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Author Topic: Free Flow Discussion about POIS  (Read 1013554 times)

demografx

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Re: This may seem like a familiar place.
« Reply #180 on: August 23, 2012, 12:09:49 PM »
Thank you, Dave. I, too, would like to understand better where we are.

Are we a team?
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #181 on: August 23, 2012, 12:20:24 PM »
iPhone users:

To get your RSS feed of POIScenter.com on your iphone, copy and paste this link into Safari - your Web browser:

Or just click now and bookmark it.

http://reader.mac.com/mobile/v1/http%3A%2F%2Fpoiscenter.com%2Fforums%2F%3Faction=.xml;type=atom

« Last Edit: August 23, 2012, 12:22:28 PM by demografx »
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #182 on: August 23, 2012, 12:33:45 PM »
Our Press Release. With embedded video ABC TV documentary on POIS

Email it to anyone who can help us!
http://www.marketwire.com/press-release/poiscentercom-announces-fundraising-effort-combat-rare-severely-debilitating-sexual-1692576.htm

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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

lauracostis

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Re: This may seem like a familiar place.
« Reply #183 on: August 23, 2012, 03:37:26 PM »
TO Demo, Dave, and all the others that were involved in the campaign, I appreciate your efforts and all the time you guys put into this.  Your work has not gone unnoticed by me, Thank you all!
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Nightingale

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Re: This may seem like a familiar place.
« Reply #184 on: August 23, 2012, 03:50:40 PM »
I mentioned in another post that I would be writing to major investigative news programs to try to get them to do a program on us.  I was not looking in this thread and I have totally been absent in giving feedback here!  You guys went through a lot to get this going, you at least should be getting feedback!

I have been recovering from a bad reaction to a psychiatric medicine change (POIS has a hand in that) and I just started school again.  I will write these letters!
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Turmeric and Rosemary 30-45 minutes before orgasm for anti-inflammatory and immune support has helped me a lot. Faster and easier than niacin approach.

Stef

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Re: This may seem like a familiar place.
« Reply #185 on: August 23, 2012, 09:02:02 PM »
Quote from: Nightingale on August 23, 2012, 03:50:40 PM
I mentioned in another post that I would be writing to major investigative news programs to try to get them to do a program on us.  I was not looking in this thread and I have totally been absent in giving feedback here!  You guys went through a lot to get this going, you at least should be getting feedback!

I have been recovering from a bad reaction to a psychiatric medicine change (POIS has a hand in that) and I just started school again.  I will write these letters!

Nightingale,

You've gone through so much with psychiatric medications!  I'm so very sorry to hear that these medication reactions are an on-going problem.

I bet that if POIS weren't in the picture, you wouldn't need any of those meds! 

You and I spoke by phone once, over a year ago, and you were 100% with it!!!! I could not have been speaking with a more terrific, sweet, intelligent, "NORMAL"  person -- I remember that conversation vividly.

(Seriously speaking, I've had the opportunity to speak with some bona fide "oddballs" during my nursing career, both at  NORD and before working at NORD.  I once got a call from someone who wanted to know what to do -- she'd been abducted by aliens from outer space! Another couldn't stop eating toilet paper -- unused, unscented!)  There's nothing funny about any of it -- but THAT is mental illness.  THIS is POIS!

You were NOT odd in any way! Not in the slightest!

Please believe in yourself and stay the course. There will be an end to this POIS madness.

And go for it with those letters, once you're feeling better!!

Stef




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demografx

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Re: This may seem like a familiar place.
« Reply #186 on: August 23, 2012, 10:53:04 PM »
Quote from: lauracostis on August 23, 2012, 03:37:26 PM
TO Demo, Dave, and all the others that were involved in the campaign, I appreciate your efforts and all the time you guys put into this.  Your work has not gone unnoticed by me, Thank you all!

Thanks, laurac!!!!
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

kurtosis

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Re: This may seem like a familiar place.
« Reply #187 on: August 24, 2012, 03:58:27 AM »
Trying to get some twitter folks to RT a notice about it. I wish very much I could just write a cheque for this and get this research underway.
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Daveman

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Re: This may seem like a familiar place.
« Reply #188 on: August 24, 2012, 07:31:17 AM »
Thanks, Nightingale, Laurac, Kurtosis, others.

