Post Orgasmic Illness Syndrome (P.O.I.S.)

POIS Cause/Treatment Discussions => General Alternative Causes and Treatments of POIS => Topic started by: Quantum on November 29, 2017, 11:27:31 PM

Title: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: Quantum on November 29, 2017, 11:27:31 PM
Here is a list of doctors and specialists ( urologists, neurologists, allergy specialists, etc...) who know about POIS, and are open to see POIS patients  ( "POIS doctors" ).  They may be from anywhere in the world.  City and country where is the Doctor's clinic is in red in the list below, so you can easily find which Doctor is the nearest from where you live.

So, for members who would like to see a physician who already knows about
POIS, one that will not send them in psychiatry, or try a large list of tests that will come back all normal ( as they did with all members here), or try any meds with no particular experience with it, so here is the place to find a "POIS Doctor". Those "POIS doctors" will not make you feel frustrated because you were not understood at all, will not make you false promises, but will help you the best they can, and are willing to learn more about POIS, and help us more, and they are usually involved in POIS research. 

Be aware that these Doctors do not know yet what causes POIS, and in most cases do not have much to offer in terms of treatment, but at the least, they know about POIS diagnostic criteria, and can confirm you have POIS, and you will get some understanding from a qualified doctor.  Also, those physicians listed here are aiming at a better understanding of POIS, and at raising awareness of POIS in the medical community.  So, the more POIS patients they will see, the better they will get to know POIS, and the more material they will have for another scientific publication on POIS  ( most of those listed here have already published at least one article on POIS).  Some of these doctors do offer some treatment alternatives, like NSAIDS or prednisolone, but at this point, they may be called "experimental" treatments.

Keep in mind that, to date, there is no specific treatment for POIS.  Before accepting an elaborate treatment offered to you, be sure to be aware of all the potential risks of this experimental treatment. Do not hesitate to ask for a second opinion from your family doctor or from another specialist before going forward with any treatment, which, at this stage, are all experimental.   


If you think a physician should be added to this list, send me a private message.


POIS Doctors List:


1- Doctor's name:   Dr Wayne Hellstrom   ( Urologist)
Contact information:   Professor of Urology / Chief of Andrology / whellst@tulane.edu / (504) 988-3361 / School of Medicine, University of Tulane, New Orleans,Louisiana, USA / http://medicine.tulane.edu/departments/urology/faculty/wayne-jg-hellstrom-md-facs (http://medicine.tulane.edu/departments/urology/faculty/wayne-jg-hellstrom-md-facs)
POIS article(s) published:
Direct link to appointement webpage  https://medicine.tulane.edu/find-doctor/urology-clinic (https://medicine.tulane.edu/find-doctor/urology-clinic)
Other information: You need a reference from your primary care physician in order to make an appointment with Dr Hellstrom about POIS.

Take note that Dr Hellstrom is the head of the Tulane University team, same team that has made a survey on the forum in 2019 and will eventually publish about it.

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2 - Doctor's name:   Dr Ege Can Serefoglu, MD, FECSM
Contact information : Associate Professor  / www.drserefoglu.com (http://www.drserefoglu.com) / Uroklinik - Center of Excellence in Urology / Zerrin Sk. No:2  34330 ?ç Levent, Besiktas, Istanbul, Turkey  / egecanserefoglu@hotmail.com 
POIS article(s) published : https://www.ncbi.nlm.nih.gov/pubmed/28499517 (https://www.ncbi.nlm.nih.gov/pubmed/28499517)
Other information : Even if in Turkey, he is perfectly fluent in English


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3 - Doctor's name: Pr Gerard Amarenco  ( Neuro-urologist )
Contact information : , La Sorbonne : gerard.amarenco@aphp.fr
Service de Neuro-Urologie, Hôpital Tenon, Paris
4 Rue de la Chine, 75020, Paris, France
Neuro-Urology Department, Tenon Hospital, Paris
GRC01 GREEN Groupe de Recherche Clinique en Neuro-Urologie
Sorbonne Universités UPMC, Paris, France /
GRC01 GREEN Group of Clinical Research in Neuro-Urology
https://grc01-green.jimdo.com/ (https://grc01-green.jimdo.com/)
Tel : (33)156017500
POIS article(s) published :  https://www.clinicalkey.fr/#!/content/playContent/1-s2.0-S1166708717300696?returnurl=http:%2F%2Flinkinghub.elsevier.com%2Fretrieve%2Fpii%2FS1166708717300696%3Fshowall%3Dtrue&referrer= (https://www.clinicalkey.fr/#!/content/playContent/1-s2.0-S1166708717300696?returnurl=http:%2F%2Flinkinghub.elsevier.com%2Fretrieve%2Fpii%2FS1166708717300696%3Fshowall%3Dtrue&referrer=)
Other information :   La Sorbonne University is in Paris, France

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4 - Doctor's name:   Dr Michael Lowy
Contact information : The Male Clinic, SUITE 2, LEVEL 6
75 CROWN STREET
WOOLLOOMOOLOO NSW 2011, Sydney, Australia 
e-mail :  michael@lowy.com.au
website : https://themaleclinic.com.au/ourteam/dr-michael-lowy/ (https://themaleclinic.com.au/ourteam/dr-michael-lowy/)
POIS article(s) published : case study presentation : https://www.sexualhealthvisual.com/Video_by_Michael_Lowy_on_POIS_Post_Orgasmic_Illness_Syndrome_A_case_study_on_POIS.html (https://www.sexualhealthvisual.com/Video_by_Michael_Lowy_on_POIS_Post_Orgasmic_Illness_Syndrome_A_case_study_on_POIS.html)
Other information : sexual health physician specializing in men's health conditions, sexual medicine and counselling

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5 - Doctor's name: Dr Irwin Goldstein ( urologist, specialized in sexual health)
Contact information : 5555 Reservoir Dr Ste 300 , San Diego, CA, USA
 92120 (619) 286-8804 or 619.265.8865
e-mail: dr.irwingoldstein@gmail.com
website : http://www.sandiegosexualmedicine.com/meet-dr-goldstein (http://www.sandiegosexualmedicine.com/meet-dr-goldstein)
POIS article(s) published : data to be added
Other information : In recent years, it seems that Dr Goldstein has offered an experimental treatment to members of this forum who had a consultation with him:  Transforaminal Epidural Steroid Injection ( TFESI).   Be aware that this procedure has not been evaluated in POIS. See here a comment from a member about this procedure: https://poiscenter.com/forums/index.php?topic=3948.msg41968#msg41968.

