Author Topic: Summary of Treatments  (Read 69105 times)

LAPOISSE

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Re: Summary of Treatments
« Reply #80 on: June 02, 2013, 03:57:20 AM »
What I would like to understand is why Nsaid's and complements with potent anti inflammatory properties help.I'm sure it would be a good start for understanding POIS.

Daveman

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Re: Summary of Treatments
« Reply #81 on: June 02, 2013, 06:18:52 AM »
What ever POIS is, it is inflammatory!

For me I feel as though this inflammation affects joints AND parts of the nervous system.

So in that sense, NSAIDs would help to reduce the inflammation. And for the same reason, only works for the 4 to 6 hrs. that
the medicine is in your system.



WITHOUT RESEARCH THERE WILL BE NO CURE!
Sessions 5 to 9 days, mostly Flu-like, joints, digestion problems, light cognitive.
Niacin has changed my lif though, now 1 day MAX.
Somewhere in this interaction with Niacin is the answer!

demografx

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Re: Summary of Treatments
« Reply #82 on: June 02, 2013, 11:38:05 PM »
What ever POIS is, it is inflammatory!

Prolly explains some of my TRT success!

Anyone know if Levitra (I also use vs. POIS) affects inflammatory issues?
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Egordon

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Re: Summary of Treatments
« Reply #83 on: June 02, 2013, 11:47:11 PM »

Thanks for the warnings. Please be careful.

NSAIDs do help, but as you said, just for the duration of the medication, 4 to 6 hrs.

I took a strong albeit non-prescription NSAID, which helped the POIS, but effected my stomach terribly.

NSAIDs are good occasional and temporary relief. Taken regularly they do harm.

[/quote]

Daveman,

Thanks for bringing a bit more attention to NSAIDs, a powerful and potentially overlooked treatment.

I'd just like to add my two cents to this, as my experience with them has been very different. I've been taking (prescription) NSAIDs to treat my POIS for just over a year now, and although the dosage i've had to take to achieve results has varied depending upon how far along i was in my desensitization, they have always provided me with complete relief from my symptoms. And that relief has always lasted until my next orgasm (or next bout of arousal).

I'd suggest that anyone that's only obtained temporary relief should try using prescription NSAIDS and try having those drugs administered under the care of a doctor, as it's incredibly difficult to tell what drug/dose will provide effective treatment of a disorder without medical expertise.

When I first started desens, I agree, I needed a superdose of NSAIDs in order to make my symptoms go away. My immune system's response to orgams was SUPER excessive and, as a result, smaller doses of NSAIDs simply weren't enough to provide more than fleeting relief. My doctor, however, was able to identify a safe and effective drug that would allow me to take such a dose without suffering longterm negative effects. Under his instruction I began to take 200mg of Celebrex twice in the 18 hours after orgasm, and found that I was completely symptom-free after I did so. (And I still take Celebrex to eliminate my symptoms, but my dose is greatly reduced.)

I'd strongly recommend that we not dismiss the effectiveness of NSAIDs and instead encourage people to stay away from the over-the-counter drugs (which some have suggested are less potent and, thereby, more dangerous) and test the effectiveness of real and effective NSAIDS as prescribed by a doctor. Lots of potential treatments might seem ineffective if being administered by (otherwise incredibly intelligent) amateurs; there's no adequate substitute for medical expertise.
POIS since I was about 15. 1.75 years of desens and I'm now about 80% POIS free. Still working through best practices for maintaining my immunity and administering my injections with my doctor. Email me if you have tips or questions!

sameer7777

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Re: Summary of Treatments
« Reply #84 on: June 06, 2013, 04:43:36 PM »
I was expecting it also to the anti inflamation thread i have started celebrex !!!!! Today so help me guys !!
pls don't expose me.
AFTER SEX/MASTERBATION (FLU LIKE SYMPTOMS)
1)BACK NECK PAIN GOES TO DOWN SPINE
2)NERVES LIKE SQUEEZED OUT
3)MORNING FEET NERVES PAIN
4)NASAL INFLAMMATION
5)BRAIN FOG
6)DEPRESSION
7)HIGH SUGAR LEVELS (TRIED INSULIN FOR 1 YEAR MAKE ME MORE SICK

Mr Raba

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Re: Summary of Treatments
« Reply #85 on: February 12, 2014, 09:28:58 PM »
Jon

I am helped with imuplus. Start with one pack a day. Can go to  2 in divided dosages after a week.
One  half to full pack after o.  Helps with the Neurotransmitters.

Stops the dull, dead feeling. Concentration increases. Can take too much. You will feel it if that happens. Like too much allergies feeling.
Been using it since. 2000.  Best price I found at Vitaglo.com. No relation.
I also have. CFS.

Take on empty stomach. Do not eat for 30 min after.
I eat after 15 min because I get hungry for protein. So I cheat.  :)
Simultaneous onset of CFS and POIS since Feb 1993. Married since 1989.

Helped by Immunocal (I explained how to take in previous posts).  Some relief on day one and day two.  It affects neurotransmitters.

