Post Orgasmic Illness Syndrome (P.O.I.S.)
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« : March 25, 2011, 12:23:04 PM »

Welcome to POISCenter!
 



Here are some POIS resources which may be helpful to you:



"When an Orgasm Can Destroy Your Life" -- thanks to "Quantum" and other POISCenter FORUM Members!!
https://melmagazine.com/these-guys-will-do-anything-to-avoid-coming-279fc4eb1a8b?source=linkShare-898c3474bb43-1478806423


Click here to see Mat780's excellent YouTube POIS Channel.   Mat's YouTube videos include (1) our great new April 12 POIS TV Documentary. A must-see. And (2) The Learning Channel documentary, featuring our forum member "Animus".

Click here to see The POIS reddit post.  Outsiders (non-POISers) spontaneously gifted NORD's POIS Research Grant $1,000+ from this reddit post. Thanks to "mellivora" and "CertainlyPOIS"!

Our POIS Forum - architectural genius: "Daveman" - for detailed subject-by-subject discussion.
http://www.POISCenter.com/forums/index.php

POIS thread, The Naked Science forum:
https://www.thenakedscientists.com/forum/index.php?PHPSESSID=ceeg2s1jtfvsl0ubekh6hugul0&topic=6576.20050

Our POIS Information Website, built by "mat780", is here:
http://sites.google.com/site/POISwebsite/

The POIS Information Website is home to the POIS Forum Compendium, written by "Pyropeach", and contains theories already discussed here and treatments that have both worked and failed.

Please see "B_Jim"'s POIS Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:
http://www.youtube.com/watch?v=UWBxAUC9k1g


Abstract links to early POIS Research Studies:

http://www.ncbi.nlm.nih.gov/pubmed/11995603

http://www.ncbi.nlm.nih.gov/pubmed/21241453

http://www.ncbi.nlm.nih.gov/pubmed/21241454

http://www.ncbi.nlm.nih.gov/pubmed/25630453

http://onlinelibrary.wiley.com/doi/10.1111/j.1743-6109.2010.01707.x/abstract

Poster Presentation: http://f1000research.com/posters/1758

http://casereports.bmj.com/content/2010/bcr.10.2009.2359.short?rss=1


New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse


To send a Private Message, click on messages link at the very top of this page. Then click "Send Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.



- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

In addition to serving our own informational interests, the resources listed above can be useful for you to show our credibility to the medical world - which often shows little understanding and is sometimes skeptical of our condition: POIS has scientific underpinnings and POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapeutic community. All of this information can greatly help you to fight the immediate reaction of some doctors: so just tell them, "IT'S NOT 'ALL IN YOUR HEAD'! "

Good article for those of you whose physicians tell you, "POIS is all in your head," :
http://psychcentral.com/blog/archives/2010/10/04/its-all-in-your-head-living-with-chronic-illness/




It can be very  helpful to you when dealing with medical professionals to point this out. Click to see

POIS' official listing, as recognized by the
National Institutes for Health (NIH), Office of Rare Diseases Research
:


And in Europe: Orphanet now lists POIS on their website. - Click here.

The Post Orgasmic Illness Syndrome (P.O.I.S.) Forum is listed in the organization database of the National Organization for Rare Disorders (NORD) -- http://poiscenter.com/forums/index.php.  The link for this, through their home page, is --
http://rarediseases.org/rare-disease-information/organizations/byID/3136/viewDetail.


POIS also appears in credible medical sources such as the Journal of Sexual Medicine (Dr. Waldinger's study), British Medical Journal (Dr. Selwyn Dexter's study), and wikipedia:
http://en.wikipedia.org/wiki/Postorgasmic_illness_syndrome

For over 5 years, our POIS forum has attracted over 200 POIS sufferers worldwide who have posted here, research on an additional 200 sufferers elsewhere on the internet, plus our pages have been read nearly 2,000,000 times. Not bad for a rare malady.

Show some of this to your doctor - with pride. Chances are, you know far more about POIS than s/he does. Don't be intimidated by fancy diplomas. It's almost impossible for any one doctor to know much about POIS before you walk into his/her office. Unfortunately, it's up to you to educate them. And if you happen to find yourself with a disagreeable "student"-doctor (you're the teacher), find another doctor. Quickly!

