Author Topic: Free Flow Discussion about POIS  (Read 579061 times)

demografx

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Re: This may seem like a familiar place.
« Reply #420 on: January 01, 2013, 03:34:38 PM »



January 1st 2013, and the format of this forum is going to change.

There is a growing group dedicated to home remedies and theories which heavily undermine donation progress for TRUE Research.

It seems there are two good options for discussing these home remedies, which historically have lead to very little true progress, either producing
relief for only a few or producing waves of hope in a new and promising direction, that eventually fail, because the cure is not aimed at the cause
but at the relief of symptoms.

We all want relief of symptoms, and many herbal and OTC compounds have proven to be helpful to varying degrees to some, but the intense focus in
finding a remedy based on symptomology such does NOT get to the mechanism that stops POIS forever, nor is consistent for all.

We do not want to sell false hope nor lead users down dead end streets especially at the risk of furthering the damage to their systems just to
increase our member base.

This forum is not a playland. We would like our members to have a place to share their suffering and potential remedies, but not at the expense
of deviating from the main intent of desperately seeking real professional research and resolving the POIS puzzle.

This requires HIGHLY EXPERIENCED MEDICAL RESEARCHERS. It is NOT possible for untrained inexperienced individuals to resolve this
very complicated issue. Attempts at this are irresponsible and dangerous. Real research requires specific specialized and heavily experienced professionals
with decades of experience.

NSF and "Feellalike.com" are open and willing to risk amateur medical research. There are few controls and restrictions, the activity is even encouraged.

If you are willing to take the risks and lose valuable time and have your hopes dashed time and again, these may be ideal locations for you to experiment.

We bowed to the pressure, for a time, trying to maintain a collective in the hopes that we could finally achieve the professional research necessary, but
the risks are too high, so we have made the choice to focus in professional research.

As it is, with such heavy redirection of hope in unsupported theories, we will probably not make the March deadline, and will require at least another year
to raise the rest of the funds. So we feel that a slight interruption at this point in our change of focus will have little negative impact.

Our focus will move primarily to research funding efforts, companionship, sharing of potential useful symptomatic remedies, but there will be NO MORE
DISCUSSION of supposed theories for POIS cures.


We, none of us here are trained for it.

We will moderate this new approach strongly.

Feel free to visit sites who permit uncontrolled research and are willing to flagrantly promote false hopes. And good luck.

If we remain with just three members who are dedicated and intent on rolling up their sleeves to go this last mile, we need nothing more.





This merits re-posting in red.

It is a major POIS Forum Statement.

Please read it carefully.

Best wishes to everyone for a POIS-free future!!




« Last Edit: January 01, 2013, 04:07:01 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #421 on: January 01, 2013, 04:05:16 PM »
Our POIS Medical Research Funding status:

We only need about $9,000 more.

This is eminently achievable!





 Please Click H E R E



WE'RE SOOOOO CLOSE. LET'S MAKE OUR DREAM HAPPEN NOW!


« Last Edit: January 02, 2013, 05:17:39 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

amijgoro

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Re: This may seem like a familiar place.
« Reply #422 on: January 01, 2013, 05:14:48 PM »
Well said

Observer

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Re: This may seem like a familiar place.
« Reply #423 on: January 01, 2013, 05:17:46 PM »
We need the 9,000$ before this March, we cannot afford waiting another year! Everyone should do their best to donate - It does not matter how much, every contribution will make the difference - because this will mean that we are investing in our future, and the future of many people around the world who are suffering from POIS. And nothing is more valuable than our future and our health.
« Last Edit: January 01, 2013, 06:05:24 PM by Observer »

demografx

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Re: This may seem like a familiar place.
« Reply #424 on: January 01, 2013, 05:45:18 PM »
Yes, I agree with Observer.
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Vincent M

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Re: This may seem like a familiar place.
« Reply #425 on: January 01, 2013, 05:47:27 PM »

I see. [The Forum Statement below] sounds reasonable to me.


Thank you, Vincent M, for your support. You are a valued member.

