Author Topic: Twitter account dedicated to POIS  (Read 414 times)

Muon

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Twitter account dedicated to POIS
« on: March 27, 2022, 08:50:47 PM »
https://twitter.com/Orgasmicillness
Work in progress, not sure how active I will be. I will make sure the most important threads are included (pinned thread).
The people I will follow are MDs who are aware of POIS. Link to twitter is also present in my signature. Goals: spreading awareness, to act as a portal to various forums and threads, and to present a list with POIS doctors (following section). I will also retweet some old POIS tweets, not all because there is a massive amount of these and many of them are RTs.
« Last Edit: March 27, 2022, 09:16:58 PM by Muon »

IronFeather

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Re: Twitter account dedicated to POIS
« Reply #1 on: March 28, 2022, 08:22:51 AM »
I think this is a wonderful idea, Muon! Thank you for creating this!  :D
26-year-old Spanish woman with POIS symptoms for the last 13 years.
Suffering from exercise intolerance since April 2020.
My case thread, with medical tests results.

Aladin

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Re: Twitter account dedicated to POIS
« Reply #2 on: March 28, 2022, 01:58:43 PM »
Indeed, good job! Thank you!

certainlypois2

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Re: Twitter account dedicated to POIS
« Reply #3 on: March 30, 2022, 05:42:07 PM »
Nice, I think following some long covid doctors might be good to.

Muon

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Re: Twitter account dedicated to POIS
« Reply #4 on: March 31, 2022, 12:46:41 PM »
People may give suggestions what I should post on twitter here in the comments. I can take a look at it and copy it to twitter. Check the channel to see some messages to give you an idea. Remember that the character limit is small.

demografx

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Re: Twitter account dedicated to POIS
« Reply #5 on: March 31, 2022, 01:39:06 PM »
People may give suggestions what I should post on twitter here in the comments. I can take a look at it and copy it to twitter. Check the channel to see some messages to give you an idea. Remember that the character limit is small.

From our admin/mod discussion:

As long as you post links to POIScenter on your channel, it is ok.  But no copying posts and reposting there. It is in the forum rules that members are not allowed to do that :

"No scraping or data harvesting

You may not scrape, harvest, or otherwise collect information in bulk from POISCenter. You may not copy content from POISCenter for another site, or for any other purpose."


However, the links pointing here are good to raise awareness and bring new members.


« Last Edit: March 31, 2022, 01:47:04 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

berlin1984

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Re: Twitter account dedicated to POIS
« Reply #6 on: March 31, 2022, 02:26:50 PM »
However, the links pointing here are good to raise awareness and bring new members.

I agree. The work of Muon, Journey and (insert here whoever maintains those facebook groups) is awesome to raise POIS awareness.

Thank you.

demografx

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Re: Twitter account dedicated to POIS
« Reply #7 on: March 31, 2022, 02:40:27 PM »
However, the links pointing here are good to raise awareness and bring new members.

I agree. The work of Muon, Journey and (insert here whoever maintains those facebook groups) is awesome to raise POIS awareness.

Thank you.

Berlin, “the links pointing here” refer to those links going from Twitter to POISCenter.
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

etcosp

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Re: Twitter account dedicated to POIS
« Reply #8 on: March 31, 2022, 04:24:12 PM »
https://twitter.com/Orgasmicillness
Work in progress, not sure how active I will be. I will make sure the most important threads are included (pinned thread).
The people I will follow are MDs who are aware of POIS. Link to twitter is also present in my signature. Goals: spreading awareness, to act as a portal to various forums and threads, and to present a list with POIS doctors (following section). I will also retweet some old POIS tweets, not all because there is a massive amount of these and many of them are RTs.

Great initiative ! Everyone should help the account to grow by following ; it will eventually reach a larger audience if we cooperate.
It's quite easy to create a Twitter account yourself to do so and if you're not interested by the content, you can hide it via this procedure :

1/ After clicking on the link and following, click on the three dots highlighted here :


2/ In the options bar that opened, look for the text highlighted here and click on it (you can also hide only part of the content by clicking on "Turn off Retweets") :


Eventually our efforts to support POIS awareness will pay off :)
« Last Edit: April 01, 2022, 09:48:17 AM by etcosp »