SEARCH THE NSF FORUM ARCHIVES WITH GOOGLE

We have an overwhelming amount of NSF data: more than 5 years' worth of posts (over  10,000 posts!) from 200+ Forum members, and an additional 200 POIS sufferers found elsewhere on the Internet by Member B_Jim.

In the Google search box, type
whatever-it-is-you're-interested-in-finding-out[space]POIS[space]site:http://thenakedscientists.com/

for example, I tried
nocturnal emission POIS site:http://thenakedscientists.com/

and 740 results came up for "nocturnal emission" within the Forum.

be careful with spaces (you can use them before the word "site") and no-spaces (everything after the word "site")

Google even provides you results with the Message# for each result. But Message #'s do change, so be patient and look for the approximate Message#.
« : July 15, 2017, 03:37:06 PM demografx »
Daveman
Administrator
Hero Member
*****
: 1636



« #1 : August 04, 2013, 08:22:46 AM »



Community guidelines

We created POISCenter so that everyone would have a safe place to discuss health and wellness. These guidelines are the things we expect all POISCenter members and visitors to do, and not to do.


Do's

Be nice, be supportive

POISCenter works because we support and care for one another. Be nice, and be supportive. Do your best to respect  differing points of view.

Take your time and be safe

Please take your time getting started with POISCenter. After signing up, check your privacy settings and make sure that you are comfortable with how your personal information is being shared. If anything is confusing to you, drop us a line. We're here to help. We strongly recommend you not use your real name or e-mail address as your screen name. Your screen name is public, which means anyone on the Internet can see it, and find it. If you want to change your
screen name, you can do so here. We also recommend you not post personally identifiable information like your full name, e-mail address or phone number in POISCenter. If you want to exchange this information with someone you feel comfortable with, do so in a private message.

Let us know if something is wrong

If you see a member doing something that is contrary to these guidelines or simply feels wrong to you, let us know. If your instinct says something is wrong, it may very well be. We never reveal who reported a problem to us. Every post and member profile has a link to report the item for review, and you can submit your report anonymously.

Take a deep breath

The Internet makes it easy to forget that we're talking to other human beings, and tomisunderstand one another. If a member says something that bothers you, take a deep breath and pause before replying. You're replying to another human. They may be having a bad day or may be upset. You may have misunderstood them, or they may not have expressed themselves clearly. You may simply not see eye-to-eye. POISCenter works because we respect one another.

It's rare that we need to shut down a discussion, but when we feel that a discussion is generating "more heat than light," we do.

Respect the privacy of others.

Please respect the privacy of members and their right to remain anonymous. Do not post personal information about others in POISCenter unless you are a family member or have been directed to do so by the member, or their family. This often comes up when a member is hospitalized or otherwise away from POISCenter for a time. We understand that you want to know how your friend is doing and share that information, but the member's privacy must be respected. In some cases, you may know an POISCenter member in the real world. Perhaps you were in treatment together, or attend events together. When conversing in public settings -- such as discussions and journal entries -- please avoid posting information that could be used to identify the person. For example, don't post the member's real  name, or names of their children, if they haven't made that information public themselves. When in doubt, err on the side of caution and leave those details out.

Finally, please do not re-post information about a member from another site, like Facebook, in POISCenter. The information may not have been intended for a wider audience.

Do not's

These are the things we must ask you not to do, for the safety of members and to keep POISCenter running smoothly.

Do not use POISCenter as a substitute for, or to give, medical advice

POISCenter is not a substitute for professional medical advice or treatment. Always consult your physician and do not rely on the information in this site when making decisions about your health. The content in POISCenter is for information only and is not reviewed by medical professionals. Similarly, do not use POISCenter to give medical advice. You may share information about your experiences, but do not play the role of health professional.

Three week Rule

If you have found a treatment which seems to work very well to alleviate your symptoms and are dying to tell everyone about it, respect our three week rule. If you think you have found a treatment, make a short announcement that you think you have found something very useful, but that you will respect the three week rule before describing the treatment to others. The reasons for this are many-fold: the success you perceived may have been circumstantial, give the procedure time to prove itself, the treatment may only work for you and only in certain conditions and we don't wish to raise false hopes with our members unnecessarily.

And remember, the previous rule always has supremacy over this one.

