Author Topic: post coital headache vs pois (flunarizine)  (Read 14192 times)

nomore2013

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post coital headache vs pois (flunarizine)
« on: November 12, 2012, 11:08:41 PM »
is it the same thing?

nathan was prescribed Flunarizine, which is a migrane preventive medication. i am sure it will work for migranes, even post-coital ones, but will it work for pois?
what is a calcium channel blocker anyway?
http://www.drugbank.ca/drugs/DB04841

here is an article about preventing migrane medication:
http://www.migrainetrust.org/preventative-treatments


nathan123

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Re: post coital headache vs pois (flunarizine)
« Reply #1 on: November 12, 2012, 11:32:13 PM »

I am also in a great confusion about these two whether they are same?

And I have POIS or Post coital headche. 

so, I invited my doctor to post in this forum to provide clarity how illness triggered, is POIS and POH is same. 

Waiting for his post.

Egordon

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Re: post coital headache vs pois (flunarizine)
« Reply #2 on: November 13, 2012, 10:39:43 PM »
No, not the same thing. When I first began seeing doctors for this ailment, Waldinger's papers had not yet been written and, as a result, I was often diagnosed with post-coital headaches upon explaining that orgasms brought about cognitive problems. This diagnosis didn't quite fit, though, as i've never had headaches. (I have a number of symptoms but headaches simply aren't one of them.) I imagine you don't either, and your doctor is simply trying to shoehorn you disease (which is admittedly fairly new and not an area of a great deal of scientific inquiry) into an established category.

As for the medicine you were prescribed, I'm highly doubtful it will work. (But you should at least try it, and if it does work, you should be sure to let us know!) But some migrane/headache treatments are quite effective for us, as they work to reduce inflammation (which many researchers believe causes migranes and which Dr. Waldinger believes causes POIS). In my case, for instance, the post-coital headache diagnosis was actually quite helpful because I was prescribed Non steroidal antiinflammatories, which have worked wonders for me. But this success was entirely accidental. Many drugs used to prevent post-coital headaches shouldn't work a lick.

Do you know why your doctor didn't prescribe indomethacin?
« Last Edit: November 13, 2012, 10:42:27 PM by Egordon »
POIS since I was about 15. 1.75 years of desens and I'm now about 80% POIS free. Still working through best practices for maintaining my immunity and administering my injections with my doctor. Email me if you have tips or questions!

nomore2013

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Re: post coital headache vs pois (flunarizine)
« Reply #3 on: November 14, 2012, 10:23:15 PM »
i just came back from a chronic fatigue meeting, and asked the people there if anybody had migranes, because i wanted to find out information on flunarizine. the leader of the meeting said she had migranes and cured them in two months by taking 400mg of b2-riboflavin and 100mg magnesium.

Going less Crazy

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Re: post coital headache vs pois (flunarizine)
« Reply #4 on: November 24, 2012, 11:55:35 PM »
That was my diagnosis a couple of years ago.  I remember I tried the medication he prescribed me.  I can't remember what it was but he just gave me a sample of it.  It was something that you hold in your nose and trigger it, so it goes into your nose and is absorbed.  I tried it, but not efficiently... I kind of didn't believe in the post-coital migraine diagnosis, because what I was feeling wasn't a migraine... but maybe it can cause those symptoms?  I don't know.  So I tried the medication, but I don't believe I tried it when I was in full-blown POIS.  It definitely cleared symptoms though.  Right after that I went off to college without any medication, but maybe I would try it when I'm actually in POIS if I get my hands on it.  But let us know if anything like that works for any of you guys.
« Last Edit: November 25, 2012, 10:07:35 PM by Going less Crazy »
My POIS managed with Diet (@ diet that 100% manages my pois)Believe my POIS stems from inflammation in the gut. O = neuro POIS from inflammation from the gut

supps: microdose zyrtec if needed for food sens. ibuprofen for infl. as needed. Melatonin as needed. Big Pinch Black cumin  seeds once daily

