Has the problem been fixed? Could I know what is the biggest hurdle in setting up a link to this forum?
I think that Quantum's suggestion is quite good, but Defsync said there were some technical problems. I don't fully understand them as I have never edited a page on Wikipedia. Can Defsync or others explain a little bit? I really hope we can let readers of the "POIS" wikipage find this forum.
Besides, I would like to mention an idea not very relevant to this post. I see that there are currently only nine language versions for the "POIS" wikipage, could members who speak other languages set up pages in those languages? It would be nice if you volunteer to do it, but I think I can contribute some money for the task if necessary. As a student, I may not be able to contribute a lot. But at the moment, I would like to know the approximate budget for a single task (one language) from those who are interested.
Hi Manhei,
Thanks for your interest on this Wikipedia thread.
No, The problem has not been fixed. The main hurdle is that the Wikipedia is now "managed" by an ever growing number of wikipedians, and guidelines for editing are more and more strict. This is not maybe not the case in every field for now, but in health related wiki articles, links to support groups are no longer tolerated - they are systematically erased by reviewers/health pages "watchers". Only scientific references are accepted, mainly.
I am not sure that there is a way anymore to include a link to a support group direclty on the related condition wikipage without having it erased in quite a short time. But, even if we won't be able to put a link to Poiscenter on the POIS page, I have made some research, and I think it would be possible to put up a Poiscenter page, a page for the online support group itself, because this category now exists on wikipedia ( see
https://en.wikipedia.org/wiki/Category:Online_support_groups ). hehehe.....
On such a poiscenter wiki page, the word "POIS" would definitively be present, so a search for "POIS" in the Wikipedia search bar would bring up the POIS wikipage, and, also, the poiscenter page as well. This could be an interesting solution.
The poiscenter wikipage would not have to be very long: mentioning its existence,inception date and brief description, and include a section about its role in the recognition of POIS at NORD, and another section about its 100% founding of the ongoing study by the Rutgers team, through NORD. If the page is about Poiscenter, it will be 100% ok to include its web address.
A first step would be to get a first draft of what would be on a poiscenter wikipage. But then, the biggest problem will be the reference problem. I have quick;ly reviewed some of the wikipages of the support groups listed in the wikipedia category linked to above, and all of those groups seems to have been the object of an article or a description in some mainstream media, so their existence is somehow "referencable". Maybe a first step would be to have poiscenter being the object of an article on some internet media like the Huffington post, for example, or some well known health website. When we will have an article on poiscenter that could be linked to, than we will be able to put that reference on the Wikipage. It looks like "self-presenting" your group or activity on Wikipedia is seen as a promotion or publicity, so you have to be "presented" and cited by other sources than yourself ( I understand this is called for by probably the hundred of thousand of abuse cases where pages put up where only disguised advertisement ).
Well, this would have to be a long term project. Anybody interested in putting up a team?
About Defsync, he may be very busy, his profile shows that he has not logged in here since July.
