Author Topic: Free Flow Discussion about POIS  (Read 1013349 times)

demografx

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Re: This may seem like a familiar place.
« Reply #1900 on: May 02, 2017, 01:24:49 AM »


Thanks, everyone, for sending me your supportive (or otherwise constructively-critical)
PM'S (Private Messages) about our new research study.

I am happy to continue being your loyal advocate at NORD. And with our final PI choice.
Best
Demo


« Last Edit: June 23, 2017, 06:12:58 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #1901 on: May 06, 2017, 11:35:39 PM »


http://www.mensjournal.com/expert-advice/9-ways-orgasms-may-benefit-your-health-20140414

Article partly looks at information about POIS.

From 2014. I don't recall seeing this before, but the article just recently popped up in Google search results.

Demo


« Last Edit: May 07, 2017, 04:30:37 AM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #1902 on: May 07, 2017, 02:56:49 PM »
Cross-posted



A new $14million fund FOR (future) POIS MEDS/PHARMACEUTICALS/TREATMENTS!

https://globalgenes.org/raredaily/fda-sets-up-new-rare-disease-research-fund/
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

paradoxx

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Re: This may seem like a familiar place.
« Reply #1903 on: May 15, 2017, 06:02:59 PM »
Hi everyone, I've been reading on this forum for over 2 years and wanted to share my experience earlier but until now I was too afraid to do so. I very rarely post/publish/comment stuff on the internet (due to a feeling of insignificance i guess) so now I'm happy that I have this sudden just-do-it feeling. Anyway, what I wanted to say is thank you to everyone on the forum for your interesting contributions, it meant a lot to me when I first discovered that I'm not alone with my problems and still serves as a psychological stabilizer.

I'm almost 28 years old and from Germany. Had immune system related problems starting before age 10 (at times severe but mostly medium atopic eczema, embarrasing and very annoying stuff) and developed more symptoms between ages 10 and 16 consisting of low to medium asthma, emerging allergies, depression. Then some physical symptoms were getting fewer while others appeared. Asthma went away, eczema faded slowly. Fatigue was getting stronger and in retrospect, I identified my first orgasm-induced fatigues in this period which caused me to be a zombie in school. If a teacher asked my anything out of the blue (I never voluntarily spoke in class) I was too confused mentally to find words. In spite of these problems, I always had a strong motivation to (over)compensate and somehow kept getting a better overall life experience, slow but steady. This trend continued between ages 19 and 23, even though what I now call POIS symptoms were getting stronger by the year. In the beginning, I would be exhausted during the first day afer orgasm, then 3 days, then 5 with the main other problems being prostate pain/inflammation and digestive issues. Until age 23/24 it was quite manageable and it didn't really have a negative impact on what I was doing with my life, but then it started to go downhill at faster rates, especially because autism-like symptoms and more anxiety appeared which lead to social withdrawal and deeper depressive phases. This development continues until this year where I found myself in my worst spot. Now I've had enough and feel like the last weeks/months are a turning point though I am not trusting myself enough to really believe it.                       


My POIS

My typical POIS symptoms are triggered by orgasm through sex, masturbation or nocturnal emission and include (not sure if all of these symptoms are related to POIS but most occur in an expected way based on time of last orgasm):

Physical
cold shivers, nausea, nerve pain (mostly in feet), fatigue, muscle weakness, hot flashes after mild exertion, impaired motor function (clumsy), weak voice, runny nose, flu-like symptoms, arthritis-like pain in wrists/ankles/knees, pressure on my chest/solar plexus accompanied by heavy air release throughout the day, heartburn/reflux, shortness of breath, dry skin, rare and short but sometimes very intense pain in kidney/bladder/prostate, chronically underweight, urine and feces changing consistency/color/smell (in what seems to be the same pattern every cycle), sometimes prostate fluid/semen in urine and feces, digestive issues and higher fatigue after eating, horniness, vomiting after quickly escalated exercise, celiacs disease, hay fever

