Author Topic: POIS - a complication of Mercury Toxicity? Porphyria?  (Read 20809 times)

JohnJames

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POIS - a complication of Mercury Toxicity? Porphyria?
« on: January 15, 2019, 04:46:25 PM »
I was reading about mercury toxicity and dental amalgam fillings, I think my symptoms seem to start not long after I got the fillings.

There are mutations that some people have which effect the way mercury is handled which may explain why some people do really bad with fillings and some people seem to be okay with them.

See: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3462250/

CPOX mutations can lead to porphyria which have the following symptoms:
-vomiting
-abdominal pain
-hypertension
-tachycardia
-anxiety
-confusion
-depression

Interestingly, in females acute attacks can coincide with their menstrual cycle.

I'm not sure if porphyria is the cause, but for me I think Mercury Toxicity might be partly responsible for POIS.

Does anyone here know if they have a CPOX mutation? Amalgam fillings?

Also how many people with POIS also suffer restless legs syndrome (this correlates with mercury toxicity/amalgam fillings)?.


ascorbate

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Re: POIS - a complication of Mercury Toxicity? Porphyria?
« Reply #1 on: February 15, 2019, 06:13:25 PM »
I developed POIS at the same time I became mercury toxic from improper amalgam filling removal. The best and safest protocol for mercury toxicity is the Cutler protocol. He has a few books on his website you should check out. Amalgam Illness, Hair Test Interpretation, and a new one just came out called the Mercury Detoxification Manual.

I have seen significant improvement in my POIS with his protocol. There is a helpful group on facebook for it, as well as the yahoo groups. Good luck.

Nas

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Re: POIS - a complication of Mercury Toxicity? Porphyria?
« Reply #2 on: February 15, 2019, 06:30:15 PM »
You need to test for mercury levels, if high go for detoxification protocol and then if it helped then there could be some sort of connection. 

certainlypois2

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Re: POIS - a complication of Mercury Toxicity? Porphyria?
« Reply #3 on: February 16, 2019, 06:33:42 PM »
ascorbate, welcome to the forum

Hopeoneday

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Re: POIS - a complication of Mercury Toxicity? Porphyria?
« Reply #4 on: February 16, 2019, 08:45:51 PM »
Yeah, hmmm, as a kid about 12 (pubertet) me also get
a lot of amalgams, and i think that we poisers hawe a lot
of problems about detox, posibility of mercury and hawy
metals retention, thats proveng genetics tests results.
Dr-pois.

swell

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Re: POIS - a complication of Mercury Toxicity? Porphyria?
« Reply #5 on: February 19, 2019, 01:45:04 PM »
As child I use to play with mercury from broken thermometers, keep the mercury in my pocket and then during day marvel how it gets separated into tiny balls and combine into larger ball.  I have not done any testing though.
POIS Free, 2+ yrs (occasional/predictive lapses)
Pois symptoms: Peripheral (Skin: Urticaria, dryness, pale blotchy skin), Exasperation of: [Nerve weakness, Muscle weakness + Mental (CNS: Brain Fog, Irritation, Isolation, Speech lethargy, Anxiety)].
Other conditions: ASD, ADD, GA

JohnJames

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Re: POIS - a complication of Mercury Toxicity? Porphyria?
« Reply #6 on: March 01, 2019, 02:39:33 AM »
I developed POIS at the same time I became mercury toxic from improper amalgam filling removal. The best and safest protocol for mercury toxicity is the Cutler protocol. He has a few books on his website you should check out. Amalgam Illness, Hair Test Interpretation, and a new one just came out called the Mercury Detoxification Manual.

I have seen significant improvement in my POIS with his protocol. There is a helpful group on facebook for it, as well as the yahoo groups. Good luck.

I've had my amalgams removed and have been following the Andy Cutler Protocol, I'm on my 6th round of DMSA. Can't wait to start on ALA in 6 weeks.

How long did it take for significant improvements for you? Fortunately, I only had one small amalgam filling, but my mom has a mouthful of them and I think she had them before I was born.

