Author Topic: List of Doctors Who Knows about POIS and are seeing POIS patients  (Read 53656 times)

Quantum

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Re: List of Doctors Who Knows about POIS and are seeing POIS patients
« Reply #100 on: December 08, 2023, 09:44:36 PM »
New Dr on the list:
4 - Doctor's name:  Dr Ahmed Mahmoud   ( Endocrinology and metabolic diseases)
Contact information : Scientific coordinator of Andrological center / Male sexual dysfunction (Universiteit Gent) UZ Gent, Corneel Heymanslaan 10, 9000, Entrance 12, route 1450, 9th floor , Gent, Belgium
e-mail :  endocrinologie@uzgent.be
website :  https://www.uzgent.be/patient/zoek-een-arts-of-dienst/endocrinologie-en-stofwisselingsziekten/team/dr-ahmed-mahmoud 
PHONE: 09 332 21 37
POIS article(s) published : -
Other information : You need a reference from your primary care physician in order to make an appointment with Dr Ahmed Mahmoud about POIS but you can also email him a letter with explaining your personal history about POIS, how it effects you, etc.

The Andrology Center of Ghent is a founding member of the “Belgian expert group for semen analysis” which provides ESHRE training every 1 or 2 years in semen analysis under supervision of the Belgian Institute of Public Health (Ahmed Mahmoud, followed by Kelly Tilleman).

Dr Ahmed Mahmoud is a colleague of the medical head of endocrinology Prof Guy T'Sjoen--
The Doctor who was at #4 is now retired, so I just put this new entry there
You are 100% responsible for what you do with anything I post on this forum and of any consequence it could have for you.  Forum rule: ""Do not use POISCenter as a substitute for, or to give, medical advice" Read the remaining part at http://poiscenter.com/forums/index.php?topic=1.msg10259#msg10259

demografx

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Re: List of Doctors Who Knows about POIS and are seeing POIS patients
« Reply #101 on: December 09, 2023, 12:15:13 AM »
New Dr on the list:
4 - Doctor's name:  Dr Ahmed Mahmoud   ( Endocrinology and metabolic diseases)
Contact information : Scientific coordinator of Andrological center / Male sexual dysfunction (Universiteit Gent) UZ Gent, Corneel Heymanslaan 10, 9000, Entrance 12, route 1450, 9th floor , Gent, Belgium
e-mail :  endocrinologie@uzgent.be
website :  https://www.uzgent.be/patient/zoek-een-arts-of-dienst/endocrinologie-en-stofwisselingsziekten/team/dr-ahmed-mahmoud 
PHONE: 09 332 21 37
POIS article(s) published : -
Other information : You need a reference from your primary care physician in order to make an appointment with Dr Ahmed Mahmoud about POIS but you can also email him a letter with explaining your personal history about POIS, how it effects you, etc.

The Andrology Center of Ghent is a founding member of the “Belgian expert group for semen analysis” which provides ESHRE training every 1 or 2 years in semen analysis under supervision of the Belgian Institute of Public Health (Ahmed Mahmoud, followed by Kelly Tilleman).

Dr Ahmed Mahmoud is a colleague of the medical head of endocrinology Prof Guy T'Sjoen--
The Doctor who was at #4 is now retired, so I just put this new entry there

Quantum, thank you for creating this amazing repository of doctors willing to see POIS patients. It addresses one of the most critical challenges for POISers: finding a doctor - - any doctor! - - who UNDERSTANDS POIS!
« Last Edit: December 09, 2023, 12:17:57 AM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Quantum

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Re: List of Doctors Who Knows about POIS and are seeing POIS patients
« Reply #102 on: December 09, 2023, 07:54:54 AM »
New Dr on the list:
4 - Doctor's name:  Dr Ahmed Mahmoud   ( Endocrinology and metabolic diseases)
Contact information : Scientific coordinator of Andrological center / Male sexual dysfunction (Universiteit Gent) UZ Gent, Corneel Heymanslaan 10, 9000, Entrance 12, route 1450, 9th floor , Gent, Belgium
e-mail :  endocrinologie@uzgent.be
website :  https://www.uzgent.be/patient/zoek-een-arts-of-dienst/endocrinologie-en-stofwisselingsziekten/team/dr-ahmed-mahmoud 
PHONE: 09 332 21 37
POIS article(s) published : -
Other information : You need a reference from your primary care physician in order to make an appointment with Dr Ahmed Mahmoud about POIS but you can also email him a letter with explaining your personal history about POIS, how it effects you, etc.