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6 - Doctor's name:    Dr Paul-Henri Cesar  ( Neurologist )
Contact information : Keck Hospital of USC
1510 San Pablo St., 5th Floor, Suite 514, Los Angeles, CA, USA 90033
toll free number fr appointements: (800) USC-CARE (800-872-2273)
e-mail : paul-henri.cesar@med.usc.edu
https://providers.keckmedicine.org/provider/Paul-Henri+Cesar/205217 (https://providers.keckmedicine.org/provider/Paul-Henri+Cesar/205217)
POIS article(s) published : -
Other information : At least one of our forum members had consultations with him.  He is interested in understanding POIS and help find a treatment.

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7- Doctor's name: Dr Serge Carrier ( urologist )
Contact information : Hôp Général Juif - Sir M.B. Davis E-208-3755 ch de La Côte-Sainte-Catherine, Montreal, P.Q., Canada, H3T 1E2
Telephone: 514-340-8222  extension #7558
POIS article(s) published : data to be added
Other information : English and French speaking

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8 - Doctor's name:   Dr Celina Silvia Stafie  ( Specialist in Allergology and Clinical Immunology, Specialist in Internal Medicine )
Contact information : Allergology Private Office, Bd Carol I nr.4, corp A, Habitat Building, Iasi, Romania
Office phone +40232219932
Mobile office phone +40745114074
Email address aret2009@gmail.com
POIS article(s) published :  POST COITAL ALLERGY - A CASE REPORT OF POST ORGASMIC ILLNESS SYNDROME (https://www.revmedchir.ro/index.php/revmedchir/article/view/1798/1449)
Other information : website:  http://alergologieiasi.ro/ (http://alergologieiasi.ro/)

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9 - Doctor's name: Dr Keity Souza Santos  ( immunologist )
Contact information : University of Medicine of Sao Paulo, FMUSP
Laboratory of Allergy and Immunology Av. Dr Eneas de Carvalho Aguiar, 44 - 9o andar -Bloco II - Laboratorio de Imunologia
CEP 05403-900 , Sao Paulo, Brazil
Phones: +55 11 2661.5907 - office
+55 11 2661.5907 - office
+55 11 4787.3183 - home
+55 11 98110.7043 - mobile
e-mail:  keitysouzasantos@gmail.com or keity.santos@fm.usp.br
POIS article(s) published :  https://sci-hub.se/10.1080/0092623x.2019.1677835 (https://sci-hub.se/10.1080/0092623x.2019.1677835)
Other information :   She would be happy to see more POIS patients from Brazil.

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10 -Doctor's name:    Dr De Boer Mannen Gezondheid   ( urologist)
Contact information : 3723 MB, Bilthoven, Netherlands
Phone: 030 662 8327
e-mail: voorbeeld@domeinnaam.nl
contact page:  https://www.dbmgz.nl/deboer/contactpagina (https://www.dbmgz.nl/deboer/contactpagina)
POIS article(s) published :  - - -
Other information : website:  https://www.dbmgz.nl/ (https://www.dbmgz.nl/)  .  Dr de Boers is a Dutch doctor who knew the late Dr Waldinger, so he knows about POIS and accept to see POIS patients.

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11 -Doctor's name:   Dr Yacov (Cobi) Reisman   ( Urologist & Sexologist )
Contact information : Prof. W.H. Keesomlaan 12 , Amstelveen, The Netherlands
Phone: +0031638760984
e-mail:  info@flare-health.nl
Website: https://www.flare-health.nl/ (https://www.flare-health.nl/)
POIS article(s) published :  https://www.nature.com/articles/s41443-020-0314-9 (https://www.nature.com/articles/s41443-020-0314-9)
Other information : He knew Dr. Waldinger personally. He would like to help POIS patients.

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12 -Doctor's name: Dr Khaleeq ur Rehman   ( Urologist )
Contact information : 14- Abu Baker Block New Garden Town, Lahore, Lahore, Pakistan
Phone: + 042 32500989
e-mail:  info@hameedlatifhospital.com (info@hameedlatifhospital.com)
Website: http://www.hameedlatifhospital.com/doctor_departments/urology-lithotripsy/ (http://www.hameedlatifhospital.com/doctor_departments/urology-lithotripsy/)   
POIS article(s) published :   - 
Other information : He speaks English and Urdu. He has treated at least one patient with presumed success ( with 5mg prednisolone 4 hours before O, see https://www.reddit.com/r/POIS/comments/if2ssc/on_the_way_to_recovery_thanks_to_my_brilliant/ (https://www.reddit.com/r/POIS/comments/if2ssc/on_the_way_to_recovery_thanks_to_my_brilliant/)

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13 -Doctor's name:  Rachel S. Rubin MD, IF (Urologist and Sexual Medicine Specialist)
Assistant Clinical Professor Department of Urology, Georgetown University
Contact information : 14-1850 M Street Suite 450, Washington DC, USA, 20036
office phone: 202-293-1000 / fax: 202-463-6150
email: rachelsrubin@gmail.com
twitter: @rachelsrubin1
Instagram: @drrachelrubin
Facebook: DrRachelRubin
Website:  www.IntimMedicine.com (http://www.IntimMedicine.com)
POIS article(s) published :   Orzel, J., and R. Rubin. "042 Successful treatment strategies in two patients with Postorgasmic illness syndrome (POIS)." The Journal of Sexual Medicine 18.3 (2021): S23-S24. (https://www.jsm.jsexmed.org/article/S1743-6095(21)00114-4/abstract)   (Full version (https://poiscenter.com/forums/index.php?topic=3551.msg38184#msg38184))
Other information : She knows about POIS and is interested in seeing POIS patients and contributing to POIS research

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14-Doctor's name:  Jia Yin, MD, Allergy Doctor/ProfessorPresident of Allergy Department, Peking Union Medical College Hospital. President, Chinese Medical Doctor Association - Allergy Department
Contact information : Peking Union Medical College Hospital,Beijing, China, 100032
Office Phone: +86 10 69156114
Email: doctoryinjia@163.com
Website: http://ims.pumch.cn/doctor/detail/4573.html (http://ims.pumch.cn/doctor/detail/4573.html)
POIS article(s) published : Postorgasmic illness syndrome (POIS) in a Chinese man: No proof for IgE-mediated allergy to semen  https://sci-hub.se/10.1111/jsm.12813 (https://sci-hub.se/10.1111/jsm.12813)
Other information : Professor Yin reported the first POIS patient in China and has built up a team to research POIS. She is actively recruiting patients who can go to Beijing to have an appointment with her. Please contact Professor Yin via email or make an appointment via Peking Union Medical College Hospital.

