EURORDIS

[Spartak]

So sad to hear that reasearch with NORD fell apart

I found this site maybe someone who knows English very well can check is it worth maybe to contact them or something.
http://www.eurordis.org/get-involved

Beside that
I am curious can we somehow conntact some humanitarian/charity organisations and talk with them about some future reasrches?

Since my English is terrible I could only contact those in my country.

Best wishes and sorry because I am not more active,
Spartak

[COLM_2]

Hi Spartak,

Thank you for finding this.

I will be happy to look into this some more and to report back.

As we have both English and French speaking (with European presence also) among the forum admins & moderators, it is possible to evaluate what could be on offer through Eurodis European Rare Disease organisation.

Thanks again and back to you on this as soon as possible, could be a couple of weeks to assess it properly, and to interact with a couple of humans associated with the group.
A

Colm

[Spartak]

Hi Colm2,
thank you very much, I am glad you like it, maybe it can help us somehow in the future.
Best wishes
Spartak

[Sominaka]

Your information, I strongly agree.