It's good to get the feedback about what is being done, even the hardships and difficulties in getting responses.
It's all incentive to the rest of us to kick in as a team.

We're a team of 400+, LOTS of potential there.

Thanks
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WITHOUT RESEARCH THERE WILL BE NO CURE!
Sessions 5 to 9 days, mostly Flu-like, joints, digestion problems, light cognitive.
Niacin has changed my lif though, now 1 day MAX.
Somewhere in this interaction with Niacin is the answer!

Daveman

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Re: This may seem like a familiar place.
« Reply #189 on: August 24, 2012, 07:44:08 AM »
Quote from: Nightingale on August 23, 2012, 03:50:40 PM
I mentioned in another post that I would be writing to major investigative news programs to try to get them to do a program on us.  I was not looking in this thread and I have totally been absent in giving feedback here!  You guys went through a lot to get this going, you at least should be getting feedback!

I have been recovering from a bad reaction to a psychiatric medicine change (POIS has a hand in that) and I just started school again.  I will write these letters!

URLs and quotes from the news release (Demo has left a few on the board here and there) are great material to send to big corporations etc.

That is one of the best uses of news releases, to use them as seeds and evidence that we are involved and serious.

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WITHOUT RESEARCH THERE WILL BE NO CURE!
Sessions 5 to 9 days, mostly Flu-like, joints, digestion problems, light cognitive.
Niacin has changed my lif though, now 1 day MAX.
Somewhere in this interaction with Niacin is the answer!

demografx

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Re: This may seem like a familiar place.
« Reply #190 on: August 24, 2012, 05:49:10 PM »
Newspaper example: POIScenter placement. (and hopefully dozens  more newspapers will bring us newbies/donors).





http://markets.financialcontent.com/mi.sacbee/news/read/22072642/POIScenter.com_Announces_Fundraising_Effort_to_Combat_Rare
« Last Edit: August 24, 2012, 05:54:40 PM by demografx »
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #191 on: August 24, 2012, 07:53:41 PM »
Hey, guys, here's an EASY way to particpipate:

Observercenter posted a coment on TOPIX-dot-com, a HUMAN SEXUALITY NEWS SITE:
http://www.topix.com/health/depression/2012/08/poiscenter-com-announces-fundraising-effort-to-combat-rare-severely-debilitating-sexual-disorder

JUST ADD YOUR OWN COMMENT AT THE LINK ABOVE AND YOU MIGHT HELP REACH A WHOLE NEW AUDIENCE OF NEWBIES = DONORS!

Invite 'em over!!

Thanks for trying!!!!!!!

Demo



« Last Edit: August 26, 2012, 12:42:00 PM by demografx »
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #192 on: August 26, 2012, 12:14:02 PM »
« Last Edit: August 26, 2012, 12:26:59 PM by demografx »
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #193 on: August 26, 2012, 09:18:01 PM »

Quote from: demografx on August 24, 2012, 07:53:41 PM

Hey, guys, here's an EASY way to participate:

Observercenter posted a coment on TOPIX-dot-com, a HUMAN SEXUALITY NEWS SITE:
http://m.topix.com/forum/health/depression/TJFPAV7PB9PRAO6FC

JUST ADD YOUR OWN COMMENT AT THE LINK ABOVE AND YOU MIGHT HELP REACH A WHOLE NEW AUDIENCE OF NEWBIES = DONORS! Invite them to POIScenter.com !

Thanks very much for trying!



Thanks again Observer for leading the way!

And thank you so much to lauracostis, Stefanie - aka nordnurse - Nightingale, Hoping, and kurtosis!

« Last Edit: August 27, 2012, 08:05:47 AM by demografx »
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #194 on: August 27, 2012, 01:09:40 AM »
TO ALL OUR NEWCOMERS AND FRIENDS:
Let's Cure POIS. Now.



Make "POIS Cured!"
the Feature Presentation - not Arnold!



Skip the movie and click here to please donate instead.