LAPOISSE

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Re: post coital headache vs pois (flunarizine)
« Reply #5 on: November 25, 2012, 07:31:01 AM »
I think migraine is definitly connected..at least for some of us
The doc I saw this week think some over pressure in the brain or anomalies in brain vessels can cause the cognitive symtoms ;
He think the time pattern of allergic reaction or hormonal imbalance does not fit to POIS(symptoms than occurs fast and last for 1-7 days) ; Too long to be allergies, to short to be hormonal.He think what I have is a kind of dysautonomic syndrome that as been discussed already here.

http://poiscenter.com/forums/index.php?topic=214.0

I told him about flunarizine but from his opinion, it's a strong medecine and maybe not totally adapted ; Moreover for migraine use it's definitly not a cure..As soon as you stop, migraine comes back and flunarizine it's realy not a drug to use long term ;

My intuition, is we should as a long terme approach (i)avoid everything  what cause vasoconstriction or high blood pressure like eating carbs, smoking, drinking alcool, stress, etc and (ii) takes no side effect vasodilatators like niacin, ginkgo, fenugreek,arginine etc...and maybe as a specific approach(in the orgasm phase) block the  overpressure and its potential effect by taking stronger medecine(calcium channel blockers, beta blockers, NSAIDS) but just at strategic moment(one or two pills a week) ;

I'll have that approach...i'll report the method to you

Going less Crazy

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Re: post coital headache vs pois (flunarizine)
« Reply #6 on: November 25, 2012, 10:09:01 PM »
Interesting to note, I just took a large dose of aspirin, 1,000 mg.  and right now I can say my symptoms are gone.  I will try this in full-blown POIS next time.
My POIS managed with Diet (@ diet that 100% manages my pois)Believe my POIS stems from inflammation in the gut. O = neuro POIS from inflammation from the gut

supps: microdose zyrtec if needed for food sens. ibuprofen for infl. as needed. Melatonin as needed. Big Pinch Black cumin  seeds once daily

demografx

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Re: post coital headache vs pois (flunarizine)
« Reply #7 on: November 26, 2012, 01:17:57 AM »
GoingLessCrazy, Be careful. 325mg aspirin almost destroyed my stomach.
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Daveman

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Re: post coital headache vs pois (flunarizine)
« Reply #8 on: November 26, 2012, 07:16:23 AM »
I'm sure that a good dose of morphine would cure your symptoms too!!

Please be careful you guys!

Just because it works a couple of times without killing  you doesn't mean that it's not potentially dangerous.

And please, don't report these  kinds of things on the forum without:
 1. adequate warning,
 2. a period of time (2 wks) to make sure that it wasn't just an off chance thing and assure that the side effects are minimal
 3. and if it's a heavy dose or prescription type medicine, that it is guided and approved by a doctor.

There are people here that will jump at testing anything, and if they see someone doing it they think that "it's OK".

Each and every one of us is a different case, we take contra-indicative medicines, we have different systems and what one can take
may kill another.

« Last Edit: November 26, 2012, 07:22:57 AM by Daveman »
WITHOUT RESEARCH THERE WILL BE NO CURE!
Sessions 5 to 9 days, mostly Flu-like, joints, digestion problems, light cognitive.
Niacin has changed my lif though, now 1 day MAX.
Somewhere in this interaction with Niacin is the answer!

Ccconfucius

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Re: post coital headache vs pois (flunarizine)
« Reply #9 on: November 26, 2012, 11:11:02 AM »
I'm sure that a good dose of morphine would cure your symptoms too!!

Please be careful you guys!

Just because it works a couple of times without killing  you doesn't mean that it's not potentially dangerous.

And please, don't report these  kinds of things on the forum without:
 1. adequate warning,
 2. a period of time (2 wks) to make sure that it wasn't just an off chance thing and assure that the side effects are minimal
 3. and if it's a heavy dose or prescription type medicine, that it is guided and approved by a doctor.

