Free Flow Discussion about POIS

[demografx]

AOL VIDEO on POIS
http://on.aol.com/video/post-orgasmic-illness-syndrome-explained-517640680

[Nightingale]

Firstly, I'm amazed this made it onto "Drs.", a REALLY popular show here in the US.  Second, I'm amazed at how this "expert" on tv claimed to know what the cause of POIS is when the verdict is very much still out!  I've watched this show before, and seen this kind of broad-brushing before.  They get a problem, and get a solution, then focus camera's on the hired models who sit in the front row to make you react to how pretty they are.

Ugh, Im kind of torn on this one.  I've been in organizations where the idea that "There's no such thing as bad news", but they never caught traction.  Truth and facts are really important, and I'm embarassed to have had that show use our obviously eyebrow-raising illness for material on their show without being sensitive to us, the sufferers.  I am happy though that at the end the main host encouraged those who had this issue to seek help, that's exactly what POIS sufferers need when they don't know they have it.

What do you guys think?  Thanks for the post demo

[demografx]

Welcome, Nightingale !

[Daveman]

Important announcement.

Dr. Salamanca of Madrid, who has worked with us in the past, and who did a POIS survey, which we announced here and which many of you answered,
has begun a new treatment which seems to have fairly good results.

Unfortunately I do not know much about the treatment, but have heard from at least one of his patients, who has reported good results from this treatment.

Dr. Salamanca is looking for people near Spain who could participate in more extensive tests
of this treatment.

Those who are interested, would have to go to his office in Madrid, as the tests require strict control and regular monitoring.

Members interested would have to be pre-screened and several tests would have to be taken beforehand. Unfortunately I do not know how often you would
be required to report to his office.

Interested members send me and Demo a PM expressing your interest, and we will pass your EMail and data to the good doctor, from whence you could continue
your contact personally.

I'm sorry that he cannot open the testing for now without personal appearances in his office, we could reach many more of you this way, but it
is important that these initial tests are controlled and closely monitored.

[Ccconfucius]

this great news. can i post it on the other forum.

[Starsky]

Daveman, but do you know in which direction is this doctor going, autoimmune, hormonal or some else?

[mellivora]

I have almost every symptom of this.. I just have one question: Do you guys freeze a lot more after orgasm? Cause that's one of my symptoms, esp in the morning I freeze as hell.

Hi nenexx

I often feel the cold more when in POIS. I don't know if my core temperature actually falls but it feels like it does and I feel I need to wear more clothing than normal.

I started a poll for this here:

http://poiscenter.com/forums/index.php?topic=286.0

[Chris]

Important announcement.

Dr. Salamanca of Madrid, who has worked with us in the past, and who did a POIS survey, which we announced here and which many of you answered,
has begun a new treatment which seems to have fairly good results.

Unfortunately I do not know much about the treatment, but have heard from at least one of his patients, who has reported good results from this treatment.

Dr. Salamanca is looking for people near Spain who could participate in more extensive tests
of this treatment.

Those who are interested, would have to go to his office in Madrid, as the tests require strict control and regular monitoring.

Members interested would have to be pre-screened and several tests would have to be taken beforehand. Unfortunately I do not know how often you would
be required to report to his office.

Interested members send me and Demo a PM expressing your interest, and we will pass your EMail and data to the good doctor, from whence you could continue
your contact personally.

I'm sorry that he cannot open the testing for now without personal appearances in his office, we could reach many more of you this way, but it
is important that these initial tests are controlled and closely monitored.

That's very good and hopeful to hear !Any Pois sufferer who lives in SPAIN or better in Madrid,should go..Its very nice to have this doctor doing this for us and we must not lose this good oppurtunity!If i am not mistaken we have a lot of members who live in Spain..This totally worth it.

[nenexx]

I have almost every symptom of this.. I just have one question: Do you guys freeze a lot more after orgasm? Cause that's one of my symptoms, esp in the morning I freeze as hell.

Hi nenexx

I often feel the cold more when in POIS. I don't know if my core temperature actually falls but it feels like it does and I feel I need to wear more clothing than normal.

I started a poll for this here:

http://poiscenter.com/forums/index.php?topic=286.0

Thanks for answering. I get like shivers and shit which stops when I've gone like 1 or 2 weeks without orgasm(don't know for sure howlong) Great to get it confirmed that others have the same (great and great...).

[edhawk10]

I have almost every symptom of this.. I just have one question: Do you guys freeze a lot more after orgasm? Cause that's one of my symptoms, esp in the morning I freeze as hell.

Hi nenexx

I often feel the cold more when in POIS. I don't know if my core temperature actually falls but it feels like it does and I feel I need to wear more clothing than normal.

I started a poll for this here:

http://poiscenter.com/forums/index.php?topic=286.0

Thanks for answering. I get like shivers and shit which stops when I've gone like 1 or 2 weeks without orgasm(don't know for sure howlong) Great to get it confirmed that others have the same (great and great...).

Hey guys.

Same happens to me. It was roughly 20 degrees(celsius) the other day and i was so cold that i needed a blanket. Usually takes me 4-5 days to slowly get back to normal.

Do any of you get canker sores? Anything related to POIS? I heard it could be stress but for me foods are definite trigger as well(mostly hot and acidic) and sometimes after O i notice it so not sure if there's anything to that.

Also wanted to say that you guys are doing great work on here. This place has so much helpful info so thanks for making it easier on us.

