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Author Topic: NORD (National Organization for Rare Disorders) News  (Read 40806 times)

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #120 on: February 10, 2023, 10:22:55 AM »



Attend a Rare Disease Day Event Near You
https://tinyurl.com/mr3t5e24



(NORD - National Organization for Rare Disorders) is the supervising organization for our
========================
2023 POIS Research Study
========================
funded by us here at POISCenter:
https://tinyurl.com/mwhy42n4
« Last Edit: February 10, 2023, 12:09:16 PM by demografx »
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10 years of significant POIS-reduction, treatment consisting of weekly (52 weeks/year) testosterone self-injections.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business.

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #121 on: March 03, 2023, 04:34:38 PM »





April 2023
NORD eNews:
https://tinyurl.com/yzy95an5

(NORD - National Organization for Rare Disorders) is the supervising organization for our 2023 POIS Research Study, funded by us here at POISCenter:

https://poiscenter.com/forums/index.php?topic=3006.0
Logged
10 years of significant POIS-reduction, treatment consisting of weekly (52 weeks/year) testosterone self-injections.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business.

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #122 on: March 31, 2023, 04:06:04 PM »






April 2023
NORD eNews:
https://tinyurl.com/4529xn4y

(NORD - National Organization for Rare Disorders) is the supervising organization for our 2023 POIS Research Study, funded by us here at POISCenter:

https://poiscenter.com/forums/index.php?topic=3006.0
Logged
10 years of significant POIS-reduction, treatment consisting of weekly (52 weeks/year) testosterone self-injections.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business.

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #123 on: May 23, 2023, 02:55:04 PM »
Looking Forward to the 2023 NORD Summit? Take a Look Back at Last Year...
http://tinyurl.com/27ny82hh


(NORD - National Organization for Rare Disorders) is the supervising organization for our
======================================================
2023 POIS Research Study
======================================================
funded by us here at POISCenter:
https://poiscenter.com/forums/index.php?topic=3006.0
« Last Edit: May 23, 2023, 02:57:20 PM by demografx »
Logged
10 years of significant POIS-reduction, treatment consisting of weekly (52 weeks/year) testosterone self-injections.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business.

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #124 on: June 10, 2023, 01:13:10 PM »




June 2023
NORD eNews:
https://tinyurl.com/43uwef73

(NORD - National Organization for Rare Disorders) is the supervising organization for our 2023 POIS Research Study, funded by us here at POISCenter:
https://poiscenter.com/forums/index.php?topic=3006.0
« Last Edit: June 10, 2023, 05:47:50 PM by demografx »
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10 years of significant POIS-reduction, treatment consisting of weekly (52 weeks/year) testosterone self-injections.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business.

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #125 on: June 14, 2023, 03:46:54 PM »
FROM:



“Congratulations - Together, we protected Medicaid coverage for the rare disease community!”
https://tinyurl.com/mry7ww3w

(NORD - National Organization for Rare Disorders) is the supervising organization for our 2023 POIS Research Study, funded by us here at POISCenter:
https://poiscenter.com/forums/index.php?topic=3006.0
Logged
10 years of significant POIS-reduction, treatment consisting of weekly (52 weeks/year) testosterone self-injections.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business.

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #126 on: July 03, 2023, 06:48:22 PM »





July 2023
NORD eNews:
https://tinyurl.com/2x2tmxty

(NORD - National Organization for Rare Disorders) is the supervising organization for our NORD/POIS Research Study, funded by us here at POISCenter:
https://poiscenter.com/forums/index.php?topic=3006.0
Logged
10 years of significant POIS-reduction, treatment consisting of weekly (52 weeks/year) testosterone self-injections.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business.

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #127 on: August 04, 2023, 10:28:18 AM »




August 2023
NORD eNews:
https://tinyurl.com/323r7tmp

(NORD - National Organization for Rare Disorders) is the supervising organization for our NORD/POIS Research Study, funded by us here at POISCenter:
https://poiscenter.com/forums/index.php?topic=3006.0
Logged
10 years of significant POIS-reduction, treatment consisting of weekly (52 weeks/year) testosterone self-injections.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business.

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #128 on: September 07, 2023, 12:17:58 PM »











September 2023
NORD eNews:
https://tinyurl.com/2p7zz8mr

(NORD - National Organization for Rare Disorders) is the supervising organization for our NORD/POIS Research Study, funded by us here at POISCenter:
https://poiscenter.com/forums/index.php?topic=3006.0












« Last Edit: September 07, 2023, 01:52:54 PM by demografx »
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10 years of significant POIS-reduction, treatment consisting of weekly (52 weeks/year) testosterone self-injections.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business.

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #129 on: September 08, 2023, 12:58:13 PM »












September 2023
NORD eNews:
https://tinyurl.com/2p7zz8mr

(NORD - National Organization for Rare Disorders) is the supervising organization for our NORD/POIS Research Study, funded by us here at POISCenter:
https://poiscenter.com/forums/index.php?topic=3006.0
Logged
10 years of significant POIS-reduction, treatment consisting of weekly (52 weeks/year) testosterone self-injections.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business.

Aladin

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Re: NORD (National Organization for Rare Disorders) News
« Reply #130 on: December 29, 2023, 02:51:47 PM »
I haven't been on the POIS centre for a long time.  Can somebody give an update about the NORD research?  Last time i visited the site here, they were recruiting patients for testing. Have there been evolutions ever since?
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Muon

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Re: NORD (National Organization for Rare Disorders) News
« Reply #131 on: December 29, 2023, 03:06:56 PM »
Quote from: Aladin on December 29, 2023, 02:51:47 PM
I haven't been on the POIS centre for a long time.  Can somebody give an update about the NORD research?  Last time i visited the site here, they were recruiting patients for testing. Have there been evolutions ever since?
No
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demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #132 on: December 30, 2023, 04:13:04 PM »
Quote from: Aladin on December 29, 2023, 02:51:47 PM

I haven't been on the POIS centre for a long time.  Can somebody give an update about the NORD research?  Last time i visited the site here, they were recruiting patients for testing. Have there been evolutions ever since?


Testing will be underway soon.
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10 years of significant POIS-reduction, treatment consisting of weekly (52 weeks/year) testosterone self-injections.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business.

demografx

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Re: NORD (National Organization for Rare Disorders) News
« Reply #133 on: March 14, 2024, 01:39:07 PM »


March 2024
NORD eNews:
https://tinyurl.com/3truka7t

(NORD - National Organization for Rare Disorders) is the supervising organization for our NORD/POIS Research Study, funded by us here at POISCenter:
https://poiscenter.com/forums/index.php?topic=3006.0
Logged
10 years of significant POIS-reduction, treatment consisting of weekly (52 weeks/year) testosterone self-injections.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business.
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