Author Topic: Myoclonus  (Read 5549 times)

Alessandro84

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Myoclonus
« on: September 19, 2014, 12:05:28 PM »
I notice that after orgasm I have myoclonus jerks in the arms and legs. It's not so frequent but after two/three days I have no more.

Andy451

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Re: Myoclonus
« Reply #1 on: September 23, 2014, 07:27:03 AM »
I notice that after orgasm I have myoclonus jerks in the arms and legs. It's not so frequent but after two/three days I have no more.

Me too. And that is the correct diagnosis. I had had it by a neurologist 12 yrs ago. It does increase days after POIS for myself as well. I believe many of us get this with muscle tension.
28 yo M- POIS for 16yrs (since age 12). Chronic POIS- always there

Tried desensitization for 1.5yrs & was unsuccessful (POIS worse at 1/1000)

 Exercising- (running/light weights/situps/yoga) Ice my perineum. Gluten-free. Supplements- limited success.Meds- Oxcarbazepine/Buspar (past-Depakote10yrs)

Alessandro84

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Re: Myoclonus
« Reply #2 on: September 23, 2014, 07:44:24 AM »
Glad to hear I'm not alone...
I have search many many website and myoclonus is the best description of what I have. The jerks don't have a specific muscle, but are always on legs, harms and feet.
Moreover, I have also tingling in the soles of feet and hands, that disappear with movement.

Andy451

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Re: Myoclonus
« Reply #3 on: September 23, 2014, 10:23:05 AM »
Glad to hear I'm not alone...
I have search many many website and myoclonus is the best description of what I have. The jerks don't have a specific muscle, but are always on legs, harms and feet.
Moreover, I have also tingling in the soles of feet and hands, that disappear with movement.

I couldn't describe the sensation better myself. In my experience, running/cardio exercise plus lots of stretching and measured breathing exercises can help with this particular symptom. Also yoga.

The psych med depakote which is also an antisezure med helped me w/ that for 10yrs. Now I take buspar an anxiety med which tends to calm racing heart and the extreme muscle tension you describe.

You can only get these meds from a Psychiatrist or Neurologist. I am not saying it is in your head cuz it is not. And psych never fixes the whole problem but can help a lil. But these things do help with that particular symptom...

I feel you pain man. Myoclonus is possibly the most painful POIS symptom.
28 yo M- POIS for 16yrs (since age 12). Chronic POIS- always there

Tried desensitization for 1.5yrs & was unsuccessful (POIS worse at 1/1000)

 Exercising- (running/light weights/situps/yoga) Ice my perineum. Gluten-free. Supplements- limited success.Meds- Oxcarbazepine/Buspar (past-Depakote10yrs)

Alessandro84

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Re: Myoclonus
« Reply #4 on: September 24, 2014, 12:52:27 PM »
Luckily, I have only 2-3 a day and they are not painful.
My big problem is anxiety and social isolation because I don't care of nothing, I have no joy nor interest for 1 week.

Another thing is oily face. Actually, it is not oily, but I have the feeling of oily skin and this produce me anxiety.
I have to wash it more than usual.


How is possible that science can't find the cause of this problem?



Andy451

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Re: Myoclonus
« Reply #5 on: September 24, 2014, 06:29:06 PM »
Luckily, I have only 2-3 a day and they are not painful.
My big problem is anxiety and social isolation because I don't care of nothing, I have no joy nor interest for 1 week.

Another thing is oily face. Actually, it is not oily, but I have the feeling of oily skin and this produce me anxiety.
I have to wash it more than usual.


How is possible that science can't find the cause of this problem?

I also feel little to no joy in life for extended times and just keep going.

I don't experience oily skin, but I get very dry skin with a lot of rashes.

I would say that the reason POIS is not understood is because it is rare and medical science doesn't really understand as much as we give them credit for despite huge leaps in the last century. We will get there. It will most likely take time though.

We must preserver and remain hopeful.
28 yo M- POIS for 16yrs (since age 12). Chronic POIS- always there

Tried desensitization for 1.5yrs & was unsuccessful (POIS worse at 1/1000)

 Exercising- (running/light weights/situps/yoga) Ice my perineum. Gluten-free. Supplements- limited success.Meds- Oxcarbazepine/Buspar (past-Depakote10yrs)

Alessandro84

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Re: Myoclonus
« Reply #6 on: September 27, 2014, 02:25:18 PM »
I have an inflamed underarm lymph node.
Do you know if it's linked or it is just the deodorant?

Andy451

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Re: Myoclonus
« Reply #7 on: September 27, 2014, 02:46:50 PM »
I have an inflamed underarm lymph node.
Do you know if it's linked or it is just the deodorant?

I don't think POIS causes lymph node inflammation but ask some of the other guys... If not you should go to the doctor for lymph node inflammation and see what he says. I wouldn't relate that to POIS when you go though, because they are not always receptive to that.
28 yo M- POIS for 16yrs (since age 12). Chronic POIS- always there

Tried desensitization for 1.5yrs & was unsuccessful (POIS worse at 1/1000)

 Exercising- (running/light weights/situps/yoga) Ice my perineum. Gluten-free. Supplements- limited success.Meds- Oxcarbazepine/Buspar (past-Depakote10yrs)

demografx

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Re: Myoclonus
« Reply #8 on: September 27, 2014, 07:20:11 PM »

I would say that the reason POIS is not understood is because it is rare and medical science doesn't really understand as much as we give them credit for despite huge leaps in the last century. We will get there. It will most likely take time though.

We must persevere and remain hopeful.


Beautifully stated !
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Alessandro84

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Re: Myoclonus
« Reply #9 on: September 28, 2014, 03:48:57 AM »
I have an inflamed underarm lymph node.
Do you know if it's linked or it is just the deodorant?

I don't think POIS causes lymph node inflammation but ask some of the other guys... If not you should go to the doctor for lymph node inflammation and see what he says. I wouldn't relate that to POIS when you go though, because they are not always receptive to that.

Thanks.
I have already had an inflamed lymph node in the past, but I didn't link it with POIS. The lymph node returned normal in couple of days.