Post Orgasmic Illness Syndrome (P.O.I.S.)
General Category => POIS Research => Topic started by: DrNanWise on February 09, 2015, 10:30:59 AM
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Dear Community,
My name is Dr Nan Wise -- I am a certified sex therapist and cognitive neuroscientist--and I have come onboard as the clinical coordinator for the POIS study with Dr Barry Komisaruk. I apologize for the delays in getting started. Getting a research study up and running is a daunting task with all of the bureacracy involved. Our most immediate goal on our end is to have study participants who live close to the Newark campus come in for some pilot testing. Dr Komisaruk and I are meeting tomorrow to discuss details and I will post an update following that meeting. I look forward to our working together and hope to make significant progress with this study.
Nan Wise, Ph.D
Certified Sex Therapist, AASECT
Assistant Research Professor, Psychology,Rutgers-Newark Fellow, The American Psychotherapy Association
Fellow, The National Board for Clinical Hypnotherapists
Board Certified Diplomate, The American Board of Examiners in Social Work
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Welcome, Dr. Wise!!!
(http://schools.springisd.org/images/102-Welcome%20Animation.gif)
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Welcome, and we look forward to your update!
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Your communication is appreciated Dr. Wise.
It will offer some hope and help with the isolation felt by a lot of men, some also who probably visit the forum, but don't write here so often now.
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Thanks for reaching out Dr. Wise - we appreciate hearing from you. A lot of us are very excited and optimistic about the upcoming research - while we do not necessarily expect an instant fix, we are grateful for the opportunity and are looking forward to having some scientific research that will, at a minimum, substantiate that our symptoms are consistent, related, and potentially caused by an underlying issue. Thanks for treating this research will care - this is an issue that is truly significant in all of our lives.
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Thank you for reaching out to us. We are reaching out ourselves constantly, looking for help and hope. Thanks for taking on this role! It is hugely appreciated :)
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Pls help us Dr !!!
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I am married and if I have sex without even ejaculations I get all the symptoms the most dangerous super anxiety and super depression any meds pls help Dr pls
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Pls help us Dr !!!
...any meds pls help Dr pls...
Dear Sameer, (and others),
Dr Wise _IS_ helping us, right now (!), Sameer, but please keep in mind that The Rutgers POIS Study is all about RESEARCH of our POIS condition... ***not*** immediate/urgent TREATMENT of POIS .
Since we are far from any CONCLUSIVE research on POIS, we must (unfortunately) be patient and we must all rely on ourselves to carefully exchange our own individual successful experience/info/theories and for us to work with our own chosen ***local*** healthcare providers for more immediate TREATMENT.
As a rare disorder, POIS is indeed fortunate to have a top-notch university medical research center -- with the attention of superb researchers such as Dr Nan Wise, Dr Barry Komisaruk, et al...on our side...in this battle to end POIS.
Best regards,
Demo
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OK I understand Thankyou
I wish one of them is like Dr house MD.... Lol
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Dear Community,
I met with Dr Komisaruk yesterday. The plan to go forward with the research project is as follows: I will be contacting potential participants who live close to campus to arrange a phone or SKYPE session to collect more information. Meanwhile, we are waiting for the delivery of the devices we are going to use to measure cardiac variability and also for the devices that will be used for the vagus stimulation. Once we get the devices delivered--which should be within a few weeks--we will begin some preliminary studies on campus. We will pilot the protocol for the study, with those participants who live close to our campus in Newark. Please feel free to contact me here with any questions or concerns you have about our study.
Looking forward to this project progressing.
Nan Wise, Ph.D
Certified Sex Therapist, AASECT
Assistant Research Professor, Psychology,Rutgers-Newark
Fellow, The American Psychotherapy Association
Fellow, The National Board for Clinical Hypnotherapists
Board Certified Diplomate, The American Board of Examiners in Social Work
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Thank you, Dr. Wise.
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Dear Community,
I met with Dr Komisaruk yesterday. The plan to go forward with the research project is as follows: I will be contacting potential participants who live close to campus to arrange a phone or SKYPE session to collect more information. Meanwhile, we are waiting for the delivery of the devices we are going to use to measure cardiac variability and also for the devices that will be used for the vagus stimulation. Once we get the devices delivered--which should be within a few weeks--we will begin some preliminary studies on campus. We will pilot the protocol for the study, with those participants who live close to our campus in Newark. Please feel free to contact me here with any questions or concerns you have about our study.
