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Author Topic: Official Desensitization plan Begins!  (Read 227400 times)

Daveman

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Official Desensitization plan Begins!
« on: March 28, 2011, 06:41:27 PM »
Van recently announced that he has just started the semen allergy desensitization treatment. Very exciting!With him and others now we should start receiving first hand information about how it feels, a little more insight into how the process is actually administered etc.

I wonder how much secrecy control there'll be with Dr. Waldinger, as I think, all of his subjects were in strict confidence during their tests and desensitizations.

Very complicated actually. We could "loose" many of our members if they are asked to maintain secrecy.

« Last Edit: April 27, 2011, 06:01:20 AM by Daveman »
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WITHOUT RESEARCH THERE WILL BE NO CURE!
Sessions 5 to 9 days, mostly Flu-like, joints, digestion problems, light cognitive.
Niacin has changed my lif though, now 1 day MAX.
Somewhere in this interaction with Niacin is the answer!

demografx

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Re: The Desensitization plan Begins!
« Reply #1 on: March 29, 2011, 09:59:01 AM »
Quote from: Daveman on March 28, 2011, 06:41:27 PM

Van recently announced that he has just started the semen allergy desensitization treatment. Very exciting!With him and others now we should start receiving first hand information about how it feels, a little more insight into how the process is actually administered etc.

I wonder how much secrecy control there'll be with Dr. Waldinger, as I think, all of his subjects were in strict confidence during their tests and desensitizations.

Very complicated actually. We could "loose" many of our members if they are asked to maintain secrecy.


Although Dr Waldinger - by virtue of having studied and pioneered this method for the last 10 years - is obviously the most knowledgeable administrator of this treatent, the practicality of repeatedly visiting him and his hospital in The Netherlands makes it difficult for some POIS sufferers, so hopefully we will learn more here about forum members' alternate experiences.
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

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Vandemolen

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Re: The Desensitization plan Begins!
« Reply #2 on: March 29, 2011, 05:48:38 PM »
Dave, dr. Waldinger and the doctor who treated me spoke to each other about the POIS-patients abroad. They said that they are looking for a way to help the people outside The Netherlands. But they just started this. I know it's hard but we have to be patient. You have to understand that dr. Waldinger wants to work in silence. I think that's better for us too. A lot of us were impatient when there is still no POIS-paper last year. Now I understand why. That's because the doctor needed more tetst results and more POIS-patients.

If somebody wants to do the desensitization program in The Netherlands he must contact dr. Waldinger. But this will be difficult because you have to get an injection every two weeks. So the desensitization must take place in other countries.
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POIS since 2000. Very bad since 2008. I knew that I have POIS since June 2010. Desensitization since March 2011. I stopped with desens in July 2016. I have 50% less POIS. And only 1 day of POIS. Purified CBD works for me, but I am allergic for CBD.

Daveman

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Re: The Desensitization plan Begins!
« Reply #3 on: March 29, 2011, 07:00:46 PM »
Hi Van,

Good to see you. thanks for the feeback.

It also seems that you are relatively free to talk about your experience, which is good. We'll try to be patient. and it IS very exciting to see someone being treated by "THE MAN". Just from the little that you've said, you can tell that the procedure is very specific and apparantly designed for the most bang at a safe rate.

Can I steal your links to the pictures you took for this forum?
« Last Edit: March 30, 2011, 07:15:31 AM by Daveman »
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WITHOUT RESEARCH THERE WILL BE NO CURE!
Sessions 5 to 9 days, mostly Flu-like, joints, digestion problems, light cognitive.
Niacin has changed my lif though, now 1 day MAX.
Somewhere in this interaction with Niacin is the answer!

Vandemolen

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Re: The Desensitization plan Begins!
« Reply #4 on: March 30, 2011, 03:44:48 AM »
OK. You can use the pictures.
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POIS since 2000. Very bad since 2008. I knew that I have POIS since June 2010. Desensitization since March 2011. I stopped with desens in July 2016. I have 50% less POIS. And only 1 day of POIS. Purified CBD works for me, but I am allergic for CBD.

Daveman

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Re: The Desensitization plan Begins!
« Reply #5 on: March 30, 2011, 07:19:18 AM »
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WITHOUT RESEARCH THERE WILL BE NO CURE!
Sessions 5 to 9 days, mostly Flu-like, joints, digestion problems, light cognitive.
Niacin has changed my lif though, now 1 day MAX.
Somewhere in this interaction with Niacin is the answer!

