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Author Topic: Free Flow Discussion about POIS  (Read 1013415 times)

joelawerence

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Re: This may seem like a familiar place.
« Reply #1940 on: October 30, 2017, 05:01:34 AM »
Guys, what is the latest on the Rutgers research? Are we going to get anything out of it or has the research been abandoned?  ???
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33 years old, POIS for around 12 years with increasing severity.
Major symptoms - Severe fatigue, back pain, unrefreshed even after 9+ hours sleep, pain behind eyes, very dry face, bald head with inflamed scalp, digestion issues and constipation. Very low testosterone and high glucose in blood tests

Quantum

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Re: This may seem like a familiar place.
« Reply #1941 on: October 30, 2017, 08:59:48 PM »
Quote from: joelawerence on October 30, 2017, 05:01:34 AM
Guys, what is the latest on the Rutgers research? Are we going to get anything out of it or has the research been abandoned?  ???


Hi joelawerence,

Unfortunately, there will be no update about the Rutgers Study.  It has been aborted, and, very predictably considering how scientific research works, no data or info will be given by Rutgers about what have been done in the few months it has been running.   Even if we could have been handed the survey results, especially the written answers, it could have been impossible to make them available, because they were given on an anonymous basis, never to be published anywhere. It would have been completely against ethics to publish them, and Rutgers would not have given them anyway, knowing how important confidentiality is, and aware that they do not want any other legal problems related to this canceled study.

What is new is the new RFP on NORD website, so our 31,000$ grant will be awarded to another team, as soon as possible, so another POIS study will start.
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demografx

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Re: This may seem like a familiar place.
« Reply #1942 on: October 31, 2017, 08:35:16 AM »
Thank you, Quantum!

And joelawerence!

Best,
Demo


« Last Edit: October 31, 2017, 08:40:06 AM by demografx »
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

joelawerence

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Re: This may seem like a familiar place.
« Reply #1943 on: October 31, 2017, 12:16:33 PM »
Quote from: Quantum on October 30, 2017, 08:59:48 PM
Quote from: joelawerence on October 30, 2017, 05:01:34 AM
Guys, what is the latest on the Rutgers research? Are we going to get anything out of it or has the research been abandoned?  ???


Hi joelawerence,

Unfortunately, there will be no update about the Rutgers Study.  It has been aborted, and, very predictably considering how scientific research works, no data or info will be given by Rutgers about what have been done in the few months it has been running.   Even if we could have been handed the survey results, especially the written answers, it could have been impossible to make them available, because they were given on an anonymous basis, never to be published anywhere. It would have been completely against ethics to publish them, and Rutgers would not have given them anyway, knowing how important confidentiality is, and aware that they do not want any other legal problems related to this canceled study.

What is new is the new RFP on NORD website, so our 31,000$ grant will be awarded to another team, as soon as possible, so another POIS study will start.

Thanks Quantam for the update. Such a shame that it got cancelled.

Hope that someone new gets interested in doing this research.
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33 years old, POIS for around 12 years with increasing severity.
Major symptoms - Severe fatigue, back pain, unrefreshed even after 9+ hours sleep, pain behind eyes, very dry face, bald head with inflamed scalp, digestion issues and constipation. Very low testosterone and high glucose in blood tests

demografx

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Re: This may seem like a familiar place.
« Reply #1944 on: November 22, 2017, 02:55:50 PM »
Happy Thanksgiving everyone!
Demo
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #1945 on: November 24, 2017, 12:33:38 AM »

GOOGLE POIS ALERT:
Postorgasmic Illness Syndrome
As-it-happens update November 20, 2017
NEWS   
7 Side Effects Of Having Sex You Have Probably Experienced
360Nobs.com


https://www.360nobs.com/2017/11/7-side-effects-sex-probably-experienced/


“Orgasmolepsy”??? :)
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #1946 on: November 26, 2017, 03:00:27 PM »
Google POIS Alert November 26, 2017
From Forbes Magazine

“Feeling Ill After Ejaculating? You Might Have "Post-Orgasmic Illness Syndrome"

https://www.forbes.com/sites/zhanavrangalova/2017/11/26/feeling-ill-after-ejaculating-you-might-have-post-orgasmic-illness-syndrome/#5ea9d779111c
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #1947 on: November 27, 2017, 01:54:24 PM »
I wrote to the author of the above article and invited her to visit our forum.
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #1948 on: November 27, 2017, 09:57:43 PM »
Google POIS Alert
Postorgasmic Illness Syndrome
As-it-happens update November 28, 2017
NEWS   
This Bizarre Post-Orgasm Illness Is Baffling Scientists
IFLScience
Post-orgasmic illness syndrome (POIS) is a mostly male-based affliction that is incredibly rare. Immediately or soon after climaxing, it triggers a range ...

http://www.iflscience.com/health-and-medicine/this-extremely-rare-postorgasm-flulike-illness-is-baffling-scientists/
« Last Edit: November 27, 2017, 10:02:03 PM by demografx »
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #1949 on: November 28, 2017, 10:59:36 AM »
Google POIS Alert
Post Orgasmic Illness Syndrome POIS
As-it-happens update ? November 28, 2017
This Mysterious Post-Orgasm Illness Could Be Caused by Semen Allergy
ScienceAlert
The condition – called Post-Orgasmic Illness Syndrome (POIS) – was only first reported in 2002, but since then some 50 cases have been ...

https://www.sciencealert.com/rare-post-orgasm-illness-is-real-and-warrants-further-research-study-finds-pois-semen
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #1950 on: November 28, 2017, 11:04:11 AM »
3 in a row? I never saw this much POIS Google Alert activity, I wonder why so many of these articles are coming out just now?
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Observer

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Re: This may seem like a familiar place.
« Reply #1951 on: November 28, 2017, 12:45:11 PM »
Quote from: demografx on November 28, 2017, 11:04:11 AM
3 in a row? I never saw this much POIS Google Alert activity, I wonder why so many of these articles are coming out just now?