No commercial use, promotion or solicitation

You may not use POISCenter for any commercial purpose, marketing, promotion or solicitation. This includes promoting a company, product, service, person, treatment, therapy, Web site, support group, non-profit, charity or fundraiser; recruiting members to participate in market research, clinical studies, or surveys; soliciting donations for charitable causes or for yourself; presenting your resume or using POISCenter to seek employment; and soliciting malpractice clients. Commercial entities are not permitted to sign up or create profiles in POISCenter.

Do not include links other than Email in your profile. Permission must be granted explicitly for any links on the site, including the profile area.

Member found using POISCenter for these uses will be banned, reported to appropriate SPAM databases AND deleted.

Do not post inappropriate content

We work hard to keep POISCenter a safe and comfortable place for members. Content, including avatars, that is obscene or violent, refers to material that is obscene or violent, or contains hate speech or remarks that are disrespectful to any race, religion, gender, sexual orientation or individual is not permitted. This includes derogatory remarks, attacks, or threats against POISCenter or POISCenter partners. Content that is potentially libelous, violates an individual's privacy, or violates the legal rights of any individual or entity is not permitted. Links to other sites which contain such material are also not permitted. You may not post information which is false or misleading, or misrepresent yourself. A "reasonable person" standard applies and we reserve the right to remove any content or profile that we feel violates this guideline.

Do not interfere with the operation of the site

We reserve the right to remove posts and block access by individuals which interfere with the normal operation and use of the site, at our discretion. Examples include off-topic posting, bumping posts, posts that excessively advance a personal agenda or make it difficult for other members to be heard, creating multiple accounts or aliases, and abusing the friend or private message features.

No copyright infringement

If you find an article or other information online that you think will interest members, post a short description, with an explanation as to why you think it is important and include a link to the original document if possible. That will allow your fellow members to retrieve the source document. Do not post the entire item or significant portions of it. If we think a post violates someone's copyright, we will remove it.

No scraping or data harvesting

You may not scrape, harvest or otherwise collect information in bulk from POISCenter. You may not copy content from POISCenter for another site, or for any other purpose.

Don't use POISCenter to offer or exchange medication

No part of POISCenter may be used to facilitate the donation, exchange or receipt of medication, as it is against the law to do so. If you are interested in donating unused medication to help those in need, you'll need to determine how the laws of your country and locality govern such donations. In the US, many states have programs through which unused medication can be donated for distribution to those in need. Good starting points for learning about these programs are your state's Web site, your physician, and your pharmacist. You're welcome to share information about such programs here, but you may not use this site to engage in or facilitate the exchange of medication.

The moderators have the last word.

These rules are general guidelines that follow a "reasonable person" rule, but they are not the last word. Situations may arise and new rules may need to be born, or considerations for the site and it's direction may need to be adapted. The moderators will always have the last word in the resolution of conflicts, situations and problems.

« : February 14, 2015, 06:02:32 PM demografx »

WITHOUT RESEARCH THERE WILL BE NO CURE!
Sessions 5 to 9 days, mostly Flu-like, joints, digestion problems, light cognitive.
Niacin has changed my lif though, now 1 day MAX.
Somewhere in this interaction with Niacin is the answer!
demografx
Administrator
Hero Member
*****
: 3021



« #2 : September 25, 2016, 08:25:09 PM »


Welcome to POISCenter!






Here are some POIS resources which may be helpful to you:


For more details on our new POIS Research Grant, please see http://poiscenter.com/forums/index.php?topic=2462.msg20970#msg20970




"When an Orgasm Can Destroy Your Life" -- thanks to "Quantum" and other POISCenter FORUM Members!!
https://melmagazine.com/these-guys-will-do-anything-to-avoid-coming-279fc4eb1a8b?source=linkShare-898c3474bb43-1478806423


Click here to see Mat780's excellent YouTube POIS Channel.   Mat's YouTube videos include (1) our great new April 12 POIS TV Documentary. A must-see. And (2) The Learning Channel documentary, featuring our forum member "Animus".

Click here to see The POIS reddit post.  Outsiders (non-POISers) spontaneously gifted NORD's POIS Research Grant $1,000+ from this reddit post. Thanks to "mellivora" and "CertainlyPOIS"!

Our POIS Forum - architectural genius: "Daveman" - for detailed subject-by-subject discussion.
http://www.POISCenter.com/forums/index.php

POIS thread, The Naked Science forum:
https://www.thenakedscientists.com/forum/index.php?PHPSESSID=ceeg2s1jtfvsl0ubekh6hugul0&topic=6576.20050

Our POIS Information Website, built by "mat780", is here:
http://sites.google.com/site/POISwebsite/

The POIS Information Website is home to the POIS Forum Compendium, written by "Pyropeach", and contains theories already discussed here and treatments that have both worked and failed.

