Dr Nan Wise checking in for an update

[demografx]

I don't know, Sameer

[sameer7777]

OK sir Thankyou

[demografx]

You're quite welcome, Sameer

[demografx]

(2) Cerbomed tVNS (vagus nerve stimulator):






From my previous post:

"I'm still excited at the possibility of that ear stimulator working on POIS!

As per Dr. Komisaruk's recent email to me: "The device stimulates the vagus nerve projections to the brain, thus activating the brain regions to which the visceral organs normally send their information. Thus the stimulation may interact beneficially with the visceral input to the brain, which may have become disrupted, as represented by the POIS symptoms."

[Prancer]

Thanks for reaching out Dr. Wise - we appreciate hearing from you.  A lot of us are very excited and optimistic about the upcoming research - while we do not necessarily expect an instant fix, we are grateful for the opportunity and are looking forward to having some scientific research that will, at a minimum, substantiate that our symptoms are consistent, related, and potentially caused by an underlying issue.   Thanks for treating this research will care - this is an issue that is truly significant in all of our lives.

Well said daropac. Thank you Dr. Wise for checking in.

I'm more and more optimistic you guys now that I'm learning more about the vagus nerve and how it can without a doubt be a potential cure for the symptoms we experience. Thanks demografx for those stimulator graphics!

[demografx]

Thanks demografx for those stimulator graphics!

[demografx]

I'm more and more optimistic you guys now that I'm learning more about the vagus nerve and how it can without a doubt be a potential cure for the symptoms we experience...

Very encouraging to hear that from you, Prancer!

[Habibou]

Very glad to hear we are on the right path trying to understand what's going wrong with our brain !
Thank you Dr Wise for your communication, it is really appreciated ! we are looking forward to hearing from you soon

[DrNanWise]

Dear Forum,

Dr Nan Wise here!

I am making significant progress interviewing some wonderful gentlemen who have already volunteered for the study.  These phone and SKYPE interviews have been giving the team lots of food for thought.  There is nothing like going into a deep, open-ended conversation to develop a more nuanced perspective on the syndrome.  Dr Barry and I have been discussing the information I have been gathering in these interviews--and how this relates to some of our ideas about the syndrome. 

The heart rate variability equipment has arrived. Dr Barry is becoming acquainted with the computer programs which analyze the output.  We should be ready by April to bring in some of the gentlemen who live locally to begin the lab-based part of the study.

Thank you for your patience.  I have tremendous respect for all of you and empathy for how much POIS affects your lives.

Warmly,
Dr Nan

[Hopeful Indian]

Thanks Dr Nan Wise...

[Colm]

That's a good lift for the weekend - thanks :-)

[demografx]

Dear Forum,

Dr Nan Wise here!

I am making significant progress interviewing some wonderful gentlemen who have already volunteered for the study.  These phone and SKYPE interviews have been giving the team lots of food for thought.  There is nothing like going into a deep, open-ended conversation to develop a more nuanced perspective on the syndrome.  Dr Barry and I have been discussing the information I have been gathering in these interviews--and how this relates to some of our ideas about the syndrome. 

The heart rate variability equipment has arrived. Dr Barry is becoming acquainted with the computer programs which analyze the output.  We should be ready by April to bring in some of the gentlemen who live locally to begin the lab-based part of the study.

Thank you for your patience.  I have tremendous respect for all of you and empathy for how much POIS affects your lives.

Warmly,
Dr Nan

Thank you, Dr. Wise!
     

[Nightingale]

We should be ready by April to bring in some of the gentlemen who live locally to begin the lab-based part of the study.

I missed this post in all the traffic! I just spoke by Skype with Dr. Wise, she again said she is hoping to have participants come in by the end of this month!

I have been describing to Dr. Wise in very fine detail how my version of POIS feels like. The arousal, ejaculation, orgasm, and how all my symptoms set in, as if I were giving a very detailed news report about how this illness feels for me. It's a very open conversation, if you are going to talk to her you will be sharing some very personal things! And that's why I'm very excited to know we have Dr. Wise helping us, she has a great attitude and has done a great job at making me feel comfortable in sharing this personal information of mine. She is a sex therapist, so it is like therapy. You tell her how you feel, and she asks more questions

I would encourage you all to work on your own "report" of how POIS happens to you, like a story but with very specific details. The most important details are what symptoms and how strong they are, at specific times (arousal, orgasm, post orgasm). I have been very specific, and I have more to describe. I'm reminded just how complex and amazing sex, orgasm and illness really is. Describing to another person POIS, what I've known so well for many many years, is not easy!

[DrNanWise]

Dear Forum Members,

We are now ready to start our lab studies and will be making arrangements to bring in participants who have already applied to the study.

On another note, the new online survey which is being developed is almost ready for a massive roll out!  We are adding a few questions and modifying others.  An example of something we will be adding is whether POIS symptoms are reliably induced by sexual activity without orgasm--and whether the severity of the symptoms is correlated with the duration of sexual stimulation--whether or not it leads up to orgasm.

I am very excited about the potential of reaching as many people suffering from POIS such that we can get an organized overview of the patterns in symptom onsets, duration, and severity.

I will keep you posted.

With appreciation,

Nan Wise

[Outsider]

Dear Forum Members,

We are now ready to start our lab studies and will be making arrangements to bring in participants who have already applied to the study.