I have a feeling those in this group whom have had a number of amalgam fillings or vaccines, whose POIS does not respond to diet, and whose POIS lasts alot longer than others (mine can last up to 2-4 weeks) would likely see improvements or recovery following ACC.

You need to test for mercury levels, if high go for detoxification protocol and then if it helped then there could be some sort of connection. 

There arn't many mercury tests which work.

JohnJames

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Re: POIS - a complication of Mercury Toxicity? Porphyria?
« Reply #7 on: July 26, 2019, 11:58:57 AM »
Hello All,

Wanted to give an update, I've been following the andy cutler protocol for 6 months now and have made some improvements, though I'm currently in "the dump". I think it's very clear to me that mercury is the cause of my POIS, unfortunately it can take a while to remedy (usually 2-3 years unless you're very toxic).

I'm starting to think that Mercury Toxicity is behind many other peoples POIS here too, there is a Facebook group for following the andy cutler protocol, interestingly many of the men have asked about POIS there, and it seems like the majority of men there have POIS. Many of whom have found their POIS symptoms have been diminishing over time whilst treating themselves for Mercury Poisoning.

Investigator

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Re: POIS - a complication of Mercury Toxicity? Porphyria?
« Reply #8 on: July 28, 2019, 02:12:44 AM »
JohnJames, have you done a blood test for mercury? Or has someone else done it? A hypothesis like this would be easy to test and see if you have level of mercury or not.

JohnJames

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Re: POIS - a complication of Mercury Toxicity? Porphyria?
« Reply #9 on: July 29, 2019, 07:16:56 AM »
JohnJames, have you done a blood test for mercury? Or has someone else done it? A hypothesis like this would be easy to test and see if you have level of mercury or not.
No, blood levels of Mercury are not a good indicator for total body load, they only tend to be useful for recent exposure. Mercury is generally not found much in our evolutionary history and so our body doesn't have many effective ways of removing it in significant amounts naturally, mercury tends to accumulate over time and evidence has shown that it can be passed from mother to child.

The only good test to determine mercury toxicity is any reaction to alpha lipoic acid, and one must be very careful since doses of ala done improperly can be very damaging to the mercury toxic. I notice effects almost every round of even small amounts 1-3mg of ALA so Mercury is 100% an issue for me, and I think it's what causes my POIS. A healthy individual should not notice any effects even with more typical doses of a few hundred mg.

Look up Andy Cutler, he thought mercury was likely behind a number of mysterious diseases.
« Last Edit: July 29, 2019, 07:22:49 AM by JohnJames »

Igy78

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Re: POIS - a complication of Mercury Toxicity? Porphyria?
« Reply #10 on: August 02, 2019, 04:04:38 PM »
Hi, just registered, registering to this forum was pain in the F ass, last name of last researcher of POIS study? Are you F kidding me?. It was worst then POIS attack (kidding), anyway back to topic.

I'm am new here, hello to everyone, have POIS symptoms for about 2 years. Im reading this forum for a while and i came a cross to this post, and decided to register and write something about it. My major symptom was whenever i do any physical activity like going to the bathroom, i experienced strong anxiety and depression with suicidal thoughts for 15-30 seconds, and when i sit down to relax, problems goes away, the shorter the time from ejaculation the stronger are symptoms. The longer was apstinence from ejaculation , i started to feel better. Anyway i tried vitamins, diets, diatomaceous earth, you name it,  i even loose weight in hope maybe i start feeling better, and nothing, what helped to feel better was intermittent fasting for 48 hours, eating every second day.


I was suspecting to mercury poisoning but not completely sure. I removed my one amalgam filling 3 weeks a go expecting to feel better, again nothing. What really helped was Alpha lipoic acid, i bought ALA yesterday and it helped A LOT, in just a 2 days i was better then ever in this 2 years of agony. Unbelivable. Now i know it is mercury poisoning thanks to John James and his post, anyway going to test for mercury and start to detox.
« Last Edit: August 02, 2019, 04:09:31 PM by Igy78 »

Scrub

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Re: POIS - a complication of Mercury Toxicity? Porphyria?
« Reply #11 on: August 02, 2019, 05:11:13 PM »
Mercury or heavy metal toxicity seems to be an interesting pathway to look into.

