Gather and Post Here Your Medical Tests Results - Discussion Thread

[Nas]

I think I'm fucked for the rest of my life. Scientific progress is too slow. I'm 33 years old now, maybe we will have a cure when I hit 50 or 60 and that's optimistic. POIS has been discovered around 2001 and there hasn't been found a single biomarker yet (there hasn't been much research done though).

I agree. But even if so we shouldn't stop our independent investigation, we're fucked anyways so we might as well try our luck and maybe we'll hit the lottery with an expected finding or cure.

[Nas]

I wonder if someone treated his POIS by reducing prolactin levels?

[fernab]

No in my case. Normal levels of prolactin for men: 2-18 ng/mL (this limits are found on Wikipedia). On my test the normal range is 2.6-13.2 for men. According to this later my prolactine level is just a bit HIGH.

High levels of prolactin in men can cause impotence. And this hormone may afect the functions of the prostate, seminal vesicles and testicles. And is also responsable of the drowsiness after orgasm in men.

[fernab]

When my POIS began to be stronger, my lgE reached values of up to almost 700!

But since I am in abstinence. Not sure if this is the reason. My last value for lgE, came under the upper limit.

[fernab]

I think I never tested my prolactin level. But for progesterone and testosterone, yes... Will search for them and post them on the results thread...I changed this to this thread sorry.

[fernab]

I recently posted my hormones test results. Prolactine included. All in normal values except for progesterone, that was LOW. And maybe just a little high prolactine level. 13.7 ng/ml is above 13.2 marked as top on my test. But in other sources even 18 is accepted as normal. This makes me doubt.

Could be a LOW level of progesterone be linked to POIS?? And just a little high prolactine level?

[nanna1]

Hi fernab, have you looked into natural killer (NK) cells?

Hi Nanna1,
....This inmunologist also did me a test to get a detailed study of my lymphocyte population including all the Natural Killers. Can give you more detail of this test if you want....

Hi fernab,

Yes, I would be very grateful if you were willing to share your lymphocyte population info! No pressure though since medical test are personal information even when hiding the identity. Also, you may be interested in this:
Progesterone deficiency, "Benign coital headache relieved by partner's pregnancies with implications for future treatment" (Selwyn Dexter, 2009)

Thanks fernab!

[Nas]

No in my case. Normal levels of prolactin for men: 2-18 ng/mL (this limits are found on Wikipedia). On my test the normal range is 2.6-13.2 for men. According to this later my prolactine level is just a bit HIGH.

High levels of prolactin in men can cause impotence. And this hormone may afect the functions of the prostate, seminal vesicles and testicles. And is also responsable of the drowsiness after orgasm in men.

Fernab, I wonder if lowering prolactin would be any help at all in POIS? High prolactin is also associated with low dopamine.

[Nas]

I recently posted my hormones test results. Prolactine included. All in normal values except for progesterone, that was LOW. And maybe just a little high prolactine level. 13.7 ng/ml is above 13.2 marked as top on my test. But in other sources even 18 is accepted as normal. This makes me doubt.

Could be a LOW level of progesterone be linked to POIS?? And just a little high prolactine level?

You should get that progesterone on normal levels and see if that helps you at all.

[Muon]

How many poisers have been tested for 17-alpha-OH-progesterone?

[fernab]

Hi Muon,

My hydroxyprogesterone 17-alpha was:

1.49 ng/mL  (Normal range: 0.63 - 2.15)

what is this particular hormone? Why do you ask about it??

[fernab]

Hi fernab,

Yes, I would be very grateful if you were willing to share your lymphocyte population info! No pressure though since medical test are personal information even when hiding the identity. Also, you may be interested in this:
Progesterone deficiency, "Benign coital headache relieved by partner's pregnancies with implications for future treatment" (Selwyn Dexter, 2009)

Thanks fernab!

Hi nanna1,
Thank you for your information and for sharing this link. I will keep it in mind.