Please see "B_Jim"'s POIS Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:
http://www.youtube.com/watch?v=UWBxAUC9k1g

Here is the link to the free, full review article of Dr Waldinger from August, 2016:
http://tau.amegroups.com/article/view/11107/11778


Abstract links to early POIS Research Studies:

http://www.ncbi.nlm.nih.gov/pubmed/11995603

http://www.ncbi.nlm.nih.gov/pubmed/21241453

http://www.ncbi.nlm.nih.gov/pubmed/21241454

http://www.ncbi.nlm.nih.gov/pubmed/25630453

http://onlinelibrary.wiley.com/doi/10.1111/j.1743-6109.2010.01707.x/abstract

Poster Presentation: http://f1000research.com/posters/1758

http://casereports.bmj.com/content/2010/bcr.10.2009.2359.short?rss=1


New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse


To send a Private Message, click on messages link at the very top of this page (either "My Messages" or the # right after your name). Then click "Send Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.



- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

In addition to serving our own informational interests, the resources listed above can be useful for you to show our credibility to the medical world - which usually shows little understanding and is -- more often than not -- skeptical of our condition: POIS has scientific underpinnings and POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapeutic community. All of this information can greatly help you to fight the immediate reaction of some doctors: so just tell them, "IT'S NOT 'ALL IN YOUR HEAD'! "

Good article for those of you whose physicians tell you, "POIS is all in your head," :
http://psychcentral.com/blog/archives/2010/10/04/its-all-in-your-head-living-with-chronic-illness/




It can be very  helpful to you when dealing with medical professionals to point this out. Click to see

POIS' official listing, as recognized by the
National Institutes for Health (NIH), Office of Rare Diseases Research
:


And in Europe: Orphanet now lists POIS on their website. - Click here.

The Post Orgasmic Illness Syndrome (P.O.I.S.) Forum is listed in the organization database of the National Organization for Rare Disorders (NORD) -- http://poiscenter.com/forums/index.php.  The link for this, through their home page, is --
http://rarediseases.org/rare-disease-information/organizations/byID/3136/viewDetail.


POIS also appears in credible medical sources such as the Journal of Sexual Medicine (Dr. Waldinger's study), British Medical Journal (Dr. Selwyn Dexter's study), and wikipedia:
http://en.wikipedia.org/wiki/Postorgasmic_illness_syndrome

For over 5 years, our POIS forum has attracted over 500 POIS sufferers worldwide who have posted here, research on an additional 500 sufferers elsewhere on the internet, plus our pages have been read nearly 2,000,000 times. Not bad for a rare malady.

Show some of this to your doctor - with pride. Chances are, you know far more about POIS than s/he does. Don't be intimidated by fancy diplomas. It's almost impossible for any one doctor to know much about POIS before you walk into his/her office. Unfortunately, it's up to you to educate them. And if you happen to find yourself with a disagreeable "student"-doctor (you're the teacher), find another doctor. Quickly!

SEARCH THE NSF FORUM ARCHIVES WITH GOOGLE

We have an overwhelming amount of NSF data: more than 5 years' worth of posts (over  10,000 posts!) from 200+ Forum members, and an additional 200 POIS sufferers found elsewhere on the Internet by Member B_Jim.

In the Google search box, type
whatever-it-is-you're-interested-in-finding-out[space]POIS[space]site:http://thenakedscientists.com/

for example, I tried
nocturnal emission POIS site:http://thenakedscientists.com/

and 740 results came up for "nocturnal emission" within the Forum.

be careful with spaces (you can use them before the word "site") and no-spaces (everything after the word "site")

Google even provides you results with the Message# for each result. But Message #'s do change, so be patient and look for the approximate Message#.

Reminder: this link is excellent for reviewing
all recent posts, whether you've read them or not:

http://poiscenter.com/forums/index.php?action=recent
« : July 15, 2017, 04:24:27 PM demografx »

Usually have major POIS-reduction, treatment consisting of daily (365 days/year) testosterone patches.

TRT must be checked out carefully with your doctor due to fertility, cardiac and other risks associated with it.

40+ years of severe 4-days-POIS, married, raised a family, started/ran a business.
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