I'm in Canada(Ottawa).

[demografx]

this great news. can i post it on the other forum.

Sure!

[Prancer]

Do you guys freeze a lot more after orgasm? Cause that's one of my symptoms, esp in the morning I freeze as hell.

Hi nenexx, yes I am also much more sensitive to the cold after an orgasm. (I always imagined that if I ever somehow fell into icy water with pois I'd 'prolly die so much sooner).

[edhawk10]

Something Daveman mentioned about warm days being better..Definitely agree but this winter was fairly good(mostly mild POIS) for me. Had O at least once, sometimes twice a week. Winter before this one, it was horrible so i know the difference is pretty big. I kept my self busy for most part(cooking foods i like, sports, watching movies) and made sure that i ate well and get plenty of rest. Now that summer is coming i should be feeling even better but my sleep is somehow worse and i am getting a lot of tension in neck/shoulder area. This is causing me significant brain fog(in fact during winter i rarely had it). It's been like that for about a week so i ordered some Jamieson Relax and Sleep(with valerian and other herbs) and hoping this will get my sleep back(it says relief of nervous anxiety, muscle relaxant, restful sleep). Anyone try these? There don't seem to be any serious side effects so i'll give it a try and let you guys know.

[demografx]

Important announcement.

Dr. Salamanca of Madrid, who has worked with us in the past, and who did a POIS survey, which we announced here and which many of you answered,
has begun a new treatment which seems to have fairly good results.

Unfortunately I do not know much about the treatment, but have heard from at least one of his patients, who has reported good results from this treatment.

Dr. Salamanca is looking for people near Spain who could participate in more extensive tests
of this treatment.

Those who are interested, would have to go to his office in Madrid, as the tests require strict control and regular monitoring.

Members interested would have to be pre-screened and several tests would have to be taken beforehand. Unfortunately I do not know how often you would
be required to report to his office.

Interested members send me and Demo a PM expressing your interest, and we will pass your EMail and data to the good doctor, from whence you could continue
your contact personally.

I'm sorry that he cannot open the testing for now without personal appearances in his office, we could reach many more of you this way, but it
is important that these initial tests are controlled and closely monitored.

"When it rains, it pours" [with opportunities!]...Thank you, Daveman!

[Stef]

Firstly, I'm amazed this made it onto "Drs.", a REALLY popular show here in the US.  Second, I'm amazed at how this "expert" on tv claimed to know what the cause of POIS is when the verdict is very much still out!  I've watched this show before, and seen this kind of broad-brushing before.  They get a problem, and get a solution, then focus camera's on the hired models who sit in the front row to make you react to how pretty they are.

Ugh, Im kind of torn on this one.  I've been in organizations where the idea that "There's no such thing as bad news", but they never caught traction.  Truth and facts are really important, and I'm embarassed to have had that show use our obviously eyebrow-raising illness for material on their show without being sensitive to us, the sufferers.  I am happy though that at the end the main host encouraged those who had this issue to seek help, that's exactly what POIS sufferers need when they don't know they have it.

What do you guys think?  Thanks for the post demo

Nightingale,

Sorry for this belated reply to your post. I know you were asking the "guys" -- but I had to chime in!

I think that your post is spot-on, 100% correct-- I could not agree with you more about everything you wrote.

"The Doctors" did a much more brief segment on POIS several months earlier. (I learned about it through a POIS google alert.) I watched the clip from that earlier segment. To my utter disbelief -- they actually ended up joking about POIS!  I was so disturbed about it that I posted something directly onto their website, mentioning the stigma of POIS, the isolation that people with all rare diseases experience, NORD, blah, blah-- I did not mince words.  (Never got a reply, and did not expect to.)

This more recent segment was a vast improvement. That "expert" they had on is a urologist -- I think from Beverly Hills -- with no obvious experience with POIS -- no publications, nothing on his own website about POIS, etc.

As you said, the one saving grace was that the main host did not turn POIS into a joke this time, and they were all sympathetic this time around.

Stef

[demografx]

As you said, the one saving grace was that the main host did not turn POIS into a joke this time, and they were all sympathetic this time around.

We have certainly been turned into a joke before. Here's one example:
http://www.thespoof.com/news/science-technology/80082/who-declares-postorgasmic-illness-syndrome-1-threat-against-humanity-boner-wise

[Stef]

As you said, the one saving grace was that the main host did not turn POIS into a joke this time, and they were all sympathetic this time around.

We have certainly been turned into a joke before. Here's one example:
http://www.thespoof.com/news/science-technology/80082/who-declares-postorgasmic-illness-syndrome-1-threat-against-humanity-boner-wise

Hi, Demografx --

I just read the POIS "spoof" from 2010 that you posted.

It definitely mocked POIS (at first), but somehow then turned into a real plea for scientific investigation -- even encouraging forum members (I think directed to NSF at that time) to "write letters to every public and private sexual health researcher, relentlessly, until someone publicly decides to champion their cause."

I agree with that!

Stef

[nenexx]

I'm just gonna put it out there. I love Niacin. Wish I would have get to know about it a looooooooong time ago. Thanks to whoever discovered this method, makes my life much easier to live.

[demografx]

May, 2013 e-newsletter from NORD:
http://tinyurl.com/cwozpb5


In this issue, NORD Announces Funding for Seven New Research Grants, including POIS !

[Bulbo]

please can anyone tell me how to cure the mental fog that occurs after arousal