Author Topic: NORD (National Organization for Rare Disorders) News  (Read 12692 times)

Limejuice

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Re: NORD (National Organization for Rare Disorders) News
« Reply #40 on: March 14, 2020, 05:15:52 PM »
This might be interesting...

Unhappy as a software engineer I left the industry to start a business that met my unique health issues, and life has greatly improved since! This webinar might give tips for starting a business or finding a job that allows the flexibility we need as sufferers.

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #41 on: March 14, 2020, 05:41:03 PM »
Thanks, Limejuice! I’m glad that some of these NORD announcements ring a bell...at least for some POISers! :)
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #42 on: March 14, 2020, 05:49:13 PM »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Limejuice

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Re: NORD (National Organization for Rare Disorders) News
« Reply #43 on: March 14, 2020, 08:16:37 PM »
Haha!

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #44 on: March 14, 2020, 10:42:29 PM »
Limejuice, it’s been great to have you here as a forum star all these years!
« Last Edit: March 14, 2020, 10:45:15 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Limejuice

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Re: NORD (National Organization for Rare Disorders) News
« Reply #45 on: March 15, 2020, 11:03:22 PM »

Limejuice, it’s been great to have you here as a forum star all these years!


It’s been a pleasure to serve our community in my limited capacity. Thank you for your leadership and vision to help drive us towards a cure!


« Last Edit: March 15, 2020, 11:21:28 PM by demografx »

demografx

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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #47 on: March 31, 2020, 01:09:02 PM »



Free Webinar R I G H T   N O W
A Rare Response: Addressing the COVID-19 Pandemic



Register for the FREE Webinar
TODAY, March 31
2:00pm - 3:00pm EDT

https://tinyurl.com/wtaln56
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #48 on: April 01, 2020, 10:39:37 AM »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #49 on: April 21, 2020, 03:29:27 PM »
COVID-19: Current Status of Testing, Treatments and Vaccines

Register for the FREE NORD Webinar
Tuesday, May 5
2:00pm - 2:30pm EDT

https://tinyurl.com/yajbh9z9
« Last Edit: April 22, 2020, 01:23:59 AM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #50 on: April 30, 2020, 09:43:37 AM »
NORD’s COVID-19 Emergency Programs
https://rarediseases.org/covid-19-emergency-programs/
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #51 on: May 01, 2020, 03:46:50 PM »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #52 on: May 04, 2020, 09:25:39 AM »
Free Webinar Tomorrow

COVID-19: Current Status of Testing, Treatments and Vaccines
https://tinyurl.com/ycgpblml

Register for the FREE Webinar
Tomorrow, May 5
2:00pm - 2:30pm EDT
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #53 on: May 05, 2020, 02:58:52 PM »
Report from NORD Reveals Significant Impact
of COVID-19 on Rare Disease Community

https://tinyurl.com/y74c28r4
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #54 on: May 06, 2020, 11:22:15 AM »
Registration for the NORD Living Rare, Living Stronger
Virtual Forum is Now Open!

Register By
July 19, 2020  4:30 PM
https://tinyurl.com/yauc4ptz
« Last Edit: May 06, 2020, 05:27:07 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #55 on: May 08, 2020, 04:10:49 PM »

***NORD (National Organization for Rare Disorders) is the organization that manages our current (2019-2020) POIS Research - - via a Scientific Grant totally funded by us here at POISCenter.com***
https://rarediseases.org/



*** More about our current POIS Research: ***
https://tinyurl.com/ybph4fh7
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #56 on: June 01, 2020, 03:20:56 PM »
June 2020 NORD News
https://tinyurl.com/y9dv4z9c
« Last Edit: June 01, 2020, 03:29:47 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #57 on: July 01, 2020, 12:16:46 PM »
July 2020 NORD News:
https://tinyurl.com/y9qcunvt
« Last Edit: July 01, 2020, 09:55:20 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #58 on: July 02, 2020, 07:39:24 PM »
The 2020 Living Rare Forum
Is Only Two Weeks Away


Check out the Agenda for the 2020
Living Rare Virtual Forum!

https://tinyurl.com/yczfunl9




« Last Edit: July 02, 2020, 09:31:40 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #59 on: July 07, 2020, 01:52:48 PM »
Upcoming webinar:
From Data to Rare Disease Cures: Speeding the Process
https://tinyurl.com/y8ldwb29
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business