Post Orgasmic Illness Syndrome (P.O.I.S.)
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December 06, 2019, 11:08:30 PM

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2019 POIS Survey from Tulane Team !
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| | |-+  POIS 2019-2020 NORD RESEARCH STUDY
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: POIS 2019-2020 NORD RESEARCH STUDY  ( 6585 )
demografx
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All of us working together to defeat POIS!


« #90 : July 28, 2019, 08:25:33 PM »

Impressive, Nas.
One of my biggest hopes for many years was to find an MD with POIS. You did it!

ps - I assume you’re aware of the controversial POIS paper by the Egyptian researchers? (Controversial because Waldinger refused to endorse it for publication in JSM).
« : July 28, 2019, 11:38:10 PM demografx »

10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business
demografx
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All of us working together to defeat POIS!


« #91 : August 03, 2019, 02:56:16 PM »



Dr. Nicole Prause, our POIS Research


Co-investigator, was in a PBS-TV Series


(I like the way she thinks -


Demo)








Her video:

https://tinyurl.com/y4trvo6o
« : August 03, 2019, 02:59:18 PM demografx »

10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business
Nas
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: 963


« #92 : August 13, 2019, 02:26:10 PM »

Any news on this investigation? Did it start? When will it start?
demografx
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All of us working together to defeat POIS!


« #93 : August 13, 2019, 02:53:51 PM »

Almost there. Waiting on fund transfers. No formal ETA. Frustrating but very typical of the process!

10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business
OpiesDad
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« #94 : August 14, 2019, 07:13:22 PM »

Will be worth the wait ...  I will eagerly participate, even if it means O'ing myself sick!
demografx
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« #95 : August 14, 2019, 08:39:51 PM »

OpiesDad, thanks for your support for the research!
« : August 14, 2019, 10:27:20 PM demografx »

10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business
demografx
Administrator
Hero Member
*****
: 4572


All of us working together to defeat POIS!


« #96 : September 03, 2019, 08:42:24 PM »

Dr. Nicole Prause, NORD’s co-Investigator for POIS Research.

About porn vs. sex:
https://smartsexsmartlove.com/2019/09/03/how-porn-and-sex-are-different-in-the-brain/
Click on Episode Transcript

10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business
demografx
Administrator
Hero Member
*****
: 4572


All of us working together to defeat POIS!


« #97 : September 06, 2019, 12:51:51 PM »

NORD signed the contract for the science to start, so now the researchers are just waiting on the first money to be deposited to order equipment for the POIS study.
« : September 06, 2019, 08:46:01 PM demografx »

10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business
demografx
Administrator
Hero Member
*****
: 4572


All of us working together to defeat POIS!


« #98 : September 17, 2019, 10:08:27 AM »

Dr. Nicole Prause, NORD’s POIS co-investigator:

This is not about POIS but this might give you better insight as to how one of our POIS researchers thinks:

“We are lucky that sex science is easy comedy fodder, because it means I get to communicate science with a group of  awesome comedians who also whipped in good questions! From orgasms and one-time partners to pornography and sexual excitation/inhibition balance...Moshe Kasher and Hound Tall”

https://podcasts.apple.com/us/podcast/orgasms-genital-stroking-and-sexaddiction/id924570412?i=1000449298505
« : September 17, 2019, 05:53:59 PM demografx »

10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business
demografx
Administrator
Hero Member
*****
: 4572


All of us working together to defeat POIS!


« #99 : September 23, 2019, 07:19:43 PM »

I thought some of you might be interested in seeing this job posting since it relates to the progress of the POIS Research Study that we are funding at POISCenter.com with NORD.

Research Assistant Job
We are hiring a part-time research assistant for a study of post-orgasmic illness syndrome in Santa Monica, CA. This position is funded by the National Organization of Rare Diseases (NORD). The study is overseen by the University of Nebraska-Lincoln federal ethics IRB.

All candidates should anticipate being comfortable researching sexual topics, including discussing genital measures with study participants and showing erotic imagery and films. Experience with psychophysiology is required. Experience with electroencephalography is especially useful. The candidate is likely enrolled in a PhD program. Advanced undergraduates, especially in computer science, will be considered. Experience with PsychoPy, R, Matlab, Emotiv or computer science is desirable, but not required. Opportunities for participation in publications exist dependent on ability to contribute to writing. Work can be done on weekends-only, if desired.

We do not discriminate on the basis of, well, anything. We are open to candidates across gender identities, sexual orientations, ages, disability statuses, family statuses, religions, political orientations…if you are qualified, we want you.

Application
[Brief] Cover letter, including the position(s) for which you are applying, and a curriculum vitae (or resume). Select “Job Applicant” on this form to provide that information. You should receive a confirmation email of receipt.

Salary
Salary expected: $11,000 total

Effort
8 hours per week for one year ($26.44/hour). Schedule largely to your preference/availability.
This is 20% effort on the grant, if you need to ensure other grants do not conflict

Start
Flexible around November
« : September 23, 2019, 07:50:38 PM demografx »

10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business
demografx
Administrator
Hero Member
*****
: 4572


All of us working together to defeat POIS!


« #100 : October 01, 2019, 08:28:12 PM »

Some people (but very few) here wonder why we don’t just crowdfund donation$ and then hire our own POIS researcher instead of using an intermediary like NORD? One answer is that NORD does all the accounting/bookkeeping/$$$ fundraising donor collection, organization and disbursement of funds, a mini-nightmare for a small group like ours. Then they do massive promotion to a huge international database and PR network to screen for and find medically-qualified-for-POIS researchers. Then, lending great CREDIBILITY to the process (for donors & researchers alike) with a very well-known and highly respected name in the field of medical research of rare disorders, e.g., NORD.