It's been an honor being part of this forum with you Demo, and with everyone else. Once this research study is done we will have much more recognition in the medical world which will be awesome for our cause.
« Last Edit: January 01, 2013, 05:49:02 PM by Vincent M »
Taking ginger tea, no wheat, fenugreek+green tea/garlic, saw palmetto, niacin, boswellia, huperzine, B complex and nutmeg. See my treatment summary post for more info: http://poiscenter.com/forums/index.php?topic=81.msg3513#msg3513

demografx

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Re: This may seem like a familiar place.
« Reply #426 on: January 01, 2013, 05:48:20 PM »

Well said


Thank you very much, amijgoro.
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #427 on: January 01, 2013, 05:49:40 PM »

I see. [The Forum Statement below] sounds reasonable to me.


Thank you, Vincent M, for your support. You are a valued member.

It's been an honor being part of this forum with you Demo, and with everyone else. Once this research study is done we will have much more recognition in the medical world which will be awesome for our cause.

 :)
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #428 on: January 01, 2013, 05:54:54 PM »

We need the $9,000 before this March, we cannot afford to wait another year!

10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #429 on: January 01, 2013, 05:59:24 PM »
Well said, Observer!
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #430 on: January 01, 2013, 10:46:28 PM »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Egordon

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Re: This may seem like a familiar place.
« Reply #431 on: January 02, 2013, 01:32:55 AM »
January 1st 2013, and the format of this forum is going to change.

There is a growing group dedicated to home remedies and theories which heavily undermine donation progress for TRUE Research.

It seems there are two good options for discussing these home remedies, which historically have lead to very little true progress, either producing
relief for only a few or producing waves of hope in a new and promising direction, that eventually fail, because the cure is not aimed at the cause
but at the relief of symptoms.

We all want relief of symptoms, and many herbal and OTC compounds have proven to be helpful to varying degrees to some, but the intense focus in
finding a remedy based on symptomology such does NOT get to the mechanism that stops POIS forever, nor is consistent for all.

We do not want to sell false hope nor lead users down dead end streets especially at the risk of furthering the damage to their systems just to
increase our member base.

This forum is not a playland. We would like our members to have a place to share their suffering and potential remedies, but not at the expense
of deviating from the main intent of desperately seeking real professional research and resolving the POIS puzzle.

This requires HIGHLY EXPERIENCED MEDICAL RESEARCHERS. It is NOT possible for untrained inexperienced individuals to resolve this
very complicated issue. Attempts at this are irresponsible and dangerous. Real research requires specific specialized and heavily experienced professionals
with decades of experience.

NSF and "Feellalike.com" are open and willing to risk amateur medical research. There are few controls and restrictions, the activity is even encouraged.

If you are willing to take the risks and lose valuable time and have your hopes dashed time and again, these may be ideal locations for you to experiment.

We bowed to the pressure, for a time, trying to maintain a collective in the hopes that we could finally achieve the professional research necessary, but
the risks are too high, so we have made the choice to focus in professional research.

As it is, with such heavy redirection of hope in unsupported theories, we will probably not make the March deadline, and will require at least another year
to raise the rest of the funds. So we feel that a slight interruption at this point in our change of focus will have little negative impact.

Our focus will move primarily to research funding efforts, companionship, sharing of potential useful symptomatic remedies, but there will be NO MORE
DISCUSSION of supposed theories for POIS cures.

We, none of us here are trained for it.

We will moderate this new approach strongly.

Feel free to visit sites who permit uncontrolled research and are willing to flagrantly promote false hopes. And good luck.

If we remain with just three members who are dedicated and intent on rolling up their sleeves to go this last mile, we need nothing more.


Thank. God.
POIS since I was about 15. 1.75 years of desens and I'm now about 80% POIS free. Still working through best practices for maintaining my immunity and administering my injections with my doctor. Email me if you have tips or questions!

demografx

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Re: This may seem like a familiar place.
« Reply #432 on: January 02, 2013, 09:02:36 AM »
 :)
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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  • All of us working together to defeat POIS!
Re: This may seem like a familiar place.
« Reply #433 on: January 02, 2013, 09:34:39 AM »
I once tried to get funding from the pharmaceutical firm who makes my TRT. Uphill climb (to do TRT - POIS clinical trials research)

But maybe now they could put up $9,000?

That's Corporate Peanut$!

Any thoughts?
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

  • Administrator
  • Hero Member
  • *****
  • Posts: 5226
  • All of us working together to defeat POIS!
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business