Colm

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Re: Summary of Treatments
« Reply #86 on: June 29, 2014, 10:32:50 AM »
Trying Gluten, Wheat & Dairy Free.

Just updating information here on a recent trial of food and nutrition over 3 months.

As I mentioned in a post back some weeks, a blood test showed that I had intolerances with Milk to a big level and with wheat also.

So, for 12 weeks, I avoided Milk, wheat and gluten. I did not eat any bad foods in this time, cut out most white sugars, but had a nutritionist advising on foods to eat, and good quality Vitamin supplements to take.

I also avoided O for nearly 4 months during this, as a good trial. I was also exercising - cycling and walking every day.  My health had felt a good deal better or at least I felt more healthy on this good diet.

Had my first O yesterday and sadly I report, from straight after the O, all the usual symptoms came straight back, sinus flaring, skin dermatitis, brain fog, depression, social phobia etc etc.

I will use Niacin next time...

Am very down and disappointed after putting so much effort into the nutrition approach. Three days to feel human again !!!

For my POIS, I can say definitely that Gluten or diet is NOT a factor. It may be helpful for your POIS or may be an absorbtion of nutrients may be a problem for some.
« Last Edit: June 29, 2014, 10:59:39 AM by Colm »

sameer7777

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Re: Summary of Treatments
« Reply #87 on: June 29, 2014, 10:38:22 AM »
Which niacin you will use I will do same pls contact
pls don't expose me.
AFTER SEX/MASTERBATION (FLU LIKE SYMPTOMS)
1)BACK NECK PAIN GOES TO DOWN SPINE
2)NERVES LIKE SQUEEZED OUT
3)MORNING FEET NERVES PAIN
4)NASAL INFLAMMATION
5)BRAIN FOG
6)DEPRESSION
7)HIGH SUGAR LEVELS (TRIED INSULIN FOR 1 YEAR MAKE ME MORE SICK

moxit

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Re: Summary of Treatments
« Reply #88 on: August 24, 2014, 08:49:26 AM »
i am suffering from POIS and ADHD. i m just 18yrs . what should i do ?
 plz help me. my parents dont know about it ? what should i do ?

Myers6609

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Re: Summary of Treatments
« Reply #89 on: August 24, 2014, 09:47:25 AM »
Hi Moxit,

I would first tell your parents. As awkward as it may seem, I find that it's much more difficult to deal with POIS when you feel you can't talk to anyone about it.

I also recommend that you completely avoid orgasm for awhile. For me, the major symptoms are gone after the first two weeks and thereafter I can start rebuilding good habits. You can and will get used to it:  it becomes much easier to manage your sex drive, and by the one-month mark life you'll find that you're doing much better.

 Additionally, I have been dealing with ADHD all my life, and I find that abstaining helps with that tremendously.

For what it's worth, abstaining from orgasm has helped me develop my self-discipline. I've also learned that the meaning of life is NOT the big O: when you decide that getting off isn't important, you discover everything else that life has to offer.

Like anyone else, I hope that there will one day be a cure, but until there is know that dealing with POIS can be a character building opportunity. If you can conquer POIS, then you can conquer anything. :)

Pianist

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Re: Summary of Treatments
« Reply #90 on: August 24, 2014, 12:42:46 PM »
Dear friends, please write in the POIS symptoms of blurred vision

sameer7777

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Re: Summary of Treatments
« Reply #91 on: February 10, 2015, 09:25:32 AM »
Yes I get blurred vision
Pls chat
pls don't expose me.
AFTER SEX/MASTERBATION (FLU LIKE SYMPTOMS)
1)BACK NECK PAIN GOES TO DOWN SPINE
2)NERVES LIKE SQUEEZED OUT
3)MORNING FEET NERVES PAIN
4)NASAL INFLAMMATION
5)BRAIN FOG
6)DEPRESSION
7)HIGH SUGAR LEVELS (TRIED INSULIN FOR 1 YEAR MAKE ME MORE SICK

Going less Crazy

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Re: Summary of Treatments
« Reply #92 on: February 12, 2016, 11:38:15 PM »
Not sure if this was brought up already, if so than disregard this.

I read the niacin flush was initially thought to be histamine, however it's been determined that histamine wasn't involved and that prostaglandins were to blame?  Remember reading that i think under niacin side effects in wiki.

It actually said pgd2 was to blame?