There are people here that will jump at testing anything, and if they see someone doing it they think that "it's OK".

Each and every one of us is a different case, we take contra-indicative medicines, we have different systems and what one can take
may kill another.



I think that 2weeks should be extended to at least a month there have been many who got relieve for more than a month and then suddenly their remedy stopped working.

Going less Crazy

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Re: post coital headache vs pois (flunarizine)
« Reply #10 on: November 26, 2012, 11:11:24 PM »
Sorry about that.  Didn't mean to make it sound like a cure haha.  Actually I felt worse today than I would have had I not taken the aspirin.  Probably dulled the pain and imbalance but didn't aid in any sort of recovery. 
My POIS managed with Diet (@ diet that 100% manages my pois)Believe my POIS stems from inflammation in the gut. O = neuro POIS from inflammation from the gut

supps: microdose zyrtec if needed for food sens. ibuprofen for infl. as needed. Melatonin as needed. Big Pinch Black cumin  seeds once daily

Egordon

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Re: post coital headache vs pois (flunarizine)
« Reply #11 on: November 28, 2012, 02:15:45 AM »
Agreed! For chrissakes, guys, go to a doctor and get a decent NSAID prescription so you don't have to take superdoses of aspirin and tylenol.

Its frustrating that people consume and experiment with over-the-counter pain relievers thinking that they are safe when in fact that are (and have long been) the single largest cause of liver failure in US and UK.

Please be safe Going less Crazy.
POIS since I was about 15. 1.75 years of desens and I'm now about 80% POIS free. Still working through best practices for maintaining my immunity and administering my injections with my doctor. Email me if you have tips or questions!

Vincent M

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Re: post coital headache vs pois (flunarizine)
« Reply #12 on: November 29, 2012, 06:28:04 PM »
Agreed! For chrissakes, guys, go to a doctor and get a decent NSAID prescription so you don't have to take superdoses of aspirin and tylenol.

Its frustrating that people consume and experiment with over-the-counter pain relievers thinking that they are safe when in fact that are (and have long been) the single largest cause of liver failure in US and UK.

Please be safe Going less Crazy.

In my experience prescription NSAIDS aren't any more effective or safer than over the counter ones. Honestly none of them do anything for me so instead I take nutmeg to reduce my pain when it gets really bad and yes that has a risk of death in larger doses. I take 1/3 of a teaspoon of it, but can't take it every day because it makes me cognitively slow and unmotivated.

Remember as little as 10 tylenol tablets  can cause permanent liver damage and 20 tablets has been known to cause liver failure resulting in the death of the person. In my opinion alcohol is a far safer and more effective option, but obviously isn't without its risks.
Taking ginger tea, no wheat, fenugreek+green tea/garlic, saw palmetto, niacin, boswellia, huperzine, B complex and nutmeg. See my treatment summary post for more info: http://poiscenter.com/forums/index.php?topic=81.msg3513#msg3513

Egordon

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Re: post coital headache vs pois (flunarizine)
« Reply #13 on: November 30, 2012, 04:15:10 PM »

In my experience prescription NSAIDS aren't any more effective or safer than over the counter ones. Honestly none of them do anything for me so instead I take nutmeg to reduce my pain when it gets really bad and yes that has a risk of death in larger doses. I take 1/3 of a teaspoon of it, but can't take it every day because it makes me cognitively slow and unmotivated.

Remember as little as 10 tylenol tablets  can cause permanent liver damage and 20 tablets has been known to cause liver failure resulting in the death of the person. In my opinion alcohol is a far safer and more effective option, but obviously isn't without its risks.

I'm not sure what caused you to conclude that prescription NSAIDs are less potent -- I imagine it relates to exactly what you were prescribed and what  problem that prescription was to address -- but there are thousands of clinical trials that provide pretty conclusive evidence that they are indeed more effective (for certain things) than the over-the counter stuff. There's a reason you need a prescription for them, after all.