On another note, the new online survey which is being developed is almost ready for a massive roll out!  We are adding a few questions and modifying others.  An example of something we will be adding is whether POIS symptoms are reliably induced by sexual activity without orgasm--and whether the severity of the symptoms is correlated with the duration of sexual stimulation--whether or not it leads up to orgasm.

I am very excited about the potential of reaching as many people suffering from POIS such that we can get an organized overview of the patterns in symptom onsets, duration, and severity.

I will keep you posted.

With appreciation,

Nan Wise

Dear dr Wise
Do you have any idea what s wrong with us
You spoke about the x nerve, what s exactly your though
Best regards

[Hoping]

Dear Forum Members,

We are now ready to start our lab studies and will be making arrangements to bring in participants who have already applied to the study.

On another note, the new online survey which is being developed is almost ready for a massive roll out!  We are adding a few questions and modifying others.  An example of something we will be adding is whether POIS symptoms are reliably induced by sexual activity without orgasm--and whether the severity of the symptoms is correlated with the duration of sexual stimulation--whether or not it leads up to orgasm.

I am very excited about the potential of reaching as many people suffering from POIS such that we can get an organized overview of the patterns in symptom onsets, duration, and severity.

I will keep you posted.

With appreciation,

Nan Wise

Dear dr Wise
Do you have any idea what s wrong with us
You spoke about the x nerve, what s exactly your though
Best regards

She's referring to the vegas nerve, which is the subject of the Rutgers study. I encourage you (and others) to look at previous posts in this thread to get additional information. A quick google search of "vegas nerve" could probably answer some of your questions as well. While I totally sympathize with your desire to get more information about the study and its hypothesis, I think we in the forum should be cautious about asking questions like these of the research team. I'm sure their time would be better spent on their research (which is benefitting us!) rather than continually providing background information that can be found elsewhere in the forum.

[Stef]

Dear dr Wise
Do you have any idea what s wrong with us
You spoke about the x nerve, what s exactly your though
Best regards

Hello, Outsider --

How are you doing? Is the dystonia any better -- have you had any relief of the symptoms since you last posted?

I imagine it's very difficult to read back through the forum posts when English isn't your primary language. Your question to Dr. Wise was perfectly fine, so don't ever hesitate to ask questions here! That applies to everyone on this forum. This is the best place to ask questions, where the atmosphere is supportive and you're among friends.

Dr. Komisaruk and his team have a theory that vagus nerve activity may play a central role in POIS. But it's only a theory at this point. The study is in its very early stages, so there are no answers yet.

Dr. Wise posted her email address in case anyone wants to write to her directly. Outsider, if you'd like to ask her your questions directly, her email is nanwise@psychology.rutgers.edu.

Best wishes,
Stef

[Hoping]

Hello, Outsider --

How are you doing? Is the dystonia any better -- have you had any relief of the symptoms since you last posted?

I imagine it's very difficult to read back through the forum posts when English isn't your primary language. Your question to Dr. Wise was perfectly fine, so don't ever hesitate to ask questions here! That applies to everyone on this forum. This is the best place to ask questions, where the atmosphere is supportive and you're among friends.

Dr. Komisaruk and his team have a theory that vagus nerve activity may play a central role in POIS. But it's only a theory at this point. The study is in its very early stages, so there are no answers yet.

Dr. Wise posted her email address in case anyone wants to write to her directly. Outsider, if you'd like to ask her your questions directly, her email is nanwise@psychology.rutgers.edu.

Best wishes,
Stef

Good points Stef. I didn't mean to discourage participation. It's just that I feel  such a question is better if directed to memebers of the forum rather than Dr. Wise who I assume is quite busy. On the other hand, if Dr. Wise is willing/able to monitor the forum and answer questions like these (and it sounds like perhaps she is), then people should feel free. I know we're all in this fight together!

[Stef]

Good points Stef. I didn't mean to discourage participation. It's just that I feel  such a question is better if directed to memebers of the forum rather than Dr. Wise who I assume is quite busy. On the other hand, if Dr. Wise is willing/able to monitor the forum and answer questions like these (and it sounds like perhaps she is), then people should feel free. I know we're all in this fight together!

Hi, Hoping --

I knew you weren't trying to discourage participation!

But really, all questions about POIS or the Rutgers study are fine to post on this forum. This is the best place to ask.

The research team likely is very busy...but they're not that busy.  Maybe some questions could be better answered by sending them directly to Dr. Wise, as I tend to think she might not notice a brief question to her via the forum. In any case, she's open and willing to receive and reply to direct emails.

Also, it can be difficult for some forum members to navigate back to find previous threads. I can't imagine trying to search back if English isn't your primary language, or especially if someone is in the midst of full-blown POIS (which I can only imagine). It's why I repeat info, like Dr. Wise's email address...just to try to make things a bit easier.

Take care,
Stef



 

[Nightingale]

Dear Forum Members,

We are now ready to start our lab studies and will be making arrangements to bring in participants who have already applied to the study.

On another note, the new online survey which is being developed is almost ready for a massive roll out!  We are adding a few questions and modifying others.  An example of something we will be adding is whether POIS symptoms are reliably induced by sexual activity without orgasm--and whether the severity of the symptoms is correlated with the duration of sexual stimulation--whether or not it leads up to orgasm.

I am very excited about the potential of reaching as many people suffering from POIS such that we can get an organized overview of the patterns in symptom onsets, duration, and severity.

I will keep you posted.

With appreciation,

Nan Wise

:-)