They are always quoting the "50 cases in the world" sentence, so I guess they are using the same sources (though they are not really exact, there are surely more than 50 cases in the world!)
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demografx

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Re: This may seem like a familiar place.
« Reply #1952 on: November 28, 2017, 04:39:33 PM »
Thanks, Observer, that makes perfect sense!!

Best wishes to you & yours!
Demo
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #1953 on: November 28, 2017, 05:14:24 PM »
Quote from: Observer on November 28, 2017, 12:45:11 PM
Quote from: demografx on November 28, 2017, 11:04:11 AM
3 in a row? I never saw this much POIS Google Alert activity, I wonder why so many of these articles are coming out just now?


They are always quoting the "50 cases in the world" sentence, so I guess they are using the same sources (though they are not really exact, there are surely more than 50 cases in the world!)


Yes, Observer, I’m sure there are...51 cases!!!

I don’t think b_jim will agree!


 ;D ;D


« Last Edit: November 28, 2017, 05:42:24 PM by demografx »
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Quantum

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Re: This may seem like a familiar place.
« Reply #1954 on: November 28, 2017, 11:17:23 PM »
Quote from: Observer on November 28, 2017, 12:45:11 PM
Quote from: demografx on November 28, 2017, 11:04:11 AM
3 in a row? I never saw this much POIS Google Alert activity, I wonder why so many of these articles are coming out just now?

They are always quoting the "50 cases in the world" sentence, so I guess they are using the same sources (though they are not really exact, there are surely more than 50 cases in the world!)

It is because those journalists do not know how to read scientific review articles.  In the recent review article on POIS published by the Departement of Urology of Tulane University ( http://www.smr.jsexmed.org/article/S2050-0521(17)30116-6/abstract ), which is at the source of this recent "POIS short-articles burst",  they clearly states that  " There are approximately 50 cases of POIS in the literature".  That means that there are 50 cases reported in the scientific literature ( most of them by Waldinger), and this does not mean at all that there are 50 cases in the world, only that 50 cases have been written about and reported, to date, by different doctors and researchers in different medical papers. 

Someone should post a message/comment after such false interpretations, to get the record straight, and state that we have over 500 members/cases on our forum alone, and that's only a fraction of the existing cases, and the real prevalence of this rare syndrome is not known yet because there is not enough research done about POIS.


There, I had to say that :)
« Last Edit: November 28, 2017, 11:23:10 PM by Quantum »
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b_jim

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Re: This may seem like a familiar place.
« Reply #1955 on: November 29, 2017, 02:22:51 AM »
Nice, you make a good job with "google alerts" :)
I imagine that an article in the famous Forbe magazine have a fantastic media power and it's a good thing for Pois communauty.

50 cases is a joke :)
I stopped my count at 450. I estimate 1000 to 1500 Pois-self declared in the world. Maybe much more.
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paradoxx

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Re: This may seem like a familiar place.
« Reply #1956 on: November 29, 2017, 08:58:11 AM »
Wow that Forbes article is really good, obviously not up to date with whats going on in this forum but still. Thanks for sharing demo:)
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demografx

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Re: This may seem like a familiar place.
« Reply #1957 on: November 29, 2017, 11:28:04 AM »
Thanks, paradoxx! And here’s another “biggie”!

Google POIS Alert
“Orgasms Can Cause Men to Contract Mysterious Flu-Like Symptoms That Scientists Can't Explain”
Newsweek
A rare condition called Post-Orgasmic Illness Syndrome causes men to develop flu-like symptoms after they ejaculate. POIS was first reported in 2002, ...
The syndrome post-orgasm, a handicap for all the world - The Stopru
Fever, uncontrolled ejaculation and memory lapses. Men are allergic to orgasm -

http://www.newsweek.com/mysterious-medical-condition-men-cold-allergy-symptoms-723880



« Last Edit: November 29, 2017, 06:43:17 PM by demografx »
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #1958 on: November 29, 2017, 11:31:15 AM »
Google POIS Alert
Postorgasmic Illness Syndrome
As-it-happens update November 29, 2017

This mysterious post-orgasm illness could be caused by semen allergy
Information-Analytic Agency NEWS.am (press release) (blog)
According to a new review of POIS by researchers at...

https://med.news.am/eng/news/16307/this-mysterious-post-orgasm-illness-could-be-caused-by-semen-allergy.html
« Last Edit: November 29, 2017, 07:29:30 PM by demografx »
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #1959 on: November 29, 2017, 11:33:06 AM »



Careful reading required by POISers when it comes to “allergy” origin!

Quantum can explain better than me.

:)




« Last Edit: November 29, 2017, 05:51:50 PM by demografx »
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business
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