Hey thank you very much for your early reply!
I need to clarify some things.
In the summer of 2020, I had two subdural hematomas. The likely cause of this was one of my mountain biking accidents 8 weeks before the surgery.
I experienced typical symptoms consistent with Post Concussion Syndrome, as there was no visible damage to the brain itself.
After these surgeries, I gradually deteriorated until the fatigue and sensory overload became so severe after 5 months that I went to a rehabilitation clinic. They couldn't stabilize me for 5 months until I started adjusting my diet myself, as I had heard from a Canadian naturopath that after brain injury, you can become sensitive to certain foods (GI dysfunction), even though I didn't experience any stomach issues. I should also mention that I have Hirschsprung's disease, which has caused me to be somewhat constipated throughout my life.
Ultimately, I was mostly recovered by December 2021 and stopped following the special diet. However, I still had a mild generalized anxiety disorder.
Then, in February 2022, after my first COVID-19 infection, I developed POTS symptoms. I immediately began the Levine Protocol, advised by my neurologist, to manage POTS through intensive exercise.
Throughout that year, I started experimenting with my diet again because it had always been a determining factor in my energy levels since my injury.
When the fatigue returned significantly, I went to a dietitian at the end of last year (around the Christmas period) to see if the diet still played a role in my symptoms. I followed an elimination diet, but nothing conclusive came out of it, and the fatigue persisted. I now think that she might have made a mistake by allowing me to eat soy during that time, which probably kept the fatigue going because I may also be sensitive to it.
Because I doubted whether the diet still had an effect, I abandoned it and went to an internist to rule out MCAS based on a tryptase test. Nothing came out of it. She also mentioned that MCAS often involves flushing on the body, which I don't have.
I then started working 10 hours a week, and 8 weeks ago, the fatigue abruptly became so severe that I became bedridden. This changed after a week when I started eating gluten, lactose, and soy-free again. I started getting a little more energy every day.
Now, when I have an orgasm, I experience the aforementioned symptoms. But with sexual arousal (lasting around 15 minutes), I also become much more tired, which lasts a day, and I sleep only a few hours that same night.
I discussed this with my urologist, who is familiar with POIS, and he prescribed Silodosin for me. However, since I already experience mild POIS with sexual arousal, it doesn't seem logical to me to take it, as it only helps with ejaculation, in my opinion.
I have been reading elsewhere on this forum that food sensitivities can play a role in managing POIS, if not reducing it entirely.
I believe my focus should also be on that. What do you think about it?
Other than that, my POTS is gone, although I'm not sure if I still have orthostatic intolerance after exercising."
Please note that I have provided a direct translation, and it may be beneficial to consult with a healthcare professional for a more in-depth discussion of your symptoms and potential dietary considerations.