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 15-Doctor's name:  Kam Mann, MD, Physician in Andrology, MBBS MRCP MRCGP
Contact information : BMI Sarum Road Hospital, Sarum Road, Winchester, Hampshire, England  SO22 5HA  and also International Andrology London ,78 Seymour Place, London United Kingdom ,W1H 2EH
Email: unknown
Website(s): https://www.wessexandrology.com/about-the-team (https://www.wessexandrology.com/about-the-team) ,   https://london-andrology.co.uk/medical-experts/dr-kam-mann/ (https://london-andrology.co.uk/medical-experts/dr-kam-mann/) and https://www.bmihealthcare.co.uk/consultants/kam-mann#aria-panel-1/ (https://www.bmihealthcare.co.uk/consultants/kam-mann#aria-panel-1/) ( there is a "Chat with Us" link at the top right of this webpage, in order to get information)
POIS article(s) published : He presented a POIS Case Study at The British Society for Sexual Medicine Annual London Conference, in 2018  http://www.bssm.org.uk/wp-content/uploads/2018/04/PROGRAMME-MAY-11TH-RSM.pdf (http://www.bssm.org.uk/wp-content/uploads/2018/04/PROGRAMME-MAY-11TH-RSM.pdf)
Other information : Dr Mann is an experienced Men’s Health Physician with a specialist interest in Sexual Medicine
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: Quantum on November 29, 2017, 11:38:19 PM
1- Doctor's name:   Dr Wayne Hellstrom   ( Urologist)
Contact information:   Professor of Urology / Chief of Andrology / whellst@tulane.edu / (504) 988-3361 / School of Medicine, University of Tulane, New Orleans, USA / http://medicine.tulane.edu/departments/urology/faculty/wayne-jg-hellstrom-md-facs
POIS article(s) published: http://www.smr.jsexmed.org/article/S2050-0521(17)30116-6/abstract
Direct link to appointement webpage  https://medicine.tulane.edu/find-doctor/urology-clinic
Other information: You need a reference from your primary care physician in order to make an appointment with Dr Hellstrom about POIS.

Take note that Dr Hellstrom is part of the Tulane University team that have expressed the intention to submit, in the coming months, a POIS study project to NORD for our research grant.
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: Quantum on November 29, 2017, 11:53:21 PM
2 - Doctor's name:   Dr Ege Can Serefoglu, MD, FECSM
Contact information : Associate Professor  / www.drserefoglu.com / Uroklinik - Center of Excellence in Urology / Zerrin Sk. No:2  34330 ?ç Levent, Besiktas, Istanbul, Turkey  / egecanserefoglu@hotmail.com 
POIS article(s) published : https://www.ncbi.nlm.nih.gov/pubmed/28499517
Other information : Even if in Turkey, he is perfectly fluent in English
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: Quantum on December 17, 2017, 11:18:26 AM
For those wondering why Dr Marcel Waldinger is not on this list, it is because I did not received yet an answer from him as to whether or not he is still making appointment for POIS sufferers, and if so, what would be the contact information to use.  That doesn't mean he is not making such appointments, but the other Doctors listed here have sent me an e-mail confirmation that they do, and have confirmed the contact information to use.

As soon as I receive confirmation from Dr Waldinger, I will update this thread
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: Quantum on January 12, 2018, 09:57:41 AM
3 - Doctor's name: Pr Gerard Amarenco  Neuro-urologist
Contact information : , La Sorbonne : gerard.amarenco@aphp.fr
Service de Neuro-Urologie, Hôpital Tenon, Paris
4 Rue de la Chine, 75020 Paris, France
Neuro-Urology Department, Tenon Hospital, Paris

GRC01 GREEN Groupe de Recherche Clinique en Neuro-Urologie
Sorbonne Universités UPMC, Paris
GRC01 GREEN Group of Clinical Research in Neuro-Urology
https://grc01-green.jimdo.com/
Tel : (33)156017500
POIS article(s) published :  https://www.clinicalkey.fr/#!/content/playContent/1-s2.0-S1166708717300696?returnurl=http:%2F%2Flinkinghub.elsevier.com%2Fretrieve%2Fpii%2FS1166708717300696%3Fshowall%3Dtrue&referrer=
Other information :   La Sorbonne University is in Paris, France
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: demografx on January 12, 2018, 11:19:24 AM


Quantum, thanks for this fantastic resource!


Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: joelawerence on January 18, 2018, 12:07:57 PM
Thanks a lot Quantum. Anyone in UK?
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: Habibou on January 18, 2018, 02:05:42 PM
There was Dr David Goldmeier in St Mary Hospital, London that I met in 2011 and he met several POIS patients. I have just been referred to him by my GP so will have soon an appointment with him.
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: melt on May 03, 2018, 04:51:32 AM
Dr Michael Lowy at The Male Clinic, SUITE 2, LEVEL 6
75 CROWN STREET
WOOLLOOMOOLOO NSW 2011
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: Quantum on May 03, 2018, 06:59:46 AM
Dr Michael Lowy at The Male Clinic, SUITE 2, LEVEL 6
75 CROWN STREET
WOOLLOOMOOLOO NSW 2011

Thanks melt for the reference.  I am not surprised to have found that he had already made a clinical presentation of a POIS case at a sexual medicine conference.   For those, like me, wondering, this address is in Sydney , Australia.  I have also found an e-mail for him, see below:


4 - Doctor's name:   Dr Michael Lowy
Contact information : The Male Clinic, SUITE 2, LEVEL 6
75 CROWN STREET
WOOLLOOMOOLOO NSW 2011 AUSTRALIA
e-mail :  michael@lowy.com.au
POIS article(s) published : case study presentation : https://www.sexualhealthvisual.com/Video_by_Michael_Lowy_on_POIS_Post_Orgasmic_Illness_Syndrome_A_case_study_on_POIS.html
Other information : sexual health physician specializing in men's health conditions, sexual medicine and counselling

Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: Quantum on August 19, 2018, 11:36:03 AM
5 - Doctor's name: Dr Irwin Goldstein ( urologist, specialized in sexual health)
Contact information : 5555 Reservoir Dr Ste 300 , San Diego, CA 92120 (619) 286-8804 or 619.265.8865
e-mail: dr.irwingoldstein@gmail.com
website : http://www.sandiegosexualmedicine.com/meet-dr-goldstein
 
POIS article(s) published : data to be added
Other information : like the other doctors mentioned here, he does not have any definite treatment to offer, but he knows about POIS, and is interested in understanding it and finding a treatment for it.  He has already seen at least one member of this forum, and maybe other POIS cases as well.
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: Quantum on August 24, 2019, 08:08:30 AM
6 - Doctor's name:    Dr Paul-Henri Cesar  (Neurologist)
Contact information : Keck Hospital of USC
1510 San Pablo St., 5th Floor, Suite 514, Los Angeles, CA 90033
toll free number fr appointements: (800) USC-CARE (800-872-2273)
e-mail : paul-henri.cesar@med.usc.edu

https://providers.keckmedicine.org/provider/Paul-Henri+Cesar/205217

POIS article(s) published : -
Other information : At least one of our forum members had consultations with him.  He is interested in understanding POIS and help find a treatment.
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: Nas on August 24, 2019, 12:30:21 PM
Any chance this doctor can help us or the guy who consulted him to get a PET-MRI?
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: lycopoulos on August 25, 2019, 12:45:22 PM
Dr. Serge Carrier Im Montreal, QC, Canada who is a urologist also recognizes the condition.
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: demografx on August 25, 2019, 05:11:59 PM
Thanks, lycopolous!
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: demografx on September 09, 2019, 03:56:01 PM
Dr. Serge Carrier Im Montreal, QC, Canada who is a urologist also recognizes the condition.
lycopolous, please check your inbox for private message from me.

Thanks!
Demo
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: drop247 on October 28, 2019, 01:09:11 PM
Dr. Serge Carrier Im Montreal, QC, Canada who is a urologist also recognizes the condition.
lycopolous, please check your inbox for private message from me.

Thanks!
Demo

Did anyone get to see Dr. Carrier? I'm also in Canada and am interested in what form of treatment he can offer if any.
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: Muon on October 29, 2019, 02:41:50 PM
I have sent out some emails to doctors.
Quantum can copy this info to the top post. Suggestion: I would sort the complete list based on country:

Country A

Doctor X

Country B

Doctor Y
Doctor Z

etc

Reserve the first few replies of yours in case you might want to expand the list.

I think this thread should be linked on the front page in the same area where the Tulani survey study link is placed. I would call it something like 'click here for the POIS doctor's list'.

Here is another doctor who shares contact info, big thanks for this! This is especially useful to patients from Romania:

Celina Silvia Stafie
Lecturer, PhD MD
University of Medicine and Pharmacy Gr.T.Popa Iasi, Romania, Department of Preventive Medicine

Specialist in Allergology and Clinical Immunology,
Specialist in Internal Medicine,
HUG Diploma in Therapeutical Education for Chronic Diseases

Adress: Allergology Private Office, Bd Carol I nr.4, corp A, Habitat Building, Iasi, Romania
Office phone +40232219932
Mobile office phone +40745114074
Email adress aret2009@gmail.com
Site www.alergologieiasi.ro

Her paper: POST COITAL ALLERGY - A CASE REPORT OF POST ORGASMIC ILLNESS SYNDROME (https://www.revmedchir.ro/index.php/revmedchir/article/view/1798/1449)
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: demografx on October 29, 2019, 04:26:35 PM
Haven’t we moved beyond skin prick test credibility discussions?
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: Muon on October 29, 2019, 04:39:56 PM
Haven’t we moved beyond skin prick test credibility discussions?
I do understand your comment Demo but that's not what this thread is about. Finding doctors who are familiar with POIS and are open to receive POIS patients can be quite difficult.
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: demografx on October 29, 2019, 04:42:30 PM
Ok
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: Muon on October 31, 2019, 11:43:09 AM
POIS patients from the countries below could try to get in contact with the corresponding author of the papers themselves (look for an envelope icon or this *Author for Correspondence). I'm unaware if these doctors want to see POIS patients.

China

Postorgasmic Illness Syndrome (POIS) in a Chinese Man: No Proof for IgE?Mediated Allergy to Semen (https://www.sciencedirect.com/science/article/pii/S1743609515309632#!)

Colombia

Sindrome postorgasmico: alergia al semen en hombres (https://www.sciencedirect.com/science/article/pii/S0210480613001174?via%3Dihub)

Czech Republic

Prof. Dr. Petr Weiss, Ph. D.
Sexuologicky ustav 1. LF UK a VFN
Ke Karlovu 640/11, 120 00 Praha 2
tel: 224 965 250
petr.weiss@vfn.cz
http://www.sexuologickaspolecnost.cz/kontakt

Egypt

Post-orgasmic illness syndrome: a case report (https://f1000research.com/articles/2-113)

Germany

Spermaallergie (https://sci-hub.se/https://link.springer.com/article/10.1007/s00105-015-3710-1)

India

MEDICALLY UNEXPLAINED SYMPTOMS EXPLAINED!!!! A CASE OF POST ORGASMIC ILLNESS SYNDROME (https://pdfs.semanticscholar.org/1eb8/93056353f17057297c1e3beba3f928381971.pdf)

Indonesia

https://poiscenter.com/forums/index.php?topic=2575.msg37530#msg37530

Israel

P-03-055 Post orgasmic illness (https://www.jsm.jsexmed.org/article/S1743-6095(16)00625-1/abstract)

Japan

Keio University hospital
Page 220:
https://sci-hub.se/https://doi.org/10.1111/jsm.12182_3

Oman

Preejaculatory illness syndrome: Two cases of a rare psychosomatic disorder (https://www.researchgate.net/profile/Mohamed_Elawdy/publication/286766524_Preejaculatory_illness_syndrome_Two_cases_of_a_rare_psychosomatic_disorder/links/56d1beb608ae4d8d64a5d3a7.pdf)

South Korea

Intralymphatic Immunotherapy With Autologous Semen in a Korean Man With Post-Orgasmic Illness Syndrome (https://www.sciencedirect.com/science/article/pii/S2050116118300199)

Spain

Depreux, N., Basagana, M., & Pascal, M. (2018). Negative allergy study in a case of postorgasmic illness syndrome (POIS). Revista Internacional de Androlog?a, 16(1), 42-44. (https://www.sciencedirect.com/science/article/pii/S1698031X1730064X?via%3Dihub#!)

