Are we abandoned to ourselves?

[Unvers]

I am thinking that having POIS is a curse not only because it destroy sexual life but also because the official medicine tend to understimate the problem even because it's a rare disease and considering that good part of population suffer of some sort of tiredness after orgasm but absolutely not at a pathological level like POIS they tend to minimize the problem, we are also far from a cure, we need to raise awareness in the medical field.

[COLM_2]

Hi Unvers,

I think we all share / have shared this obvious frustration at validated progress and awareness into the medical field.

With limited resources, we have navigated twists and turns along the route.

As you probably know there is an existing study we know about through Dr Waldinger, which was funded through a European sexual medicine group. We don't know exact progress in this, or how far any outcomes would move us forward.

We are also progressing with Nord toward finding a suitable partner to re launch the study from POIS Forum. Demo, Quantum and others have been doing all they can to progress this study.

It's envisaged we do need a credible study to lower the sketicism among many medical people, and to have research to refer to on visiting medical professionals.

I think we should all try remain somewhat hopeful, while
Still doing what we can to lower our symptoms. Trial and error :-(

Research processes sadly are slow, with rare diseases.
Best,
Colm

[demografx]

Thank you, COLM!!!

It's brutally non-easy to research a rare condition such as POIS!

I've been at this for 10 years with little to show.

Thank you so much to all those who have persevered with me!!! You know who you are!!

[MirkoThiel0]

But there is actually a thing we can do, we can try to spread awareness for normal people.
For example look at this reddit side https://www.reddit.com/r/NoFap/ with 250 000 people that follow, a lot of them describe Symptomes we have, so im pretty sure that at least 10 000 - 50 000 of them have POIS, and with 10 000 more people we have a lot more power.

[Unvers]

But there is actually a thing we can do, we can try to spread awareness for normal people.
For example look at this reddit side https://www.reddit.com/r/NoFap/ with 250 000 people that follow, a lot of them describe Symptomes we have, so im pretty sure that at least 10 000 - 50 000 of them have POIS, and with 10 000 more people we have a lot more power.

Yes, I also think that a good percentage of people on Nofap are poisers who don't know that their problem is not porn or masturbation but orgasm itself, I think they are cognitive poisers so tend to experience symptoms like anxiety and depression and don't have a partner so they think the problem is masturbation, I don't have experienced an orgasm with a partner for now but I think that also with POIS it will be more pleasurable than masturbation so they maybe think the problem is only with masturbation.

A lot of them also dislike sex so they are probably also cognitive poisers.