And to me, one of the most critical factors is having an “oversight” team like NORD’s MAC (see below), virtually impossible to assemble all alone by a small group such as ours.

:) MAC FAQ :)

Q. Who evaluates all of the POIS Grant proposals for NORD (our Grant administrator) and who does the final award/selection of our Researcher/PI (Principal Investigator)? And who monitors POIS research progress & sends us periodic updates?

A. NORD's Scientific and Medical Advisory Committee (also known as "MAC") -- does all of the above.

The NORD MAC ( Medical Advisory Committee ) is comprised of physician/researchers who share their experience and expertise on behalf of patients and families affected by POIS. They are:


Marshall Summar, MD, Chair, NORD Strategic Advisory Committee
Division Chief, Genetics and Metabolism
Margaret O’Malley Chair of Molecular Genetics
Children’s National Medical Center
Professor, Pediatrics, George Washington
University School of Medicine and Health Sciences

Frederick Askari, MD, PhD
Associate Professor, Hepatology
Division of Gastroenterology
Director, Wilson Disease Program
University of Michigan Health System

Matthias Baumgartner, Prof Dr med
Associate Professor for Metabolic Diseases
University of Zurich
Head, Division of Metabolics
Children’s Hospital Zurich

Preston W. Campbell, III, MD
President and Chief Executive Officer
Associate Professor of Pediatrics
Johns Hopkins Cystic Fibrosis Center

Harry (Hal) Dietz, MD
Victor A. McKusick Professor of Genetics
and Medicine
Investigator, Howard Hughes Medical Institute
Johns Hopkins University School of Medicine
McKusick-Nathans Institute of Genetic Medicine

Gregory M. Enns, MB, ChB
Associate Professor of Pediatrics (Genetics)
Lucile Packard Children’s Hospital
Associate Professor – Med Center Line,
Pediatrics – Medical Genetics
Member, Child Health Research Institute
Stanford University School of Medicine

Marlene Haffner, MD, MPH
President and CEO
Haffner Associates, LLC

James E. Heubi, MD
Director, Clinical Translational Research Center
Co-Director, Center for Clinical and Translational Science and Training
Associate Dean, Clinical and Translational Research
Professor, Department of Pediatrics
Cincinnati Children’s Hospital Medical Center

James F. Leckman, MD
Neison Harris Professor of Child Psychiatry
Psychiatry, Psychology and Pediatrics
Yale Child Study Center
Yale School of Medicine

Brendan Lee, MD, PhD
Robert and Janice McNair Endowed Chair and Professor in
Molecular and Human Genetics
Professor of Molecular and Human Genetics
Baylor College of Medicine
Investigator, Howard Hughes Medical Institute

James E. Lock, MD
Cardiologist-in-Chief
Boston Children’s Hospital
Alexander S. Nadas Professor of Pediatrics
Harvard Medical School

Mary Jean Sawey, PhD
VP, Medical Director
Scientific Services
TRIO, an FCB Health Network Company

Susan Winter, MD
Clinical Professor, Pediatrics, UCSF
Clinical Geneticist, Genetic Medicine and Metabolism, Valley Children’s Hospital

Doris T. Zallen, PhD
Professor Emerita of Science and Technology
Studies and Humanities
Virginia Tech University
« : October 26, 2019, 02:10:16 PM demografx »

10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business
demografx
Administrator
Hero Member
*****
: 4572


All of us working together to defeat POIS!


« #101 : October 25, 2019, 06:47:17 PM »

Great Research News!

From:        Dr. Nicole Prause
cc:             Dr. Tierney Lorenz
Subject:    Scientists, start your engines!


Hi Demo,

We officially have the grant funds in the accounts to spend them! I've started prepping my lab space and will begin equipment orders. I now need to hire the research assistant and do a bunch of testing, so do not expect enrollment for at least another month, but we are officially green-lit...totally...finally. :)

Thank you for your patience and have a good weekend!

Nicole Prause, Ph.D.


« : October 25, 2019, 09:00:48 PM demografx »

10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business
Nas
Hero Member
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: 963


« #102 : October 25, 2019, 07:00:40 PM »

Demo have you notified the team about the recent paper?
Hopefully it might help them allocate their recourses somewhere more useful.
Thanks you.
demografx
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Hero Member
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All of us working together to defeat POIS!


« #103 : October 25, 2019, 07:17:40 PM »

Yes! Thanks, Nas!

10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business
demografx
Administrator
Hero Member
*****
: 4572


All of us working together to defeat POIS!


« #104 : October 25, 2019, 07:19:16 PM »

Great Research News!

From:        Dr. Nicole Prause
cc:             Dr. Tierney Lorenz
Subject:    Scientists, start your engines!


Hi Demo,

We officially have the grant funds in the accounts to spend them! I've started prepping my lab space and will begin equipment orders. I now need to hire the research assistant and do a bunch of testing, so do not expect enrollment for at least another month, but we are officially green-lit...totally...finally. :)

Thank you for your patience and have a good weekend!

Nicole Prause, Ph.D.


Yayyyy!


For those of you who are new, Daveman & I  together co-founded POISCenter.com
« : October 26, 2019, 01:13:23 AM demografx »

10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business
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