UK

Post-orgasmic illness syndrome (https://www.urologynews.uk.com/media/7490/uroma17-synopsis-v2.pdf)

282 Flooding as A Treatment for Post Orgasmic Illness Syndrome (https://www.jsm.jsexmed.org/article/S1743-6095(16)30671-3/abstract)

Ukraine

POSTORGASMIC ILLNESS SYNDROME: ??????? ?? ???????? (http://www.irbis-nbuv.gov.ua/cgi-bin/irbis_nbuv/cgiirbis_64.exe?C21COM=2&I21DBN=UJRN&P21DBN=UJRN&IMAGE_FILE_DOWNLOAD=1&Image_file_name=PDF/Msps_2013_18_4_21.pdf)

USA

Rochester, Minnesota
https://www.mayoclinic.org/biographies/ziegelmann-matthew-matt-j-m-d/bio-20460946
Is aware of POIS (saw his twitter comment about POIS article Ref (https://twitter.com/mjziegelmann/status/1316953200537292800))

Providence, Rhode Island
Mark R. Paulos M.D.
Paper (https://www.sciencedirect.com/science/article/pii/S0015028219325609#!)

Boston:
Successful treatment of Post-orgasmic illness syndrome with human chorionic gonadotropin (https://www.sciencedirect.com/science/article/pii/S221444201930453X)

R. Taylor Segraves & Richard Balon (Michigan). They are aware of POIS.
In Memoriam of Two Unique Men (https://www.tandfonline.com/doi/full/10.1080/0092623X.2019.1651497)

Authors from various countries that might be aware of Waldinger's POIS related work

You need to dig further yourself to find out whether they know about POIS:

Disorders of Orgasm and Ejaculation in Men (2004) (https://onlinelibrary.wiley.com/doi/abs/10.1111/j.1743-6109.2004.10109.x)

Disorders of Orgasm and Ejaculation in Men (2010) (https://onlinelibrary.wiley.com/doi/10.1111/j.1743-6109.2010.01782.x)
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: demografx on October 31, 2019, 01:57:41 PM

I'm unaware if these doctors want to see POIS patients.


Even if they don’t, I bet they’re in a great position to recommend one - - one that they trust to be POIS-sympathetic - - but which we know...most doctors aren’t!
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: Muon on October 31, 2019, 08:02:09 PM
Well said Demo and feedback from patients who have visited one of these doctors is appreciated. Please keep posting articles which mentions POIS.
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: demografx on October 31, 2019, 08:05:55 PM
Will do!
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: Quantum on November 01, 2019, 03:04:58 PM
As suggested by Muon, I have regrouped all the Doctors of my POIS Doctors list in the first post of this thread, for easier consultation.

I also have put their location ( city and country) in red, so it will be easier to find the nearest for you.

See the result at https://poiscenter.com/forums/index.php?topic=2575.msg22338#msg22338  ( the first post of this thread )

I will keep it updated as I become aware of other doctors that are aware of what POIS is an that are seeing POIS patient, and have an interest to help understand it and find a treatment for it.

Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: Muon on November 03, 2019, 08:22:21 AM
I've added a paper from Spain to the list. Poisers from Spain could try to contact the authors and couple back to this thread.
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: demografx on November 03, 2019, 01:28:42 PM
Maybe Observer can add to it?
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: demografx on November 03, 2019, 01:46:25 PM
I've added a paper from Spain to the list. Poisers from Spain could try to contact the authors and couple back to this thread.
Emailed to Observer in Spain
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: Observer on November 03, 2019, 05:50:50 PM
I've added a paper from Spain to the list. Poisers from Spain could try to contact the authors and couple back to this thread.

I will try to get in touch with this two female doctors. I might even pay a visit to them to share my impressions about this condition.

Thanks for sharing it!
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: demografx on November 03, 2019, 08:15:21 PM
I've added a paper from Spain to the list. Poisers from Spain could try to contact the authors and couple back to this thread.

I will try to get in touch with this two female doctors. I might even pay a visit to them to share my impressions about this condition.

Thanks for sharing it!


Thanks, Observer!
Thanks, Muon!
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: demografx on November 07, 2019, 04:06:07 AM
Dr. Serge Carrier Im Montreal, QC, Canada who is a urologist also recognizes the condition.
Quantum? Muon?

Included in list?
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: Quantum on November 15, 2019, 11:26:44 AM
Dr. Serge Carrier Im Montreal, QC, Canada who is a urologist also recognizes the condition.
Quantum? Muon?

Included in list?
Already done, Demo, see #7 in my list:  https://poiscenter.com/forums/index.php?topic=2575.msg22338#msg22338
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: Quantum on November 15, 2019, 12:09:54 PM
Added today to the list:

10 -Doctor's name:    Dr De Boer Mannen Gezondheid   ( urologist)
Contact information : 3723 MB, Bilthoven, Netherlands
Phone: 030 662 8327
e-mail: voorbeeld@domeinnaam.nl
contact page:  https://www.dbmgz.nl/deboer/contactpagina (https://www.dbmgz.nl/deboer/contactpagina)
POIS article(s) published :  - - -
Other information : website:  https://www.dbmgz.nl/ (https://www.dbmgz.nl/)  .  Dr de Boers is a Dutch doctor who knew the late Dr Waldinger, so he knows about POIS and accept to see POIS patients.
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: Vandemolen on November 19, 2019, 01:45:17 PM
Email is:
contact@dbmgz.nl

You can delete my post after you edited your post.
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: pharayema on January 17, 2020, 11:05:47 AM
anyone in germany?  ??? ???
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: demografx on January 17, 2020, 12:25:28 PM
anyone in germany?  ??? ???


It's interesting in the Orphanet listing that they list 3 "expert centres" in Germany under health care resources for this disease. It could be that these represent some of the people they consulted in verifying the existence of POIS, I'm not sure. It might be worth our while knowing more about this and I'll ask. I notice 'patient organisations' doesn't list our forums at present. I certainly made them aware of our forums in my original letter and I'll query this at some point.

Ah, just found this info about "expert centres"
http://www.orpha.net/consor/cgi-bin/Clinics.php?lng=EN

Thank you very much Mellivora. With people like you we have much more chance to overcome this condition.

It's not going to go away by itself!

I looked at the three "expert centers" and it looks like they treat in the "area", urology for instance, but I didn't see anything specific about POIS.

