon]

I see. Good advice guys and thank you. I will let you all know of my reults.

Daveman, I want to personally thank you for all your responses as you have helped me understand my illness a great deal. i hope you don't mind if I pick your brain a little more.

If a lot of the mental symptoms can be attributed to inflammation and auto-immune then how can this get picked up with testing? Also, I am going to try and test both with and without fenugreek in my system.. Can someone build up a tolerance to fenugreek and/or experience withdrawal?

Thanks everyone.

Stay strong.

[Daveman]

Well, I think the IgE and T-cell measurements should be useful for that. Check for IgE the same day as orgasm. And T-cels during the second or third day after. And then both the out of POIS.

Also I remember that IL-6, a cytokine, was involved in the menengis inflamation.

Cytokines, if I'm not mistaken are a type of protien (messengers?) that either block inflamation or cause it depending on the cytokine.

The particular problem that I heard of involved the lack of IL-6 (cytokine - interluken 6), where IL-6  normally blocks inflamation when some human activity, like exercize or other, takes place and inflamation shouldn't happen. When I looked it up, there seemed to be relationships with cell level parasites and this same mechanism....

Anyways, it seemed that if the IL-6 was NOT present when it should be, menengis inflamation resulted.

I would imagine that the menengis could be check with an MRI.

[Jon]

Daveman, What kind of doctor would specialize in imflammation that may affect the brain and/or some of these other symptoms? Where would this inflammation be.. Maybe in the spinal cord area or the groin area? I'm thinking that if I dont get results from the blood tests than this may be a possible reason for my sever cognitive issues and some of my testicular discomfort.

By the way, I approached the doctor I saw the right way. I said everything I needed to but he was dead set against running the tests for me so I will be finding another doctor and I will keep you all updated.

Thanks.

Stay strong.

[Daveman]

I really don't understand what he has against doing tests. Removing samples, that's all there is to it. Can't do you harm.

I AM going to create a database for assholes!

Not calling them such, not saying derogatory things, just present the facts. In our own special way.