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Author Topic: Lyme Disease  (Read 14909 times)

relaxeverything

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Lyme Disease
« on: January 21, 2015, 04:57:13 PM »
Hi Everyone,

I've had POIS since I'm 20 and recently found out after extensive testing that I have Lyme disease. The tick bite which preceded the onset of symptoms  such as fatigue, insomnia, and digestion issues which I never (and still don't) correlate with POIS also preceded the beginning of my POIS (5 years ago). The reason I don't connect them exclusively is the particular flavor of POIS, which would only happen after an orgasm as opposed to the omnipresence of the aforementioned symptoms. That flavor was/is an intense emotional sensitivity and social anxiety. I'm getting intensive treatment for Lyme from a Lyme specialist at the moment and can still distinguish between the symptoms of Lyme and POIS. As difficult as Lyme is, combined with POIS it's utter hell.

Anyways, it seems like there MIGHT be a connection between them as my POIS started around the same time as Lyme. Curious if anyone here had Lyme disease. Its epidemic in the U.S.A. and has been found all over the world. 300,000 new cases a year in the U.S. and very few of them are diagnosed and even rarer treated properly.

So my dear POISers, let me know!!

Cheers,
RelaxEverything
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Going less Crazy

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Re: Lyme Disease
« Reply #1 on: January 21, 2015, 10:46:14 PM »
I have been tested for it, but not the extensive Igenex testing which I will like to have in the near future.  I'm not totally sure of the connection of POIS and lyme disease but recently I read how lyme bugs may use magnesium and zinc within the body for its own purposes and this is why we may feel bad after sex.

Check:  http://www.tiredoflyme.com/11-things-that-can-make-a-person-with-lyme-disease-feel-worse-besides-treatment.html#.VMBx15U3OUk 

In fact that is almost a list of what bothers me.  Especially lack of sleep, sex, food/chemicals, exercise and high stress.

Still I am not totally sure of the connection but I may ask the doctor to go on doxycycline for a couple weeks because of possible lyme and bad back acne.  I don't think it would hurt as long as I supplement with probiotics during/after the treatment.
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My POIS managed with Diet (@ diet that 100% manages my pois)Believe my POIS stems from inflammation in the gut. O = neuro POIS from inflammation from the gut

supps: microdose zyrtec if needed for food sens. ibuprofen for infl. as needed. Melatonin as needed. Big Pinch Black cumin  seeds once daily

relaxeverything

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Re: Lyme Disease
« Reply #2 on: January 21, 2015, 11:26:22 PM »
Going Less Crazy (hope that pattern continues ;-) )

Doing Doxyciicline for a few weeks would be a waste of time and probably make matters worse bringing the bug out of hiding. If you test positive or are clinically diagnosed by a Lyme Literate Doctor that you trust then go for the whole treatment. Partial treatment (a month or so) won't do anything unless you just got the Lyme bacteria within weeks or months. ILADS refers Lyme literate doctors.

http://ilads.org/ilads_media/physician-referral/

The standard testing (Elisa, western blot etc.) have been show to be highly inaccurate. Like many diseases it is extremely hard to test for and the tests shouldn't be the only data used in the diagnosis.
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Going less Crazy

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Re: Lyme Disease
« Reply #3 on: January 28, 2015, 07:10:37 PM »
On second thought, I really do not think that Lyme has anything to do with POIS.  The reaction I get is wayyy more severe than lyme would ever cause on its own.  It just doesn't make any sense for lyme having anything to do with POIS.  Most people with lyme have joint/neurologic issues but no MAIN issues with having an orgasm.  Plus if I wait a week or more without "O", I feel pretty good.  As soon as I "O", back to square one.
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My POIS managed with Diet (@ diet that 100% manages my pois)Believe my POIS stems from inflammation in the gut. O = neuro POIS from inflammation from the gut

supps: microdose zyrtec if needed for food sens. ibuprofen for infl. as needed. Melatonin as needed. Big Pinch Black cumin  seeds once daily

Hopeoneday

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Re: Lyme Disease
« Reply #4 on: June 12, 2018, 05:07:03 PM »
The days i didnt know about pois, my symptome almost always lead me to lyme deasse. I hawe almost all of thease symptomes.
https://canlyme.com/lyme-basics/symptoms/
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Dr-pois.

Hopeoneday

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Re: Lyme Disease
« Reply #5 on: June 13, 2018, 03:57:09 AM »
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Dr-pois.

Nas

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Re: Lyme Disease
« Reply #6 on: June 13, 2018, 08:22:50 AM »
Hopeoneday,
Interesting article.
What I gathered as very similar with Lyme disease is that inflammation causes both physical and mental symptoms.
A Herxheimer reaction is very similar to a state of POIS which indicates that there's an immune response that is happening in the blood that is similiar to the case of Herxheimer reaction.
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Hopeoneday

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Re: Lyme Disease
« Reply #7 on: June 14, 2018, 04:52:38 PM »
I must put this here.
Kurtosis is well known member.
He is living prove that his pois is cured with pure luck by ANTIBIOTICS!
All his food intolerancis  is "wanished over night".
That mean that his pois is couse by somekind of bacteria.
He told that he cured SIBO infections and he think that this was it.
Later, helty diet and suplements etc...
Reed and do concluzions by your self:
https://www.reddit.com/r/POIS/comments/35rh8o/kurtosis_explains_to_the_best_of_his_knowledge/
« Last Edit: June 22, 2018, 12:16:38 PM by Hopeoneday »
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Hopeoneday