We'll have to work at updating our information there, but the biggest step has been made.

Thanks again.

pharayema:

From
https://poiscenter.com/forums/index.php?topic=125.msg3753#msg3753
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: Muon on January 17, 2020, 01:49:45 PM
anyone in germany?  ??? ???
I've come across this article in German about type 1 sensitivity against semen in my search for POIS articles, they also mention POIS so they are aware of it (see full article):

Spermaallergie (https://link.springer.com/article/10.1007/s00105-015-3710-1)

Click here for the full article (https://sci-hub.se/https://link.springer.com/article/10.1007/s00105-015-3710-1)

You may try to contact one of the authors, J.-P. Allam (click on envelope icon in first link or use the email address given in the second link). If you don't get any responds then you could try to get in touch via the university:

Klinik und Poliklinik f?r Dermatologie und Allergologie, Universit?tsklinikum Bonn, Sigmund-Freud-Str. 25, 53105, Bonn, Deutschland
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: demografx on January 17, 2020, 02:45:22 PM
Thanks, Muon

Is “sperm allergy” still a viable concept?
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: Muon on January 17, 2020, 05:12:22 PM
Is “sperm allergy” still a viable concept?

Most results from papers show that the mechanism behind POIS isn't antibody mediated. Only Type IV hypersensitivity hasn't been thoroughly tested. I don't think the classical allergy theory is viable.
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: demografx on January 19, 2020, 09:26:11 AM
Thanks, Muon
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: marrtintintin on February 05, 2020, 04:15:22 PM
There was Dr David Goldmeier in St Mary Hospital, London that I met in 2011 and he met several POIS patients. I have just been referred to him by my GP so will have soon an appointment with him.

How did that go? I also live in london
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: marrtintintin on February 07, 2020, 09:50:06 AM
Any Londoners in this forum? If so, have you got any recommendations in terms of doctors and treatments?

Thank you!
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: jeejay79 on April 02, 2020, 10:04:22 AM
Hiya mate,

I'm not from London but live in Dorset. I would be willing to travel the country for a POIS doc. I reckon I'll try to contact Dr Goldmeier to see if I can after this whole Covid fiasco!

Idk if you've looked into that possibility? I mean of contacting him directly.

Take care!

J
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: Muon on June 03, 2020, 07:06:34 AM
Japan has been added:

https://poiscenter.com/forums/index.php?topic=2575.msg31463#msg31463

Another Doctor to add:

Y. Reisman MD, PhD, FECSM, ECPS                                 

Urologists & Sexologist-NVVS
Honorary Professor of Urology, Federal State Institute of Urology
Visiting Professor of Andrology, Shanghai Jiao Tong University
Program Director & Senior Lecturer Sexology RINO Amsterdam
Past-President of the European Society for Sexual Medicine (ESSM)

Address:
Prof. W.H. Keesomlaan 12
Amstelveen, The Netherlands

Phone: +0031638760984
Email address: info@flare-health.nl
Website: https://www.flare-health.nl/

Article: Clinical experience with post-orgasmic illness syndrome (POIS) patient-characteristics and possible treatment modality (https://sci-hub.se/10.1038/s41443-020-0314-9)

Comment: He knew Dr. Waldinger personally. He would like to help POIS patients.
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: Quantum on June 03, 2020, 09:53:08 PM
Japan has been added:

https://poiscenter.com/forums/index.php?topic=2575.msg31463#msg31463

Another Doctor to add:

Y. Reisman MD, PhD, FECSM, ECPS                                 

Urologists & Sexologist-NVVS
Honorary Professor of Urology, Federal State Institute of Urology
Visiting Professor of Andrology, Shanghai Jiao Tong University
Program Director & Senior Lecturer Sexology RINO Amsterdam
Past-President of the European Society for Sexual Medicine (ESSM)

Address:
Prof. W.H. Keesomlaan 12
Amstelveen, The Netherlands

Phone: +0031638760984
Email address: info@flare-health.nl
Website: https://www.flare-health.nl/

Article: Clinical experience with post-orgasmic illness syndrome (POIS) patient-characteristics and possible treatment modality (https://sci-hub.se/10.1038/s41443-020-0314-9)

Comment: He knew Dr. Waldinger personally. He would like to help POIS patients.

thanks, Muon, added at #11 on the list at the beginning of this thread: https://poiscenter.com/forums/index.php?topic=2575.msg22338#msg22338
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: Iwillbeatthis on June 08, 2020, 01:35:55 PM
Forget Dr Goldmeier he only wants to help people who only have POIS, he seems to think that all the people he sees only have POIS and thats it. Because I have other triggers like showers, exercise histamine foods, chronic infections which are likely because of an immune deficiency or mast cell issue he doesn't want to help me anymore... Its funny because he was the one who suggested to me that I may have a mast cell issue. I understand that he is a doctor only in sexual medicine but if he is seeing people for POIS then he shouldn't stop seeing or helping me for this reason.
And even still the treatments he was suggesting weren't in the slightest helpful... He is a nice guy but its frustrating how even the doctors who see POIS patients can be like this.
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: Muon on June 08, 2020, 02:30:42 PM
It seems to be difficult for doctors to step out of their comfort zone and explore & address potential mast cell issues. If the random guy on the forum without any medical background can read up on mast cell disorders and how you approach treatment then MDs can do it as well. They need to educate themselves on the subject and step out of their comfort zone.

I asked Waldinger a question once, can't remember what question but it was research related and he told me he was looking for patients who had only POIS and nothing else. Then I told him that the majority might have secondary conditions next to POIS which might be intertwined with POIS. They see POIS as an isolated disease which may not be true.
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: Iwillbeatthis on June 08, 2020, 02:59:34 PM
Yes I completely agree with you they need to do a lot more but their ignorance and arrogance is stopping them.

Its funny because I told him ok I don't mind lets only speak about POIS then but because I have secondary issues also he doesn't seem to want to help me anymore. He doesn't want to prescribe me indomethacin yet theres a paper where he gave it to a POIS patient.
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: Clues on June 09, 2020, 07:02:09 AM
I asked Waldinger a question once, can't remember what question but it was research related and he told me he was looking for patients who had only POIS and nothing else. Then I told him that the majority might have secondary conditions next to POIS which might be intertwined with POIS. They see POIS as an isolated disease which may not be true.

