Gather and Post Here Your Medical Tests Results - Discussion Thread

[BoneBroth]

Got an naprapat analysis/treatment today. He didn't find any skelletal deformations and said nothing was wrong. Some hours later I perhaps felt a little more relaxed and less headache, but I cant say for sure that was the cause.

[BoneBroth]

Prospero in Medical Test results: "First wave of blood and urinary tests. Probably the most interesting anomaly is the presence of Anti-nuclear antibodies, of the ENA kind, which may be indicative of an auto-immune condition.". Thats one of the signs Lupus (auto-immune disease) and POIS'ers have many Lupus symptoms (mostly during POIS). Yes I believe there is a auto-immune factor in POIS:

Dry eyes
Dry mouth
Red skin
Hair loss
Uneasiness, or pain
Muscle pain
Fatigue
Weight loss
Difficulties to speak/formulate
Brainfog
Sensitive skin to light
Poor circulation in fingers and toes
Memory loss
Inflammation of blood vessels in the skin

"Your going to see increadibly results, I've seen patients improve 100%", says Dr Axe and here is the Lupus protocol focusing on leaky gut:
https://www.youtube.com/watch?v=uOFDmJWWI_c

Lupus descrription:
https://en.wikipedia.org/wiki/Lupus
https://www.webmd.com/lupus/understanding-lupus-symptoms
https://www.verywellhealth.com/when-lymphoma-develops-in-people-with-lupus-4137791
https://www.peacehealth.org/medical-topics/id/hw123404

[Muon]

Probably the most interesting anomaly is the presence of Anti-nuclear antibodies, of the ENA kind, which may be indicative of an auto-immune condition.

https://en.wikipedia.org/wiki/Extractable_nuclear_antigen

"Autoantibodies to these antigens are associated with particular connective tissue disorders."

https://en.wikipedia.org/wiki/Connective_tissue_disease

https://en.wikipedia.org/wiki/Autoantibody#List_of_some_autoantibodies_and_commonly_associated_diseases

Saw this paper about autoantibodies in CFS/ME. One could look for a paper that lists all autoantibodies. Also a separate thread can be made collecting all the autoantibody results from the forum. Table 1, autoantibodies against neurotransmitter receptors....:
https://www.sciencedirect.com/science/article/pii/S1568997218300880

This one is quite useful: https://en.wikipedia.org/wiki/Reference_ranges_for_blood_tests

[Iwillbeatthis]

Probably the most interesting anomaly is the presence of Anti-nuclear antibodies, of the ENA kind, which may be indicative of an auto-immune condition.

https://en.wikipedia.org/wiki/Extractable_nuclear_antigen

"Autoantibodies to these antigens are associated with particular connective tissue disorders."

https://en.wikipedia.org/wiki/Connective_tissue_disease

https://en.wikipedia.org/wiki/Autoantibody#List_of_some_autoantibodies_and_commonly_associated_diseases

Saw this paper about autoantibodies in CFS/ME. One could look for a paper that lists all autoantibodies. Also a separate thread can be made collecting all the autoantibody results from the forum. Table 1, autoantibodies against neurotransmitter receptors....:
https://www.sciencedirect.com/science/article/pii/S1568997218300880

This one is quite useful: https://en.wikipedia.org/wiki/Reference_ranges_for_blood_tests

Here is what the rheumatologist said to my gp when I saw them three and a half years ago: "Tests show he is ANA positve with a titre of 1/640 and speckled staining with positive ENA for anti-Sm/RNP but negative serology for Sm and U1RNP. Other blood tests are unremarkable including normal ESR and CRP. Examination showed he had hyper-mobility of two fingers and knees. He had a prominent lumbar lordosis. He had myofascial trigger points at the trapezius and rhomboids but not more widely. He did not have peripheral features of a connective tissue disease or vasculitis"

She asked to have C3,C4 immunoglobins and anti phospholipid antibody tested and MRI of spine- the C3, C4 immunoglobins came back normal but they missed out the anti phospholipid antibodies - I realised this a few months ago. Anyway now I've tested for anti phospholipid antibodies and they've come back elevated (I knew they would) so they want me to retest in three months but they only diagnose APS if come back elevated in three months time. So it makes sense why phospholipid supplements and asprin help me and I am sure I have had some kind of mini stroke (transient ischaemic attack) on a handful of occasions which all felt extremely serious.

Its interesting that you say IGG4 masks IGE, IGG4 and IGG1 I am going to get tested for soon as advised by my current specialist but it looks like I will have to pay for them as my NHS GP won't order any of the 10 tests he has advised....

[Muon]

You talked about Antiphospholipid syndrome earlier. I've read about it in a MCAS paper but couldn't remember where, until now. Table 1--->Genitourinary--->miscarriages should prompt consideration of antiphospholipid antibody syndrome potentially due to MCAS.
https://www.tandfonline.com/doi/figure/10.3109/07853890.2016.1161231?scroll=top&needAccess=true

My mother had an idiopathic miscarriage. She can touch her toes from standing position but is stiff as hell in other positions. She has problems with what I suspect is vascular inflammation. My grandma had transient ischaemic attacks.

Edit: Most IgG4 tests are deficiency tests. You need testing that can measure above the upper normal limit. Although my IgG4 might stem from SCIT or from chronic antigen exposure and could act as a protective antibody. I haven't seen others on the forum with elevated IgG4.

[Iwillbeatthis]

Thanks yeah I mentioned it before but I only heard about the results this week. My mother also had a miscarriage however I'm not sure what type.

