wiped.

[Jon]

Hey guys, I have a random question regarding testing.. Any responses are much appreciated.

In my POIS, my head feels almost inflamed and heavy. I have always felt that this could be effecting my brain and, in turn, causing my cognitive POIS symptoms. I have had more than 1 head MRI but nothing abnormal has showed.

Would an MRI have show head inflammation effecting the brain?

Thanks,

Jon.

[demografx]

Jon, nordnurse might know.

Post this in Familiar Place, it's more active.

[Hoping]

Hey guys, I have a random question regarding testing.. Any responses are much appreciated.

In my POIS, my head feels almost inflamed and heavy. I have always felt that this could be effecting my brain and, in turn, causing my cognitive POIS symptoms. I have had more than 1 head MRI but nothing abnormal has showed.

Would an MRI have show head inflammation effecting the brain?

Thanks,

Jon.

Jon, I have considered this as well. Your description is pretty spot-on with how I feel in POIS. I always describe it to my girlfriend saying, "It feels like my brain is swelling in my skull." (maybe a tad dramatic-sounding, but still accurate!). I've noticed that the swelling is particularly strong at the point where my skull connects to my spinal column and around my eyes. When I press and massage those areas I can literally feel the pressure being shifted around in my neck/face/head. It's like the bones are painful to the touch. Also, Aleve provides some temporary relief to my POIS which also fuels my interest in the connection to inflammation.

I too have gotten an MRI. Sadly, it was just prior to my discovery of the forum, so I didn't yet know about POIS. I didn't really know what to ask or look for, and I didn't think to time it with an O. The MRI was ordered for "post coital headaches," which I now recognize as POIS. Like you, my results came back fine.

[Ccconfucius]

i found software called coldturkey. It locks down all websites you choose for as long as you ask it to. The beautiful thing about it is during those locked periods it is almost impossible to delete from computer. I  am going to use it in combination with stayfocusd.
I am going to use it to cut down my orgasm frequency and stop distractions like reddit.   Just spreading the word for those who have similar problems.

[Green]

i found software called coldturkey. It locks down all websites you choose for as long as you ask it to. The beautiful thing about it is during those locked periods it is almost impossible to delete from computer. I  am going to use it in combination with stayfocusd.
I am going to use it to cut down my orgasm frequency and stop distractions like reddit.   Just spreading the word for those who have similar problems.

No amount of porn blocking will compensate if you have a weak mindset. You will always find a way around the porn block. It's tough sometimes, I've been struggling for quite some time. Getting rid of the computer from the bedroom and placing it in a more public area might be a good idea.

[Ccconfucius]

i have a laptop so it is very easy for me to just move to my room . My added deterring agent is to stay out of my house as much as possible and go to public places to study. Go to sleep as early as possible.

It is very hard  when after two weeks you cant focus anymore because your mind is so distracted with relieving the body.

[demografx]

PLEASE help jumpstart...

Our Road To POIS Recovery!!!


 
 
Just CLICK THE SIGN ABOVE...then just scroll down the page till u see...

"Make this a recurring donation
You can schedule a recurring monthly donation and your gift will repeat once a month for up to one year. Please note that this is in addition to today's gift; if you choose to repeat your gift for 12 months you will be billed a total of 13 times (today and once a month for the next 12 months)."
  Number of Months _____

[Egordon]

I'm going to create a new post on meditation for sex addiction. You guys should check it out! Meditation really helped me.

[Jon]

Wow how much worse my POIS has gotten in the past couple of months. I have muscle tremors, I cant think well at all, Trouble breathing correctly, Fatigue, Trouble sleeping/getting up, Neuro problems so bad that I have trouble controlling facial expressions, Etc.. 25 years old just getting into my family's business and I am not me. I have tried so many things .... I really need help ....

[Daveman]

Wow how much worse my POIS has gotten in the past couple of months. I have muscle tremors, I cant think well at all, Trouble breathing correctly, Fatigue, Trouble sleeping/getting up, Neuro problems so bad that I have trouble controlling facial expressions, Etc.. 25 years old just getting into my family's business and I am not me. I have tried so many things .... I really need help ....