Looking forward to this project progressing.
Nan Wise, Ph.D
Certified Sex Therapist, AASECT
Assistant Research Professor, Psychology,Rutgers-Newark
Fellow, The American Psychotherapy Association
Fellow, The National Board for Clinical Hypnotherapists
Board Certified Diplomate, The American Board of Examiners in Social Work
Fantastic. So great to hear specifics! Are there any tests/values that would be helpful to complete/determine in preparation for a potential call from you?
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Thankyou
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Fantastic. So great to hear specifics! Are there any tests/values that would be helpful to complete/determine in preparation for a potential call from you?
Nightingale, thanks for articulating that nice, Study-proactive question!
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What is machine for vagus nerve
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OK I understand Thankyou
I wish one of them is like Dr house MD.... Lol
:)
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What is machine for vagus nerve
(1) The fMRI Siemens Trio is the central machine for our vagus nerve study, (2) Cerbomed for the ear device that stimulates the vagus nerve, and (3) another machine/device to measure heart changes in the Study (I don't know exactly from where -- maybe you can ask Dr Wise here on this forum if she can advise you more about the 3rd machine.)
(1) fMRI machine for POIS study of our vagus nerve:
(http://academicdepartments.musc.edu/sebin/d/e/siemens3t.jpg)
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(http://i858.photobucket.com/albums/ab143/demografx/Mobile%20Uploads/899DA16D-5365-4E91-981E-102E1A2A8237.jpg)
(http://i858.photobucket.com/albums/ab143/demografx/Mobile%20Uploads/642D6C8A-7CE5-4257-B606-81AA6976AB26_1.jpg)
(http://i858.photobucket.com/albums/ab143/demografx/Mobile%20Uploads/D5D4BBE8-FEFA-4E3D-8FC7-E9830017E39D.jpg)
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Is it some how related to my tinnitus ???
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I don't know, Sameer :(
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OK sir Thankyou
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You're quite welcome, Sameer :)
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(2) Cerbomed tVNS (vagus nerve stimulator):
(http://www.implantable-device.com/wp-content/uploads/2013/12/Cerbomed_Nemos.jpg)
(http://i858.photobucket.com/albums/ab143/demografx/Mobile%20Uploads/2014-01/D173F39D-20C2-413B-9547-4E6094434F9C.jpg)
From my previous post:
"I'm still excited at the possibility of that ear stimulator working on POIS!
As per Dr. Komisaruk's recent email to me: "The device stimulates the vagus nerve projections to the brain, thus activating the brain regions to which the visceral organs normally send their information. Thus the stimulation may interact beneficially with the visceral input to the brain, which may have become disrupted, as represented by the POIS symptoms."
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Thanks for reaching out Dr. Wise - we appreciate hearing from you. A lot of us are very excited and optimistic about the upcoming research - while we do not necessarily expect an instant fix, we are grateful for the opportunity and are looking forward to having some scientific research that will, at a minimum, substantiate that our symptoms are consistent, related, and potentially caused by an underlying issue. Thanks for treating this research will care - this is an issue that is truly significant in all of our lives.
Well said daropac. Thank you Dr. Wise for checking in.
I'm more and more optimistic you guys now that I'm learning more about the vagus nerve and how it can without a doubt be a potential cure for the symptoms we experience. Thanks demografx for those stimulator graphics!
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Thanks demografx for those stimulator graphics!
:)
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I'm more and more optimistic you guys now that I'm learning more about the vagus nerve and how it can without a doubt be a potential cure for the symptoms we experience...
Very encouraging to hear that from you, Prancer!
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Very glad to hear we are on the right path trying to understand what's going wrong with our brain !
Thank you Dr Wise for your communication, it is really appreciated ! we are looking forward to hearing from you soon :)
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Dear Forum,
Dr Nan Wise here!
I am making significant progress interviewing some wonderful gentlemen who have already volunteered for the study. These phone and SKYPE interviews have been giving the team lots of food for thought. There is nothing like going into a deep, open-ended conversation to develop a more nuanced perspective on the syndrome. Dr Barry and I have been discussing the information I have been gathering in these interviews--and how this relates to some of our ideas about the syndrome.
The heart rate variability equipment has arrived. Dr Barry is becoming acquainted with the computer programs which analyze the output. We should be ready by April to bring in some of the gentlemen who live locally to begin the lab-based part of the study.
