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This is
Daveman's recent mailer that we hope you all received:
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"Most of you know but some may not! We have raised $30,000 of the minimum $33.500
required to produce a research grant for the investigation of POIS. WE are almost there!!
But so is the dead-line for this year.
We have
until March 22, 2013 to reach the minimum! Just 8 weeks left to raise the last $3000.
If we don't make it by March 22nd? Not a BIG catastrophe, only have to wait one more year. We don't lose the money, just the
opportunity in time.
One more year of wondering, guessing, going round in circles with promising theories...
that in 6 years, have NEVER done more than raise unfounded hope.
What will the research provide? We can't really know for sure, but the BEST will be chosen. Invitations will be sent out to over
40 medical specialists, many more will apply independently.
NORD (National Organization for Rare Disorders), the grant administrators, have a highly experienced
and specialized team to evaluate the dozens and dozens of proposals. NORD has evaluated hundreds
of very rare disorders, many much more complex than ours, and have a mechanism which has had very
much success in filtering through strange and unknown disorders to islated the options that have the
best chance of resolving the issue.
If an illness has great complexities, more than ours, the direction may be directed toward closing
in on defining the illness and preparing for future stages of research. Where certain mechanisms have
shown to produce results as in POIS, thia can certainly help to more closely isolate a direction.
We don't want to proclaim any particular direction, just indicate the optioins that we are aware of.
Will we find the cure with this research? Ultimately YES. Perhaps with just one grant, perhaps not. But we can be sure we will know
WHAT POIS IS after this first research. Just that alone is worth it's weight in gold. We don't
know what POIS is maybe it's this, maybe it's that, try this, try that, this works for some the
other works for others some things SEEM to work... for a week.
We don't know what POIS is. We just don't know. To know that, we will have put ourselves on the
right track, we will have made a change in the tail chasing. We will be standing at the doorway to a solution.
But I believe that THIS is at the very least. We will likely uncover a very likely direction to relief for all,
we will credibly expose POIS to the medical profession... VERY IMPORTANT allowing a positive attitude by treating
doctors.
We are ALMOST THERE!!!
ONLY $3,000 more to go and POIS will *finally* begin SERIOUS MEDICAL RESEARCH towards our cure!
Please give generously. To yourself! NOW! "
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