Author Topic: Official Desensitization plan Begins!  (Read 227339 times)

vetrofragile79

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Re: Official Desensitization plan Begins!
« Reply #360 on: October 31, 2013, 01:06:30 PM »
 Dr. Wendlinger desensitization is still running today? Why is he gone?

Vandemolen

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Re: Official Desensitization plan Begins!
« Reply #361 on: November 11, 2013, 06:25:18 PM »
Who is dr. Wendlinger? I don't know him.
POIS since 2000. Very bad since 2008. I knew that I have POIS since June 2010. Desensitization since March 2011. I stopped with desens in July 2016. I have 50% less POIS. And only 1 day of POIS. Purified CBD works for me, but I am allergic for CBD.

b_jim

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Re: Official Desensitization plan Begins!
« Reply #362 on: November 12, 2013, 02:34:45 AM »
Quote
He may be partly right, but FB...IT'S NOT AN ALLERGY!

Auto-immune MAYBE. Don't get confused!

Nobody knows, not even this guy. It's an opportunity to be in the public eye.

See his picture there on the big screen? WOW.

When you see the REAL research, I think you'll be impressed!

Yes, I remember you wrote a good post about this to explain the difference between auto-allergic and auto-immune. Then if  you refind this post, maybe you could make a "stricky topic".
Taurine = Anti-Pois

Egordon

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Re: Official Desensitization plan Begins!
« Reply #363 on: November 20, 2013, 12:19:07 PM »
Egordon,

Every type of desens in The Netherlands is 3 to 5 years. I am on desens 2,5 years. But I my treatment is a bit quicker than the first group. But the new patiens have a quicker treatment than me. I think my desens therapy is done about 1 to 1,5 years.

No I never heard about injections in 2 arms. But it went well. I hope that this will help.

In the papers of prof. dr. Waldinger you can read that 1 patient has 90 % improvement, but also a patient of I think 40 or 60 %. It's not the same for everybody. 70 % less symptoms is great. Let's hope that in the next months we both reach 90 %.
Good luck with your treatment.


Thanks for the tip Van! My doctor is now going to start giving me injections in both arms too; we'll see how it goes. We're also going to start using fresh semen, which we've avoided doing for almost 1.5 years.

I already feel great and am living life with pretty minimal symptoms, so hopefully these alterations will make things even better.
POIS since I was about 15. 1.75 years of desens and I'm now about 80% POIS free. Still working through best practices for maintaining my immunity and administering my injections with my doctor. Email me if you have tips or questions!

Egordon

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Re: Official Desensitization plan Begins!
« Reply #364 on: February 25, 2014, 06:18:25 PM »
Van,

Does your body have any more intense of a reaction to fresh semen? I'm at 1:1, receiving injections in both arms, and use of fresh samples has been a bit much for me to handle -- although it did seem to cause real improvement initially.

When increasing the amount or concentration of semen injected, i've often experienced POIS-like symptoms that have bled into the day after my injection. (I refer to these symptoms as POIS-like because they interfere with cognitive function but aren't accompanied by any of the pressure or sensations that I used to get  -- but have long since stopped getting -- from orgasm / pois. The cognitive dysfunction feels very intense and neurological though.) When I inject fresh semen (at the concentration as normal), however, these symptoms come on stronger and have lasted as long as 3 days. Although the fresher semen seems to cause a greater improvement, the decrease in quality of life was so great that I've decided to stop using fresh samples. I now keep the samples in my freezer for 3-4 days before going in for my shot, and have experienced a seismic improvement in how I feel day-to-day because of this. (Also this change to less fresh samples doesn't seem to have impacted the quality of my immunity much.)

Have you experienced anything similar?
POIS since I was about 15. 1.75 years of desens and I'm now about 80% POIS free. Still working through best practices for maintaining my immunity and administering my injections with my doctor. Email me if you have tips or questions!

Vandemolen

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Re: Official Desensitization plan Begins!
« Reply #365 on: March 11, 2014, 07:01:14 PM »
I never had an injection with frozen semen. So I don't know the difference.

I also have injections in both arms. And with a bigger part of semen. We stopped increasing because my UTI problems. My doctor thinks that the desens makes the UTI worse.
POIS since 2000. Very bad since 2008. I knew that I have POIS since June 2010. Desensitization since March 2011. I stopped with desens in July 2016. I have 50% less POIS. And only 1 day of POIS. Purified CBD works for me, but I am allergic for CBD.

demografx

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Re: Official Desensitization plan Begins!
« Reply #366 on: March 11, 2014, 11:16:15 PM »
Van, I'm glad that ur doctor is monitoring u.