Sounds like you are in day 2 or 3! Hang I'm there, our research is getting close. I know that does't help you today, but we have to kick this thing!

[demografx]

If $50 to $100 or more seems like too much money to give for now, how about committing $5, $10, $20 or more per MONTH?

Select as many months as you want! 2 months, 3 months, 4 months, 6 months, 12 months, whatever!  



Simply click above and scroll down till you see, "Make this a recurring donation"...

THANK YOU, EVERYONE - YOUR AUTOMATIC MONTHLY DONATIONS WILL HASTEN OUR "FINAL HOME $TRETCH!"

[demografx]

Wow how much worse my POIS has gotten in the past couple of months. I have muscle tremors, I cant think well at all, Trouble breathing correctly, Fatigue, Trouble sleeping/getting up, Neuro problems so bad that I have trouble controlling facial expressions, Etc.. 25 years old just getting into my family's business and I am not me. I have tried so many things .... I really need help ....

Edit: Sounds like you are in day 2 or 3! Hang in there, our research is getting close. I know that doesn't help you today, but we have to WILL kick this thing!

[Jon]

Thanks for the response, Daveman. Not in day 2 or 3, This is constant for me.

[artist]

Hai guys,

Prof Waldinger wrote, 17-april 2011
Briefly, POIS  actually appears to be a systemic immune reaction that occurs only at the moment that semen is ejaculated towards or through the urethra.

A lot of members of this forum don?t believe this.
Yet there is also evidence that it?s true. Some people are cured with treatment based on this.

But is it true?

I am not a physician, so my story is based on my own experience, thinking, looking up things and experiences of others (members of this forum, most).
My own POIS symptoms are the wellknown: Cognitive problems,fatique, watering eyes, palpitations, brainfog and all that.
What happens having an O? With me a lot of things that have nothing to do with ?semen?
At first at the very moment there seems to stream a very heavy liquid into my head.
That?s not what happens but it feels like that.
That is the beginning. Also during my POIS the problems occur particularly in my head.

As there happens evidently so many things in our body at that moment why should only the semen be the bad guy?
I think it very remarkable that any sexual excitement causes POIS symptoms.
That?s the reason I wondered why niacin or niacinamide worked sometimes and sometimes not at all. It was because before it began to work I was sometimes a little excited and had an erection now and again, the same could happen of course a day  or more later and each time POIS was there again!!
With all this : semen was still far away!
It would be interesting to know what other things could cause auto-immune reactions?

Related to the next very interesting:

Some months ago a neurologist established : polyneuropathy; paralising due to nervedamaging
in legs and arms. Cause: some kind of auto-immune decease.

Remarkable:
Both deceases ? POIS and Polyneuropathy - began at a very low level about 30 years ago.
Both increased according to a exponential function.
There are a lot of events in both deceases that very strange seem to coincide.
I can going very detailed but then this will become a very long story.

Very interesting is perhaps if there are more POIS sufferers that seem to have deceases that in some way are related to POIS?

Still this year I hope to get an appointment with an urologist-sexuologist of the University of Groningen. The man seems to be an authority in sex, he is a professor and wrote a lot of books
about the topic so I suppose he must know Waldinger.
I will report of this on the forum of course.

[omen]

casein allergy also leads to pois in my case,so does insufficient sleep.i think the internal wiring in our (poisers) brains is not good enough as compared to normal people.

[Jon]

Hello everyone. It has been some time. I hope everyone is hanging in there. I have a question for everyone.

I usually orgasm once every few months before bed only because too much energy builds up inside me and I feel restless. I have been taking niacin before orgasm and spirulina, vitamin c, zinc, and amino acids right after orgasm. This worked for a while and improved my symptoms but recently it has given me strange feelings. After I take these things recently I am up halfway through the night with head discomfort, and i cannot breath easy or relax. A lot of moving and head tingling/pressure that is horrible. It slowly subsides after a few hours and disappears after a couple of days.

I'm wondering in any of your opinions does it make sense to think that all those proteins and amino acids right after orgasm are affecting my brain? Maybe its too much for myself to handle and my body is trying to keep up with it. I feel burned out after. Anyone else have experiences like this?

Thank you,

Jon.