The Andrology Center of Ghent is a founding member of the “Belgian expert group for semen analysis” which provides ESHRE training every 1 or 2 years in semen analysis under supervision of the Belgian Institute of Public Health (Ahmed Mahmoud, followed by Kelly Tilleman).

Dr Ahmed Mahmoud is a colleague of the medical head of endocrinology Prof Guy T'Sjoen--
The Doctor who was at #4 is now retired, so I just put this new entry there

Quantum, thank you for creating this amazing repository of doctors willing to see POIS patients. It addresses one of the most critical challenges for POISers: finding a doctor - - any doctor! - - who UNDERSTANDS POIS!


Thanks, Demo :)

This reference comes from a member who had a consultation with this doctor, but prefer to stay anonymous.
You are 100% responsible for what you do with anything I post on this forum and of any consequence it could have for you.  Forum rule: ""Do not use POISCenter as a substitute for, or to give, medical advice" Read the remaining part at http://poiscenter.com/forums/index.php?topic=1.msg10259#msg10259

demografx

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Re: List of Doctors Who Knows about POIS and are seeing POIS patients
« Reply #103 on: December 09, 2023, 09:17:51 PM »
New Dr on the list:
4 - Doctor's name:  Dr Ahmed Mahmoud   ( Endocrinology and metabolic diseases)
Contact information : Scientific coordinator of Andrological center / Male sexual dysfunction (Universiteit Gent) UZ Gent, Corneel Heymanslaan 10, 9000, Entrance 12, route 1450, 9th floor , Gent, Belgium
e-mail :  endocrinologie@uzgent.be
website :  https://www.uzgent.be/patient/zoek-een-arts-of-dienst/endocrinologie-en-stofwisselingsziekten/team/dr-ahmed-mahmoud 
PHONE: 09 332 21 37
POIS article(s) published : -
Other information : You need a reference from your primary care physician in order to make an appointment with Dr Ahmed Mahmoud about POIS but you can also email him a letter with explaining your personal history about POIS, how it effects you, etc.

The Andrology Center of Ghent is a founding member of the “Belgian expert group for semen analysis” which provides ESHRE training every 1 or 2 years in semen analysis under supervision of the Belgian Institute of Public Health (Ahmed Mahmoud, followed by Kelly Tilleman).

Dr Ahmed Mahmoud is a colleague of the medical head of endocrinology Prof Guy T'Sjoen--
The Doctor who was at #4 is now retired, so I just put this new entry there

Quantum, thank you for creating this amazing repository of doctors willing to see POIS patients. It addresses one of the most critical challenges for POISers: finding a doctor - - any doctor! - - who UNDERSTANDS POIS!


Thanks, Demo :)

This reference comes from a member who had a consultation with this doctor, but prefer to stay anonymous.


I sent your post and my highlighted reply to all of our outside POIS Research partners!
« Last Edit: December 10, 2023, 01:14:08 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business


Muon

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Re: List of Doctors Who Knows about POIS and are seeing POIS patients
« Reply #105 on: April 17, 2024, 02:29:04 PM »
I am in a treatment for P.O.I.S. by Prof. Dr. Beier (sexual medicine) at Charit? in Berlin.

