Author Topic: Question about possible "treatment" for symptoms  (Read 5001 times)

IronFeather

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Question about possible "treatment" for symptoms
« on: November 26, 2019, 07:55:08 AM »
Hello, everyone. I'm a newbie here, I just joined the forum, and English is not my first language, so... sorry in advance for any possible grammar mistakes I might make, and I hope I'm not breaking any forum rules in my first attempt to post here.

I'm a woman with POIS, so I believe I must be a minority here, but I wanted to share a "solution" for POIS symptoms that works for me, as I'm curious to see if it works for everyone else too. Whenever I get heavy POIS symptoms (fever, throat pain, swollen lymph nodes, shivers, palpitations, brain fog, mood swings and unexplainable anger outbursts, neck stiffness to the point I can barely move...), I have found that it resolves quickly after intense sweating. I found this by accident, as I joined a martial arts club last year and once I decided to attend a training session even when I was feeling half dead with fever, throat pain and a killer headache, and it all went away right after the class. So, now, whenever I get symptoms, I run on a treadmill or lift weights or do whatever kind of intense physical exercise I feel like doing until I'm exhausted and drenched in sweat, and while sometimes symptoms take a few hours or even a day to resolve after that, it's nothing compared to the minimum of a week that they usually last.

Does this work for anyone else? Have any of you experienced something similar?
26-year-old Spanish woman with POIS symptoms for the last 13 years.
Suffering from exercise intolerance since April 2020.
My case thread, with medical tests results.

Muon

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Re: Question about possible "treatment" for symptoms
« Reply #1 on: November 26, 2019, 08:43:03 AM »
Reaching a 'pump' by strength training can help improve my POTS/blood flow symptoms, I haven't noticed improvement for POIS. Basically low amount of reps 3-5, Heavy weights, big muscle groups, short and fast extensions, and relatively long pauses to charge you up. I'm prone to injuries when doing these exercises and are taxing to my joints, I don't do them anymore. Did some grappling/MMA classes but stopped with these, they worsen my POIS symptoms. Only recreational without any force applied, and only ground techniques is possible but it's hard to find people who want to practice at extreme low intensity levels (this is not for POIS but just to keep my mind off POIS).

It might not be the sweating that is helping you but the increase in blood flow or some change in immune parameters. Also my mother and grandmother have to be in motion and can't sit still. Same with me outside of POIS, but when I'm inside POIS the exercise intolerance makes physical activity stressful.

demografx

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Re: Question about possible "treatment" for symptoms
« Reply #2 on: November 26, 2019, 02:22:30 PM »
IronFeather, welcome to POISCenter!
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

FernandoPOIS

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Re: Question about possible "treatment" for symptoms
« Reply #3 on: November 26, 2019, 03:12:25 PM »
Hello, everyone. I'm a newbie here, I just joined the forum, and English is not my first language, so... sorry in advance for any possible grammar mistakes I might make, and I hope I'm not breaking any forum rules in my first attempt to post here.

I'm a woman with POIS, so I believe I must be a minority here, but I wanted to share a "solution" for POIS symptoms that works for me, as I'm curious to see if it works for everyone else too. Whenever I get heavy POIS symptoms (fever, throat pain, swollen lymph nodes, shivers, palpitations, brain fog, mood swings and unexplainable anger outbursts, neck stiffness to the point I can barely move...), I have found that it resolves quickly after intense sweating. I found this by accident, as I joined a martial arts club last year and once I decided to attend a training session even when I was feeling half dead with fever, throat pain and a killer headache, and it all went away right after the class. So, now, whenever I get symptoms, I run on a treadmill or lift weights or do whatever kind of intense physical exercise I feel like doing until I'm exhausted and drenched in sweat, and while sometimes symptoms take a few hours or even a day to resolve after that, it's nothing compared to the minimum of a week that they usually last.

Does this work for anyone else? Have any of you experienced something similar?

For me body warming helps but if I have the symptoms of POIS I can not do bodybuilding or move the spine. Just like Muon I have worsening pain. Don't risk doing any kind of movement that needs to use spinal force or any other muscle.
This IronFeather information is very important because it is related to circulation, breathing and possible activation of the vagus nerve through the exhausting work of the respiratory diaphragm.

My POIS only happens with masturbation. Normal sex does not generate POIS symptoms. My POIS is related to me mood and the health of my cervical spine. Dopamine/Inflammation/Body constitution (genetics) are factors that contribute to POIS.

demografx

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Re: Question about possible "treatment" for symptoms
« Reply #4 on: November 26, 2019, 04:20:05 PM »

I'm a woman with POIS...