[Nightingale]

I wonder if your regimine of supplements is too much. I don't see anything listed there besides niacin that you really need to be using, so I would go about this at a total elimination/reintroduction plan. Stop taking those supplements, and only niacin for a few times. See if you improve. If you don't, take a break from niacin for a time or two. Then slow add small amounts of these supplements back. The one thing that I see as a potential danger are the amino acids, as the body is not used to getting them in their purest, reduced forms. I cannot tolerate taking certain aminos, and have had terrible side effects before. I would advise not taking those aminos at all and instead focus on a good protein meal you could eat instead, and improving diet in general.

From my personal use and long time observation of the forums, those supplements are marginally beneficial at best, and taking them away is not a big loss if they might be causing you problems. Hope you feel better!

[Jon]

Nightingale, thank you for your response.

I started by taking just niacin. It helped but i got even more relief when i added these other supplements to my post orgasm regimen. It was the only time I had ever gotten such relief grom my POIS. At first i had far more energy and could work long days with little frustration. It stopped working after a while. I could support the energy and use it before but now its like my body cant support the energy from the supplements and my brain feels a bit overworked now. What most bothers me is that i may have weakened my body and I dont lnow if the damage is permanent. Do you think this is the case?

And is there any way i could go about recovering other than stopping? The problem with stopping is my constant POIS is even worse

Thanks again,

Jon.

[Daveman]

Nightingale, thank you for your response.

I started by taking just niacin. It helped but i got even more relief when i added these other supplements to my post orgasm regimen. It was the only time I had ever gotten such relief grom my POIS. At first i had far more energy and could work long days with little frustration. It stopped working after a while. I could support the energy and use it before but now its like my body cant support the energy from the supplements and my brain feels a bit overworked now. What most bothers me is that i may have weakened my body and I dont lnow if the damage is permanent. Do you think this is the case?

And is there any way i could go about recovering other than stopping? The problem with stopping is my constant POIS is even worse

Thanks again,

Jon.

I can't imagine having sex without niacin or viagra now. I just won't. I couldn't even do it for the sake of fMRI tests or science.

So maybe just stop the amino acids for now. I think niacin is the main ingredient. Perhaps JUST niacin is less effective than your combination.... but your combination is failing.
So see if you can find a way to make it through with just niacin.

I have changed to viagra, with a very small niacin chaser. For me it actually works better than niacin.

Actually I take a regular dose of viagra and half a regular dose of niacin (only 50mg). You have to be careful, the viagra acentuates the niacin. Where I would take 100 to 150 on an empty stomach, I now take just 50mg even after a little food.

Viagra and niacin are not meant to be taken together. Great care must be taken, initial tests should be with maybe only 25 mg niacin, and then 25 more if the first 25 doesn't produce effects.

This might permit you to change your regimin a little and take less vitamins.

The benefits to viagra are that fasting is not as much of an issue and it's effect in reducing POIS symptoms is better. The drawback is that, at least for me, the first two times were less effective, and the balance of viagra to naicin is very critical. It's very easy to take too much niacin.

You might be best to find a doctor that would help to  adjust the balance, If you can find one that wonder why the "H" you want to mix viagra and niacin.

 

[Nightingale]

Nightingale, thank you for your response.

I started by taking just niacin. It helped but i got even more relief when i added these other supplements to my post orgasm regimen. It was the only time I had ever gotten such relief grom my POIS. At first i had far more energy and could work long days with little frustration. It stopped working after a while. I could support the energy and use it before but now its like my body cant support the energy from the supplements and my brain feels a bit overworked now. What most bothers me is that i may have weakened my body and I dont lnow if the damage is permanent. Do you think this is the case?

And is there any way i could go about recovering other than stopping? The problem with stopping is my constant POIS is even worse

Thanks again,

Jon.

No, I do not think you damaged anything permanently. Your body adjusts to taking these supplements, and it can adjust to being off or having less.

I would suggest trying NSAIDs like ibuprofen. It's the only thing I use that helps. They are "dangerous", but so are supplements, life, and living a nightmare of POIS. If you have other health issues (especially cardiac), tell your doctor. Otherwise, try taking 2 pills 1-2 hours before orgasm. Be cautious