Talking POIS with Parents

[kakaw112]

Hello POIS Community. I am from India.  My question is for guys 16-24 who are in school or pursuing college. Have you told your parents about this illness. If Yes, did they encourage you and tried to help you ?? If you have not told them about it, is there a friend of yours who knows about it ?

How do you stay alone(thanks to Coronavirus) in a room with this illness suffering from all the pain you have to go through if you just orgasm by mistake?

Others also can drop in suggestions.

[BoneBroth]

I can only refer to my own experience. I've had good parents and a good childhood except from POIS and external stress (bulleing). Unfortunatly my parents showed very little understaning on both, specifically on the POIS issue wich I now belive could have been triggered by the stress. My parents just though I was lazy and for years I was living with guilt from this. I dont think there was anything I could have said or done to change that then so I dont have any tips for this, except possibly to ask someone else with POIS here to call your parents and explain the extent of the impact it can have on you, in the long run. Still they dont understand the impact it had and still has on my life. The doctors I saw did absolute nothing but running some tests and conclude that I was fine (which gave more weight to the idea of laziness, just what I needed!). People with parents who take this seriously should be fortunate because i think most doesn't. But if you have found your way here you should also be lucky. This site has more concrete tips for POISers then your parents would ever find. For most of us this is a journey we have to make ourself but at the same time activly look for any professional help there is. Read my story below that contains more then 20 years of personal experience and research.

[mike_sweden]

my experience with my parents is 100% like yours bonebroth

[BoneBroth]

If anyone who reads this is a parent you should know one thing. Every health- and stress related issue that minors will have could very well destroy or impact the rest of their life with 90%. Kids are very sensitive for stress and glands like the adrenal- or thyroid might be so harmed, that there is nothing conventional medicine can do or fix ever, nothing! So when it's time for them to start their own life there is just not enough energy for it, and will never be too. They will have a miserably rest of their life. Is that what you want as a parent? To see them fade away like a pale horse and pay for their illness with whats left of your pension. Is that how you want your "golden days"?

If your kid is repeatedly complaining about his/her physical or mental health (for example bullying), then you suddenly have a new priority in life: seriously listening and fixing that problem TO ANY COST, or else you and your child might both face enourmous consequences and regrets later. If your kid appears to be lazy, it's not the kid that is lazy, but more likely you! You are about to fail in your upbringing. Most kids is by default happy, energetic and curious. If they are not, it's because YOU, who are 100% resposible for your kid, havn't find the reason for it yet. So get in to it.

[kakaw112]

Thanks for your insight. So it is pretty much tough and useless to tell my parents. If I do , the seriousness of the illness can only be experienced by the person who`s suffering it. It as well applies all the other illness. But the POIS being a rare one is even tough to make people wrap their head around it that something like that can happen

[Clues]

My 2 cents on sharing your POIS story with friends and loved ones:

IMO it completely depends on how much you trust someone and how you estimate their capacity for empathy.

I'm 41 and married, and it was only last year that I shared my POIS experience with anyone apart from my wife. I opened up to my best friend, and to my parents and siblings. Overall this has been a big relief to me, and mostly a positive experience. I feel better understood and less alone.

Some tips to anyone considering sharing:

• Be prepared for someone potentially not believing you, but don't assume they won't. Give them a chance to be a good friend.
• Tell the whole story. Otherwise people may not understand how serious it is.
• Don't get defensive or attempt to argue if you sense doubt. Just stand by your words, and let it sink in. Sometimes it takes people a while to wrap their head around what to them is a very strange and unusual condition.

[berlin1984]

It's maybe easy to get people to believe you. Just send them a link to the POIS wikipedia page and the sexual headache wikipedia page. Then they know you're not trying to make a joke.

https://en.wikipedia.org/wiki/Postorgasmic_illness_syndrome
https://en.wikipedia.org/wiki/Sexual_headache