IronFeather, our current research team has done a lot of work at The Kinsey Institute on Women’s orgasm issues that might be of interest to you:



POISCenter-funded NORD PI (Principal Investigator)
and researcher Dr. Tierney Lorenz
Presentation when Dr Lorenz was
Post-Doctoral Research Fellow at The Kinsey Institute:
https://tinyurl.com/y2c6ryod




POISCenter-funded NORD researcher/co-Investigator
Dr. Nicole Prause’s TedX talk on orgasm in 2015:
https://m.youtube.com/watch?v=aK-zBBSqFV4

« Last Edit: December 01, 2019, 11:02:13 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

mike_sweden

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Re: Question about possible "treatment" for symptoms
« Reply #5 on: December 02, 2019, 01:02:03 PM »
i can not perform any sports or workout since my breathing becomes strained

sauna is out of the question, i find it almost fatal in pois state

Muon

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Re: Question about possible "treatment" for symptoms
« Reply #6 on: July 31, 2020, 04:24:33 AM »
So, now, whenever I get symptoms, I run on a treadmill or lift weights or do whatever kind of intense physical exercise I feel like doing until I'm exhausted and drenched in sweat, and while sometimes symptoms take a few hours or even a day to resolve after that, it's nothing compared to the minimum of a week that they usually last.

"As such, the viscosity of blood varies with shear rate. Blood becomes less viscous at high shear rates like those experienced with increased flow such as during exercise." https://en.m.wikipedia.org/wiki/Hemorheology

sauna is out of the question, i find it almost fatal in pois state

I once ran out of an infrared sauna because it felt dangerous.

Blood plasma viscosity may rise during POIS. Proteins could be dumped into circulation due to inflammation.
https://labtestsonline.org.uk/tests/plasma-viscosity
« Last Edit: July 31, 2020, 05:17:30 AM by Muon »

berlin1984

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Re: Question about possible "treatment" for symptoms
« Reply #7 on: July 31, 2020, 01:06:44 PM »
Blood plasma viscosity may rise during POIS.

Are you sure it's about viscosity and not about having too little blood?
See:
Hypovolemia is one of the main features of Chronic Fatigue Syndrome which has a lot of overlap with POIS in terms of symptoms.

https://www.healthrising.org/treating-chronic-fatigue-syndrome-mecfs/enhancing-blood-volume-in-chronic-fatigue-syndrome-mecfs-and-fibromyalgia/

See if anything there helps your symptoms. Improving your cardiovascular fitness over time also increases your blood volume.

berlin1984

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Re: Question about possible "treatment" for symptoms
« Reply #8 on: July 31, 2020, 01:13:23 PM »
Whenever I get heavy POIS symptoms (fever, throat pain, swollen lymph nodes, shivers, palpitations, brain fog, mood swings and unexplainable anger outbursts, neck stiffness to the point I can barely move...), I have found that it resolves quickly after intense sweating.

Have you tried Sauna?
How do you feel in hot weather?

I find it interesting that people have so different experiences with things like sports and sauna.


So, now, whenever I get symptoms, I run on a treadmill or lift weights or do whatever kind of intense physical exercise I feel like doing until I'm exhausted and drenched in sweat, and while sometimes symptoms take a few hours or even a day to resolve after that, it's nothing compared to the minimum of a week that they usually last.

Reaching a 'pump' by strength training can help improve my POTS/blood flow symptoms, I haven't noticed improvement for POIS.

"As you exercise, your muscle cells consume more and more energy, leading to a decrease in nutrients and an increase in molecules such as carbon dioxide. This can lead to vasodilation, as the muscles you're exercising require more nutrients and oxygen"
https://www.healthline.com/health/vasodilation

Blood flow discussion:
https://poiscenter.com/forums/index.php?topic=1527
https://poiscenter.com/forums/index.php?topic=2688
https://poiscenter.com/forums/index.php?topic=1992

Muon

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Re: Question about possible "treatment" for symptoms
« Reply #9 on: July 31, 2020, 01:20:01 PM »
Blood plasma viscosity may rise during POIS.
Are you sure it's about viscosity and not about having too little blood?

No I'm not sure, I'm throwing ideas around, although there were multiple times where they had trouble drawing blood from me, moving the needle back and forth and blood pooring into the tube slowly. Hypovolumetric problems are possible as well, or both. In the latter POIS could affect the RAS. Mast cells release stuff that can interfere with this system, or vagus nerve. Something is happening to my cardiovascular system.

During sex there is increased blood pressure, body movement, blood flow to large muscles, deep breathing leading to activation of vagus nerve activity and consequent relaxation of this nerve ....
I believe there is a blood volume redistribution present as a response to POIS in conjunction with vasoconstriction, that's also a reason why I think you will get a pale skin. I'm not exactly sure whether it goes to skeletal muscles, organs or large muscles. It's possible my exercise intolerance stems from this phenomena besides inflammation. The vagus nerve could be involved.
« Last Edit: July 31, 2020, 01:22:47 PM by Muon »

maybechange

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Re: Question about possible "treatment" for symptoms
« Reply #10 on: August 02, 2020, 06:51:22 AM »
Hello,

I'm happy for you, sis. I have noticed sudden improvement in my case aswell. And I believe sweating plays a role in that for me aswell. I've made a post describing my situation in more detail. Feel free to check it out.