Cognitive
brain fog, depression/lethargy, paradoxical/conflicting beliefs and ideals, negative thought loops, self doubt/loathing, autism-like thoughts/behavior, high self consciousness, tendency towards keeping things under control, overanalysing things, emotional instability, nervousness/anxiety (like constant fight or flight mode), irritability, impaired speech/finding words, shifting personality

The symptoms I experience are usually not severe by themselves but all or many of them together make it very hard to live life how I would like to (worst during winter). By now, the next cycle usually begins before I see an end of the previous cycle which means symptoms just shift around based on the phase I'm in. Between 10 and 20 days after orgasm I usually have regeneration and improvements but I rarely make it that far (due to 3 possible causes: too horny and can't stay abstinent, managing to stay abstinent but nocturnal emission occurs or I just want to go back to the early days of the cycle where I feel physically worse but my social problems/anxiety are lower which is sometimes important). However, I identified some things that help me and overall I see more and more patterns emerging (I've been thinking about how to log/quantify my symptoms so I can confirm these patterns but yet couldnt find a solution that I can commit to). I don't want to mention these patterns because they are too speculative, though inflammation seems to play the biggest role.


Strategies for coping

Currently
building up a strong exercise routine, regulating my bio-rythm, figuring out what foods I can tolerate by testing myself and with doctors (testing for sorbite and fructose this week), testing supplements (tried many of those talked about here on the forum, but not sure what helps, up next is CBD oil), learning more about the symptoms and chain-reactions in POIS

Considering
reintroducing meditation routine, consulting a psychologist


Thanks for reading.

demografx

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Re: This may seem like a familiar place.
« Reply #1904 on: May 15, 2017, 06:24:48 PM »
Many thanks, paradoxx!
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Quantum

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Re: This may seem like a familiar place.
« Reply #1905 on: May 15, 2017, 07:35:16 PM »
Thanks paradoxx, for having share your POIS story. 

Keep on searching what adjustments to your lifestyle and diet will bring you relief.


I do think that both meditation and psychotherapy are indeed good to consider.  Both have been part of my life for years, and they have been of great help to keep my anxiety level in the "normal" range more and more often.   

About meditation, no more than 10 minutes a day is enough, it's the cumulative effect that is good.  No need to meditate for 1 hours every 3 to 4 days.    After 6 to 8 weeks of 10 mins a day, the cumulative effect is kicking in.
You are 100% responsible for what you do with anything I post on this forum and of any consequence it could have for you.  Forum rule: ""Do not use POISCenter as a substitute for, or to give, medical advice" Read the remaining part at http://poiscenter.com/forums/index.php?topic=1.msg10259#msg10259

Going less Crazy

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Re: This may seem like a familiar place.
« Reply #1906 on: May 15, 2017, 09:00:58 PM »
Interesting another poiser with celiac.  Nice post paradoxx.  I'm wondering how the CBD oil will work for you (it's supposed to have some benefit in celiac)
My POIS managed with Diet (@ diet that 100% manages my pois)Believe my POIS stems from inflammation in the gut. O = neuro POIS from inflammation from the gut

supps: microdose zyrtec if needed for food sens. ibuprofen for infl. as needed. Melatonin as needed. Big Pinch Black cumin  seeds once daily

demografx

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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #1908 on: June 12, 2017, 05:47:58 PM »
Cross posted from another thread

For readers here who might ever contemplate suicide and be tempted one day by a DRASTIC decision (yes, drastic: it's a permanent solution to a temporary problem!!) :


•In the USA, a good supportive hotline to call is:

  1-800-SUICIDE
(1-800-784-2433)




•All other countries:
http://www.befrienders.org


« Last Edit: June 23, 2017, 06:14:40 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business


Andy451

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Re: This may seem like a familiar place.
« Reply #1911 on: June 22, 2017, 03:20:41 PM »
Hey guys. Unrelated to previous posts. What's the progress like with that study at Rutgers? Is there any? I've heard nothing in almost 2yrs.
37 yo M- POIS for 25yrs (since age 12). Chronic POIS- always there