Wonder if we take anti pgd2 drugs if POIS would get better?
« Last Edit: February 12, 2016, 11:44:16 PM by Going less Crazy »
My POIS managed with Diet (@ diet that 100% manages my pois)Believe my POIS stems from inflammation in the gut. O = neuro POIS from inflammation from the gut

Current supps: 2.5 mg zyrtec nightly for food allergies, microdose astragalus daily, microdose cranberry vit c pill daily. Ibuprofen rarely.

radditz

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Re: Summary of Treatments
« Reply #93 on: March 28, 2016, 06:18:38 AM »
Hello,

i just want to report, that i started to take vitamin d, vitamin b12 and a vitamin b komplex. all three as separate capsule.

the day i started to take the vitamin b12 and vitamin b komplex pills i had an orgasm and felt refreshed and normal after it, no signs of POIS. only a little pain in the back, which i always get after an errection (with and without orgasm).
20 minutes later i was ready for another round, which is highly unusual for me, because of the pois syndroms.

yesterday, i had an orgasm again without any pois syndroms and without losing the sex drive after it.

iam taking the supplements for 4 days now. i take them in the morning together with breakfast.

i will continue to take them and see what happenes. very impressive results so far.

update (2 weeks later): unfortunately my last 2 orgasms were followed by pois syndroms, even with the above mentioned supplements. not as heavy as without, but they were still there. i stopped sexual activity again. not sure what caused the temporary cure that i initially described in this post.

« Last Edit: April 13, 2016, 03:13:00 PM by radditz »

vaarmen

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Re: Summary of Treatments
« Reply #94 on: March 29, 2016, 04:42:38 AM »
Does taking Niacin when symptomatic have any benefits? I mean for example if one forgets to take it before orgasm and then takes it the next day?

Does taking Niacin daily, when not ejaculating, have any benefits?

Thanks!

Michael218

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Re: Summary of Treatments
« Reply #95 on: June 06, 2017, 03:09:04 AM »
Radditz, if you were totally POIS free initially, I would totally be all over that treatment... Perhaps something in your diet the neutralised the effects when it didn't work... or perhaps you built up an immunity to it - have you tried only taking the supplements on the day you orgasm - not every day?

I think I read through the threads somewhere that people had similar issues with the Vitamin B3 pills, they were taking them every day and it became less effective and then they stopped completely for a week, and started taking them again but only 1-2 hours before 'o', not daily.

marrtintintin

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Re: Summary of Treatments
« Reply #96 on: February 05, 2020, 04:36:10 PM »
Today, I topped my toast with margarine and garlic minces, the garlic cloves work really well for me, I mean whole day long, especially on my stomach.
Weird enough, when I feel good in my abdomen, I feel better in my brain, and sleep better at night. They seems all interrelated. Again, the symptoms do not disappear completely.


Hi man, I am currently very interested in the relation bt pois and the gut. Did you find any other treatments for the gut?
So happy to be part of this community! Just a year ago, I was alone, nobody understood my “unreal” symptoms.
Digestion problems anyone? (I.e. using toilet every 3+ days) My POIS began as a teenager together with digest
POIS (13 or 7): photophobia, bloating, heavy brain fog, memory loss, muco

millstone

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Re: Summary of Treatments
« Reply #97 on: April 13, 2020, 02:34:47 PM »
Radditz, if you were totally POIS free initially, I would totally be all over that treatment... Perhaps something in your diet the neutralised the effects when it didn't work... or perhaps you built up an immunity to it - have you tried only taking the supplements on the day you orgasm - not every day?

I think I read through the threads somewhere that people had similar issues with the Vitamin B3 pills, they were taking them every day and it became less effective and then they stopped completely for a week, and started taking them again but only 1-2 hours before 'o', not daily.

There's someone on the Reddit Forum who swears by methylated Vitamin B complex. He recommends  Jarrow B-Right:

https://www.jarrow.com/product/57/B-Right

Which by the looks of it, has a fair amount of Vitamin B3 (Niacin).

So it may either be 1) truly helpful in hormonal conversion to maintain his hormone balance after orgasm ("cure" not "treatment"), or 2) contain enough niacin to reduce the inflammatory response ("treatment" not "cure"). Since he takes it just before orgasm as a pre-pack, my thought is it's just treating symptoms.

drop247

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Re: Summary of Treatments
« Reply #98 on: April 15, 2020, 05:34:44 PM »
Be careful with that person. If you Google his username I think you'll find he has "cured" his POIS about 5 times already.

Ricardo Brasil

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Re: Summary of Treatments
« Reply #99 on: June 11, 2020, 08:32:23 PM »

Garlic

Some forum members have been been having good success with Garlic.  They chew gloves of garlic before or after orgasm. They feel an improvement in their symptoms immediately after chewing the garlic. Here is a quote from a pois sufferer who used garlic, "I began to take garlic cloves and the result was immediate... specially with the brain fog *AFTER* the orgasm. If you take them *BEFORE* you have less (-70,80%) POIS symptoms after O, at least in my case. And then, was Fenugreek´s time. Seriously, it´s amazing". Since garlic has such strong smell and taste some have tried to work around those properties by  trying odourless garlic forms with no good results.When trying garlic you want to go with supplements that provides the garlic in its full form.

Members:
Observer, Vincent Marcus, Horizon

Dosage; Cloves of Garlic, 5000mg of Holland and barrett's garlic oil capsule.



Hello! Garlic also eliminates about 70% of the brain fog that I experience during the POIS period, which is my worst symptom. (add my name here please). I swallow 1 chopped garlic clove with water, instantly feel the improvement!