Author Topic: Free Flow Discussion about POIS  (Read 578019 times)

LAPOISSE

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Re: This may seem like a familiar place.
« Reply #795 on: March 26, 2013, 05:30:09 AM »
There is 640 members here. The community is growing up. I think we need to keep communicate about POIS. The more we are, the most we have chance to get attention on our condition.

Daveman

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Re: This may seem like a familiar place.
« Reply #796 on: March 26, 2013, 06:58:35 AM »
There is 640 members here. The community is growing up. I think we need to keep communicate about POIS. The more we are, the most we have chance to get attention on our condition.

Especially as the research activity starts to develop.

I'm sure that our forum would have to be one of the principal places researchers go to find information that would be difficult to get other places. Of course it is not controlled information, but it is very good referential information.

And at the same time, new members just finding out about POIS for the first time, may find benefit and can start connecting to a real direction.



WITHOUT RESEARCH THERE WILL BE NO CURE!
Sessions 5 to 9 days, mostly Flu-like, joints, digestion problems, light cognitive.
Niacin has changed my lif though, now 1 day MAX.
Somewhere in this interaction with Niacin is the answer!

Daveman

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Re: This may seem like a familiar place.
« Reply #797 on: March 26, 2013, 07:03:06 AM »
Hello! I would like to know where I can go to donate money; and also if someone can tell me how come Post Orgasmic Illness Sydnrome is not in the rare diseases database in the rarediseases.org website? Thank you.



Here is the link for donating!

http://poiscenter.com/forums/index.php?topic=173.msg1750#msg1750

And we are on the NORD Database I'll have to find you the link....
WITHOUT RESEARCH THERE WILL BE NO CURE!
Sessions 5 to 9 days, mostly Flu-like, joints, digestion problems, light cognitive.
Niacin has changed my lif though, now 1 day MAX.
Somewhere in this interaction with Niacin is the answer!

demografx

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Re: This may seem like a familiar place.
« Reply #798 on: March 27, 2013, 01:09:16 AM »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #799 on: March 28, 2013, 10:30:27 PM »

Attention iPhone users:

To get your RSS feed of POIScenter.com on your iphone, copy and paste this link into Safari - your Web browser:

Or just click now and bookmark it.

http://reader.mac.com/mobile/v1/http%3A%2F%2Fpoiscenter.com%2Fforums%2F%3Faction=.xml;type=atom
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #800 on: April 02, 2013, 01:21:21 AM »
Hello, Everyone!

First, my apologies to you for not being able to provide an update about your research grant until today. NORD has been going through its annual financial audit for the past two weeks, so it's been very difficult to sort out all of our research grant funds in a more timely manner.  

But we did it -- and you men have done splendidly!!! You have officially surpassed the minimum amount to offer for a grant!  

In total, you've raised $34,850.  NORD's administrative fee is $3,500. This leaves you with a $31,350 grant award to offer.   This translates to 90 cents of every dollar going directly to your research.

Your POIS grant will be posted online some time next week (the week of April 1st).  I'll provide the link to it (to the "RFP") in [the NORD Research Grant thread/section of your forum ASAP.]

You really, truly did a wonderful job.

Congratulations!!!  

Stef




« Last Edit: April 02, 2013, 01:34:43 AM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

sameer7777

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  • pls send what ever working pls thankyou
Re: This may seem like a familiar place.
« Reply #801 on: April 03, 2013, 11:07:21 AM »
Thankyou stef !!! And demo !!!
pls don't expose me.
AFTER SEX/MASTERBATION (FLU LIKE SYMPTOMS)
1)BACK NECK PAIN GOES TO DOWN SPINE
2)NERVES LIKE SQUEEZED OUT
3)MORNING FEET NERVES PAIN
4)NASAL INFLAMMATION
5)BRAIN FOG
6)DEPRESSION
7)HIGH SUGAR LEVELS (TRIED INSULIN FOR 1 YEAR MAKE ME MORE SICK

demografx

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Re: This may seem like a familiar place.
« Reply #802 on: April 04, 2013, 01:24:30 AM »
Thank you stef !!! And demo !!!

And Daveman !!!

