Author Topic: POIS NORD RESEARCH STUDY  (Read 147038 times)

Nas

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Re: POIS 2019-2020 NORD RESEARCH STUDY
« Reply #80 on: July 26, 2019, 04:21:57 PM »
Because you did get that answer very quickly.
What can I say, it's the age of social media.
This test is also useful with other pathways. Basically after selling your liver and kidney, do a complete analysis of different pathways in a POIS state, and see the irregularities.

Muon

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Re: POIS 2019-2020 NORD RESEARCH STUDY
« Reply #81 on: July 26, 2019, 04:51:47 PM »
Investigation of dopamine pathways is interesting yes. Btw I've send out an email to a laboratory for clinical trials and asked them if I, as a patient, could initiate a project/study. I've received nothing back yet. If this is possible then you will have access to all sorts of exotic parameters. I can put up a kickstarter for raising funds and we can democratically vote for the parameters we want to investigate. I'm just exploring options at the moment. We could launch a study parallel to the NORD one.

Nas

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Re: POIS 2019-2020 NORD RESEARCH STUDY
« Reply #82 on: July 26, 2019, 04:53:11 PM »
Great Idea, you 100% have my support.
Though please let's focus on brain symptoms. Trust me no one here is going to be suicidal for sneezing after POIS.
« Last Edit: July 26, 2019, 04:55:11 PM by Nas »

demografx

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Re: POIS 2019-2020 NORD RESEARCH STUDY
« Reply #83 on: July 26, 2019, 06:20:30 PM »

. Trust me no one here is going to be suicidal for sneezing after POIS.


;D ;D
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: POIS 2019-2020 NORD RESEARCH STUDY
« Reply #84 on: July 26, 2019, 08:37:21 PM »
Nas, your neurological emphasis is intriguing. I encouraged the NORD researchers to look at this most recent thread, mainly the discussion between you and Muon.
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: POIS 2019-2020 NORD RESEARCH STUDY
« Reply #85 on: July 27, 2019, 12:01:16 PM »
The doctors I spoke to...
Not trying to break anyone’s anonymity, but can you reveal anything more about these doctors? Mainly because it’s so unusual to find *any* doctor with empathy or understanding of POIS! And research! How did you find them? This is all out of simple curiosity, I’ll understand if you decline to respond. Also, can you say anything about your own educational/occupational background? You seem well versed in some medical understanding. Thank you!
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Nas

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Re: POIS 2019-2020 NORD RESEARCH STUDY
« Reply #86 on: July 27, 2019, 01:33:35 PM »
Yes, so you have:
Dr. Ahmad Maher from Egypt
Medicine student Filip Ali from Syria
Dr. Ibrahim Touami from Algeria
Pharmacist Youcif Bouzegzi from Algeria

Note all these suffer from POIS. But unfortunately they have still no understanding of POIS, just speculations. They also haven't found a remedy for their illness.

I talked to Ahmed Maher by accident since he was very active on FB, he decided to make a group chat for Arab POIS sufferers. It turns out that half of them are involved in medical academics.

The medical knowledge I have comes from my own research. I have no college training so really I'm no different than you. Being isolated from the medical community, because they don't have knowledge about POIS. So I only have my own and the internet to try and fix my issue. Please don't rely on me for medical advise, I'm only cultured in medicine and definitely not an expert, and I always ask these mentioned doctors.
« Last Edit: July 27, 2019, 01:47:12 PM by Nas »

Nas

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Re: POIS 2019-2020 NORD RESEARCH STUDY
« Reply #87 on: July 27, 2019, 01:51:40 PM »
Hopefully this research can better introduce the medical world to our illness. But the sad truth is probably no way to effectively treat POIS without research.

demografx

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Re: POIS 2019-2020 NORD RESEARCH STUDY
« Reply #88 on: July 27, 2019, 02:04:50 PM »
Impressive, Nas.
« Last Edit: July 27, 2019, 09:35:22 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Quantum

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Re: POIS 2019-2020 NORD RESEARCH STUDY
« Reply #89 on: July 28, 2019, 08:08:54 PM »


”Crowdfunded [from our forum!!] grant will help UNL researcher study sex-related condition [POIS]”


Dr. Tierney Lorenz, our POIS Study Principal Investigator






Journal Star link:

http://tinyurl.com/y48syzo6


In case anyone is wondering, Dr Lorenz si the main researcher of our upcoming POIS study   :)



« Last Edit: July 28, 2019, 08:10:30 PM by Quantum »
You are 100% responsible for what you do with anything I post on this forum and of any consequence it could have for you.  Forum rule: ""Do not use POISCenter as a substitute for, or to give, medical advice" Read the remaining part at http://poiscenter.com/forums/index.php?topic=1.msg10259#msg10259

demografx

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Re: POIS 2019-2020 NORD RESEARCH STUDY
« Reply #90 on: July 28, 2019, 08:25:33 PM »
Impressive, Nas.
One of my biggest hopes for many years was to find an MD with POIS. You did it!