[Muon]

My mother also had a miscarriage however I'm not sure what type.

WTF!

You may want to set up a thread for yourself here: https://poiscenter.com/forums/index.php?board=12.0
So you can document your case. I can't get an overview of people's cases here on this forum. Everything is fragmented. I encourage more people to make a case description/documentation. This isn't working guys and galls when everyone is scattering their snippets of personal info over multiple threads.

[BoneBroth]

I guess "Personal POIS Summaries and Histories." is the place you mean? (personal experiences of POIS)?

https://poiscenter.com/forums/index.php?topic=81.0

[Iwillbeatthis]

My mother also had a miscarriage however I'm not sure what type.

WTF!

You may want to set up a thread for yourself here: https://poiscenter.com/forums/index.php?board=12.0
So you can document your case. I can't get an overview of people's cases here on this forum. Everything is fragmented. I encourage more people to make a case description/documentation. This isn't working guys and galls when everyone is scattering their snippets of personal info over multiple threads.

Whats the significance of a miscarriage? They are fairly common occurring in 1/8 pregnancies, I know that folate issues can be a cause.
I don't think I have enough abnormal tests to write a case right now only things that stand out are ENA, ANA and folate deficiency, I have only been able to have done most of the basic tests but hardly any specialised immune ones.

[Muon]

I guess "Personal POIS Summaries and Histories." is the place you mean? (personal experiences of POIS)?

https://poiscenter.com/forums/index.php?topic=81.0

No. People can create a separate thread in the category 'livestyle diaries and pois summaries'. I would put your username in the title like I did with Muon's case. You may want to reserve a few comments in case of expanding the thread (buffer). You could link the thread to your signature like I did at the bottom of this comment.

[Prospero]

Probably the most interesting anomaly is the presence of Anti-nuclear antibodies, of the ENA kind, which may be indicative of an auto-immune condition.

https://en.wikipedia.org/wiki/Extractable_nuclear_antigen

"Autoantibodies to these antigens are associated with particular connective tissue disorders."

https://en.wikipedia.org/wiki/Connective_tissue_disease

https://en.wikipedia.org/wiki/Autoantibody#List_of_some_autoantibodies_and_commonly_associated_diseases

Saw this paper about autoantibodies in CFS/ME. One could look for a paper that lists all autoantibodies. Also a separate thread can be made collecting all the autoantibody results from the forum. Table 1, autoantibodies against neurotransmitter receptors....:
https://www.sciencedirect.com/science/article/pii/S1568997218300880

This one is quite useful: https://en.wikipedia.org/wiki/Reference_ranges_for_blood_tests

Among the different connective tissue diseases, scleroderma especially rang a bell. It seems to be one of the least understood. There are many symptoms identical to those of POIS, and the pathogenesis is surprizingly similar to many things which have been discussed for POIS. (It is also said that pulmonary complications are the main cause of lethality with this disease. Remember the poor Aswinpras06 with his very serious (lethal?) pulmonary problems?)
https://en.wikipedia.org/wiki/Scleroderma

By the way, very interesting article on ME/CFS and auto-immunity.

I'll try to write a personal thread, I already did it in French for my doctor so I'll just have to translate it.

[Hopeoneday]

Pois inflamatory (vagus nerve) cascade could and i feel that make this
condition much worse , my digestion indigestion etc... :

Cervical spine instability as a cause of your digestive disorders
https://www.caringmedical.com/prolotherapy-news/gerd-neck/

[Iwillbeatthis]

I think it would be a good idea for more people in here to get tested for phospholipid antibodies especially if they are having speech issues and livedo reticularis rash on their palms and feet. So then you can see if you have antiphospholipid syndrome or not. - My antibodies were elevated

[Muon]

I think it would be a good idea for more people in here to get tested for phospholipid antibodies especially if they are having speech issues and livedo reticularis rash on their palms and feet. So then you can see if you have antiphospholipid syndrome or not. - My antibodies were elevated

What racial group do you belong to and have you been tested for these genetic markers? https://en.wikipedia.org/wiki/Antiphospholipid_syndrome#Risk_factors

[Iwillbeatthis]

Lol I misread that a first thinking you said "radical group". I'm 100% white/caucasian , I haven't been tested for those genetic markers. Only thing I'm worried about is that the epa supplementation is going to lower the phospholipid antibodies back to nomral on my second test 3 months after, which is required for APS diagnosis. However I was supposed have this test nearly four years ago but didn't and even after nearly four years they were elevated still so I think thats enough proof....

[Iwillbeatthis]

I've just found out now that vitamin k makes APS worse and vitamin d with k2 spray gives me brain fog speech issues, and broccoli, kale  don't make me feel good either. Now I see yoghurt is also high in vitamin k this also makes me feel bad but I originally thought that was to do with the histamine.

[Muon]

I wonder if and in what way mast cells are able to induce antiphospholipid syndrome. You could look that up in literature.

[Iwillbeatthis]

"A 100-person 2015 study found APS antibodies in 7% of POTS patients while Schofield’s 38-person 2018 study found that 76% of participants in a retrospective IVIG trial in autoimmune dysautonomia (many of whom had POTS) had APS antibodies."

Muon I think you should test for APS if you can

[Muon]

Any links?

[Iwillbeatthis]

https://www.healthrising.org/blog/2018/08/15/sticky-blood-antiphospholipid-syndrome-pots-chronic-fatigue-syndrome-and-fibromyalgia/ saw it here