Regards.
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

FloppyBanana

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Re: Official Desensitization plan Begins!
« Reply #367 on: March 14, 2014, 05:52:05 PM »
Hi Van,
What's UTI?
Thanks FloppyB
30 years of POIS. Mytelase after O with Iceman breathing technique.

demografx

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Re: Official Desensitization plan Begins!
« Reply #368 on: March 14, 2014, 10:37:49 PM »
Urinary Tract Infection
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Vandemolen

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Re: Official Desensitization plan Begins!
« Reply #369 on: March 15, 2014, 08:27:02 PM »
Thanks Demo.

Floppy, in my case I have prostate infection
POIS since 2000. Very bad since 2008. I knew that I have POIS since June 2010. Desensitization since March 2011. I stopped with desens in July 2016. I have 50% less POIS. And only 1 day of POIS. Purified CBD works for me, but I am allergic for CBD.

slugishdragonn

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Re: Official Desensitization plan Begins!
« Reply #370 on: March 19, 2014, 04:16:19 PM »
Even I seem to have Prostate Infection, and the UTI gets worse after ejaculation for a week.

@van
Do you feel light pain on erection/ stroking penis ? I do, but if I don't ejaculate for a couple of weeks, I don't have this pain for another 3-4 ejaculations.

I also feel pain in the lower back after ejaculation, the pain is although not acute, kinda sore lower back muscle.
In addition I suffer from PE.

How are you managing this ?

Thanks for any help or Ideas.


Slugishdragon
POIS since Puberty, Y2K. Chronic gingivitis, brain fog, UTI, PE.
Tested +ve with skin prick test.

Vandemolen

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Re: Official Desensitization plan Begins!
« Reply #371 on: April 22, 2014, 01:47:55 PM »
Yes I have these pains too.

I just found out that that one of the side effects of Xyzal (levocetirizine) is that it gets harder to urinate. The prostate becomes bigger after taking Xyzal. And in my case also after POIS. I used to use an extra dose of Xyzal when in POIS. I use almost everyday 1 pill. Now I want to stop.
POIS since 2000. Very bad since 2008. I knew that I have POIS since June 2010. Desensitization since March 2011. I stopped with desens in July 2016. I have 50% less POIS. And only 1 day of POIS. Purified CBD works for me, but I am allergic for CBD.

Vandemolen

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Re: Official Desensitization plan Begins!
« Reply #372 on: July 07, 2016, 06:37:10 PM »
Want to let you know that today I stopped with desens.  That's because of two reasons: 1. I had desens for 5 years. That's the normal period for desens. I could have gone on. But then the second reason: I will start with a purified CBD oil from Italy. The injections can have an effect on the oil.

I am stil at 70% less symptoms.
« Last Edit: July 07, 2016, 06:53:22 PM by Vandemolen »
POIS since 2000. Very bad since 2008. I knew that I have POIS since June 2010. Desensitization since March 2011. I stopped with desens in July 2016. I have 50% less POIS. And only 1 day of POIS. Purified CBD works for me, but I am allergic for CBD.

demografx

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Re: Official Desensitization plan Begins!
« Reply #373 on: July 08, 2016, 02:23:00 PM »
Thank you, Van, for reporting.
10 years of significant POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business

Liyyamurr

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Re: Official Desensitization plan Begins!
« Reply #374 on: December 16, 2016, 09:21:25 PM »
Hello, I'm just curious(Egordon/Vandemolen), how did you convince your doc or specialist to perform Densens? I was living in Savannah, GA and I brought Waldinger's papers to an allergy specialist. He said that he understood the protocol but due to ?ethical reasons" he could not perform the test on me in his practice. He referred me to two other allergist who said the same thing. So I'm at a dead end. Who are your doctor's? I would be willing to relicate. Thanks, Liyyam

Vandemolen

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Re: Official Desensitization plan Begins!
« Reply #375 on: November 07, 2017, 11:21:41 AM »
My doctor worked with dr. Waldinger. So I didn’t have to convince him. Maybe Egordon can anser how he did it. But there are other ways now. With the knowlodge I have today I would take purified cbd oil instead. But that’s not available in every country. And not legal in many countries.
Hello, I'm just curious(Egordon/Vandemolen), how did you convince your doc or specialist to perform Densens? I was living in Savannah, GA and I brought Waldinger's papers to an allergy specialist. He said that he understood the protocol but due to ?ethical reasons" he could not perform the test on me in his practice. He referred me to two other allergist who said the same thing. So I'm at a dead end. Who are your doctor's? I would be willing to relicate. Thanks, Liyyam
POIS since 2000. Very bad since 2008. I knew that I have POIS since June 2010. Desensitization since March 2011. I stopped with desens in July 2016. I have 50% less POIS. And only 1 day of POIS. Purified CBD works for me, but I am allergic for CBD.