That sounds like a total dead end, and I'm disappointed to hear a researcher would have that attitude towards something that's clearly a multi-system disorder. I'm sure isolating it would have made it easier to research, but I've yet to hear of a single POIS sufferer who doesn't have a bunch of other symptoms as well.
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: happy2 on August 15, 2020, 09:47:08 PM
Another doctor's name.....Dr. Jay D. Burstein (Urologist) Sycamore, llinois.  Northwestern medicine and Kish Health Systems affiliated.  Knows this condition.
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: Quantum on August 23, 2020, 09:21:38 PM
Important note:

*** To see the current, updated list of POIS Doctors, go at the beginning of this thread at:
https://poiscenter.com/forums/index.php?topic=2575.msg22338#msg22338 (https://poiscenter.com/forums/index.php?topic=2575.msg22338#msg22338)
Thank you.
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: Muon on October 13, 2020, 09:35:53 AM
A list of physicians for those individuals with Dysautonomia: https://www.dinet.org/physicians/
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: Muon on October 21, 2020, 07:37:57 AM
I got permission from Dr. Rubin to add her to the list.

"I’d be thrilled to be on the list! We have a lot of work to do to research this awful condition!"

Rachel S. Rubin MD, IF
Board Certified Urologist and Sexual Medicine Specialist
IntimMedicine Specialists
Assistant Clinical Professor Department of Urology, Georgetown University

1850 M Street Suite 450
Washington DC 20036
office: 202-293-1000 / fax: 202-463-6150

Website: www.IntimMedicine.com
email: rrubin@intimMedicine.com
twitter: @rachelsrubin1
Instagram: @drrachelrubin
Facebook: DrRachelRubin

Another doctor's name.....Dr. Jay D. Burstein (Urologist) Sycamore, llinois.  Northwestern medicine and Kish Health Systems affiliated.  Knows this condition.

Did someone check up on this doctor whether we can add the name to the list?
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: Clues on October 21, 2020, 08:00:08 AM
"I'd be thrilled to be on the list! We have a lot of work to do to research this awful condition!"

Wow, wish I could meet a doc with that attitude. :o Failing miserably at finding an empathetic doctor willing to investigate properly here in Norway so far.
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: Quantum on November 16, 2020, 02:29:07 PM
POIS Doctors list has just been updated with a 13th Doctor, Dr Rachel Rubin ( thanks to Muon)

See the complete list at https://poiscenter.com/forums/index.php?topic=2575.msg22338#msg22338 (https://poiscenter.com/forums/index.php?topic=2575.msg22338#msg22338)
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: Muon on November 16, 2020, 02:43:27 PM
POIS Doctors list has just been updated with a 13th Doctor, Dr Rachel Rubin ( thanks to Muon)

See the complete list at https://poiscenter.com/forums/index.php?topic=2575.msg22338#msg22338 (https://poiscenter.com/forums/index.php?topic=2575.msg22338#msg22338)

Thanks for the forum management Quantum.
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: Muon on November 18, 2020, 05:14:23 AM
3 more doctors shared their contact info which is great. All from Indonesia and authors of this paper: Post-orgasmic Illness Syndrome: A Closer Look (https://e-journal3.unair.ac.id/index.php/iabj/article/view/34/16)

"Thank you for your information about this community. And yes, you can add me and my colleague to the list :) Hope this community can always help many people to have a better understanding about POIS.

Regards,
William
"

Doctor's name
Contact information
E-mail----------------------------------------------------------------------------------------------------------

Doctor's name
Contact information
E-mail
-----------------------------------------------------------------------------------------------------------------------

Doctor's name
Contact information
E-mail
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: zzzzzz on November 28, 2020, 08:35:47 AM
13 -Doctor's name:  Jia Yin, MD, Allergy Doctor/Professor
President of Allergy Department, Peking Union Medical College Hospital. President, Chinese Medical Doctor Association - Allergy Department
Contact Information: Peking Union Medical College Hospital, Beijing, China, 100032
Office Phone: +86 10 69156114
Email: doctoryinjia@163.com
Website:http://ims.pumch.cn/doctor/detail/4573.html
POIS article(s) published: Postorgasmic illness syndrome (POIS) in a Chinese man: No proof for IgE-mediated allergy to semen  https://sci-hub.se/10.1111/jsm.12813
Other Information: She reported the first POIS patient in China and has built up a team to research POIS
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: Muon on November 28, 2020, 08:39:54 AM
Thanks for sharing this zzzzzz.
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: zzzzzz on November 28, 2020, 08:50:48 AM
13 -Doctor's name:  Jia Yin, MD, Allergy Doctor/Professor
President of Allergy Department, Peking Union Medical College Hospital. President, Chinese Medical Doctor Association - Allergy Department
Contact Information: Peking Union Medical College Hospital, Beijing, China, 100032
Office Phone: +86 10 69156114
Email: doctoryinjia@163.com
Website:http://ims.pumch.cn/doctor/detail/4573.html
POIS article(s) published: Postorgasmic illness syndrome (POIS) in a Chinese man: No proof for IgE-mediated allergy to semen  https://sci-hub.se/10.1111/jsm.12813
Other Information: She reported the first POIS patient in China and has built up a team to research POIS

Revised the information. Please use the version below, thanks!
 
14 -Doctor's name:  Jia Yin, MD, Allergy Doctor/Professor
President of Allergy Department, Peking Union Medical College Hospital. President, Chinese Medical Doctor Association - Allergy Department
Contact Information: Peking Union Medical College Hospital, Beijing, China, 100032
Office Phone: +86 10 69156114
Email: doctoryinjia@163.com
Website:http://ims.pumch.cn/doctor/detail/4573.html
POIS article(s) published: Postorgasmic illness syndrome (POIS) in a Chinese man: No proof for IgE-mediated allergy to semen  https://sci-hub.se/10.1111/jsm.12813
Other Information: Professor Yin reported the first POIS patient in China and has built up a team to research POIS. She is actively recruiting patients who can go to Beijing to have an appointment with her. Please contact Professor Yin via email or make an appointment via Peking Union Medical College Hostpital.
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: Quantum on November 28, 2020, 12:37:02 PM
13 -Doctor's name:  Jia Yin, MD, Allergy Doctor/Professor
President of Allergy Department, Peking Union Medical College Hospital. President, Chinese Medical Doctor Association - Allergy Department
Contact Information: Peking Union Medical College Hospital, Beijing, China, 100032
Office Phone: +86 10 69156114
Email: doctoryinjia@163.com
Website?http://ims.pumch.cn/doctor/detail/4573.html (http://ims.pumch.cn/doctor/detail/4573.html)
POIS article(s) published: Postorgasmic illness syndrome (POIS) in a Chinese man: No proof for IgE-mediated allergy to semen  https://sci-hub.se/10.1111/jsm.12813 (https://sci-hub.se/10.1111/jsm.12813)
Other Information: She reported the first POIS patient in China and has built up a team to research POIS

Revised the information. Please use the version below, thanks!
 