Tried desensitization for 1.5yrs & was unsuccessful (POIS worse at 1/1000)

 Exercising- (running/weights/situps) Low sugar diet. Supplements- limited success.Meds- Oxcarbazepine/Buspar (past-Depakote10yrs)

Quantum

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Re: This may seem like a familiar place.
« Reply #1912 on: June 22, 2017, 08:15:13 PM »
Hey guys. Unrelated to previous posts. What's the progress like with that study at Rutgers? Is there any? I've heard nothing in almost 2yrs.

Hi Andy... you have missed some important news.  You may want to take a look here : http://poiscenter.com/forums/index.php?topic=2449.msg20749#msg20749

After this "surprise", you may end on a more positive note at http://poiscenter.com/forums/index.php?topic=2462.msg20970#msg20970

You are 100% responsible for what you do with anything I post on this forum and of any consequence it could have for you.  Forum rule: ""Do not use POISCenter as a substitute for, or to give, medical advice" Read the remaining part at http://poiscenter.com/forums/index.php?topic=1.msg10259#msg10259

Quantum

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Re: This may seem like a familiar place.
« Reply #1913 on: June 23, 2017, 09:06:27 AM »
Hi everyone,

I'm leaving tomorrow for a couple of weeks, and be back around July 10th, so don't be surprised if I am silent or do not answer posts addressed to me.  I will be away from home, visiting Barcelona in Spain and Southern France, and intend to stay away from cell phones and computers during my vacations  :)
You are 100% responsible for what you do with anything I post on this forum and of any consequence it could have for you.  Forum rule: ""Do not use POISCenter as a substitute for, or to give, medical advice" Read the remaining part at http://poiscenter.com/forums/index.php?topic=1.msg10259#msg10259

demografx

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Re: This may seem like a familiar place.
« Reply #1914 on: June 30, 2017, 01:39:38 PM »

You may have noticed that all of my graphics are...gone.

Photobucket -- with which I do my graphic magic -- without warning - decided they want $399 to permit "3rd party hosting" of my images! :( :(




« Last Edit: June 30, 2017, 09:51:06 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Gabin

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Re: This may seem like a familiar place.
« Reply #1915 on: July 02, 2017, 11:17:47 AM »
Hello guys,

Nothing revolutionary, just a recap of past articles:

https://www.researchgate.net/publication/316834619_Post-Orgasmic_Illness_Syndrome_Where_Are_We

Limejuice

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Re: This may seem like a familiar place.
« Reply #1916 on: July 02, 2017, 09:16:18 PM »

You may have noticed that all of my graphics are...gone.

Photobucket -- with which I do my graphic magic -- without warning - decided they want $399 to permit "3rd party hosting" of my images! :( :(

Sad day. Any other photo hosting sites on the interweb?

demografx

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Re: This may seem like a familiar place.
« Reply #1917 on: July 03, 2017, 09:57:03 AM »
Thanks, Limejuice!
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business


Quantum

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Re: This may seem like a familiar place.
« Reply #1919 on: July 10, 2017, 08:58:26 PM »
Hello guys,

Nothing revolutionary, just a recap of past articles:

https://www.researchgate.net/publication/316834619_Post-Orgasmic_Illness_Syndrome_Where_Are_We

Thanks for the link, Gabin!

Considering the very low number of MDs knowing about POIS and interested in it, it is great to see a new name,  Dr.Ege Can Serefoglu , from Turkey, from an Urology department in Istanbul.

It's getting late here, and I am still affected by jet lag, but I may try to contact him in the coming days or weeks  ( his e-mail address is at the end of the article).

You are 100% responsible for what you do with anything I post on this forum and of any consequence it could have for you.  Forum rule: ""Do not use POISCenter as a substitute for, or to give, medical advice" Read the remaining part at http://poiscenter.com/forums/index.php?topic=1.msg10259#msg10259