ps - I assume you’re aware of the controversial POIS paper by the Egyptian researchers? (Controversial because Waldinger refused to endorse it for publication in JSM).
« Last Edit: July 28, 2019, 11:38:10 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: POIS 2019-2020 NORD RESEARCH STUDY
« Reply #91 on: August 03, 2019, 02:56:16 PM »


Dr. Nicole Prause, our POIS Research


Co-investigator, was in a PBS-TV Series


(I like the way she thinks -


Demo)








Her video:

https://tinyurl.com/y4trvo6o
« Last Edit: August 03, 2019, 02:59:18 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Nas

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Re: POIS 2019-2020 NORD RESEARCH STUDY
« Reply #92 on: August 13, 2019, 02:26:10 PM »
Any news on this investigation? Did it start? When will it start?

demografx

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Re: POIS 2019-2020 NORD RESEARCH STUDY
« Reply #93 on: August 13, 2019, 02:53:51 PM »
Almost there. Waiting on fund transfers. No formal ETA. Frustrating but very typical of the process!
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

OpiesDad

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Re: POIS 2019-2020 NORD RESEARCH STUDY
« Reply #94 on: August 14, 2019, 07:13:22 PM »
Will be worth the wait ...  I will eagerly participate, even if it means O'ing myself sick!

demografx

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Re: POIS 2019-2020 NORD RESEARCH STUDY
« Reply #95 on: August 14, 2019, 08:39:51 PM »
OpiesDad, thanks for your support for the research!
« Last Edit: August 14, 2019, 10:27:20 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: POIS 2019-2020 NORD RESEARCH STUDY
« Reply #96 on: September 03, 2019, 08:42:24 PM »
Dr. Nicole Prause, NORD’s co-Investigator for POIS Research.

About porn vs. sex:
https://smartsexsmartlove.com/2019/09/03/how-porn-and-sex-are-different-in-the-brain/
Click on Episode Transcript
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: POIS 2019-2020 NORD RESEARCH STUDY
« Reply #97 on: September 06, 2019, 12:51:51 PM »
NORD signed the contract for the science to start, so now the researchers are just waiting on the first money to be deposited to order equipment for the POIS study.
« Last Edit: September 06, 2019, 08:46:01 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: POIS 2019-2020 NORD RESEARCH STUDY
« Reply #98 on: September 17, 2019, 10:08:27 AM »
Dr. Nicole Prause, NORD’s POIS co-investigator:

This is not about POIS but this might give you better insight as to how one of our POIS researchers thinks:

“We are lucky that sex science is easy comedy fodder, because it means I get to communicate science with a group of  awesome comedians who also whipped in good questions! From orgasms and one-time partners to pornography and sexual excitation/inhibition balance...Moshe Kasher and Hound Tall”

https://podcasts.apple.com/us/podcast/orgasms-genital-stroking-and-sexaddiction/id924570412?i=1000449298505
« Last Edit: September 17, 2019, 05:53:59 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: POIS 2019-2020 NORD RESEARCH STUDY
« Reply #99 on: September 23, 2019, 07:19:43 PM »
I thought some of you might be interested in seeing this job posting since it relates to the progress of the POIS Research Study that we are funding at POISCenter.com with NORD.

Research Assistant Job
We are hiring a part-time research assistant for a study of post-orgasmic illness syndrome in Santa Monica, CA. This position is funded by the National Organization of Rare Diseases (NORD). The study is overseen by the University of Nebraska-Lincoln federal ethics IRB.

All candidates should anticipate being comfortable researching sexual topics, including discussing genital measures with study participants and showing erotic imagery and films. Experience with psychophysiology is required. Experience with electroencephalography is especially useful. The candidate is likely enrolled in a PhD program. Advanced undergraduates, especially in computer science, will be considered. Experience with PsychoPy, R, Matlab, Emotiv or computer science is desirable, but not required. Opportunities for participation in publications exist dependent on ability to contribute to writing. Work can be done on weekends-only, if desired.

We do not discriminate on the basis of, well, anything. We are open to candidates across gender identities, sexual orientations, ages, disability statuses, family statuses, religions, political orientations…if you are qualified, we want you.

Application
[Brief] Cover letter, including the position(s) for which you are applying, and a curriculum vitae (or resume). Select “Job Applicant” on this form to provide that information. You should receive a confirmation email of receipt.

Salary
Salary expected: $11,000 total

Effort
8 hours per week for one year ($26.44/hour). Schedule largely to your preference/availability.
This is 20% effort on the grant, if you need to ensure other grants do not conflict

Start
Flexible around November
« Last Edit: September 23, 2019, 07:50:38 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business