Author Topic: Free Flow Discussion about POIS  (Read 578490 times)

lauracostis

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Re: This may seem like a familiar place.
« Reply #390 on: November 25, 2012, 04:28:00 AM »
In states where medical marijuana is legal, I have heard it praised for it's anti-inflammatory action.
here in washington state medical marijuana is already legal, but on tuesday a new marijuana law was passed in washington making marijauna legal for recreational use.  It will be sold by the state to any individual 21 years and older.  However, we will probably be sued or attacked by the federal government for this.

Laurac, if and when the suing and attacks die down, I'd like to see POIS researchers investigate medical marijuana for its POIS anti-inflammatory possibilities!
Maybe I can run that study here in Washington some day

demografx

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Re: This may seem like a familiar place.
« Reply #391 on: November 25, 2012, 01:21:42 PM »
Laurac, yes!!! ;D
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Daveman

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Re: This may seem like a familiar place.
« Reply #392 on: December 01, 2012, 06:44:40 AM »
For your information,

We have 446 members.
About 100 different members have posted in the last month.

For those of you who are shy... feel free, step on up, we'd love to hear your story and share more with you all.

WITHOUT RESEARCH THERE WILL BE NO CURE!
Sessions 5 to 9 days, mostly Flu-like, joints, digestion problems, light cognitive.
Niacin has changed my lif though, now 1 day MAX.
Somewhere in this interaction with Niacin is the answer!

demografx

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Re: This may seem like a familiar place.
« Reply #393 on: December 01, 2012, 05:24:18 PM »
And...we all owe a huge debt of gratitude to Daveman for building this forum from the ground up!
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Deranged Nasat

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Re: This may seem like a familiar place.
« Reply #394 on: December 07, 2012, 06:09:46 PM »
I don't know if this is the right place to post this, and I apologise for any screw-ups. I'm 22 years old, and I've experienced what I now know to be POIS for six years. I've been desperate, miserable and on-and-off suicidal and nowhere could I find any explanation for what was happening to me. Tonight I managed to stumble across the description for POIS, and I've searched through everything I can reach on it. I'm feeling extremely emotional right now, because I think I've finally gotten answers. So here I am; I hope I'll be posting more in the days and weeks to come.  :)

demografx

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Re: This may seem like a familiar place.
« Reply #395 on: December 08, 2012, 09:42:30 AM »
Welcome, Deranged Nasat. Please visit
http://poiscenter.com/forums/index.php?topic=1.msg1#msg1

for a comprehensive list of POIS resources.
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #396 on: December 08, 2012, 09:51:04 AM »
« Last Edit: December 12, 2012, 08:29:57 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Vincent M

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Re: This may seem like a familiar place.
« Reply #397 on: December 08, 2012, 11:29:21 AM »
...The effects come on immediately after ejaculation (if I manage not to carry all the way through to orgasm but still become aroused I experience reduced symptoms). I have both physical and mental ailments - the physical being a general sense of burning pain or tingling throbbing over much of my body, the feeling that I'm hot and buzzing with electricity, as if a warm fog has entered my body and is now under my skin. I have stabbing pains in my knees and back, really stiff muscles and a sore throat that makes it difficult to speak clearly. My eyes burn and I become really, heavily fatigued. Mentally, the fog leaves me totally unable to think with any degree of clarity...

Hey, Deranged Nasat. My physical symptoms are similar to yours in that I also get knee and back pain and eye burning. I haven't really found anything to target the knee and back pain to a great extent yet, but I've been taking crushed fenugreek seed capsules for over a year now and they help a lot with the eye burning and fatigue if I drink tea with them. This combo helps somewhat for my knees and back and all my other symptoms as well. You can look at my treatment summary for more detailed info on all the things that have helped my POIS symptoms.
Taking ginger tea, no wheat, fenugreek+green tea/garlic, saw palmetto, niacin, boswellia, huperzine, B complex and nutmeg. See my treatment summary post for more info: http://poiscenter.com/forums/index.php?topic=81.msg3513#msg3513

Ccconfucius

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Re: This may seem like a familiar place.
« Reply #398 on: December 11, 2012, 11:50:11 AM »
doctor presribed intutiv(guafacine),It supposedly works on concentration and other cognitive problems. It is suppose to work pretty quickly so i will let you guys know how it works.
any body tried intutiv

demografx

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Re: This may seem like a familiar place.
« Reply #399 on: December 12, 2012, 08:28:23 PM »
Most may remember "Squiqqy" in Laverne and Shirley's TV sitcom... he has gone much of his life with a
complex disorder that makes living a pain! It's not POIS, but if you watch this video you'll see
that we have a lot in common.

http://www.youtube.com/watch?v=ubgURSn45jE&sns=em

He knows about us and offers us all of his wishes, that we push hard, as he has done in his life, to beat
this thing. Our solution and the solution for all the POIS sufferes of the world... even those who haven't
heard about our forum, is through RESEARCH

We are ALMOST THERE!!!