Thank you for your patience. I have tremendous respect for all of you and empathy for how much POIS affects your lives.
Warmly,
Dr Nan
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Thanks Dr Nan Wise...
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That's a good lift for the weekend - thanks :-)
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Dear Forum,
Dr Nan Wise here!
I am making significant progress interviewing some wonderful gentlemen who have already volunteered for the study. These phone and SKYPE interviews have been giving the team lots of food for thought. There is nothing like going into a deep, open-ended conversation to develop a more nuanced perspective on the syndrome. Dr Barry and I have been discussing the information I have been gathering in these interviews--and how this relates to some of our ideas about the syndrome.
The heart rate variability equipment has arrived. Dr Barry is becoming acquainted with the computer programs which analyze the output. We should be ready by April to bring in some of the gentlemen who live locally to begin the lab-based part of the study.
Thank you for your patience. I have tremendous respect for all of you and empathy for how much POIS affects your lives.
Warmly,
Dr Nan
Thank you, Dr. Wise!
:) :)
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We should be ready by April to bring in some of the gentlemen who live locally to begin the lab-based part of the study.
I missed this post in all the traffic! I just spoke by Skype with Dr. Wise, she again said she is hoping to have participants come in by the end of this month!
I have been describing to Dr. Wise in very fine detail how my version of POIS feels like. The arousal, ejaculation, orgasm, and how all my symptoms set in, as if I were giving a very detailed news report about how this illness feels for me. It's a very open conversation, if you are going to talk to her you will be sharing some very personal things! And that's why I'm very excited to know we have Dr. Wise helping us, she has a great attitude and has done a great job at making me feel comfortable in sharing this personal information of mine. She is a sex therapist, so it is like therapy. You tell her how you feel, and she asks more questions :P
I would encourage you all to work on your own "report" of how POIS happens to you, like a story but with very specific details. The most important details are what symptoms and how strong they are, at specific times (arousal, orgasm, post orgasm). I have been very specific, and I have more to describe. I'm reminded just how complex and amazing sex, orgasm and illness really is. Describing to another person POIS, what I've known so well for many many years, is not easy!
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Dear Forum Members,
We are now ready to start our lab studies and will be making arrangements to bring in participants who have already applied to the study.
On another note, the new online survey which is being developed is almost ready for a massive roll out! We are adding a few questions and modifying others. An example of something we will be adding is whether POIS symptoms are reliably induced by sexual activity without orgasm--and whether the severity of the symptoms is correlated with the duration of sexual stimulation--whether or not it leads up to orgasm.
I am very excited about the potential of reaching as many people suffering from POIS such that we can get an organized overview of the patterns in symptom onsets, duration, and severity.
I will keep you posted.
With appreciation,
Nan Wise
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Dear Forum Members,
We are now ready to start our lab studies and will be making arrangements to bring in participants who have already applied to the study.
On another note, the new online survey which is being developed is almost ready for a massive roll out! We are adding a few questions and modifying others. An example of something we will be adding is whether POIS symptoms are reliably induced by sexual activity without orgasm--and whether the severity of the symptoms is correlated with the duration of sexual stimulation--whether or not it leads up to orgasm.
I am very excited about the potential of reaching as many people suffering from POIS such that we can get an organized overview of the patterns in symptom onsets, duration, and severity.
I will keep you posted.
With appreciation,
Nan Wise
Dear dr Wise
Do you have any idea what s wrong with us
You spoke about the x nerve, what s exactly your though
Best regards
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Dear Forum Members,
We are now ready to start our lab studies and will be making arrangements to bring in participants who have already applied to the study.
On another note, the new online survey which is being developed is almost ready for a massive roll out! We are adding a few questions and modifying others. An example of something we will be adding is whether POIS symptoms are reliably induced by sexual activity without orgasm--and whether the severity of the symptoms is correlated with the duration of sexual stimulation--whether or not it leads up to orgasm.
I am very excited about the potential of reaching as many people suffering from POIS such that we can get an organized overview of the patterns in symptom onsets, duration, and severity.
I will keep you posted.
With appreciation,
Nan Wise
Dear dr Wise
Do you have any idea what s wrong with us
You spoke about the x nerve, what s exactly your though
Best regards
She's referring to the vegas nerve, which is the subject of the Rutgers study. I encourage you (and others) to look at previous posts in this thread to get additional information. A quick google search of "vegas nerve" could probably answer some of your questions as well. While I totally sympathize with your desire to get more information about the study and its hypothesis, I think we in the forum should be cautious about asking questions like these of the research team. I'm sure their time would be better spent on their research (which is benefitting us!) rather than continually providing background information that can be found elsewhere in the forum.