Vandemolen

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Re: The Desensitization plan Begins!
« Reply #6 on: March 31, 2011, 07:25:58 PM »
Quote from: cornelius on March 31, 2011, 06:32:21 PM
Did you find that the first injection induced POIS symptoms?   (or was the sample so 'fresh' that you already had them?)
Fresh semen is better for the desensitization. So I already had POIS-symptoms.
The extra symptoms was pain in the injected arm. It's like somebody hits you all the time. After 3 days I can still feel it.
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POIS since 2000. Very bad since 2008. I knew that I have POIS since June 2010. Desensitization since March 2011. I stopped with desens in July 2016. I have 50% less POIS. And only 1 day of POIS. Purified CBD works for me, but I am allergic for CBD.

Daveman

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Re: The Desensitization plan Begins!
« Reply #7 on: March 31, 2011, 08:12:08 PM »
And so your vacations aren't going to set you back too much, delaying the second shot by 3 weeks? Or are you going to suffer any slight penalty?

Anyways, at the risk of repeating myself , I'm really excited about your therapy though, fantastic!!
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WITHOUT RESEARCH THERE WILL BE NO CURE!
Sessions 5 to 9 days, mostly Flu-like, joints, digestion problems, light cognitive.
Niacin has changed my lif though, now 1 day MAX.
Somewhere in this interaction with Niacin is the answer!

Vandemolen

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Re: The Desensitization plan Begins!
« Reply #8 on: April 01, 2011, 04:33:22 AM »
Quote from: Daveman on March 31, 2011, 08:12:08 PM
And so your vacations aren't going to set you back too much, delaying the second shot by 3 weeks? Or are you going to suffer any slight penalty?

Anyways, at the risk of repeating myself , I'm really excited about your therapy though, fantastic!!

The doctor said that I could make an appointment for about 4 weeks for the next injection. But I said to him that I am going on a holiday abroad. Then the doctor said that it would be better to do the shot after my holiday. Because of the risks. In a far country in Asia they have other insects and other viruses. So it could bring problems. And the medical help is better here. The doctor said the delay is not a problem. The first months I don't get a lot of injections because my body has to get used by it. And then the shots will be bigger and more frequent. And in that period I must feel a but of comfort. The doctor said that the injections must not determine my life because POIS already did.
Thanks for your support Dave!
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POIS since 2000. Very bad since 2008. I knew that I have POIS since June 2010. Desensitization since March 2011. I stopped with desens in July 2016. I have 50% less POIS. And only 1 day of POIS. Purified CBD works for me, but I am allergic for CBD.

demografx

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Re: The Desensitization plan Begins!
« Reply #9 on: April 02, 2011, 08:09:26 AM »
Quote from: Vandemolen on April 01, 2011, 04:33:22 AM
Quote from: Daveman on March 31, 2011, 08:12:08 PM
And so your vacations aren't going to set you back too much, delaying the second shot by 3 weeks? Or are you going to suffer any slight penalty?

Anyways, at the risk of repeating myself , I'm really excited about your therapy though, fantastic!!

The doctor said that I could make an appointment for about 4 weeks for the next injection. But I said to him that I am going on a holiday abroad. Then the doctor said that it would be better to do the shot after my holiday. Because of the risks. In a far country in Asia they have other insects and other viruses. So it could bring problems. And the medical help is better here. The doctor said the delay is not a problem. The first months I don't get a lot of injections because my body has to get used by it. And then the shots will be bigger and more frequent. And in that period I must feel a but of comfort. The doctor said that the injections must not determine my life because POIS already did.
Thanks for your support Dave!

Very exciting, Vandemolen!! Thank you for sharing your progress with us!!
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Hoping

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Re: The Desensitization plan Begins!
« Reply #10 on: April 02, 2011, 11:34:52 AM »
Quote from: Vandemolen on April 01, 2011, 04:33:22 AM
Quote from: Daveman on March 31, 2011, 08:12:08 PM
And so your vacations aren't going to set you back too much, delaying the second shot by 3 weeks? Or are you going to suffer any slight penalty?

Anyways, at the risk of repeating myself , I'm really excited about your therapy though, fantastic!!

The doctor said that I could make an appointment for about 4 weeks for the next injection. But I said to him that I am going on a holiday abroad. Then the doctor said that it would be better to do the shot after my holiday. Because of the risks. In a far country in Asia they have other insects and other viruses. So it could bring problems. And the medical help is better here. The doctor said the delay is not a problem. The first months I don't get a lot of injections because my body has to get used by it. And then the shots will be bigger and more frequent. And in that period I must feel a but of comfort. The doctor said that the injections must not determine my life because POIS already did.
Thanks for your support Dave!

