I saw another doctor and he said this is absolutely *not* mast cell activation Syndrome [MCAS]
Thank you, Reve.
Reve, you've really shown courage and determination by trialling these treatments under medical supervision, that bone marrow biopsy must have been tough. Thanks for sharing your experiences with us
This could have potentially been the first successful practical demonstration that POIS is linked to MCAS, but your doctors are telling you that that isn't the case? That's too bad.
Do your doctors have any other ideas as to why your treatment may have helped/cured your POIS symptoms?