Thanks very much for finding and for sharing that Portuguese article about the syndrome from BBC website Marcusq,
That is a pretty big deal IMO, to have the illness and the Rutgers research covered by as big an organisation as the BBC.
Have to confess having had this for over 40 years, it feels a bit emotional to see this getting some credible coverage.
I used Dr. Google translate to put it in English.
Not factually perfect, but it certainiy adds to credibility alongside other recent article.
The BBC article translated to English.
The rare post-orgasm syndrome that affects only men
....Under the 1st photo:
The difference in symptoms between patients complicates the search for a cure
For a group of men diagnosed with a rare syndrome experience, an orgasm cannot be linked to pleasure.
This occurs because the syndrome of post-orgasmic illness (AS, its acronym in English), a problem that affects men only.
Symptoms range from fatigue and fever to diarrhea and occur as a result of an orgasm.
The disease was identified in 2002 by Dutch scientist Marcel Waldinger, a neuropsychiatrist at the University of Utrecht in the Netherlands.
And yet, the doctor managed to find a little more than 200 men suffering from this syndrome.
But he adds that the disease may be more common than the numbers indicate.
Generally, many men do not talk about the problem because of the shame and confusion that cause the symptoms. Others even know they have the syndrome.
Causes?
Since its discovery, scientists have identified several possible causes of a possible allergy to their own semen to a neurobiological disorder.
Some patients face the disorder throughout adult life, called "Primary POIS" In other cases, nicknamed "AS Acquired", the disease develops over the years.
This led Waldinger to believe that the problem could have a psychological basis.
In 2016, it carried out a new study of 45 men suffering from the disease and analysis of the results led to new theories to explain the origin of POIS.
The researchers added to the list of causes an autoimmune reaction to seminal plasma. Scientists believe that this allergic reaction can be treated with regular injections of diluted semen.
This treatment is still experimental, and it was only administered in two patients.
Other heading under second picture.
Hundreds of men worldwide have been identified as patients suffering from the disease and she was recently recognized by the National Association of Rare Diseases
The latest Marcel Waldinger report also states that the syndrome could be linked to a dysfunction of the pituitary gland and also to testosterone deficiency.
Barry Komisaruk, scientist specializing in neuronal responses to sexual stimuli and director of the Biomedical Research Program at Rutgers University in Newark, United States, also started his own research.
In a theory developed by Komisaruk the cause of the disease is linked to the Vagus nerve, a cranial nerve that sends impulses to almost every organ.
Komisaruk says that in cases of men who suffer from the syndrome, this nerve could be stunted.
"Many of the symptoms that patients experience are mediated by the vagus nerve," he said.
Symptoms
Among the symptoms Waldinger identified in patients suffering from the disease is extreme tiredness, memory difficulties and problems of concentration.
About 85% of the Dutch medical patients suffer from it
They also suffer from weakness of the muscles, fever or extreme sweating, diarrhea, chills, mood changes, often irritability, incoherent speech, nasal congestion and burning eyes.
All symptoms appear after orgasm, seconds, minutes or a few hours after ejaculation.
To make matters worse, most of these symptoms can last between two and five days.
Difficult to treat.
Men who suffer from the syndrome of post-orgasmic illness participate in a forum to share their experiences, the Forum POIS Center, and talk about tricks to try to circumvent the symptoms.
Some believe that the syndrome had psychological causes.
But changes of symptoms of a patient to another makes the development of a single treatment even more difficult.
Patients have tried treatments based on vitamins and testosterone patches, plus the elimination of all dairy products from their diets.
Others, already in despair, take sedatives and antibiotics.
However the bad news is that, to date, the only measure that really seems to work is sexual abstinence.
And because researchers do not yet know the cause or exact causes of the problem, the development of an effective remedy is complicated.
But, as stated by many users of the Forum POIS Center, the important thing for now is to spread (awareness) of the disease further. With more people talking about the syndrome and knowing the disease, the greater the chances of finding a cure.
End of Article....
Regards,
Colm