However, how would you connect orgasm and ejaculation with heavy metal toxicity?

demografx

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Re: POIS - a complication of Mercury Toxicity? Porphyria?
« Reply #12 on: August 02, 2019, 07:55:49 PM »
Igy78, welcome to the forum!
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: POIS - a complication of Mercury Toxicity? Porphyria?
« Reply #13 on: August 03, 2019, 05:55:52 PM »

Hi, just registered, registering to this forum was pain in the F ass, last name of last researcher of POIS study? Are you F kidding me?. It was worst then POIS attack (kidding)...


Registration answers had to be not so obvious, because we had hundreds of unwanted registrations a week by spammers, and had to make it more difficult to register. We were infested with spammers, bots and fake members.   To give you an idea, we had 200 to 400 new "members" a week, which was obviously impossible for a rare condition like POIS.  At one point, this little forum, which has currently approx 800 members, had over 14 000 members ! ... a huge pruning had to be done.   The fact that spam bots are attracted here is maybe due to some word search that is done by those bots... we do find words here like "orgasm", “masturbation”, “porn”  or "ejaculation"... that is maybe what attracts bots here.

Now, gone are the days when we come to the forum in the morning only to find 14 threads of foreign languages porn ads......   

Sorry for the inconvenience, we understand that the registration process is a little harder, but it was really needed.
« Last Edit: August 03, 2019, 06:22:47 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

JohnJames

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Re: POIS - a complication of Mercury Toxicity? Porphyria?
« Reply #14 on: August 04, 2019, 02:52:34 AM »
Mercury or heavy metal toxicity seems to be an interesting pathway to look into.

However, how would you connect orgasm and ejaculation with heavy metal toxicity?

See page 45: https://books.google.co.uk/books?id=ZG9glNfif5YC&pg=PA32&source=gbs_toc_r&cad=4#v=onepage&q&f=false

I don't know the exact process, all I know is that it's extremely common for the men on the ACC forum, some have even stated that it started after mercury exposure.

Mercury accumulates in organs, and has an affinity for the brain and central nervous system and causes massive oxidative damage and deranges a number of processes in the body. Mercury is a powerful neurotoxin with various effects, and can present differently from person to person. Where one person might have messed hormones, with low cortisol or thyroid issues, or even low testosterone, other people might have neuropathy or full blown MS or CFS (there are cases on ACC forums of people healing both of these diseases through chelation).

Orgasm causes massive CNS/Endrocrine activation, and the brain is involved. I don't know the exact mechanism, but it only takes one of the steps along the way to get messed up.

Here is a member of the ACC group talking about POIS, I blanked out his picture/name since it's a closed group just one case:



Hi, just registered, registering to this forum was pain in the F ass, last name of last researcher of POIS study? Are you F kidding me?. It was worst then POIS attack (kidding), anyway back to topic.

I'm am new here, hello to everyone, have POIS symptoms for about 2 years. Im reading this forum for a while and i came a cross to this post, and decided to register and write something about it. My major symptom was whenever i do any physical activity like going to the bathroom, i experienced strong anxiety and depression with suicidal thoughts for 15-30 seconds, and when i sit down to relax, problems goes away, the shorter the time from ejaculation the stronger are symptoms. The longer was apstinence from ejaculation , i started to feel better. Anyway i tried vitamins, diets, diatomaceous earth, you name it,  i even loose weight in hope maybe i start feeling better, and nothing, what helped to feel better was intermittent fasting for 48 hours, eating every second day.


I was suspecting to mercury poisoning but not completely sure. I removed my one amalgam filling 3 weeks a go expecting to feel better, again nothing. What really helped was Alpha lipoic acid, i bought ALA yesterday and it helped A LOT, in just a 2 days i was better then ever in this 2 years of agony. Unbelivable. Now i know it is mercury poisoning thanks to John James and his post, anyway going to test for mercury and start to detox.