Muon

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Re: List of Doctors Who Knows about POIS and are seeing POIS patients
« Reply #106 on: May 01, 2024, 02:10:14 AM »
I have not contacted this doctor, perhaps forum members from India can ask him to join this list. Dr Pramod Krishnappa from Bangalore. https://www.youtube.com/watch?v=3PrAY5cSXnA

Quantum

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Re: List of Doctors Who Knows about POIS and are seeing POIS patients
« Reply #107 on: May 01, 2024, 07:18:08 AM »
I have not contacted this doctor, perhaps forum members from India can ask him to join this list. Dr Pramod Krishnappa from Bangalore. https://www.youtube.com/watch?v=3PrAY5cSXnA

Hi Muon,

Thanks for the link. I have found an email address for  Dr. Krishnappa, at https://www.androneo.com/, and just emailed him to know if he wants to appear on our POIS Doctors list.   
You are 100% responsible for what you do with anything I post on this forum and of any consequence it could have for you.  Forum rule: ""Do not use POISCenter as a substitute for, or to give, medical advice" Read the remaining part at http://poiscenter.com/forums/index.php?topic=1.msg10259#msg10259

demografx

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Re: List of Doctors Who Knows about POIS and are seeing POIS patients
« Reply #108 on: May 01, 2024, 09:45:56 AM »
I have not contacted this doctor, perhaps forum members from India can ask him to join this list. Dr Pramod Krishnappa from Bangalore. https://www.youtube.com/watch?v=3PrAY5cSXnA

Hi Muon,

Thanks for the link. I have found an email address for  Dr. Krishnappa, at https://www.androneo.com/, and just emailed him to know if he wants to appear on our POIS Doctors list.

Thanks, Quantum, Muon!
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Muon

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Re: List of Doctors Who Knows about POIS and are seeing POIS patients
« Reply #109 on: June 06, 2024, 05:24:18 PM »
Do we have Russian members on this forum that want to contact ChairUrology and ask if we can add them to the list of doctors?
A video in Russian about POIS. I have not looked into Russian POIS papers (Do they exist?).
June 6, 2024 Post Orgasmic Illness Syndrome (POIS) (Youtube Channel: ChairUrology)
https://cmiko.ru/scientific-activity/kafedra-urologii/

Muon

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Re: List of Doctors Who Knows about POIS and are seeing POIS patients
« Reply #110 on: June 07, 2024, 03:34:53 AM »
https://www.cureus.com/articles/245945-post-orgasmic-illness-syndrome-a-case-report/#!/
Someone could ask Fahad K. Alanazi from King Saud Medical City, Riyadh, Saudi Arabia, to be registered on POIScenter’s list.

demografx

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Re: List of Doctors Who Knows about POIS and are seeing POIS patients
« Reply #111 on: June 08, 2024, 02:39:31 PM »
https://www.cureus.com/articles/245945-post-orgasmic-illness-syndrome-a-case-report/#!/

Someone could ask Fahad K. Alanazi from King Saud Medical City, Riyadh, Saudi Arabia, to be registered on POIScenter’s list.


Muon: from our POIS research team - -
(I deleted my own post about this article)

“We’re always glad for POIS to get attention, but that [Cureus] is a predatory journal with a long history of retractions for fraud (e.g., main study falsely claiming ivermectin cured COVID):
https://retractionwatch.com/?s=cureus

This case might be fine, it doesn't mean everything in it is bad, but we don't think the journal is trustworthy historically.

Hopefully, we get more positive attention!”

« Last Edit: June 08, 2024, 11:14:10 PM by demografx »
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Muon

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Re: List of Doctors Who Knows about POIS and are seeing POIS patients
« Reply #112 on: June 09, 2024, 04:00:45 AM »
@demografx
There are a couple of other papers on the list (POIS paper archive thread) which I’m not happy about for several reasons. I’m still posting those, people may ignore papers they do not like.

demografx

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Re: List of Doctors Who Knows about POIS and are seeing POIS patients
« Reply #113 on: June 09, 2024, 04:50:13 PM »

@demografx
There are a couple of other papers on the list (POIS paper archive thread) which I’m not happy about for several reasons. I’m still posting those, people may ignore papers they do not like.