The relative safety of prescription NSAIDs is a somewhat more controversial question. Of course they're somewhat less safe, theoretically, than over-the-counter NSAIDS -- again, that's why you need a prescription for them. All that I was saying is that over-the-counter NSAIDs are used in an incredibly unsafe way -- because of their lack of potency and perceived safety people take far far larger doses than they should. As a result, they are the single largest cause of liver failure in the Western World. My point was simply that one would be better off taking 200mg of some prescription NSAID 2-3 days a week than taking 1000mg (or some equally unsafe dosage) of Tylenol everyday. The over the counter drugs are safe when taken for light and irregular use; that doesn't mean their safe in all contexts.

I think it's especially important to make this point because this is the third time i've come across a member of this board using over-the-counter NSAIDs in an entirely unsafe way.

POIS since I was about 15. 1.75 years of desens and I'm now about 80% POIS free. Still working through best practices for maintaining my immunity and administering my injections with my doctor. Email me if you have tips or questions!

demografx

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Re: post coital headache vs pois (flunarizine)
« Reply #14 on: November 30, 2012, 05:55:26 PM »
Egordon, many thanks for cautionary remarks about NSAIDs.
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: post coital headache vs pois (flunarizine)
« Reply #15 on: November 30, 2012, 06:38:39 PM »
I'm sure that a good dose of morphine would cure your symptoms too!!

Please be careful you guys!

Just because it works a couple of times without killing  you doesn't mean that it's not potentially dangerous.

And please, don't report these  kinds of things on the forum without:
 1. adequate warning,
 2. a period of time (2 wks) to make sure that it wasn't just an off chance thing and assure that the side effects are minimal
 3. and if it's a heavy dose or prescription type medicine, that it is guided and approved by a doctor.

There are people here that will jump at testing anything, and if they see someone doing it they think that "it's OK".

Each and every one of us is a different case, we take contra-indicative medicines, we have different systems and what one can take
may kill another.



WORTH REPEATING/re-posting!
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

over it

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Re: post coital headache vs pois (flunarizine)
« Reply #16 on: December 03, 2012, 05:58:29 AM »
Did my post re sumatriptan succinate & coital headache get declined?

Daveman

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Re: post coital headache vs pois (flunarizine)
« Reply #17 on: December 03, 2012, 07:19:52 AM »
Did my post re sumatriptan succinate & coital headache get declined?

Nope!

WITHOUT RESEARCH THERE WILL BE NO CURE!
Sessions 5 to 9 days, mostly Flu-like, joints, digestion problems, light cognitive.
Niacin has changed my lif though, now 1 day MAX.
Somewhere in this interaction with Niacin is the answer!

Vandemolen

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Re: post coital headache vs pois (flunarizine)
« Reply #18 on: December 13, 2012, 06:48:21 PM »
I showed my doctor who does the desens the post of Nathan about Flunarizine. My doctor wanted to give me a prescription for Flunarizine. But because I just have antibiotics because of my UTI we will wait with Flunarizine for a few weeks. About seven weeks when I have the next appointment for desens he will presribe it. He said it's interesting and will talk about this with other doctors. But be carefull if you have a high blood pressure!
POIS since 2000. Very bad since 2008. I knew that I have POIS since June 2010. Desensitization since March 2011. I stopped with desens in July 2016. I have 50% less POIS. And only 1 day of POIS. Purified CBD works for me, but I am allergic for CBD.

over it

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Re: post coital headache vs pois (flunarizine)
« Reply #19 on: December 14, 2012, 08:44:29 PM »
Did my post re sumatriptan succinate & coital headache get declined?

Nope!



I came across a forum in which a lady claims to have overcome her post coital headaches after her doctor precribed Sumatriptan Succinate, aka Imigran.