I'm glad that you're seeing progress, but please be very careful, you can get worse if you don't take ALA on it's half-life due to mercury redistributing to sensitive organs rather than being excreted. Look up Andy Cutler Protocol if you haven't already.

Also did you check to make sure you got rid of ALL the amalgam? alot of dentists might accidentally leave specks of amalgam in and if you take ALA with amalgam still in, even just a teeny-weeny speck, you can make yourself alot worse. The ACC group recommends people take 4 intra-oral bite-wing X-rays and they have a number of dentists who give up their personal time who will check them for amalgam specks for free.

« Last Edit: August 04, 2019, 03:09:12 AM by JohnJames »

Igy78

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Re: POIS - a complication of Mercury Toxicity? Porphyria?
« Reply #15 on: August 04, 2019, 01:54:17 PM »

I'm glad that you're seeing progress, but please be very careful, you can get worse if you don't take ALA on it's half-life due to mercury redistributing to sensitive organs rather than being excreted. Look up Andy Cutler Protocol if you haven't already.

Also did you check to make sure you got rid of ALL the amalgam? alot of dentists might accidentally leave specks of amalgam in and if you take ALA with amalgam still in, even just a teeny-weeny speck, you can make yourself alot worse. The ACC group recommends people take 4 intra-oral bite-wing X-rays and they have a number of dentists who give up their personal time who will check them for amalgam specks for free.

Yea, i see very nice progress with ALA, just found on Andy Cutlers chelation Facebook page you mentioned that we must avoid high thiol foods which can move mercury and have a strong anxiety, amazing, every time i eat meat, cheese, hamburgers/cheeseburgers, full of thiols, the next day is a mess in my head, anxiety, even got crying, especially after sex, when i fast for 48 hours everything is almost ok, so no more Mcdonalds, pizzas and junk food with ALA, fasting and ALA only and salads.

Anyway i'm doing coffee enemas for a month, it really helps, i started putting 1 tablespoon of baking soda in enema, started to feel even better, but with ALA i started sometimes to feel like i have no symptoms in a few moments, amazing, but with no junk foods at least for a 1 day.

I have no amalgam present in my mouth, i did xray before removal, amalgam was not to deep in tooth, i asked dentist and she said every speck of amalgam was removed. But i see that i will never know until i made another x ray of that tooth.

So for now will continue with ALA (started with 600 mg, 5-6 times a day every 3-4 hours like you said) and with fasting, i started taking activated charcoal when i started ALA, i hope that also help, also taking diatomaceus earth on daily basis 3x of 1 tablespoon trough the day, just for maybe accidental parasites in the gut,  taking vitamin c - mega doses, b1, b6, b12, b complex vitamins, selen, zink (huge benefits), i read that mercury depletes zinc on that FB page, amazing, today i started with Zeolite as i read it is a great binder and will surely look into more detail of that protocol (DSMA etc).

It will be loong journey of detoxing.

How is DSMA helping you?

Hope you doing better every day!


« Last Edit: August 04, 2019, 02:04:46 PM by Igy78 »

Hopeoneday

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Re: POIS - a complication of Mercury Toxicity? Porphyria?
« Reply #16 on: August 04, 2019, 03:47:14 PM »
Yeah we discused this before.
Acording to this , whole Japan people would had a mercury toxicity.
But...
It is big posibility that some of us hawe mistake in detox phases, so, we get toxin and heavy metal retention,
and then can happen mercury redistribution from thesues to brain.

ALA incriese glutation.
« Last Edit: August 04, 2019, 05:10:56 PM by Hopeoneday »
Dr-pois.