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Dear dr Wise
Do you have any idea what s wrong with us
You spoke about the x nerve, what s exactly your though
Best regards
Hello, Outsider --
How are you doing? Is the dystonia any better -- have you had any relief of the symptoms since you last posted?
I imagine it's very difficult to read back through the forum posts when English isn't your primary language. Your question to Dr. Wise was perfectly fine, so don't ever hesitate to ask questions here! That applies to everyone on this forum. This is the best place to ask questions, where the atmosphere is supportive and you're among friends.
Dr. Komisaruk and his team have a theory that vagus nerve activity may play a central role in POIS. But it's only a theory at this point. The study is in its very early stages, so there are no answers yet.
Dr. Wise posted her email address in case anyone wants to write to her directly. Outsider, if you'd like to ask her your questions directly, her email is nanwise@psychology.rutgers.edu.
Best wishes,
Stef
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Hello, Outsider --
How are you doing? Is the dystonia any better -- have you had any relief of the symptoms since you last posted?
I imagine it's very difficult to read back through the forum posts when English isn't your primary language. Your question to Dr. Wise was perfectly fine, so don't ever hesitate to ask questions here! That applies to everyone on this forum. This is the best place to ask questions, where the atmosphere is supportive and you're among friends.
Dr. Komisaruk and his team have a theory that vagus nerve activity may play a central role in POIS. But it's only a theory at this point. The study is in its very early stages, so there are no answers yet.
Dr. Wise posted her email address in case anyone wants to write to her directly. Outsider, if you'd like to ask her your questions directly, her email is nanwise@psychology.rutgers.edu.
Best wishes,
Stef
Good points Stef. I didn't mean to discourage participation. It's just that I feel such a question is better if directed to memebers of the forum rather than Dr. Wise who I assume is quite busy. On the other hand, if Dr. Wise is willing/able to monitor the forum and answer questions like these (and it sounds like perhaps she is), then people should feel free. I know we're all in this fight together!
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Good points Stef. I didn't mean to discourage participation. It's just that I feel such a question is better if directed to memebers of the forum rather than Dr. Wise who I assume is quite busy. On the other hand, if Dr. Wise is willing/able to monitor the forum and answer questions like these (and it sounds like perhaps she is), then people should feel free. I know we're all in this fight together!
Hi, Hoping --
I knew you weren't trying to discourage participation!
But really, all questions about POIS or the Rutgers study are fine to post on this forum. This is the best place to ask.
The research team likely is very busy...but they're not that busy. Maybe some questions could be better answered by sending them directly to Dr. Wise, as I tend to think she might not notice a brief question to her via the forum. In any case, she's open and willing to receive and reply to direct emails.
Also, it can be difficult for some forum members to navigate back to find previous threads. I can't imagine trying to search back if English isn't your primary language, or especially if someone is in the midst of full-blown POIS (which I can only imagine). It's why I repeat info, like Dr. Wise's email address...just to try to make things a bit easier.
Take care,
Stef
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Dear Forum Members,
We are now ready to start our lab studies and will be making arrangements to bring in participants who have already applied to the study.
On another note, the new online survey which is being developed is almost ready for a massive roll out! We are adding a few questions and modifying others. An example of something we will be adding is whether POIS symptoms are reliably induced by sexual activity without orgasm--and whether the severity of the symptoms is correlated with the duration of sexual stimulation--whether or not it leads up to orgasm.
I am very excited about the potential of reaching as many people suffering from POIS such that we can get an organized overview of the patterns in symptom onsets, duration, and severity.
I will keep you posted.
With appreciation,
Nan Wise
:-)
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Happy to know that we can ask questions here and can ask directly to Dr.Wise. Feeling not alone in this world!
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Great News Dr. Wise.
For those involved, will this be the Wufoo questionaire?
As soon as it's ready let us know, let's get the link advertised all over the forum.
Hopefully we can get a campain going to get as many answers as possible.
If Demo is up to it perhaps we can convince him to get his graphics going.
Dear Forum Members,
We are now ready to start our lab studies and will be making arrangements to bring in participants who have already applied to the study.