I already have posted my Natural Killer test results in the following link (post #53 of resulta thread).

https://poiscenter.com/forums/index.php?topic=2684.45

[fernab]

Hi all,

I have already been given the result of the genetic analysis last March 8 (For MCAS Diagnosis):

The result was negative. The hematologist who gave me the result, explained me that this means that I don't have a Conventional Mastocytosis. But he told me that it could be an MCAS.

So immediately after, I went to see the doctor who is taking the my MCAS case.

He has asked me to do a 24-hour urine and blood tests to get the tryptase level and other biomarkers.

Will give them the urine and will extract blood sample next march 28th.

Will continue updating...

[certainlypois2]

Hi all,

I have already been given the result of the genetic analysis last March 8 (For MCAS Diagnosis):

The result was negative. The hematologist who gave me the result, explained me that this means that I don't have a Conventional Mastocytosis. But he told me that it could be an MCAS.

So immediately after, I went to see the doctor who is taking the my MCAS case.

He has asked me to do a 24-hour urine and blood tests to get the tryptase level and other biomarkers.

Will give them the urine and will extract blood sample next march 28th.

Will continue updating...

Nice

[demografx]

I agree with CP2

[nanna1]

I already have posted my Natural Killer test results in the following link (post #53 of resulta thread).

https://poiscenter.com/forums/index.php?topic=2684.45

Thanks fernab!

[Muon]

Hi Muon,

My hydroxyprogesterone 17-alpha was:

1.49 ng/mL  (Normal range: 0.63 - 2.15)

what is this particular hormone? Why do you ask about it??

It metabolizes into cortisol. Elevated levels could mean high cortisol levels.

He has asked me to do a 24-hour urine and blood tests to get the tryptase level and other biomarkers.

Is 11-b-PGF2a included?

[fernab]

Hi Muon,

The real specialty of the Dr who is taking care of my possible case of MCAS is pediatric allergologist.
This Dr is a good colleague of another Dr who was a very good expert a few years ago on all the Mastocitosis desorders. In fact, there was a time when they were working together and that is why this pediatric allergologist was trained in this type of Disorders.

I reached to talk by phone with the Dr who was a good expert on these desorders (now he's retired since a few years ago). And he recommended me to visit his colleague for now (the pediatric allergologist).

This experienced Dr with whom I spoke by phone worked closely and collaboratively with Dr. Mariana Castells of Harvard Medical School.

This pediatric allergologist has the ability to refer me to another hospital not too far away in which they do devote themselves as part of their work to mast cell disorders. In this other hospital they are real experts on Mast Cells Disorders.

So, for now I must follow his instructions. I think he wants to try everything he can. Before redirecting me directly to the other hospital.

When the time comes I will ask him to refer me to the other hospital.
I think that in the hospital where I am going for now (to visit this pediatric allergologist), they do not have the proper techniques to detect the appropriate biomarkers for an MCAS. For instance, N-metyl-Histamine. Or the one you are asking me (11-b-PGF2a). Detected in a 24h urine test.

For the moment he is trying to find any relevant data with my levels of triptase at different moments (in blood). And other biomarkers such as catecholamines, metanephrines and 5hiaa on 24h urine tests.

Will continue updating...

[Muon]

24h urine catecholamines and 5HIAA are interesting parameters as well. If all of them are negative he probably won't refer you to the mast cell specialised hospital but we will see. Have you told him about POIS yet? If not will you mention it eventually? Thanks for the updates.

[fernab]

Yes you are right Muon.

Maybe It depends on the results he will refer me or not.

At first I don't wanted to talk him about POIS. Just to let him focus on MCAS. He read a report of my GP comparing POIS to MCAS. But he obviously did not showed to know anything about POIS. Since he thought the report was trying to compare MCAS with POTS instead of POIS.

If It finally turns out that he don't want to refer me to the other hospital. I will tell him about POIS and the possible relathionship with MCAS as a final resource....

We will see how this evolves....

Will continue updating.