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Re: Lyme Disease
« Reply #8 on: May 31, 2019, 10:43:23 AM »
New brain scans methods for lyme.
https://www.youtube.com/watch?v=z7O2geDoIgQ
« Last Edit: May 31, 2019, 03:41:35 PM by demografx »
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Dr-pois.

demografx

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Re: Lyme Disease
« Reply #9 on: May 31, 2019, 03:39:49 PM »
Quote from: Going less Crazy on January 28, 2015, 07:10:37 PM
On second thought, I really do not think that Lyme has anything to do with POIS.  The reaction I get is wayyy more severe than lyme would ever cause on its own.  It just doesn't make any sense for lyme having anything to do with POIS.  Most people with lyme have joint/neurologic issues but no MAIN issues with having an orgasm.  Plus if I wait a week or more without "O", I feel pretty good.  As soon as I "O", back to square one.
I think that this is also interesting for all of us to consider from Going less Crazy, an “Old Timer” Member since the early (TNS) days of this forum.



« Last Edit: June 01, 2019, 07:17:09 PM by demografx »
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

b_jim

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Re: Lyme Disease
« Reply #10 on: December 06, 2019, 03:37:39 PM »
It is possible I never had Pois. It's a shoking revelation for me but my bloodtest showed a positive reaction to Lyme's antibodies. The first test must be confirmed by 2nd and 3rd. Then antibiotic injection. We 'll see what will happen then.
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Taurine = Anti-Pois

Hopeoneday

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Re: Lyme Disease
« Reply #11 on: December 06, 2019, 04:30:54 PM »
Well if you folowed my posts,
a lot of poisers could hawe pois from lyme disiese.
Symptoms are different from person to person, some symptomes is the same.
What did i learn till now:
Peoples get lyme because they are imunocompromised!
Oficial medcine dont admit that chronic late stage of lyme exist.
They call chronic lyme:
"post lyme something" but they do not know what.

I am seeing a posible root couse of
all this, i will make a post abot this
soon.
I am tired , but soon.




« Last Edit: December 06, 2019, 04:36:47 PM by Hopeoneday »
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Dr-pois.

Aladin

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Re: Lyme Disease
« Reply #12 on: December 07, 2019, 03:47:52 AM »
Me too, i have been twice diagnosed and treated for lyme...
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b_jim

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Re: Lyme Disease
« Reply #13 on: December 07, 2019, 05:02:17 AM »
For the moment I only concentrate my energy on Lyme. Since september my health goes down and I can't do my job. I have no idea if it will help my Pois symptoms too.

I have to say I made the mistake to under estimate the power of lyme. I tought it doen's match with my symptoms.
« Last Edit: December 07, 2019, 09:35:36 AM by b_jim »
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Taurine = Anti-Pois

Eliasjoelrivera

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Re: Lyme Disease
« Reply #14 on: December 07, 2019, 05:37:25 PM »
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b_jim

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Re: Lyme Disease
« Reply #15 on: December 08, 2019, 03:20:13 AM »
Thanks for the link !

MMS seems to be an effective alternative cure for Lyme.
If normal cure doesn't work I will consider this.
It seems I have a form of Lyme easy to cure (only 1 injection of antibiotic and good % of succes). I need to wait the 2nd and 3rd test to be sure.
« Last Edit: December 08, 2019, 03:24:16 AM by b_jim »
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nanna1

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Re: Lyme Disease
« Reply #16 on: December 08, 2019, 05:04:43 AM »
Article on potential Lyme triggers:

"Here, we report that the host neuroendocrine stress hormones, epinephrine and norepinephrine, are specifically bound by B. burgdorferi and result in increased expression of OspA. This recognition is specific and blocked by competitive inhibitors of human adrenergic receptors. To determine whether recognition of catecholamines, which are likely to be present at the site of a tick bite, may play a role in preparing the organism for reentry into a tick from a mammalian host, we administered a beta-adrenergic blocker, propranolol, to infected mice. Propranolol significantly reduced uptake of B. burgdorferi by feeding ticks and decreased expression of OspA in B. burgdorferi recovered from ticks that fed on propranolol-treated mice. Our studies suggest that B. burgdorferi may co-opt host neuroendocrine signals to inform the organism of local changes that predict the presence of its next host and allow it to prepare for transition to a new environment." -Borrelia burgdorferi intercepts host hormonal signals to regulate expression of outer surface protein A
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POIS clusters: 1,3,4,5,7
POIS criteria: 1,2,3,4,5
2 stacks that give me complete relief of POIS symptoms are listed here: POIS cure: theory & supplement stack
Find medical test: https://www.findlabtest.com/

b_jim

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Re: Lyme Disease
« Reply #17 on: December 09, 2019, 05:37:50 PM »
Thanks for the link :)

My second test for Lyme is clearly positive. I have some other parameters not very good  :-\
Keep crossed fingers for me :)
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Muon

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Re: Lyme Disease
« Reply #18 on: December 09, 2019, 06:01:32 PM »
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Hopeoneday

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Re: Lyme Disease
« Reply #19 on: December 09, 2019, 06:06:26 PM »
Quote from: b_jim on December 09, 2019, 05:37:50 PM
Thanks for the link :)

My second test for Lyme is clearly positive. I have some other parameters not very good  :-\
Keep crossed fingers for me :)
Hold on B_jim ... fingers crossed.
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