And everyone else who supported the NORD notion for POIS !!!
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #803 on: April 04, 2013, 01:28:49 AM »
Attention all POISers: POIS GRANT NEWS!
Please visit Stef's new thread,
"POIS RFP, 2013"
http://poiscenter.com/forums/index.php?topic=1012.0
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #804 on: April 10, 2013, 11:46:09 AM »
Stef ("nordnurse") informs us "Thousands -- literally -- receive "NORD" google alerts. :-)  "

TODAY!


---------- Forwarded message ----------
From: Google Alerts <googlealerts-noreply@google.com>
Date: Wed, Apr 10, 2013 at 12:37 AM
Subject: Google Alert - post orgasmic illness syndrome
To: demografx


Web   1 new result for post orgasmic illness syndrome
 
POIS - National Organization for Rare Disorders
Announces. Research Seed Grant Funding for one, one-year grant ($31,000) for. Post-Orgasmic Illness Syndrome (POIS). Submission Deadline: May15, 2013 ...
www.rarediseases.org/docs/research-grants/POIS.doc
« Last Edit: April 10, 2013, 11:58:02 AM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #805 on: April 13, 2013, 05:43:02 PM »


I would assume doctors know how to objectively test neurochemical imbalances in the human brain by now.


Fascinating new developments in analyzing the human brain. Here's one in today's news:
http://touch.latimes.com/#section/-1/article/p2p-75334338/
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

nenexx

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Re: This may seem like a familiar place.
« Reply #806 on: April 16, 2013, 07:57:27 AM »
I have almost every symptom of this.. I just have one question: Do you guys freeze a lot more after orgasm? Cause that's one of my symptoms, esp in the morning I freeze as hell.

demografx

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Re: This may seem like a familiar place.
« Reply #807 on: April 16, 2013, 12:58:54 PM »
RFP NEWS :)
 
--------------------------------------------------------------------------------------------


---------- Forwarded message ----------
From:  Health Consultantcy
Date: Tue, Apr 16, 2013 at 10:37 AM
Subject: Fw: Today's RFPs from Philanthropy News Digest
To: Stefanie Putkowski


Stef,
 
First, glad that you are safe and sound.
 
Just received this update from the Foundation Center about the POIS Restricted Research Grant; what a good avenue of public awareness!  Hope that you receive many responses to this RFP.
 
Best wishes,
 
Consultant
 

----- Forwarded Message -----
From: PND RFP Alerts <PND_RFP@foundationcenter.org>
To:  Consultant
Sent: Tuesday, April 16, 2013 6:33 AM
Subject: Today's RFPs from Philanthropy News Digest
 
April 16, 2013

The following requests for proposals have been posted to Philanthropy News Digest:


National Organization for Rare Disorders Invites Proposals for Post-Orgasmic Illness Research Projects
A grant of of up to $31,000 will be awarded to initiate or advance research and understanding of POIS, the results of which could be used to obtain funding from other sources....
Deadline: May 15, 2013
Posted: April 16, 2013


You received this e-mail because you subscribed to PND RFP Alerts with the username "jfrc914." To change the subjects of your alerts or to unsubscribe, click here.

Foundation Center • 79 Fifth Avenue, New York, NY 10003 • (212) 620-4230
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #808 on: April 16, 2013, 01:10:41 PM »

I have almost every symptom of this.. I just have one question: Do you guys freeze a lot more after orgasm? Cause that's one of my symptoms, esp in the morning I freeze as hell.


Welcome, nenexx! Please visit our Welcome Page, many resources for you:
http://poiscenter.com/forums/index.php?topic=1.msg1#msg1
« Last Edit: April 16, 2013, 01:27:24 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

nenexx

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Re: This may seem like a familiar place.
« Reply #809 on: April 17, 2013, 10:30:15 AM »
Have read almost the whole thread now. Is there anything I can do to help except completing the survey to that spannish doctor?

EDIT: One more question, is it any of you that started the facebook page about this? I saw this on there:
Post Orgasmic Illness Syndrome (POIS)
den 31 mars
After some research there is a strong possiblity that Low Igm and Igg levels can be the key to POIS. Please go to an ifectious disease doc and ask for a full immune panel and get back to us, even if the doc says your numbers are "normal" Share with us your numbers, do not wait.
« Last Edit: April 19, 2013, 01:21:03 PM by nenexx »