ONLY $9,000 more to go and POIS will *finally* begin SERIOUS MEDICAL RESEARCH towards our cure!

Please give generously. To yourself! NOW!

Click here to PLEASE donate:



 Please Click H E R E
« Last Edit: December 12, 2012, 10:39:12 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Stef

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Re: This may seem like a familiar place.
« Reply #400 on: December 13, 2012, 12:22:19 PM »
Most may remember "Squiqqy" in Laverne and Shirley's TV sitcom... he has gone much of his life with a
complex disorder that makes living a pain! It's not POIS, but if you watch this video you'll see
that we have a lot in common.

http://www.youtube.com/watch?v=ubgURSn45jE&sns=em

He knows about us and offers us all of his wishes, that we push hard, as he has done in his life, to beat
this thing. Our solution and the solution for all the POIS sufferes of the world... even those who haven't
heard about our forum, is through RESEARCH

We are ALMOST THERE!!!

ONLY $9,000 more to go and POIS will *finally* begin SERIOUS MEDICAL RESEARCH towards our cure!

Please give generously. To yourself! NOW!

Click here to PLEASE donate:



 Please Click H E R E

Demo,

What an inspiring and wonderful video!  "Squiggy" -- aka David Landers -- is such a great role model for anyone struggling with a disabling condition.  His going from keeping it a big, dark secret (which must have been exhausting!) to becoming a major spokesperson for the MS Society is truly praiseworthy, to say the least!

I hope the message he sent you, that "he knows about your forum and about the POIS struggle" and "offers all of his wishes that we push hard, as he has done in his life, to beat
this thing..." resonates with the forum members. 

The world needs to know about this brutal condition -- it's still unknown in many scientific circles, and there are undoubtedly many men suffering in silence and isolation due to ignorance of this syndrome and support forum. Getting that one, solid research grant off and running is the only way to make this condition real in the world of scientists.

I've said this before -- the researchers are out there -- it's the funding that's lacking. That first fund must start with you men -- it's the nature of rare disease research.

$9,000 -- that's all you need to go forward -- by the end of March, 2013.   

You guys can do it -- remember -- Ebay sales, perhaps another crowd-sourcing project, some outreach letters to companies that might kick in just a few thousand -- YOU CAN DO THIS!

Stef

mellivora

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Re: This may seem like a familiar place.
« Reply #401 on: December 13, 2012, 03:54:30 PM »
Thanks Stef! Its time to get inspired again friends. We have 3 months. But this year we're in a hugely better position than last year.
It's going to happen.

demografx

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Re: This may seem like a familiar place.
« Reply #402 on: December 13, 2012, 07:26:13 PM »
THANKS, STEF!
           THANKS, MELLIVORA!
:o                 ::)
« Last Edit: December 14, 2012, 01:46:01 AM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Vincent M

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Re: This may seem like a familiar place.
« Reply #403 on: December 14, 2012, 12:04:36 PM »
Brainfog, thanks for making your first post on the forum and describing your POIS history.

I'd like to remind all of our members to make a post describing your exact symptoms and treatments you've tried here http://poiscenter.com/forums/index.php?topic=81.0 in the Personal POIS Summaries and Histories thread. This way when you post about new treatments you try everyone will know whether your type of POIS is similar to theirs or not. Also it will be a great source of organized and concentrated treatment data. Keep it clear and easily readable if possible.
« Last Edit: December 14, 2012, 12:31:09 PM by Vincent M »
Taking ginger tea, no wheat, fenugreek+green tea/garlic, saw palmetto, niacin, boswellia, huperzine, B complex and nutmeg. See my treatment summary post for more info: http://poiscenter.com/forums/index.php?topic=81.msg3513#msg3513

mellivora

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Re: This may seem like a familiar place.
« Reply #404 on: December 17, 2012, 07:28:48 AM »
Yep, I'm still about! Been away a bit as always but back again as always. Big up you people that are here 24/7 :) Thanks.
I'm feeling I might have another campaign in me after the festive period...