Thx for explaining.
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Quantum

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Re: List of Doctors Who Knows about POIS and are seeing POIS patients
« Reply #114 on: June 23, 2024, 10:10:26 AM »
https://www.cureus.com/articles/245945-post-orgasmic-illness-syndrome-a-case-report/#!/
Someone could ask Fahad K. Alanazi from King Saud Medical City, Riyadh, Saudi Arabia, to be registered on POIScenter’s list.
I have just sent him an email.
Unfortunately, many doctors do not answer my emails, like the last one you suggest in early May ( Dr Krishnappa did not answer at all).
You are 100% responsible for what you do with anything I post on this forum and of any consequence it could have for you.  Forum rule: ""Do not use POISCenter as a substitute for, or to give, medical advice" Read the remaining part at http://poiscenter.com/forums/index.php?topic=1.msg10259#msg10259

Muon

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Re: List of Doctors Who Knows about POIS and are seeing POIS patients
« Reply #115 on: June 23, 2024, 01:15:02 PM »
Unfortunately, many doctors do not answer my emails

That is normal.

https://www.reddit.com/r/POIS/comments/1act60i/heres_some_information_i_compiled_over_a_couple/

They are diagnosing and treating POIS according to their own website. Located in Bonn, Germany.
https://www.ukbonn.de/andrologie-maennerkunde/#ablauf-der-behandlung

Why is this not on the list yet? Have you seen the website Quantum?


Quantum

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Re: List of Doctors Who Knows about POIS and are seeing POIS patients
« Reply #117 on: June 25, 2024, 07:14:54 AM »
Unfortunately, many doctors do not answer my emails

That is normal.

https://www.reddit.com/r/POIS/comments/1act60i/heres_some_information_i_compiled_over_a_couple/

They are diagnosing and treating POIS according to their own website. Located in Bonn, Germany.
https://www.ukbonn.de/andrologie-maennerkunde/#ablauf-der-behandlung

Why is this not on the list yet? Have you seen the website Quantum?

Contacted, no answer.

I prefer not to include a doctor on the list if I did not have explicit consent.
Even then, I already had a doctor who gave explicit content, and then, years later, told a member that she never asked to be on th list and was not involved in POIS anymore.  So, for now, this mention in the list's thread will do, for this doctor.

Since I do not have much time for that currently, and that you seem very good at spotting potential POIS Doctors, feel free, Muon, to contact this doctor or any other doctor. Ask them if they give their consent to be on the list, and what contact information they want to appear on the list. That would be very helping.   If you have any positive answer, forward thier email to me ! 


In case this could be of any help for you, here is an example of the emails I use to contact them:

"Dear Dr. XXXXXXXX,

I am a member of one the largest information and support forum for POIS, created in 2011, which currently has over 1500 members worldwide ( https://poiscenter.com/). 

One of our members shared the link to your POIS ^***case report/article/survey/***. I am glad that you are interested in POIS, which is not very well known, even by doctors. We are very thankful for your interest in our rare syndrome, and your efforts to make it known.
I wanted to let you know that our forum is always willing to help any researcher who wants to go ahead with a POIS project or a POIS study. In particular, we can help with subjects recruitment, which is not easy in the case of a rare syndrome. If you or another health professional you know would like our help in finding POIS subjects, do not hesitate to contact the forum adminnistrators team.

Also, since not that many specialists and doctors know about POIS, we maintain for our members, on our site, a list of doctors who know about POIS, are interested in POIS research and/or have already published an article on POIS, and are seeing POIS patients. You can see the current list at https://poiscenter.com/forums/index.php?topic=2575.msg22338#msg22338 . If you see POIS patients and would like to appear on this list, it will be my pleasure to add you. If so, just send me the contact information you would like to see appear for you on this list.
 
As a final note, our forum gathered enough money to fund a POIS study, through a grant awarded and managed by the National Organization for Rare Disorders ( NORD). The study was supposed to start last year, but was postponed due to the pandemic. Hopefully, it will start in the coming months.

Again, thank you for your interest in POIS research,

Best Regards,
"


If any other member wants to help and contact a potential POIS Doctor, please forward to me any positive emailed answer.

« Last Edit: June 25, 2024, 07:17:05 AM by Quantum »
You are 100% responsible for what you do with anything I post on this forum and of any consequence it could have for you.  Forum rule: ""Do not use POISCenter as a substitute for, or to give, medical advice" Read the remaining part at http://poiscenter.com/forums/index.php?topic=1.msg10259#msg10259