I agree that a fresh sample seems like an important factor. Van, when he performed the intradermal test on you did he dilute the sample like Waldinger mentions in his study? When I saw Dr. Bewtra and Dr. Nguyen for my intradermal test they didn't dilute the sample at all.
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Vandemolen

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Re: The Desensitization plan Begins!
« Reply #11 on: April 02, 2011, 02:03:58 PM »
Quote from: Hoping on April 02, 2011, 11:34:52 AM
I agree that a fresh sample seems like an important factor. Van, when he performed the intradermal test on you did he dilute the sample like Waldinger mentions in his study? When I saw Dr. Bewtra and Dr. Nguyen for my intradermal test they didn't dilute the sample at all.

Frozen semen also works but more slowly. Maybe the desensitization period takes more time.
The semen was diluted in both times. At the skin p.rick test and at the first desensitization. I didn't ask how much it was diluted. But I think just as in the last POIS paper of dr. Waldinger. When I looked at it it seems that the semen at the test was more diluted than at the desensitization. But I am not sure. In both times the doctor went to the lab to prepare the semen for the injection.
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POIS since 2000. Very bad since 2008. I knew that I have POIS since June 2010. Desensitization since March 2011. I stopped with desens in July 2016. I have 50% less POIS. And only 1 day of POIS. Purified CBD works for me, but I am allergic for CBD.

Habibou

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Re: The Desensitization plan Begins!
« Reply #12 on: April 04, 2011, 11:42:49 AM »
I don't know if it is there we can post, but I will do here for the moment !

I just called ImVision, the Switzerland Laboratory which "practices Intra Lymphatic Injections".
The doctor which caught the phone gave me his mail address :     m.steiner@imvision-therapeutics.com
He was really kind to answer me through the phone, and I really appreciated it ! 

I didn't say anything about our condition, but I told him I would send him a mail with Dr Waldinger's Papers...
He told me that this procedure is new and it would take 4 years to develop it ! 
There is a study in Canada in which they test those intralymphatic injections.
For the moment, they only treat Cat's allergy with Intralymphatic Injections and are seeking for others allergies now.

It would be great we also contact the Dutch Laboratory which practices Intralymphatic Injections to get more and more information about it.

The Intralymphatic injections cure from allergies in 8 weeks, I would be glad to test it for me in the first place and it could be a fast cure for our condition if it works ! 
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b_jim

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Re: The Desensitization plan Begins!
« Reply #13 on: April 04, 2011, 02:42:04 PM »
I really consider the option to do it myself. But i want to see an allergist before.
I'm not stupid and I don't want to take any risks. But it looks not impossible.
« Last Edit: April 04, 2011, 02:44:06 PM by b_jim »
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Vandemolen

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Re: The Desensitization plan Begins!
« Reply #14 on: April 04, 2011, 05:44:53 PM »
If you think you could do it yourself than it must be easy for an allergist. So I think it's better to ask an experienced allergist. With the POIS-paper of dr. Waldinger it should be possible.
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POIS since 2000. Very bad since 2008. I knew that I have POIS since June 2010. Desensitization since March 2011. I stopped with desens in July 2016. I have 50% less POIS. And only 1 day of POIS. Purified CBD works for me, but I am allergic for CBD.

Habibou

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Re: The Desensitization plan Begins!
« Reply #15 on: April 05, 2011, 09:49:09 AM »
Yes, The intra lymphatic injections procedure seems definitively the best way both economically and safely/quickly, for our conditions in the long term, that's why i try to find a laboratory which is in willing to pratice it for us in a safe condition...

I guess the UCLA laboratory someone found on the forum is this one : http://www.ilitherapy.com/  ?

Today, I will call the french association of allergies specialist /immunologist, will update!
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b_jim

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Re: The Desensitization plan Begins!
« Reply #16 on: April 11, 2011, 01:17:04 AM »
Thanks for your search Habibou.  8)
It would be nice to find a lab in France.
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Ccconfucius

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Re: The Desensitization plan Begins!
« Reply #17 on: April 14, 2011, 01:11:11 PM »
vandemolen when you get your allergy shots you dont get like red marks on your arm like during the intradermal test.
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demografx

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Re: The Desensitization plan Begins!
« Reply #18 on: April 14, 2011, 01:30:14 PM »
b_jim, your avatar is way too cool!! :)

How did you do that?
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

b_jim

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Re: The Desensitization plan Begins!
« Reply #19 on: April 14, 2011, 02:50:32 PM »
Ironic ?  ;D  I spent 30 seconds on Paint to do it  ;D

Remember, I made the same on the chat profil in green  :P
« Last Edit: April 14, 2011, 02:52:19 PM by b_jim »
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