Or click here to read more about The POIS Medical Fund

« Last Edit: October 04, 2012, 01:02:10 AM by demografx »
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #195 on: August 27, 2012, 08:06:19 AM »
Quote from: demografx on August 24, 2012, 07:53:41 PM

Hey, guys, here's an EASY way to participate:

Observercenter posted a coment on TOPIX-dot-com, a HUMAN SEXUALITY NEWS SITE:
http://m.topix.com/forum/health/depression/TJFPAV7PB9PRAO6FC

JUST ADD YOUR OWN COMMENT AT THE LINK ABOVE AND YOU MIGHT HELP REACH A WHOLE NEW AUDIENCE OF NEWBIES = DONORS! Invite them to POIScenter.com !

Thanks very much for trying!



Thanks again Observer for leading the way!

And thank you so much to lauracostis, ridgefieldmom aka Our Very Own Stefanie - aka nordnurse - and Nightingale, Hoping, Kurtosis, and Fidalgo!




« Last Edit: August 29, 2012, 08:28:29 AM by demografx »
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #196 on: August 29, 2012, 01:43:00 AM »
Topix.com statistics and demographics




WEB TRAFFIC FOR JUL 29, 2012 - AUG 27, 2012

People per Month            12,876,211
Visits per Month             21,247,293
Online                             15,821,589   
Mobile Web                       5,425,703   
Page Views per Month   129,448,448
Online                              75,799,196   
Mobile Web                      53,649,252   
 
Mobile Web traffic is measured from web browsers on mobile devices, but not mobile applications.


Source: http://widget.quantcast.com/topix.com/traffic/mobileweb?country=US



« Last Edit: August 29, 2012, 02:05:42 AM by demografx »
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

demografx

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Re: This may seem like a familiar place.
« Reply #197 on: August 29, 2012, 08:56:39 AM »


Great going, guys, as you can see above, you might have reached some good numbers of people with all your posting at Topix.com!
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10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Stef

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Re: This may seem like a familiar place.
« Reply #198 on: September 02, 2012, 11:30:41 PM »
Hi All!

A donation of $100 was made to the POIS research grant fund today.

But this is not about the donor.

This is about Daveman. It is clearly stated that the donation was made in Daveman's honor -- on behalf of his efforts to help another human being.

Without going into details, Daveman is using his innate ENGINEERING/SCIENTIFIC skills to help someone in the US who is suffering from a dreadful rare disorder. (This person does not have POIS).

Demo once described Daveman as an "architectural genius" --  he could not have used better descriptive words. Daveman is undertaking this very complex project essentially for free, knowing that the family has exhausted their bank account. He has already put a great deal of effort into this project (despite working very long hours during the week, serving as the head of a large household, and doing his best to keep http://poiscenter.com running smoothly).

Most of you likely see Daveman as a no-nonsense, intelligent, often serious, sometimes very funny, computer-savvy individual.  And you've also likely noticed his stalwart dedication to raising funds for POIS research.

What may not always come through on the forum posts, but which I've recently had the privilege to witness, is Daveman's amazing generosity of spirit -- the greatest attribute that anyone can have!!  

He heard about a woman in the US who is struggling severely from a very rare condition, and is hoping that his engineering knowledge (my words here -- "unique engineering knowledge") -- might be able to help her climb out of some of the hell she's been living in.  He's now in the process of putting a very complex engineering project into action on her behalf. He's given her and her husband some realistic hope, where there was formerly only darkness and despair.

Daveman just very well may be able to do for her what various physicians and physical therapy specialists have not been able to do!

But even if Daveman's efforts don't ultimately help this woman, he will have shown that human kindness is very much alive and well, and that we are all part of the human family -- no matter how different our individual lives are and how far apart on this planet we live from each other.

So -- to reiterate -- this donation was made in honor of Daveman and his incredible generosity as a human being.

I'm guessing that he'll be very embarrassed to read this post! But I just could not let this this wonderful act of humanity -- by the creator of this wonderful forum -- pass without acknowledgement.


Stef

« Last Edit: September 03, 2012, 05:26:35 PM by nordnurse »
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Ccconfucius

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Re: This may seem like a familiar place.
« Reply #199 on: September 03, 2012, 12:10:44 PM »
Daveman proving his awesomeness again. 
Way to go daveman!!!!!!!!!!!!!!!!!!!!!!!
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