14 -Doctor's name:  Jia Yin, MD, Allergy Doctor/Professor
President of Allergy Department, Peking Union Medical College Hospital. President, Chinese Medical Doctor Association - Allergy Department
Contact Information: Peking Union Medical College Hospital, Beijing, China, 100032
Office Phone: +86 10 69156114
Email: doctoryinjia@163.com
Website?http://ims.pumch.cn/doctor/detail/4573.html (http://ims.pumch.cn/doctor/detail/4573.html)
POIS article(s) published: Postorgasmic illness syndrome (POIS) in a Chinese man: No proof for IgE-mediated allergy to semen  https://sci-hub.se/10.1111/jsm.12813 (https://sci-hub.se/10.1111/jsm.12813)
Other Information: Professor Yin reported the first POIS patient in China and has built up a team to research POIS. She is actively recruiting patients who can go to Beijing to have an appointment with her. Please contact Professor Yin via email or make an appointment via Peking Union Medical College Hostpital.

Thanks for the information,  zzzzzz.  I am glad to confirm that Dr Jia Yin have been added at #14 of our POIS Doctors list:
14-Doctor's name:  Jia Yin, MD, Allergy Doctor/ProfessorPresident of Allergy Department, Peking Union Medical College Hospital. President, Chinese Medical Doctor Association - Allergy Department
Contact information : Peking Union Medical College Hospital,Beijing, China, 100032
Office Phone: +86 10 69156114
Email: doctoryinjia@163.com
 Website: http://ims.pumch.cn/doctor/detail/4573.html (http://ims.pumch.cn/doctor/detail/4573.html)
POIS article(s) published : Postorgasmic illness syndrome (POIS) in a Chinese man: No proof for IgE-mediated allergy to semen  https://sci-hub.se/10.1111/jsm.12813 (https://sci-hub.se/10.1111/jsm.12813)
Other information : Professor Yin reported the first POIS patient in China and has built up a team to research POIS. She is actively recruiting patients who can go to Beijing to have an appointment with her. Please contact Professor Yin via email or make an appointment via Peking Union Medical College Hospital.
--

If there are any updates to be done, please do not hesitate to contact me.

( For anyone who wants to see the whole POIS Doctors list, it is found at the top of this thread, at https://poiscenter.com/forums/index.php?topic=2575.msg22338#msg22338 (https://poiscenter.com/forums/index.php?topic=2575.msg22338#msg22338) )
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: Disaster on June 06, 2021, 07:29:45 PM
Hey guys, Awesome to have a list, but on the other hand I think we need to make some kind of campaign in the medical community to raise interest in helping us. We should have at least one doctor per 5,000,000 population. So in some countries that will be 1 doctor and in America that will be close to 1 per every state. That is just an arbitrary goal, but the main thing is to brainstorm how we could recruit more onto the list of interested doctors. I?ve have called many over the years and found some interest but mostly got the brush off. I started with Prostatitis doctors, but a lot of them are only interested if they could make money off of expensive procedures. If we could get serious interested they could pool their resources and make small case studies with groups of us..
Title: Rachel S. Rubin, MD
Post by: Muon on June 27, 2021, 01:26:24 PM
https://twitter.com/drrachelrubin/status/1407425529309978624

I gave her contact info of Dr. Theoharides and vice versa. We need some experts on this.
Title: Re: Rachel S. Rubin, MD
Post by: hardhead14 on June 30, 2021, 07:55:08 PM
https://twitter.com/drrachelrubin/status/1407425529309978624

I gave her contact info of Dr. Theoharides and vice versa. We need some experts on this.

I actually contacted Dr. Rubin to make an appointment for this condition because I'm not far from where she is but currently can't afford the fee for even an initial appointment. From what she messaged me, she already had a few patients that have Pois and said that she's learning more and more about the best ways to manage this thing. Hopefully, in the future, I'll be sure to visit her and give you all an update on how things are going *finger crossed*
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: Quantum on July 01, 2021, 08:12:26 AM
Thanks, hardhead, keep us updated.   I wish you to be able to see her sometimes in the future.
Title: Re: List of Doctors Who Knows about POIS and are seeing POIS patients
Post by: Quantum on July 27, 2021, 09:56:17 AM
Thanks to Adrian920, who have sent me the information, a new POIS Doctor has been added to the list, Dr Kam Mann:
15-Doctor's name:  Kam Mann, MD, Physician in Andrology, MBBS MRCP MRCGP
Contact information : BMI Sarum Road Hospital, Sarum Road, Winchester, Hampshire, England  SO22 5HA  and also International Andrology London ,78 Seymour Place, London United Kingdom ,W1H 2EH
Email: unknown
Website(s): https://www.wessexandrology.com/about-the-team (https://www.wessexandrology.com/about-the-team) ,   https://london-andrology.co.uk/medical-experts/dr-kam-mann/ (https://london-andrology.co.uk/medical-experts/dr-kam-mann/) and https://www.bmihealthcare.co.uk/consultants/kam-mann#aria-panel-1/ (https://www.bmihealthcare.co.uk/consultants/kam-mann#aria-panel-1/) ( there is a "Chat with Us" link at the top right of this webpage, in order to get information)POIS article(s) published : He presented a POIS Case Study at The British Society for Sexual Medicine Annual London Conference, in 2018  http://www.bssm.org.uk/wp-content/uploads/2018/04/PROGRAMME-MAY-11TH-RSM.pdf (http://www.bssm.org.uk/wp-content/uploads/2018/04/PROGRAMME-MAY-11TH-RSM.pdf)
Other information : Dr Mann is an experienced Men’s Health Physician with a specialist interest in Sexual Medicine


I have sent an e-mail to one of his clinics, so maybe I will be able to refine the contact information for him.



See the complete list at https://poiscenter.com/forums/index.php?topic=2575.msg22338#msg22338 (https://poiscenter.com/forums/index.php?topic=2575.msg22338#msg22338)