Igy78

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Re: POIS - a complication of Mercury Toxicity? Porphyria?
« Reply #17 on: August 05, 2019, 07:20:55 AM »
Just found out that in order for body to remove heavy metals it needs a lot of sulfur, and when you get a lot of sulfur in your body where body is trying to remove toxins you get sulfur intolerance, especially with fatty liver like i have, every time i eat sulfur thiol rich foods i get hard anxiety, suicidal thoughts, doom feeling, full blown POIS effects,  then i fast for 24-48 hours and feel better, where i avoid sulfur or i'm on low sulfur diet i'm ok'ish, especially with ALA, i read some comments on youtube (sulfur intolerance) that one guy tried Thorne Molybdenum Glycinate - 1 mg of molybdenum and it was life changing for him, to bad he did not go into much details, because that thing lowers sulfate by speeding up detoxing, it breaks down sulfur, i will try it also and report back in a 5-6 days after delivery. If it helps it will be tremendous discovery because i can detox heavy metals in peace with no POIS effect, have sex and have normal life, it would be great.


https://www.youtube.com/watch?v=Jy1baTr0uoY
https://www.youtube.com/watch?v=qk1MmNiCppk
« Last Edit: August 05, 2019, 08:00:26 AM by Igy78 »

Igy78

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Re: POIS - a complication of Mercury Toxicity? Porphyria?
« Reply #18 on: August 18, 2019, 05:35:08 PM »
Just found out that in order for body to remove heavy metals it needs a lot of sulfur, and when you get a lot of sulfur in your body where body is trying to remove toxins you get sulfur intolerance, especially with fatty liver like i have, every time i eat sulfur thiol rich foods i get hard anxiety, suicidal thoughts, doom feeling, full blown POIS effects,  then i fast for 24-48 hours and feel better, where i avoid sulfur or i'm on low sulfur diet i'm ok'ish, especially with ALA, i read some comments on youtube (sulfur intolerance) that one guy tried Thorne Molybdenum Glycinate - 1 mg of molybdenum and it was life changing for him, to bad he did not go into much details, because that thing lowers sulfate by speeding up detoxing, it breaks down sulfur, i will try it also and report back in a 5-6 days after delivery. If it helps it will be tremendous discovery because i can detox heavy metals in peace with no POIS effect, have sex and have normal life, it would be great.


https://www.youtube.com/watch?v=Jy1baTr0uoY
https://www.youtube.com/watch?v=qk1MmNiCppk


Well, i can confirm it does not help with pois symptoms, but what i discovered is that pumping up dosage of organic coffee in coffee enemas really help, before i was cooking two table spoons, feeling great afterwards, now i cook three, feeling even better, almost normal. I'm on 18th day of no ejaculation. After the coffee is cooked i add one tablespoon of baking soda. A compound in coffee called cafestol palmitate is said to stimulate the activity of an enzyme called glutathione S-transferase, which opens up the bile duct in the liver, so probably i get more of glutathione. Avoidance of sulfur/thiol/msg/protein/processed food helps a lot. I'm also using belformin (metformin) 500mg which is helping with my insulin resistance probably caused by mercury toxicity. With that combo i feel really great, if i skip coffee enema for a day, and eat junk food, symptoms are back in a heart beat.

I found this article extremely helpful, so maybe someone can recognize some symptoms.

https://www.functionalmedicineuniversity.com/public/974.cfm

Also have one question, does anyone maybe get symptoms after any mental activity? Or physical? and rest for 1-2 minute and feeling ok? If i swim a lot, i get stronger symptoms of POIS immediately and when i rest i'm feeling ok, i heard that mercury deposits in extremities of the body, in hands. If i move my hands a lot, i feel worse, and when i rest i feel normal. I know it's weird but it's just the way it is. Thanks.


« Last Edit: August 18, 2019, 05:43:25 PM by Igy78 »

Investigator

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Re: POIS - a complication of Mercury Toxicity? Porphyria?
« Reply #19 on: August 23, 2019, 09:50:40 AM »
Quote
Look up Andy Cutler, he thought mercury was likely behind a number of mysterious diseases.

Yes, it seems there are certain ways to get mysterious diseases. I visited a neurologist recently, and he asked me a bunch of questions that have been discussed here in the forum. I include some that I remember:
-- have you had exposure to heavy metals?
-- have you been beaten by a thick?
-- do you have a dog?

What does one need to do in order to properly get tested for levels of mercury? I understand now that it is not just a simple blood or urine test, unfortunately. But what kind of doctor should one visit?