Vandemolen

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Re: Official Desensitization plan Begins!
« Reply #376 on: November 18, 2017, 05:47:27 PM »
Want to let you know that today I stopped with desens.  That's because of two reasons: 1. I had desens for 5 years. That's the normal period for desens. I could have gone on. But then the second reason: I will start with a purified CBD oil from Italy. The injections can have an effect on the oil.

I am stil at 70% less symptoms.
It’s been more than a year that I stopped with desens. I hoped that my prostate problems would be less after a few months without desens, but it only get worse. I don’t know if there is a connetion, but my prostate stays imflated even after 3 weeks of antiobiotics and abstince. My main problem now is not POIS but prostate infections.
POIS since 2000. Very bad since 2008. I knew that I have POIS since June 2010. Desensitization since March 2011. I stopped with desens in July 2016. I have 50% less POIS. And only 1 day of POIS. Purified CBD works for me, but I am allergic for CBD.

Muon

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Re: Official Desensitization plan Begins!
« Reply #377 on: November 18, 2017, 07:27:11 PM »
I have gone through a 5 year long desensitization treatment at the same doctor as Vandemolen. This was quite beneficial for me, I don't recognize other symptoms aside from POIS getting worse from the treatment though (although my POTS symptoms got worse in the third year but stabilized 2 years after it while still in the treatment phase). Desenz is still the best thing against POIS for me personally.

Vandemolen, how do you know your prostate is infected? What test did you use? My second question: Did your prostate symptoms got worse while using the CBD oil?

Muon

Vandemolen

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Re: Official Desensitization plan Begins!
« Reply #378 on: November 18, 2017, 09:05:21 PM »
I have gone through a 5 year long desensitization treatment at the same doctor as Vandemolen. This was quite beneficial for me, I don't recognize other symptoms aside from POIS getting worse from the treatment though (although my POTS symptoms got worse in the third year but stabilized 2 years after it while still in the treatment phase). Desenz is still the best thing against POIS for me personally.

Vandemolen, how do you know your prostate is infected? What test did you use? My second question: Did your prostate symptoms got worse while using the CBD oil?

Muon
Yes desens was great for me too. 70% less POIS and only 1 day of POIS instead of 4.

Because of the purified cbd oil I had no POIS at all. But I only had this for a month. A few months later the purified cbd oil was availble again. But because I made a mistake and used too much cbd oil I got allergic for cbd oil.

I know my prostate is imflated because it’s a little bit swollen. And my esophagus, my throat and my nose gets dry. And I get overall malaise. My body gets cold and I have shivers.
POIS since 2000. Very bad since 2008. I knew that I have POIS since June 2010. Desensitization since March 2011. I stopped with desens in July 2016. I have 50% less POIS. And only 1 day of POIS. Purified CBD works for me, but I am allergic for CBD.

uhtred sonof

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Re: Official Desensitization plan Begins!
« Reply #379 on: June 06, 2018, 02:19:10 AM »
For those of us without the option to see an allergist, might it possible to enact a kind of desensitization through a controlled schedule of O's? I'm thinking about how people go on elimination diets then slowly reintroduce problem foods with great results.

I also know it's common for POIS sufferers to experience little to no symptoms with an O following a long period of abstinence. These folks might have a strong allergic component to their POIS.

The dose of allergen is high with ejaculation, so perhaps a long period of initial abstinence is required. One could experiment with the length of time required for an asymptomatic O. Abstinence lengths could be reduced carefully, ever so slightly -  while exponentially more healthy O's are reintroduced over time.

Before I knew what POIS was, and when it was really bad, I believe I may have unwittingly done this with some success. I self-diagnosed POIS as a DeltaFosB/dopamine downregulation issue for which the treatment is coincidentally similar, but not good enough. Treating it like a desens protocol would require a lot more care and meticulousness.

But I did go from having guaranteed, full blown, life ruining POIS for 4-5 days, to now a manageable POIS of a few hours-days with a crude abstinence protocol and some methods I picked up from this site.



« Last Edit: June 06, 2018, 02:51:15 AM by uhtred sonof »