On another note, the new online survey which is being developed is almost ready for a massive roll out! We are adding a few questions and modifying others. An example of something we will be adding is whether POIS symptoms are reliably induced by sexual activity without orgasm--and whether the severity of the symptoms is correlated with the duration of sexual stimulation--whether or not it leads up to orgasm.
I am very excited about the potential of reaching as many people suffering from POIS such that we can get an organized overview of the patterns in symptom onsets, duration, and severity.
I will keep you posted.
With appreciation,
Nan Wise
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An example of something we will be adding is whether POIS symptoms are reliably induced by sexual activity without orgasm--and whether the severity of the symptoms is correlated with the duration of sexual stimulation--whether or not it leads up to orgasm.
An excellent question. I'm looking forward to the survey!
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Very nice
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This is fantastic! The end of this illness is still down the road, but it's coming into view finally.
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For those involved, will this be the Wufoo questionaire?
Yes.
As soon as it's ready let us know, let's get the link advertised all over the forum.
We are now implementing some new questions suggested by Dr. Wise and Prof. Komisaruk. We are confident that we can finalize the questionnaire very soon and then roll it out.
Hopefully we can get a campain going to get as many answers as possible.
Yes, that would be great!
If Demo is up to it perhaps we can convince him to get his graphics going.
Would be cool!
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Great News Dr. Wise.
For those involved, will this be the Wufoo questionaire?
As soon as it's ready let us know, let's get the link advertised all over the forum.
Hopefully we can get a campain going to get as many answers as possible.
If Demo is up to it perhaps we can convince him to get his graphics going
That's great! Once they survey is ready, we should also send out an email with the link. I believe demo has the email list. I know we used it for the idiegogo campaign. It would be great to reach members who were previously very involved in the forum but whose participation has slowed over the years (this is true in my case I'm sorry to say). I'm Skyping with Dr. Wise this morning. Looking forward to the conversation!
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Any questionaires needed for the research ?!
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I just sent an email to Dr K, cc: Dr Nan Wise, copy/pasting the [below] 3 posts in the body of the email.
Email Subject line: "Incorporating POIS forum posts to augment your Study".
Dr Nan Wise's reply:
On Jun 17, 2015, at 4:58 AM, nanwise@psychology.rutgers.edu wrote:
This is very interesting. I will discuss this with the rest of the team!
demografx
Administrator
Hero Member
Posts: 1929
Re: Allergy or neurological
« Reply #38 on: June 12, 2015, 06:22:04 PM »
Quote from: Colm on June 11, 2015, 03:41:25 PM
...I would assume the researchers are keeping in touch with these great
contributions on the forum here, and bringing the newest thinking into
their analysis...
I encourage you, Colm, and all, to send an email to Barry or Dr Nan,
expressing your (Colm's) sentiments above. I think it's critical for at
least a Rutgers staffer to read/study/convey to all the POIS-Rutgers Team.
Thanks.
Report to moderator 104.172.245.112 (?)
Nearly POIS-free symptomatically, treatment consisting of daily (365
days/year) testosterone patches.
TRT must be checked out carefully with your doctor due to fertility,
cardiac and other risks associated with it.
30+ years of severe 4-days' POIS, married, raised a family, started/ran a
business
demografx
Administrator
Hero Member
Posts: 1929
Re: Allergy or neurological
« Reply #39 on: June 12, 2015, 06:27:38 PM »
Timing is good since we are now collaborating on meaningful member
characteristics. Your postings analysis may prove an interesting part of
the study. Agree?
Report to moderator 104.172.245.112 (?)
Nearly POIS-free symptomatically, treatment consisting of daily (365
days/year) testosterone patches.
TRT must be checked out carefully with your doctor due to fertility,
cardiac and other risks associated with it.
30+ years of severe 4-days' POIS, married, raised a family, started/ran a
business
b_jim
Sr. Member
Posts: 409
Re: Allergy or neurological
« Reply #40 on: Today at 01:20:42 AM »
I sincerely hope that searchers use our posts. There is more chance if a
large number of cases have the same observations.
For example whan we had 15... 20 and more Poisers improving symptoms with
niacin.
Nan Wise, Ph.D
Certified Sex Therapist, AASECT
Assistant Research Professor, Psychology,Rutgers-Newark
Fellow, The American Psychotherapy Association
Fellow, The National Board for Clinical Hypnotherapists
Board Certified Diplomate, The American Board of Examiners in Social Work