Face swelling, lost of consciousness

[johnygatti]

Hello everybody. I?m 23. I'm from Eastern Europe. I think I have a POIS at least 2 years. After Orgasm/ejacuation (or after sex and masturbation without ejacuation) in 5-7 minutes my face starts swelling. My cheeks, underlip, skin over eyebrow looks puffy. I also have dizziness, fog in my head, tingling in the limbs. Sometimes in pois I have difficulties in breathing and in swallowing. All of these symptoms lasts for about 30-40 hours. Last winter I lost my consciousness after a set of pois conditions. Symptoms were on a maximum. I was hospitalized and doctors diagnosed epilepsy because when I was without consciousness I had some convulsions. I treated epilepsy for a while but it has no effect and my symptoms of POIS go on. Doctors did mri of brain and chest but nothing was found that can be a reason. I think that my cause of pois can be autoimmune/allergy reaction or some process that influence on blood flow because of blocking venous outflow from penis during erection. I think that i should do some allergy tests and maybe try some antihistamine.
I feel kind of reducing symptoms when i do some cardio exercises but unfortunately real permanent solving of the problem for me remains sexual abstinence.
I' ll be glad to see any messages. Thank you.

[demografx]

johnnygatti, welcome to the forum!

[Guts]

i've lost conciousness a few times many years ago... i think it was because of immune activation in relationship to blood sugar. When i had POIS for a whole week i had periods where i just fell asleep on the spot on multiple occasions

[swell]

Johnygatti, your symptoms are more severe though similar to mine (though fortunately I have solved mine), and I believe through experimentation on myself that POIS is growth factor deficiency.  Keep in mind, growth factor deficiency could materialize in multiple manifestations.  On me, I noticed a significantly reduced epithelial barrier integrity/function.  When mucosa is not healthy, it will predispose you to weird auto-immunity/allergy issues, such as with semen, with certain foods, etc.

Can you comment on:
- general state of health
- postural: spine length compared to limbs, any abnormalities.
- muscle: are your limbs weaker than average population.
- your growth, puberty timeline, have they been normal or delayed.
- do you have long-term constipation or diarrhea, or any gastro/intestinal symptoms.   

Consult a doctor, and use this as research only.  First and foremost, you need naturally dissected thyroid to reboot your metabolic system) for a limited time at least.  Currently no supplement or diet would effect you as it should (Rx meds would, but they do, because they are harsh).  For anyone with brain symptoms fats are critical.  Dramatically increase your healthy fat intake - Olive oil / blackseed oil / wheat germ oil / cod liver oil etc.  If you remain constipated, take purified bile salts with taurine.  There are some more things you can do which I can provide info, but first comment on above. 

Hello everybody. I?m 23. I'm from Eastern Europe. I think I have a POIS at least 2 years. After Orgasm/ejacuation (or after sex and masturbation without ejacuation) in 5-7 minutes my face starts swelling. My cheeks, underlip, skin over eyebrow looks puffy. I also have dizziness, fog in my head, tingling in the limbs. Sometimes in pois I have difficulties in breathing and in swallowing. All of these symptoms lasts for about 30-40 hours. Last winter I lost my consciousness after a set of pois conditions. Symptoms were on a maximum. I was hospitalized and doctors diagnosed epilepsy because when I was without consciousness I had some convulsions. I treated epilepsy for a while but it has no effect and my symptoms of POIS go on. Doctors did mri of brain and chest but nothing was found that can be a reason. I think that my cause of pois can be autoimmune/allergy reaction or some process that influence on blood flow because of blocking venous outflow from penis during erection. I think that i should do some allergy tests and maybe try some antihistamine.
I feel kind of reducing symptoms when i do some cardio exercises but unfortunately real permanent solving of the problem for me remains sexual abstinence.
I' ll be glad to see any messages. Thank you.

[Iwillbeatthis]

Swell I see you tried liposimal glutathione did it help you at all in anyway and did you try Nad+? Was thinking of buying it but its kinda expensive and I already tried Nac for like a month which didn't do much apart from make me a little foggy.

Was also thinking about trying:
Nad+
L glutamate
creatine
LDN

[swell]

Nothing worked for me, till I rebooted my hard-drive aka metabolic system with NDT.  And now it seems that everything works for my POIS so much so, that I barely get POIS, life is good so far

Swell I see you tried liposimal glutathione did it help you at all in anyway and did you try Nad+? Was thinking of buying it but its kinda expensive and I already tried Nac for like a month which didn't do much apart from make me a little foggy.

Was also thinking about trying:
Nad+
L glutamate
creatine
LDN

[Iwillbeatthis]

Does NDT work for hyperthyroidism ? As if I was to have any thyroid problem it would be that but I think my tests showed as normal

[itsmel]

What is your TSH level?
I think the NDT only works for HYPO, not HYPER.

[johnygatti]

Swell, Thanks for your answer. Sorry for my late answer. I'm glad to know that your cure conception is useful for you but unfortunately my causes connect with the blood flow because of the next symptoms and research conclusions: 
- I have a chronic pulsating (like a pulse) tinnitus (noise) in the my right ear.
- My syndrome (face swelling, flies in the eyes, dizziness) can be caused by physical exercises like pull-ups, cross fit, nervous tension etc) except cardio exercises.
- MRI of the brain shows that I have the asymmetry of venous outflow: my right venous sinuses more bigger than left, dopplerography of the neck vessels also shows significant expansion of the right jugular vein (i have a right ear noise).
Doctors confirm my swelling face and venous assymetry but they have not a reason why.
Endocrine and allergic causes are excluded but taking Claratine (antihistamine) makes me feel better sometimes.

Can you comment on:
- general state of health
- postural: spine length compared to limbs, any abnormalities.
- muscle: are your limbs weaker than average population.
- your growth, puberty timeline, have they been normal or delayed.
- do you have long-term constipation or diarrhea, or any gastro/intestinal symptoms.   

- General state of health is ok (based on analyzes and diagnostic) but in a general blood analysis Antistreptolysin O (ASO) is doubled (503).
- postural: spine length compared to limbs, any abnormalities I have the initial spinal changes (osteochondrosis spondylarthrosis, disc protrusions)
- muscle: are your limbs weaker than average population. I have normal limbs and muscles
- your growth, puberty timeline, have they been normal or delayed. In that part i'm ok too
- do you have long-term constipation or diarrhea, or any gastro/intestinal symptoms. I have hemorrhoids of the first degree

I'm looking for people with the same symptoms and causes but still can't find. Maybe this topic should be replaced to the General Alternative Causes and treatment?

[drop247]

Nothing worked for me, till I rebooted my hard-drive aka metabolic system with NDT.  And now it seems that everything works for my POIS so much so, that I barely get POIS, life is good so far

Swell I see you tried liposimal glutathione did it help you at all in anyway and did you try Nad+? Was thinking of buying it but its kinda expensive and I already tried Nac for like a month which didn't do much apart from make me a little foggy.

Was also thinking about trying:
Nad+
L glutamate
creatine
LDN

How did you get NDT prescribed? Did you have a thyroid panel done that showed some low levels? If so what hormones should I request be checked?