Poll

Do you have any of those symptoms assosiated with EDS (Ehlers-Danlos syndrom)?

Skin: Knotted/nodular connective tissue under the skin (you can feel it on for example your biceps but its not visible)
1 (11.1%)
Skin: Stretchy (you can stretch it quite alot with no pain)
1 (11.1%)
Skin: Easy bruising
0 (0%)
Skin: Varricose veins
1 (11.1%)
Skin: Visible small blood vessels, particularly on the upper chest and legs
1 (11.1%)
Skin: Soft velvety-like
0 (0%)
Skin: Wounds that are slow to heal and/or leave wide scars
0 (0%)
Joints: Hypermobility (unstable joints that dislocate easily)
0 (0%)
Joints: Pain and clicking joints
0 (0%)
Dizziness and an increased heart rate after standing up
3 (33.3%)
Digestive problems, such as heartburn and constipation.
1 (11.1%)
Extreme tiredness (fatigue)
1 (11.1%)
Hernia: The abnormal exit of tissue or an organ
0 (0%)
Facial features (such as a thin nose and lips, large eyes and small earlobes)
0 (0%)

Total Members Voted: 3

Author Topic: Do you have any of those symptoms assosiated with EDS (Ehlers-Danlos syndrom)?  (Read 746 times)

BoneBroth

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There are 13 types of EDS: Hypermobile EDS (hEDS) is the most common type. Other types of EDS include classical EDS, vascular EDS and kyphoscoliotic EDS. https://www.nhs.uk/conditions/ehlers-danlos-syndromes/

Journey

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  • INTP, 19 y.o. aware of POIS since 2019
I can bend my thumbs backwards, can reach the palms together at the back, and sometimes if I sat too long, standing up can give diziness and I have thin tall lanky physique but don't think I have joint hypermobility, idk what normal skin stretchability is like, not sure about everything else.

Muon

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I can bend my thumbs backwards.

This can be a sign of EDS.

BoneBroth

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I just noticed that I have knotted connective issue all the way on my inner arm (specially on the biceps) and some other places too where the skin is softer (sides of the chest). I can't see the knots but if I pinch/rub with my finger I can feel "long-spun" bumps everywhare from the size between 0,5 cm to 2 cm. It doesnt feels like it is in the mucsles because they are still "over" the muscles when I tighten them. I think I had them many years and they don't hurt at allt. My girlfriend doesnt have them. Does anyone else have this, you Journey? Maybe it's normal for men?

Update: There is a symptom called "Darier-Roussy subcutaneous sarcoidosis" or "Subcutaneous Nodules" that matches my symptoms. They are present at 3-30% of patients with reumatic fever.
« Last Edit: November 18, 2020, 12:29:51 PM by BoneBroth »

Journey

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  • INTP, 19 y.o. aware of POIS since 2019
I can bend my thumbs backwards.

This can be a sign of EDS.
It's 90 degrees backwards from straight position

Iwillbeatthis

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I have hyper mobility in three of my fingers and in my knees , I also have dysfunction in the sacroiliac joints and hip areas always clicking and readjusting, EDS is something I have wanted to get checked out for for while a now